Re: more seizures!Ugghh!

[Guest guest]

How's his weight ? Poss a cal issue? You had to decrease cals I

think after weaning the lamictal because he was gaining some weight and

ketones were lowering? Maybe his metabolism is getting back on track again,

has settled, and he may need a tweak the other way now?

If all looks steady in that dept tho, I am pretty sure there are quite a

few archived posts about lamictal (and other meds) where a final 'hurrah' is

seen quite a few weeks after weaning. Because we ditched the last bit of

's lamictal when all the other stuff was hitting the fan with him,

can't say as I saw this in our case, too much other **** going on, but I

know others have experienced it.

----- Original Message -----

> Happy Mom's Day to all you mom's out there! Happy

> happy Day!

>

> OK - miss paranoia here - going on the 4th day of

> early morning seizures. This morning, we had to give

> Diastat b/c he was screaming bloody murder for

> 8 minutes in some kind of freaky seizure.

>

> Nearing the 6th wk. med free - trying to figure out

> where these seizures are coming from. Just wondering

> if PERHAPS metabolism is playing a role. He's not

> sleeping well - sometimes taking no nap at all and

> endless energy all day - sometimes taking 6 hour naps

> during the day. Not appearing to sleep well at night

> and early morning seizures. Could his metabolism be

> adjusting to life w/no meds? Or could this mean some

> kind of medication may be needed to help him sleep?

> Anticonvulsants/sleeping pills/ what?

>

> How long do I let this continue and what can I do

> about it? He's been having mod./large ketones all day

> recently.

>

> Any thoughts?

>

> As always your suggestions are greatly appreciated!

>

> (mom to - 2yrs. old- ketokid since

> 7/03 - med free since 3/27)