9 days seizure free, then boom

[Guest guest]

I introduced myself last week as a newcomer to this site, Stella

is 5 and has been on the diet for 2 weeks now, the first week we

ended up back in the hospital for some 'fine tuning', and then

she had 9 wonderful days with no seizures. it was a miracle to

see her eyes look at us with clarity, and to talk w/o slurring, she

was bouncing back quickly from 100+seizures a day so we put

locks on the cupboards and the fridge/freezer just in case.

Although she never asked for other food, we wanted to be extra

cautious. Sunday morning she woke me up having a huge T/C

seizure in her sleep, and the day continued in that fashion until

we gave her the diastat. Again this am, she had more T/C in her

sleep and a few myoclonics and absense seizures. Her speech

has completely gone, she sounds like she has a lisp or like you

are talking to a drunk person. I'm racking my brain thinking what

was new we gave her and there was nothing. I know not to

expect a complete miracle so soon, but she was doing sooo

well!!!

Just though I'd share with you all out there my frustrations

becasue I know you understand.

amanda

[Guest guest]

Are you still on any AED's? Sometimes the diet makes them work

differently. It could also be bad constipation which totally messes up

the diet. Otherwise it could be an adjustment needed in calories or

ratio. It could be a sickness coming on. It could be that fluid intake

needs adjusting. It can take weeks for things to settle down with some

of these things.

Bill

avs0708 wrote:

> I introduced myself last week as a newcomer to this site, Stella

> is 5 and has been on the diet for 2 weeks now, the first week we

> ended up back in the hospital for some 'fine tuning', and then

> she had 9 wonderful days with no seizures. it was a miracle to

> see her eyes look at us with clarity, and to talk w/o slurring, she

> was bouncing back quickly from 100+seizures a day so we put

> locks on the cupboards and the fridge/freezer just in case.

> Although she never asked for other food, we wanted to be extra

> cautious. Sunday morning she woke me up having a huge T/C

> seizure in her sleep, and the day continued in that fashion until

> we gave her the diastat. Again this am, she had more T/C in her

> sleep and a few myoclonics and absense seizures. Her speech

> has completely gone, she sounds like she has a lisp or like you

> are talking to a drunk person. I'm racking my brain thinking what

> was new we gave her and there was nothing. I know not to

> expect a complete miracle so soon, but she was doing sooo

> well!!!

> Just though I'd share with you all out there my frustrations

> becasue I know you understand.

> amanda

>

>

>

>

[Guest guest]

Are you still on any AED's? Sometimes the diet makes them work

differently. It could also be bad constipation which totally messes up

the diet. Otherwise it could be an adjustment needed in calories or

ratio. It could be a sickness coming on. It could be that fluid intake

needs adjusting. It can take weeks for things to settle down with some

of these things.

Bill

avs0708 wrote:

> I introduced myself last week as a newcomer to this site, Stella

> is 5 and has been on the diet for 2 weeks now, the first week we

> ended up back in the hospital for some 'fine tuning', and then

> she had 9 wonderful days with no seizures. it was a miracle to

> see her eyes look at us with clarity, and to talk w/o slurring, she

> was bouncing back quickly from 100+seizures a day so we put

> locks on the cupboards and the fridge/freezer just in case.

> Although she never asked for other food, we wanted to be extra

> cautious. Sunday morning she woke me up having a huge T/C

> seizure in her sleep, and the day continued in that fashion until

> we gave her the diastat. Again this am, she had more T/C in her

> sleep and a few myoclonics and absense seizures. Her speech

> has completely gone, she sounds like she has a lisp or like you

> are talking to a drunk person. I'm racking my brain thinking what

> was new we gave her and there was nothing. I know not to

> expect a complete miracle so soon, but she was doing sooo

> well!!!

> Just though I'd share with you all out there my frustrations

> becasue I know you understand.

> amanda

>

>

>

>

[Guest guest]

Are you still on any AED's? Sometimes the diet makes them work

differently. It could also be bad constipation which totally messes up

the diet. Otherwise it could be an adjustment needed in calories or

ratio. It could be a sickness coming on. It could be that fluid intake

needs adjusting. It can take weeks for things to settle down with some

of these things.

Bill

avs0708 wrote:

> I introduced myself last week as a newcomer to this site, Stella

> is 5 and has been on the diet for 2 weeks now, the first week we

> ended up back in the hospital for some 'fine tuning', and then

> she had 9 wonderful days with no seizures. it was a miracle to

> see her eyes look at us with clarity, and to talk w/o slurring, she

> was bouncing back quickly from 100+seizures a day so we put

> locks on the cupboards and the fridge/freezer just in case.

> Although she never asked for other food, we wanted to be extra

> cautious. Sunday morning she woke me up having a huge T/C

> seizure in her sleep, and the day continued in that fashion until

> we gave her the diastat. Again this am, she had more T/C in her

> sleep and a few myoclonics and absense seizures. Her speech

> has completely gone, she sounds like she has a lisp or like you

> are talking to a drunk person. I'm racking my brain thinking what

> was new we gave her and there was nothing. I know not to

> expect a complete miracle so soon, but she was doing sooo

> well!!!

> Just though I'd share with you all out there my frustrations

> becasue I know you understand.

> amanda

>

>

>

>