RE: Re: Transplant questions

[Guest guest]

-----Original Message-----dawndeco

SO my question is this... would you rather go through the process

of being listed while your health is fairly good, and build a firm foundation

with your transplant team, or wait until your health is not at it's most optimal?

A lot of GI & Hep Dr’s

send patients to tx centers for their 1st evaluation, to “get

a foot in the door”, or “to put patients into the tx system” knowing

full well, the centers won’t actually list until much later, when the

MELD scores are higher. I *think* with an early evaluation “building

a firm foundation” with the tx team, probably won’t happen (in most

cases), because frankly, tx doctors focus on needy patients (listed & close

to transplant) & leave team building to the patient’s GI & Hep

doctors. Every hospital is different, of course, smaller hospitals or new liver

programs would do things differently & probably list patients much earlier.

-----Original Message-----jasonsea

Although I know not everyone will agree with me we have had this discussion

before about fairness of MELD for PSC patients. I believe this to be more

urban myth than a conclusion based on fact.

IMHO (and Tim R)

are 100% right. When talking with other

people who have a liver disease, you’d be surprised how many people with

Hep C think MELD is unfair to them!

I also chatted with someone who has NASH and she feels the same way.

Barb in Texas