Re: Introduction! - Amy/Jake

[Guest guest]

Hi Amy and welcome

How is he doing now, has the gagging/legarthy etc eased off a bit? Did he

actually start the diet with any meds on board, or did you wean both the

pheno and tegretol?

Hope things are starting to settle down a bit, look forward to hearing how

he progresses,

Hill in NZ

PS - I also have a premie, but she is not my keto-kid, we were very

fortunate that she did not have any complications from her early birth

(, born11 weeks early - now 10 yrs old). Oh, I also have a Jake too

(actually a but most call him Jake, 4 yrs old), but he isn't my

keto-kiddie either..., my 7 yr old has that claim to fame, been on the

diet since Sep 01.

----- Original Message -----

> Hi!

> My name is Amy and my 20 month old son, Jake, started the keto diet

> this week! We are excited, nervous and scared and I'm hoping to get

> lots of good information from this site. I know one Mom already (hi

> !) and look forward to getting to know other parents - maybe

> even those who started the diet with us at Hopkins this week!! Jake

> was born 8 weeks premature and had multiple complications, which

> resulted in severe developmental delay, hypothyroidism, vision

> delays, hearing loss and, of course, seizures. He spent the first

> year of his life on phenobarbitol and tegretol and we became

> interested in the diet after we started weaning the pheno and

> noticed the difference in his alertness and development. He has a g-

> tube and that has actually made starting the diet easier for us. He

> is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of

> weeks, we will try introducing some meals in place of the formula

> because he did eat by mouth quite a bit before starting keto. The

> first couple of days have been rough. Jake has been lethargic and

> was doing quite a bit of gagging and dry heaving after each

> feeding. He has a nissen, a surgical procedure which prevents him

> from vomiting, otherwise I think we would have lost most of the

> formula.

>

> I will end this for now, but wanted to say hello and I am very

> excited about getting to know you all!

>

> Take care,

> Amy, mom to Jake

[Guest guest]

Hi Amy and welcome

How is he doing now, has the gagging/legarthy etc eased off a bit? Did he

actually start the diet with any meds on board, or did you wean both the

pheno and tegretol?

Hope things are starting to settle down a bit, look forward to hearing how

he progresses,

Hill in NZ

PS - I also have a premie, but she is not my keto-kid, we were very

fortunate that she did not have any complications from her early birth

(, born11 weeks early - now 10 yrs old). Oh, I also have a Jake too

(actually a but most call him Jake, 4 yrs old), but he isn't my

keto-kiddie either..., my 7 yr old has that claim to fame, been on the

diet since Sep 01.

----- Original Message -----

> Hi!

> My name is Amy and my 20 month old son, Jake, started the keto diet

> this week! We are excited, nervous and scared and I'm hoping to get

> lots of good information from this site. I know one Mom already (hi

> !) and look forward to getting to know other parents - maybe

> even those who started the diet with us at Hopkins this week!! Jake

> was born 8 weeks premature and had multiple complications, which

> resulted in severe developmental delay, hypothyroidism, vision

> delays, hearing loss and, of course, seizures. He spent the first

> year of his life on phenobarbitol and tegretol and we became

> interested in the diet after we started weaning the pheno and

> noticed the difference in his alertness and development. He has a g-

> tube and that has actually made starting the diet easier for us. He

> is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of

> weeks, we will try introducing some meals in place of the formula

> because he did eat by mouth quite a bit before starting keto. The

> first couple of days have been rough. Jake has been lethargic and

> was doing quite a bit of gagging and dry heaving after each

> feeding. He has a nissen, a surgical procedure which prevents him

> from vomiting, otherwise I think we would have lost most of the

> formula.

>

> I will end this for now, but wanted to say hello and I am very

> excited about getting to know you all!

>

> Take care,

> Amy, mom to Jake

[Guest guest]

Hi Amy and welcome

How is he doing now, has the gagging/legarthy etc eased off a bit? Did he

actually start the diet with any meds on board, or did you wean both the

pheno and tegretol?

Hope things are starting to settle down a bit, look forward to hearing how

he progresses,

Hill in NZ

PS - I also have a premie, but she is not my keto-kid, we were very

fortunate that she did not have any complications from her early birth

(, born11 weeks early - now 10 yrs old). Oh, I also have a Jake too

(actually a but most call him Jake, 4 yrs old), but he isn't my

keto-kiddie either..., my 7 yr old has that claim to fame, been on the

diet since Sep 01.

----- Original Message -----

> Hi!

> My name is Amy and my 20 month old son, Jake, started the keto diet

> this week! We are excited, nervous and scared and I'm hoping to get

> lots of good information from this site. I know one Mom already (hi

> !) and look forward to getting to know other parents - maybe

> even those who started the diet with us at Hopkins this week!! Jake

> was born 8 weeks premature and had multiple complications, which

> resulted in severe developmental delay, hypothyroidism, vision

> delays, hearing loss and, of course, seizures. He spent the first

> year of his life on phenobarbitol and tegretol and we became

> interested in the diet after we started weaning the pheno and

> noticed the difference in his alertness and development. He has a g-

> tube and that has actually made starting the diet easier for us. He

> is on a ratio of 3:1, 750ml of fluid, 800 calories. In a couple of

> weeks, we will try introducing some meals in place of the formula

> because he did eat by mouth quite a bit before starting keto. The

> first couple of days have been rough. Jake has been lethargic and

> was doing quite a bit of gagging and dry heaving after each

> feeding. He has a nissen, a surgical procedure which prevents him

> from vomiting, otherwise I think we would have lost most of the

> formula.

>

> I will end this for now, but wanted to say hello and I am very

> excited about getting to know you all!

>

> Take care,

> Amy, mom to Jake

[Guest guest]

-

Thanks for your message! The gagging and nausea have gone away and

the lethargy is much better. He was very active the last two days,

so we are happy about that. We weaned pheno and tegretol before

starting the diet. Jake is still on 250 mg of Keppra two times a

day. Looking forward to keeping you updated on Jake's progress. I'm

so glad to hear that your preemie is doing so well!!

Amy

> Hi Amy and welcome

> How is he doing now, has the gagging/legarthy etc eased off a

bit? Did he

> actually start the diet with any meds on board, or did you wean

both the

> pheno and tegretol?

> Hope things are starting to settle down a bit, look forward to

hearing how

> he progresses,

>

> Hill in NZ

>

> PS - I also have a premie, but she is not my keto-kid, we were

very

> fortunate that she did not have any complications from her early

birth

> (, born11 weeks early - now 10 yrs old). Oh, I also have a

Jake too

> (actually a but most call him Jake, 4 yrs old), but he isn't

my

> keto-kiddie either..., my 7 yr old has that claim to fame,

been on the

> diet since Sep 01.

>

> ----- Original Message -----

>

> > Hi!

> > My name is Amy and my 20 month old son, Jake, started the keto

diet

> > this week! We are excited, nervous and scared and I'm hoping

to get

> > lots of good information from this site. I know one Mom

already (hi

> > !) and look forward to getting to know other parents -

maybe

> > even those who started the diet with us at Hopkins this week!!

Jake

> > was born 8 weeks premature and had multiple complications, which

> > resulted in severe developmental delay, hypothyroidism, vision

> > delays, hearing loss and, of course, seizures. He spent the

first

> > year of his life on phenobarbitol and tegretol and we became

> > interested in the diet after we started weaning the pheno and

> > noticed the difference in his alertness and development. He

has a g-

> > tube and that has actually made starting the diet easier for

us. He

> > is on a ratio of 3:1, 750ml of fluid, 800 calories. In a

couple of

> > weeks, we will try introducing some meals in place of the

formula

> > because he did eat by mouth quite a bit before starting keto.

The

> > first couple of days have been rough. Jake has been lethargic

and

> > was doing quite a bit of gagging and dry heaving after each

> > feeding. He has a nissen, a surgical procedure which prevents

him

> > from vomiting, otherwise I think we would have lost most of the

> > formula.

> >

> > I will end this for now, but wanted to say hello and I am very

> > excited about getting to know you all!

> >

> > Take care,

> > Amy, mom to Jake