Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hello, I haven't posted for quite some time because my husband has been considered " cancer free " for a year and a half. That is no longer so. They found a large brain met last week which was removed on Friday. He is home with no deficits. They believe they got it all. It was encapsulated. He will have 2 1/2 weeks of radiation starting Sept. 17. My message to everyone is don't stop with CTs of the chest, thorax, & pelvis which we did. Make sure they are checking the head as well. His original tumor caused his CEA to rise to 448. His CEA with this tumor was 0.7. I don't know if the blood brain barrier had something to do with that or not. Hubby will now also have a bone scan and PET scan. I pray that these will not show any further growth anywhere else. All other CT scans have shown no growth at all. Does anyone have any experience with brain mets from CC? Donna M. Re: Re: Have you had a colonoscopy? If there are enough people in your family who have been diagnosed with Colon Cancer or the polyps then I think it's safe to assume you know it's hereditary. Your dr should be recommending a colonoscopy for everybody in your family. Thankfully I have a wonderful dr who knows me and my family history very well. He believes in early testing if there is a first degree relative who was diagnosed. I would keep after this dr to get your sons colonoscopies done early. Dianne flipper759@... wrote: Thank you I know that It's damned heredity but it was one of the things I had to get past to cope. The thing is that at least one of the boys has the gene. I do want to see what this doctor will say about a genetic test. He did say currently they are only available in larger cities in our case Pittsburgh or Cleveland. He didn't say what he'd recommend if the boys have the gene. My guess from his attitude is THEN he'd lower the colonoscopy at 30 for them and start them younger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Donna, I am so sorry to hear that your husband had a brain met; certainly, you two will be in my prayers. Sharon > Thank you > I know that It's damned heredity but it was one of the things I had to get > past to cope. The thing is that at least one of the boys has the gene. I do want > to see what this doctor will say about a genetic test. He did say currently > they are only available in larger cities in our case Pittsburgh or Cleveland. > > He didn't say what he'd recommend if the boys have the gene. My guess from > his attitude is THEN he'd lower the colonoscopy at 30 for them and start them > younger. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Donna, I am so sorry to hear that your husband had a brain met; certainly, you two will be in my prayers. Sharon > Thank you > I know that It's damned heredity but it was one of the things I had to get > past to cope. The thing is that at least one of the boys has the gene. I do want > to see what this doctor will say about a genetic test. He did say currently > they are only available in larger cities in our case Pittsburgh or Cleveland. > > He didn't say what he'd recommend if the boys have the gene. My guess from > his attitude is THEN he'd lower the colonoscopy at 30 for them and start them > younger. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 DONNA, I AM SO SORRY TO READ THIS... AS A CAREGIVER TO SOMEONE WHO WAS CANCER FREE FOR APPROX 7 MONTHS, I KNOW THAT THE SECOND DX IS HARDER TO TAKE THAN THE FIRST. ALTHOUGH I HAVE NO EXPERIENCE WITH THIS TYPE OF RECURRENCE, I JUST WANTED YOU TO KNOW THAT I CAN IDENTIFY WITH THE DEVASTATION THIS DX BRINGS WITH IT. ALSO, I WOULD LIKE TO ADD TO YOUR SUGGESTION FOR COMPLETE CT SCANS. PLEASE. GET A PET SCAN. ANYONE WHO IS READING THIS AND IS EITHER IN REMISSION OR IN NEED OF A COMPLETE PICTURE OF THEIR SITUATION. ERICA Donna wrote: Hello, I haven't posted for quite some time because my husband has been considered " cancer free " for a year and a half. That is no longer so. They found a large brain met last week which was removed on Friday. He is home with no deficits. They believe they got it all. It was encapsulated. He will have 2 1/2 weeks of radiation starting Sept. 17. My message to everyone is don't stop with CTs of the chest, thorax, & pelvis which we did. Make sure they are checking the head as well. His original tumor caused his CEA to rise to 448. His CEA with this tumor was 0.7. I don't know if the blood brain barrier had something to do with that or not. Hubby will now also have a bone scan and PET scan. I pray that these will not show any further growth anywhere else. All other CT scans have shown no growth at all. Does anyone have any experience with brain mets from CC? Donna M. Re: Re: Have you had a colonoscopy? If there are enough people in your family who have been diagnosed with Colon Cancer or the polyps then I think it's safe to assume you know it's hereditary. Your dr should be recommending a colonoscopy for everybody in your family. Thankfully I have a wonderful dr who knows me and my family history very well. He believes in early testing if there is a first degree relative who was diagnosed. I would keep after this dr to get your sons colonoscopies done early. Dianne flipper759@... wrote: Thank you I know that It's damned heredity but it was one of the things I had to get past to cope. The thing is that at least one of the boys has the gene. I do want to see what this doctor will say about a genetic test. He did say currently they are only available in larger cities in our case Pittsburgh or Cleveland. He didn't say what he'd recommend if the boys have the gene. My guess from his attitude is THEN he'd lower the colonoscopy at 30 for them and start them younger. Quote Link to comment Share on other sites More sharing options...
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