Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 - praying for you guys. Sorry the pharmacy has screwed up. I'd give them a BIG piece of my mind..... but I'd make sure the doctor's orders were for sodium potassium first. And then I would fuss at the nursing staff for NOT reading also. Hope your stay isn't too long. Kathy On Thu, 26 Feb 2004 02:48:22 -0000 " abigail49017 " writes: > simon is currently in the hospital fo the rotor virus (serious > stomach flu).. > > the pharmacy keeps sending down the wrong form of medication..simon > > is supposed to get tablet form, but he's receiving suspension. also > > the pharmacy sent " dextrose " base IV fluids instead of sodium > potassium. now his ketones are " minimal " .. i'm startin to notice > some seizure activity. this mistake could cost my son a few extra > days in the hospital.. > > this isnt the first time the pharmacy screwed up. > > i even gave them a sheet of all this meds!! > > why cant professional med. staff communicate between themselves..i > dont ask for alot.. > > thanks for listening... > > p.s. watch out for this virus..here is some symptoms/signs: > diarrhea/vomitting, not able to tolerate food or fluids, and > cramping > belly. this virus can our your child into the hospital very > quickly..its very contagious.. > > sarah (simon - 17 mos.; ketokid since July) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 , I'm so sorry.... and you are right that THEY should be able to get it right. Two weeks ago, our daughter had minor surgery on the outside of her ear. I took all our protocol from our keto team about IV fluids, NO glucose in any shape or form, etc. Luckily, I had a great talk with the anesthesiologist beforehand about the diet. He was very interested and asked a lot of questions. He's been sort of studying it " on the side " because he has a nephew who has uncontrolled seizures. I asked the OR nurse to bring the IV bag that they would start and put it on her bed so that it would be right there when needed. The anesth. gave me a funny look, but I explained that I was told by our neuro to look at everything that would be given to my daughter BEFORE it was given. He agreed... and the nurse brought in a bag of NSaline. In recovery, the nurse was going to give her some liquid Lortab for pain. I said, " no way " . She can swallow a pill and that's what she needs. I have no idea how much carb is in that stuff. Mind you, on a big fluorescent sticker on the cover of her chart it said " Ketogenic Diet--NO glucose or carbohydrate " She was arguing with me like crazy that it " couldn't " have any sugar because it tastes so bad. She continued to pull it up into an oral syringe so, I finally took the syringe out of her hand. The anesthesiologist was charting on the patient next to us, so she asked him if liquid Lortab had carbs. He said he didn't know, but he wouldn't be surprised. He said, " Just do what she says. She knows what she can and can't have. " WooHoo! Then is comes out that the nurse would have to call the surgeon to get the ok to switch to tablets.... oh, a little extra work for her, eh?? So the anesth. said, go ahead and give her 15mg. Toradol in her IV. Duh?? So he wrote the order for that. THEN she started in about the fact that the surgeon had written a script for liquid Lortab to have at home. I told her that was o.k.-- I would take care of getting that changed to tabs. Well... she informed me that I couldn't change a doctor's order. No.... but I can have the pharmacy call the doc and ask him to change it. The doc knows she's on the diet, too, he is just so used to giving kids liquid stuff. He doesn't remember who can and cannot swallow a pill. It all worked out just fine. Two days later, the same nurse called to see how things were going. She asked if I was giving her the Lortab LIQUID... so I had to grit my teeth and say... No, remember I got that switched. She was amazed that I worked that out. Then, finally, she started asking some intelligent questions about the diet and why no medicine with carbs... etc. The moral of this long story is that sometimes you just gotta hang tough with these medical people who assume you are clueless. And... to tell you that you aren't alone in the mistake making area... you just gotta watch 'em all the time. Rotavirus is definitely no fun. I hope Simon gets better quickly and that you can get his ketones back up where they belong quickly. Don't let them change an IV bag until you are there to check it out! ) Cammie > simon is currently in the hospital fo the rotor virus (serious > stomach flu).. > > the pharmacy keeps sending down the wrong form of medication..simon > is supposed to get tablet form, but he's receiving suspension. also > the pharmacy sent " dextrose " base IV fluids instead of sodium > potassium. now his ketones are " minimal " .. i'm startin to notice > some seizure activity. this mistake could cost my son a few extra > days in the hospital.. > > this isnt the first time the pharmacy screwed up. > > i even gave them a sheet of all this meds!! > > why cant professional med. staff communicate between themselves..i > dont ask for alot.. > > thanks for listening... > > p.s. watch out for this virus..here is some symptoms/signs: > diarrhea/vomitting, not able to tolerate food or fluids, and cramping > belly. this virus can our your child into the hospital very > quickly..its very contagious.. > > sarah (simon - 17 mos.; ketokid since July) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 , I'm so sorry.... and you are right that THEY should be able to get it right. Two weeks ago, our daughter had minor surgery on the outside of her ear. I took all our protocol from our keto team about IV fluids, NO glucose in any shape or form, etc. Luckily, I had a great talk with the anesthesiologist beforehand about the diet. He was very interested and asked a lot of questions. He's been sort of studying it " on the side " because he has a nephew who has uncontrolled seizures. I asked the OR nurse to bring the IV bag that they would start and put it on her bed so that it would be right there when needed. The anesth. gave me a funny look, but I explained that I was told by our neuro to look at everything that would be given to my daughter BEFORE it was given. He agreed... and the nurse brought in a bag of NSaline. In recovery, the nurse was going to give her some liquid Lortab for pain. I said, " no way " . She can swallow a pill and that's what she needs. I have no idea how much carb is in that stuff. Mind you, on a big fluorescent sticker on the cover of her chart it said " Ketogenic Diet--NO glucose or carbohydrate " She was arguing with me like crazy that it " couldn't " have any sugar because it tastes so bad. She continued to pull it up into an oral syringe so, I finally took the syringe out of her hand. The anesthesiologist was charting on the patient next to us, so she asked him if liquid Lortab had carbs. He said he didn't know, but he wouldn't be surprised. He said, " Just do what she says. She knows what she can and can't have. " WooHoo! Then is comes out that the nurse would have to call the surgeon to get the ok to switch to tablets.... oh, a little extra work for her, eh?? So the anesth. said, go ahead and give her 15mg. Toradol in her IV. Duh?? So he wrote the order for that. THEN she started in about the fact that the surgeon had written a script for liquid Lortab to have at home. I told her that was o.k.-- I would take care of getting that changed to tabs. Well... she informed me that I couldn't change a doctor's order. No.... but I can have the pharmacy call the doc and ask him to change it. The doc knows she's on the diet, too, he is just so used to giving kids liquid stuff. He doesn't remember who can and cannot swallow a pill. It all worked out just fine. Two days later, the same nurse called to see how things were going. She asked if I was giving her the Lortab LIQUID... so I had to grit my teeth and say... No, remember I got that switched. She was amazed that I worked that out. Then, finally, she started asking some intelligent questions about the diet and why no medicine with carbs... etc. The moral of this long story is that sometimes you just gotta hang tough with these medical people who assume you are clueless. And... to tell you that you aren't alone in the mistake making area... you just gotta watch 'em all the time. Rotavirus is definitely no fun. I hope Simon gets better quickly and that you can get his ketones back up where they belong quickly. Don't let them change an IV bag until you are there to check it out! ) Cammie > simon is currently in the hospital fo the rotor virus (serious > stomach flu).. > > the pharmacy keeps sending down the wrong form of medication..simon > is supposed to get tablet form, but he's receiving suspension. also > the pharmacy sent " dextrose " base IV fluids instead of sodium > potassium. now his ketones are " minimal " .. i'm startin to notice > some seizure activity. this mistake could cost my son a few extra > days in the hospital.. > > this isnt the first time the pharmacy screwed up. > > i even gave them a sheet of all this meds!! > > why cant professional med. staff communicate between themselves..i > dont ask for alot.. > > thanks for listening... > > p.s. watch out for this virus..here is some symptoms/signs: > diarrhea/vomitting, not able to tolerate food or fluids, and cramping > belly. this virus can our your child into the hospital very > quickly..its very contagious.. > > sarah (simon - 17 mos.; ketokid since July) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 , I'm so sorry.... and you are right that THEY should be able to get it right. Two weeks ago, our daughter had minor surgery on the outside of her ear. I took all our protocol from our keto team about IV fluids, NO glucose in any shape or form, etc. Luckily, I had a great talk with the anesthesiologist beforehand about the diet. He was very interested and asked a lot of questions. He's been sort of studying it " on the side " because he has a nephew who has uncontrolled seizures. I asked the OR nurse to bring the IV bag that they would start and put it on her bed so that it would be right there when needed. The anesth. gave me a funny look, but I explained that I was told by our neuro to look at everything that would be given to my daughter BEFORE it was given. He agreed... and the nurse brought in a bag of NSaline. In recovery, the nurse was going to give her some liquid Lortab for pain. I said, " no way " . She can swallow a pill and that's what she needs. I have no idea how much carb is in that stuff. Mind you, on a big fluorescent sticker on the cover of her chart it said " Ketogenic Diet--NO glucose or carbohydrate " She was arguing with me like crazy that it " couldn't " have any sugar because it tastes so bad. She continued to pull it up into an oral syringe so, I finally took the syringe out of her hand. The anesthesiologist was charting on the patient next to us, so she asked him if liquid Lortab had carbs. He said he didn't know, but he wouldn't be surprised. He said, " Just do what she says. She knows what she can and can't have. " WooHoo! Then is comes out that the nurse would have to call the surgeon to get the ok to switch to tablets.... oh, a little extra work for her, eh?? So the anesth. said, go ahead and give her 15mg. Toradol in her IV. Duh?? So he wrote the order for that. THEN she started in about the fact that the surgeon had written a script for liquid Lortab to have at home. I told her that was o.k.-- I would take care of getting that changed to tabs. Well... she informed me that I couldn't change a doctor's order. No.... but I can have the pharmacy call the doc and ask him to change it. The doc knows she's on the diet, too, he is just so used to giving kids liquid stuff. He doesn't remember who can and cannot swallow a pill. It all worked out just fine. Two days later, the same nurse called to see how things were going. She asked if I was giving her the Lortab LIQUID... so I had to grit my teeth and say... No, remember I got that switched. She was amazed that I worked that out. Then, finally, she started asking some intelligent questions about the diet and why no medicine with carbs... etc. The moral of this long story is that sometimes you just gotta hang tough with these medical people who assume you are clueless. And... to tell you that you aren't alone in the mistake making area... you just gotta watch 'em all the time. Rotavirus is definitely no fun. I hope Simon gets better quickly and that you can get his ketones back up where they belong quickly. Don't let them change an IV bag until you are there to check it out! ) Cammie > simon is currently in the hospital fo the rotor virus (serious > stomach flu).. > > the pharmacy keeps sending down the wrong form of medication..simon > is supposed to get tablet form, but he's receiving suspension. also > the pharmacy sent " dextrose " base IV fluids instead of sodium > potassium. now his ketones are " minimal " .. i'm startin to notice > some seizure activity. this mistake could cost my son a few extra > days in the hospital.. > > this isnt the first time the pharmacy screwed up. > > i even gave them a sheet of all this meds!! > > why cant professional med. staff communicate between themselves..i > dont ask for alot.. > > thanks for listening... > > p.s. watch out for this virus..here is some symptoms/signs: > diarrhea/vomitting, not able to tolerate food or fluids, and cramping > belly. this virus can our your child into the hospital very > quickly..its very contagious.. > > sarah (simon - 17 mos.; ketokid since July) Quote Link to comment Share on other sites More sharing options...
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