Re: does anyone else ever hear this?

[Guest guest]

Amber has always complained about pain in her legs.

Sissi

Sissi Garvey

Kids' Page

http://www.isoa.net/~nitetrax/original.htm

Boone's Art Page

http://www.isoa.net/~nitetrax/bart.htm

Dillon's Music Page

http://www.geocities.com/flaremusic

Please read and if you agree, sign petition:

www.geocities.com/stopleland

Re: does anyone else ever hear this?

> My son complains about his legs hurting when we are shopping alot! I

> just thought it was an excuse for male shopping avoidance, but

> now...maybe not? Leggs

[Guest guest]

I've

> never felt the curve on , but he has the misshapen rib cage and the

> uneven collar bones,

Jacquie,

He ALREADY has misshapen ribs? Have him bend over and touch his toes. Look

at his back. If there is a hump on one side, you better get it checked,

pronto. There are sometimes ways to prevent the progression if it's caught

early enough.

(exercise and/or a brace).

Scoliosis is VERY common in tall families. You would want to avoid that

surgery if at all possible. It is no fun.

Sissi

[Guest guest]

I've

> never felt the curve on , but he has the misshapen rib cage and the

> uneven collar bones,

Jacquie,

He ALREADY has misshapen ribs? Have him bend over and touch his toes. Look

at his back. If there is a hump on one side, you better get it checked,

pronto. There are sometimes ways to prevent the progression if it's caught

early enough.

(exercise and/or a brace).

Scoliosis is VERY common in tall families. You would want to avoid that

surgery if at all possible. It is no fun.

Sissi

[Guest guest]

> I've had it all my life. It's never changed, just stayed exactly like

that.

> i don't think it's scoliosis though...I think it's just a static birth

> defect. I remember hearing when I was pregnant that 85% of all babies

have

> some kind of birth defect - and feeling grateful that his was just mine.

> HA!

Whew! Good it's not the progressive form. Very good news!

I could not even begin to imagine putting an autistic child through that

horrible surgery.

Sissi

[Guest guest]

> > I've had it all my life. It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

> > I've had it all my life. It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

With the old surgery, the best result was a 50% correction. Amber

got a 75%

> correction.

> Here's a pic, she's bending over but this is about six months

after surgery:

> http://home.isoa.net/~nitetrax/mybabies.jpg

>

>

> Sissi

yea, i have the rod in my back too...but i did

have the cast, 3 weeks of traction (before the

surgery..ugh) and the milwaukee brace throughout

high school, until my senior year)...she never

needed the brace?? that's good...i HATED that

thing...Amber is gorgeous!!!

nancy

[Guest guest]

With the old surgery, the best result was a 50% correction. Amber

got a 75%

> correction.

> Here's a pic, she's bending over but this is about six months

after surgery:

> http://home.isoa.net/~nitetrax/mybabies.jpg

>

>

> Sissi

yea, i have the rod in my back too...but i did

have the cast, 3 weeks of traction (before the

surgery..ugh) and the milwaukee brace throughout

high school, until my senior year)...she never

needed the brace?? that's good...i HATED that

thing...Amber is gorgeous!!!

nancy

[Guest guest]

With the old surgery, the best result was a 50% correction. Amber

got a 75%

> correction.

> Here's a pic, she's bending over but this is about six months

after surgery:

> http://home.isoa.net/~nitetrax/mybabies.jpg

>

>

> Sissi

yea, i have the rod in my back too...but i did

have the cast, 3 weeks of traction (before the

surgery..ugh) and the milwaukee brace throughout

high school, until my senior year)...she never

needed the brace?? that's good...i HATED that

thing...Amber is gorgeous!!!

nancy

[Guest guest]

,

You'll be glad to know that most of those techniques are ancient history as

long as the patient is healing properly.

The rods are so strong that body casts are no longer needed and traction is

only a couple of days. Amber was back in school six weeks after surgery. And

her surgery was T-1 to L-9 AND they removed two vertebrae and rebuilt them

from hip bone.

When I say her surgeon walks on water -- I'm not exaggerating -- much.

He told us afterward that he used a new technique which he developed to

repair the vertebrae which had twisted and fused together.

With the old surgery, the best result was a 50% correction. Amber got a 75%

correction.

Here's a pic, she's bending over but this is about six months after surgery:

http://home.isoa.net/~nitetrax/mybabies.jpg

Sissi

Re: does anyone else ever hear this?

>

> > > I've had it all my life. It's never changed, just stayed

> exactly like

> > that.

> i don't think it's scoliosis though...

>

> > Whew! Good it's not the progressive form. Very good news!

> >

> > I could not even begin to imagine putting an autistic child

> through that

> > horrible surgery.

> >

> > Sissi

>

> I totally agree with this...im hoping jenna doesn't

> have it at all, since i have it..and had the surgery...

> she would NOT do well with any of that...jenna in traction?

> jenna in a body cast? jenna in a brace??? NOT

> oh, i hope not....

> nancy

>

>

>

>

>

>

>

[Guest guest]

,

You'll be glad to know that most of those techniques are ancient history as

long as the patient is healing properly.

The rods are so strong that body casts are no longer needed and traction is

only a couple of days. Amber was back in school six weeks after surgery. And

her surgery was T-1 to L-9 AND they removed two vertebrae and rebuilt them

from hip bone.

When I say her surgeon walks on water -- I'm not exaggerating -- much.

He told us afterward that he used a new technique which he developed to

repair the vertebrae which had twisted and fused together.

With the old surgery, the best result was a 50% correction. Amber got a 75%

correction.

Here's a pic, she's bending over but this is about six months after surgery:

http://home.isoa.net/~nitetrax/mybabies.jpg

Sissi

Re: does anyone else ever hear this?

>

> > > I've had it all my life. It's never changed, just stayed

> exactly like

> > that.

> i don't think it's scoliosis though...

>

> > Whew! Good it's not the progressive form. Very good news!

> >

> > I could not even begin to imagine putting an autistic child

> through that

> > horrible surgery.

> >

> > Sissi

>

> I totally agree with this...im hoping jenna doesn't

> have it at all, since i have it..and had the surgery...

> she would NOT do well with any of that...jenna in traction?

> jenna in a body cast? jenna in a brace??? NOT

> oh, i hope not....

> nancy

>

>

>

>

>

>

>

[Guest guest]

> Amber has always complained about pain in her legs.

>

Maybe it's got to do with our little genetic spine curvature! I've never

thought of that before!

The doctor who found it on me when I was 22 didn't give it a name, he just

said that the spine between my shoulder blades is 'slightly curved' and

that's why my one side has all those strange formations and whatnot. I've

never felt the curve on , but he has the misshapen rib cage and the

uneven collar bones, so I'm pretty sure he's got the curve too. So do my

mom and my cousin.

That would make a lot of sense.

Jacquie

[Guest guest]

> Amber has always complained about pain in her legs.

>

Maybe it's got to do with our little genetic spine curvature! I've never

thought of that before!

The doctor who found it on me when I was 22 didn't give it a name, he just

said that the spine between my shoulder blades is 'slightly curved' and

that's why my one side has all those strange formations and whatnot. I've

never felt the curve on , but he has the misshapen rib cage and the

uneven collar bones, so I'm pretty sure he's got the curve too. So do my

mom and my cousin.

That would make a lot of sense.

Jacquie

[Guest guest]

> Amber has always complained about pain in her legs.

>

Maybe it's got to do with our little genetic spine curvature! I've never

thought of that before!

The doctor who found it on me when I was 22 didn't give it a name, he just

said that the spine between my shoulder blades is 'slightly curved' and

that's why my one side has all those strange formations and whatnot. I've

never felt the curve on , but he has the misshapen rib cage and the

uneven collar bones, so I'm pretty sure he's got the curve too. So do my

mom and my cousin.

That would make a lot of sense.

Jacquie

[Guest guest]

> He ALREADY has misshapen ribs?

Since the day he was born. All of us have.

The ribcage doesn't come down in a clean arc the way normal ribs do. On one

side (always the left) the ribcage comes down normally to an inch or so past

the sternum, then sort of arcs up in a slanted " C " shape and around to the

back, where it ends at a normal angle that matches the other side.

I've had it all my life. It's never changed, just stayed exactly like that.

Have him bend over and touch his toes. Look

> at his back. If there is a hump on one side, you better get it checked,

> pronto.

I will do this. Thanks!

i don't think it's scoliosis though...I think it's just a static birth

defect. I remember hearing when I was pregnant that 85% of all babies have

some kind of birth defect - and feeling grateful that his was just mine.

HA!

Jacquie

[Guest guest]

> He ALREADY has misshapen ribs?

Since the day he was born. All of us have.

The ribcage doesn't come down in a clean arc the way normal ribs do. On one

side (always the left) the ribcage comes down normally to an inch or so past

the sternum, then sort of arcs up in a slanted " C " shape and around to the

back, where it ends at a normal angle that matches the other side.

I've had it all my life. It's never changed, just stayed exactly like that.

Have him bend over and touch his toes. Look

> at his back. If there is a hump on one side, you better get it checked,

> pronto.

I will do this. Thanks!

i don't think it's scoliosis though...I think it's just a static birth

defect. I remember hearing when I was pregnant that 85% of all babies have

some kind of birth defect - and feeling grateful that his was just mine.

HA!

Jacquie

[Guest guest]

Sissi,

I'll say it again. You're children are beautiful!

Sue

[Guest guest]

Sissi,

I'll say it again. You're children are beautiful!

Sue

[Guest guest]

Sissi,

I'll say it again. You're children are beautiful!

Sue

[Guest guest]

PLEASE unscribe me from this list! Every few months, I start to received

messages.....

wendymed@...

From: njm6262 To:

parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject:

Re: does anyone else ever hear this?

> > I've had it all my life.  It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

PLEASE unscribe me from this list! Every few months, I start to received

messages.....

wendymed@...

From: njm6262 To:

parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject:

Re: does anyone else ever hear this?

> > I've had it all my life.  It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

I had unscribed about a year ago, but every few months, I end up with, like,

200 messages from the group....cant figure it out!

From: njm6262  [mailto:

njm6262@...]To: parenting_autism@...: Wed, 08 Jan 2003

13:19:29 -0000Subject: Re: does anyone else ever hear

this?

> > I've had it all my life. It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

I had unscribed about a year ago, but every few months, I end up with, like,

200 messages from the group....cant figure it out!

From: njm6262  [mailto:

njm6262@...]To: parenting_autism@...: Wed, 08 Jan 2003

13:19:29 -0000Subject: Re: does anyone else ever hear

this?

> > I've had it all my life. It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

I had unscribed about a year ago, but every few months, I end up with, like,

200 messages from the group....cant figure it out!

From: njm6262  [mailto:

njm6262@...]To: parenting_autism@...: Wed, 08 Jan 2003

13:19:29 -0000Subject: Re: does anyone else ever hear

this?

> > I've had it all my life. It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy

[Guest guest]

That's weird. I thought it was kind of hard to join.

Sissi

Re: does anyone else ever hear

this?

> > I've had it all my life. It's never changed, just stayed

exactly like

> that.

i don't think it's scoliosis though...

> Whew! Good it's not the progressive form. Very good news!

>

> I could not even begin to imagine putting an autistic child

through that

> horrible surgery.

>

> Sissi

I totally agree with this...im hoping jenna doesn't

have it at all, since i have it..and had the surgery...

she would NOT do well with any of that...jenna in traction?

jenna in a body cast? jenna in a brace??? NOT

oh, i hope not....

nancy