Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Amber has always complained about pain in her legs. Sissi Sissi Garvey Kids' Page http://www.isoa.net/~nitetrax/original.htm Boone's Art Page http://www.isoa.net/~nitetrax/bart.htm Dillon's Music Page http://www.geocities.com/flaremusic Please read and if you agree, sign petition: www.geocities.com/stopleland Re: does anyone else ever hear this? > My son complains about his legs hurting when we are shopping alot! I > just thought it was an excuse for male shopping avoidance, but > now...maybe not? Leggs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I've > never felt the curve on , but he has the misshapen rib cage and the > uneven collar bones, Jacquie, He ALREADY has misshapen ribs? Have him bend over and touch his toes. Look at his back. If there is a hump on one side, you better get it checked, pronto. There are sometimes ways to prevent the progression if it's caught early enough. (exercise and/or a brace). Scoliosis is VERY common in tall families. You would want to avoid that surgery if at all possible. It is no fun. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I've > never felt the curve on , but he has the misshapen rib cage and the > uneven collar bones, Jacquie, He ALREADY has misshapen ribs? Have him bend over and touch his toes. Look at his back. If there is a hump on one side, you better get it checked, pronto. There are sometimes ways to prevent the progression if it's caught early enough. (exercise and/or a brace). Scoliosis is VERY common in tall families. You would want to avoid that surgery if at all possible. It is no fun. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 > I've had it all my life. It's never changed, just stayed exactly like that. > i don't think it's scoliosis though...I think it's just a static birth > defect. I remember hearing when I was pregnant that 85% of all babies have > some kind of birth defect - and feeling grateful that his was just mine. > HA! Whew! Good it's not the progressive form. Very good news! I could not even begin to imagine putting an autistic child through that horrible surgery. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 With the old surgery, the best result was a 50% correction. Amber got a 75% > correction. > Here's a pic, she's bending over but this is about six months after surgery: > http://home.isoa.net/~nitetrax/mybabies.jpg > > > Sissi yea, i have the rod in my back too...but i did have the cast, 3 weeks of traction (before the surgery..ugh) and the milwaukee brace throughout high school, until my senior year)...she never needed the brace?? that's good...i HATED that thing...Amber is gorgeous!!! nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 With the old surgery, the best result was a 50% correction. Amber got a 75% > correction. > Here's a pic, she's bending over but this is about six months after surgery: > http://home.isoa.net/~nitetrax/mybabies.jpg > > > Sissi yea, i have the rod in my back too...but i did have the cast, 3 weeks of traction (before the surgery..ugh) and the milwaukee brace throughout high school, until my senior year)...she never needed the brace?? that's good...i HATED that thing...Amber is gorgeous!!! nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 With the old surgery, the best result was a 50% correction. Amber got a 75% > correction. > Here's a pic, she's bending over but this is about six months after surgery: > http://home.isoa.net/~nitetrax/mybabies.jpg > > > Sissi yea, i have the rod in my back too...but i did have the cast, 3 weeks of traction (before the surgery..ugh) and the milwaukee brace throughout high school, until my senior year)...she never needed the brace?? that's good...i HATED that thing...Amber is gorgeous!!! nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 , You'll be glad to know that most of those techniques are ancient history as long as the patient is healing properly. The rods are so strong that body casts are no longer needed and traction is only a couple of days. Amber was back in school six weeks after surgery. And her surgery was T-1 to L-9 AND they removed two vertebrae and rebuilt them from hip bone. When I say her surgeon walks on water -- I'm not exaggerating -- much. He told us afterward that he used a new technique which he developed to repair the vertebrae which had twisted and fused together. With the old surgery, the best result was a 50% correction. Amber got a 75% correction. Here's a pic, she's bending over but this is about six months after surgery: http://home.isoa.net/~nitetrax/mybabies.jpg Sissi Re: does anyone else ever hear this? > > > > I've had it all my life. It's never changed, just stayed > exactly like > > that. > i don't think it's scoliosis though... > > > Whew! Good it's not the progressive form. Very good news! > > > > I could not even begin to imagine putting an autistic child > through that > > horrible surgery. > > > > Sissi > > I totally agree with this...im hoping jenna doesn't > have it at all, since i have it..and had the surgery... > she would NOT do well with any of that...jenna in traction? > jenna in a body cast? jenna in a brace??? NOT > oh, i hope not.... > nancy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 , You'll be glad to know that most of those techniques are ancient history as long as the patient is healing properly. The rods are so strong that body casts are no longer needed and traction is only a couple of days. Amber was back in school six weeks after surgery. And her surgery was T-1 to L-9 AND they removed two vertebrae and rebuilt them from hip bone. When I say her surgeon walks on water -- I'm not exaggerating -- much. He told us afterward that he used a new technique which he developed to repair the vertebrae which had twisted and fused together. With the old surgery, the best result was a 50% correction. Amber got a 75% correction. Here's a pic, she's bending over but this is about six months after surgery: http://home.isoa.net/~nitetrax/mybabies.jpg Sissi Re: does anyone else ever hear this? > > > > I've had it all my life. It's never changed, just stayed > exactly like > > that. > i don't think it's scoliosis though... > > > Whew! Good it's not the progressive form. Very good news! > > > > I could not even begin to imagine putting an autistic child > through that > > horrible surgery. > > > > Sissi > > I totally agree with this...im hoping jenna doesn't > have it at all, since i have it..and had the surgery... > she would NOT do well with any of that...jenna in traction? > jenna in a body cast? jenna in a brace??? NOT > oh, i hope not.... > nancy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > Amber has always complained about pain in her legs. > Maybe it's got to do with our little genetic spine curvature! I've never thought of that before! The doctor who found it on me when I was 22 didn't give it a name, he just said that the spine between my shoulder blades is 'slightly curved' and that's why my one side has all those strange formations and whatnot. I've never felt the curve on , but he has the misshapen rib cage and the uneven collar bones, so I'm pretty sure he's got the curve too. So do my mom and my cousin. That would make a lot of sense. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > Amber has always complained about pain in her legs. > Maybe it's got to do with our little genetic spine curvature! I've never thought of that before! The doctor who found it on me when I was 22 didn't give it a name, he just said that the spine between my shoulder blades is 'slightly curved' and that's why my one side has all those strange formations and whatnot. I've never felt the curve on , but he has the misshapen rib cage and the uneven collar bones, so I'm pretty sure he's got the curve too. So do my mom and my cousin. That would make a lot of sense. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > Amber has always complained about pain in her legs. > Maybe it's got to do with our little genetic spine curvature! I've never thought of that before! The doctor who found it on me when I was 22 didn't give it a name, he just said that the spine between my shoulder blades is 'slightly curved' and that's why my one side has all those strange formations and whatnot. I've never felt the curve on , but he has the misshapen rib cage and the uneven collar bones, so I'm pretty sure he's got the curve too. So do my mom and my cousin. That would make a lot of sense. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > He ALREADY has misshapen ribs? Since the day he was born. All of us have. The ribcage doesn't come down in a clean arc the way normal ribs do. On one side (always the left) the ribcage comes down normally to an inch or so past the sternum, then sort of arcs up in a slanted " C " shape and around to the back, where it ends at a normal angle that matches the other side. I've had it all my life. It's never changed, just stayed exactly like that. Have him bend over and touch his toes. Look > at his back. If there is a hump on one side, you better get it checked, > pronto. I will do this. Thanks! i don't think it's scoliosis though...I think it's just a static birth defect. I remember hearing when I was pregnant that 85% of all babies have some kind of birth defect - and feeling grateful that his was just mine. HA! Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 > He ALREADY has misshapen ribs? Since the day he was born. All of us have. The ribcage doesn't come down in a clean arc the way normal ribs do. On one side (always the left) the ribcage comes down normally to an inch or so past the sternum, then sort of arcs up in a slanted " C " shape and around to the back, where it ends at a normal angle that matches the other side. I've had it all my life. It's never changed, just stayed exactly like that. Have him bend over and touch his toes. Look > at his back. If there is a hump on one side, you better get it checked, > pronto. I will do this. Thanks! i don't think it's scoliosis though...I think it's just a static birth defect. I remember hearing when I was pregnant that 85% of all babies have some kind of birth defect - and feeling grateful that his was just mine. HA! Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Sissi, I'll say it again. You're children are beautiful! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Sissi, I'll say it again. You're children are beautiful! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Sissi, I'll say it again. You're children are beautiful! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 PLEASE unscribe me from this list! Every few months, I start to received messages..... wendymed@... From: njm6262 To: parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject: Re: does anyone else ever hear this? > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 PLEASE unscribe me from this list! Every few months, I start to received messages..... wendymed@... From: njm6262 To: parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject: Re: does anyone else ever hear this? > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 I had unscribed about a year ago, but every few months, I end up with, like, 200 messages from the group....cant figure it out! From: njm6262Â [mailto: njm6262@...]To: parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject: Re: does anyone else ever hear this? > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 I had unscribed about a year ago, but every few months, I end up with, like, 200 messages from the group....cant figure it out! From: njm6262Â [mailto: njm6262@...]To: parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject: Re: does anyone else ever hear this? > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 I had unscribed about a year ago, but every few months, I end up with, like, 200 messages from the group....cant figure it out! From: njm6262Â [mailto: njm6262@...]To: parenting_autism@...: Wed, 08 Jan 2003 13:19:29 -0000Subject: Re: does anyone else ever hear this? > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 That's weird. I thought it was kind of hard to join. Sissi Re: does anyone else ever hear this? > > I've had it all my life. It's never changed, just stayed exactly like > that. i don't think it's scoliosis though... > Whew! Good it's not the progressive form. Very good news! > > I could not even begin to imagine putting an autistic child through that > horrible surgery. > > Sissi I totally agree with this...im hoping jenna doesn't have it at all, since i have it..and had the surgery... she would NOT do well with any of that...jenna in traction? jenna in a body cast? jenna in a brace??? NOT oh, i hope not.... nancy Quote Link to comment Share on other sites More sharing options...
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