New to the group

[Guest guest]

Tony,

I really liked that " anyone drinking heavily will wake up in a tub of ice " .

I may have to borrow that line.

_____

* use of Yahoo! Groups is subject to the Yahoo! Terms of

<http://docs.yahoo.com/info/terms/> Service.

[Guest guest]

Tony,

I really liked that " anyone drinking heavily will wake up in a tub of ice " .

I may have to borrow that line.

_____

* use of Yahoo! Groups is subject to the Yahoo! Terms of

<http://docs.yahoo.com/info/terms/> Service.

[Guest guest]

Hi everyone,

I haven't written in awhile, because I've been so busy, or so tired, or so

something. My doctor put me on Altace a couple of weeks ago, in addition to

the Avapro. I was supposed to go OFF the clonidine if my blood pressure

leveled out with just the other two. Well, it hasn't. In fact, for about a

week, it's been 140's over 90's-high 90's. But, I was thinking, my husband

bought a big bunch of bananas home from the boy scout ranch last weekend,

and I've been eating one day. (Except for today.) My sodium intake has

stayed about the same. So . . . . . I was wondering if the increased

potassium could be responsible for the elevated blood pressure instead. Do

any of you have any experience with this?

Second question, sort of.

Some of you know I left my old job cause I hated it. I turned around the

next day and had another home health job. But the first weekI was really

overwhelmed, and so they decided to start slower. Even on seeing only 3-4

patients a day, I'm still so tired at the end of the day. I feel like I've

worked the entire day. And also, I feel like I'm in a huge fog. Like

everything I do, I do in slow motion. It seems like I can't

concentrate-things that once came easily to me, I'm just not " getting " any

more. Paperwork that should take me 30 minutes takes me and hr. WE had a

staff meeting last week, and everyone was talking about stuff, and it just

seemed like I couldn't follow. I'm not usually like that. I've had to tell

my supervisor that I'm sorry, but I'm just not up to full time work right

now. I thought maybe if I worked part time, I would have more energy to

spend at home. But it's not working out. It takes me ALL day to half-time

work. I f I was doing full-time work, I'd be buried right now, not to

mention that I would have a horrible reputation for being scatterbrained and

unreliable. Anyway, I think my friend, Pam, put it the best-it's like I'm

underwater. I can hear that people are talking, but I can't really make out

what they're saying. I don't know if that's just my response to all the

stress I've had in the past few months. Maybe I'm just grieving. I don't

know. Any psychologists out there, or maybe astute people-watchers or

people-studiers? Anyone else ever felt anything like this?

Lastly, myl lower back keeps hurting-the way it usually does when I'm about

to start my period. Only it isn't that-I just finished.Sorry I haven't

written anyone else back, I guess I'm still self-centered about all this

stuff. But I DO still fervently hope that Pierre gets his transplant very

soon. Thanks guys,

_____

From: LBusby

Sent: Wednesday, May 12, 2004 4:51 PM

To: iga-nephropathy

Subject: RE: Re: New to the group

Tony,

I really liked that " anyone drinking heavily will wake up in a tub of ice " .

I may have to borrow that line.

_____

* use of Yahoo! Groups is subject to the Yahoo! Terms of

<http://docs.yahoo.com/info/terms/> Service.

[Guest guest]

Hi everyone,

I haven't written in awhile, because I've been so busy, or so tired, or so

something. My doctor put me on Altace a couple of weeks ago, in addition to

the Avapro. I was supposed to go OFF the clonidine if my blood pressure

leveled out with just the other two. Well, it hasn't. In fact, for about a

week, it's been 140's over 90's-high 90's. But, I was thinking, my husband

bought a big bunch of bananas home from the boy scout ranch last weekend,

and I've been eating one day. (Except for today.) My sodium intake has

stayed about the same. So . . . . . I was wondering if the increased

potassium could be responsible for the elevated blood pressure instead. Do

any of you have any experience with this?

Second question, sort of.

Some of you know I left my old job cause I hated it. I turned around the

next day and had another home health job. But the first weekI was really

overwhelmed, and so they decided to start slower. Even on seeing only 3-4

patients a day, I'm still so tired at the end of the day. I feel like I've

worked the entire day. And also, I feel like I'm in a huge fog. Like

everything I do, I do in slow motion. It seems like I can't

concentrate-things that once came easily to me, I'm just not " getting " any

more. Paperwork that should take me 30 minutes takes me and hr. WE had a

staff meeting last week, and everyone was talking about stuff, and it just

seemed like I couldn't follow. I'm not usually like that. I've had to tell

my supervisor that I'm sorry, but I'm just not up to full time work right

now. I thought maybe if I worked part time, I would have more energy to

spend at home. But it's not working out. It takes me ALL day to half-time

work. I f I was doing full-time work, I'd be buried right now, not to

mention that I would have a horrible reputation for being scatterbrained and

unreliable. Anyway, I think my friend, Pam, put it the best-it's like I'm

underwater. I can hear that people are talking, but I can't really make out

what they're saying. I don't know if that's just my response to all the

stress I've had in the past few months. Maybe I'm just grieving. I don't

know. Any psychologists out there, or maybe astute people-watchers or

people-studiers? Anyone else ever felt anything like this?

Lastly, myl lower back keeps hurting-the way it usually does when I'm about

to start my period. Only it isn't that-I just finished.Sorry I haven't

written anyone else back, I guess I'm still self-centered about all this

stuff. But I DO still fervently hope that Pierre gets his transplant very

soon. Thanks guys,

_____

From: LBusby

Sent: Wednesday, May 12, 2004 4:51 PM

To: iga-nephropathy

Subject: RE: Re: New to the group

Tony,

I really liked that " anyone drinking heavily will wake up in a tub of ice " .

I may have to borrow that line.

_____

* use of Yahoo! Groups is subject to the Yahoo! Terms of

<http://docs.yahoo.com/info/terms/> Service.

[Guest guest]

Hi everyone,

I haven't written in awhile, because I've been so busy, or so tired, or so

something. My doctor put me on Altace a couple of weeks ago, in addition to

the Avapro. I was supposed to go OFF the clonidine if my blood pressure

leveled out with just the other two. Well, it hasn't. In fact, for about a

week, it's been 140's over 90's-high 90's. But, I was thinking, my husband

bought a big bunch of bananas home from the boy scout ranch last weekend,

and I've been eating one day. (Except for today.) My sodium intake has

stayed about the same. So . . . . . I was wondering if the increased

potassium could be responsible for the elevated blood pressure instead. Do

any of you have any experience with this?

Second question, sort of.

Some of you know I left my old job cause I hated it. I turned around the

next day and had another home health job. But the first weekI was really

overwhelmed, and so they decided to start slower. Even on seeing only 3-4

patients a day, I'm still so tired at the end of the day. I feel like I've

worked the entire day. And also, I feel like I'm in a huge fog. Like

everything I do, I do in slow motion. It seems like I can't

concentrate-things that once came easily to me, I'm just not " getting " any

more. Paperwork that should take me 30 minutes takes me and hr. WE had a

staff meeting last week, and everyone was talking about stuff, and it just

seemed like I couldn't follow. I'm not usually like that. I've had to tell

my supervisor that I'm sorry, but I'm just not up to full time work right

now. I thought maybe if I worked part time, I would have more energy to

spend at home. But it's not working out. It takes me ALL day to half-time

work. I f I was doing full-time work, I'd be buried right now, not to

mention that I would have a horrible reputation for being scatterbrained and

unreliable. Anyway, I think my friend, Pam, put it the best-it's like I'm

underwater. I can hear that people are talking, but I can't really make out

what they're saying. I don't know if that's just my response to all the

stress I've had in the past few months. Maybe I'm just grieving. I don't

know. Any psychologists out there, or maybe astute people-watchers or

people-studiers? Anyone else ever felt anything like this?

Lastly, myl lower back keeps hurting-the way it usually does when I'm about

to start my period. Only it isn't that-I just finished.Sorry I haven't

written anyone else back, I guess I'm still self-centered about all this

stuff. But I DO still fervently hope that Pierre gets his transplant very

soon. Thanks guys,

_____

From: LBusby

Sent: Wednesday, May 12, 2004 4:51 PM

To: iga-nephropathy

Subject: RE: Re: New to the group

Tony,

I really liked that " anyone drinking heavily will wake up in a tub of ice " .

I may have to borrow that line.

_____

* use of Yahoo! Groups is subject to the Yahoo! Terms of

<http://docs.yahoo.com/info/terms/> Service.

[Guest guest]

Hi .

Ok. I somehow received 's reply to this before I received the original

message. I already talked about potassium.

You know, I was on 4 BP meds at the same time a couple of years before

dialysis. Sometimes, that's just what it takes and there isn't much you can

do about it. If I were a doctor though, I would probably want one of those

to be a diuretic. You're fighting a losing battle with blood pressure pills

if you're not on a diuretic (thiazide if you have > 50% kidney function,

loop diuretic as you get below that). Maybe your doctor has his reasons, so

it might be something to ask. But, whenever you get a new pill, or an

increased dose, you have to give it a good couple of weeks at least to see

how your body responds, maybe even a month. The drugs have to reach what is

called a steady-state.

, if you're on Altace AND Avapro, both of these drugs potentially

increase your potassium level, so, I would be careful about eating too many

bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you

that, based on your lab results.

The foggy mind. My money would be on clonidine being the culprit. That's a

very common side effect of this drug.

Pierre

RE: Re: New to the group

>

>

>

> Tony,

>

>

>

> I really liked that " anyone drinking heavily will wake up in a tub of

ice " .

> I may have to borrow that line.

>

>

>

>

>

>

>

> _____

>

> * use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

>

[Guest guest]

Hi .

Ok. I somehow received 's reply to this before I received the original

message. I already talked about potassium.

You know, I was on 4 BP meds at the same time a couple of years before

dialysis. Sometimes, that's just what it takes and there isn't much you can

do about it. If I were a doctor though, I would probably want one of those

to be a diuretic. You're fighting a losing battle with blood pressure pills

if you're not on a diuretic (thiazide if you have > 50% kidney function,

loop diuretic as you get below that). Maybe your doctor has his reasons, so

it might be something to ask. But, whenever you get a new pill, or an

increased dose, you have to give it a good couple of weeks at least to see

how your body responds, maybe even a month. The drugs have to reach what is

called a steady-state.

, if you're on Altace AND Avapro, both of these drugs potentially

increase your potassium level, so, I would be careful about eating too many

bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you

that, based on your lab results.

The foggy mind. My money would be on clonidine being the culprit. That's a

very common side effect of this drug.

Pierre

RE: Re: New to the group

>

>

>

> Tony,

>

>

>

> I really liked that " anyone drinking heavily will wake up in a tub of

ice " .

> I may have to borrow that line.

>

>

>

>

>

>

>

> _____

>

> * use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

>

[Guest guest]

Hi .

Ok. I somehow received 's reply to this before I received the original

message. I already talked about potassium.

You know, I was on 4 BP meds at the same time a couple of years before

dialysis. Sometimes, that's just what it takes and there isn't much you can

do about it. If I were a doctor though, I would probably want one of those

to be a diuretic. You're fighting a losing battle with blood pressure pills

if you're not on a diuretic (thiazide if you have > 50% kidney function,

loop diuretic as you get below that). Maybe your doctor has his reasons, so

it might be something to ask. But, whenever you get a new pill, or an

increased dose, you have to give it a good couple of weeks at least to see

how your body responds, maybe even a month. The drugs have to reach what is

called a steady-state.

, if you're on Altace AND Avapro, both of these drugs potentially

increase your potassium level, so, I would be careful about eating too many

bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you

that, based on your lab results.

The foggy mind. My money would be on clonidine being the culprit. That's a

very common side effect of this drug.

Pierre

RE: Re: New to the group

>

>

>

> Tony,

>

>

>

> I really liked that " anyone drinking heavily will wake up in a tub of

ice " .

> I may have to borrow that line.

>

>

>

>

>

>

>

> _____

>

> * use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

>

[Guest guest]

Thanks for all your input, guys.

_____

From: Pierre L

Sent: Wednesday, May 12, 2004 9:06 PM

To: iga-nephropathy

Subject: Re: Re: New to the group

Hi .

Ok. I somehow received 's reply to this before I received the original

message. I already talked about potassium.

You know, I was on 4 BP meds at the same time a couple of years before

dialysis. Sometimes, that's just what it takes and there isn't much you can

do about it. If I were a doctor though, I would probably want one of those

to be a diuretic. You're fighting a losing battle with blood pressure pills

if you're not on a diuretic (thiazide if you have > 50% kidney function,

loop diuretic as you get below that). Maybe your doctor has his reasons, so

it might be something to ask. But, whenever you get a new pill, or an

increased dose, you have to give it a good couple of weeks at least to see

how your body responds, maybe even a month. The drugs have to reach what is

called a steady-state.

, if you're on Altace AND Avapro, both of these drugs potentially

increase your potassium level, so, I would be careful about eating too many

bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you

that, based on your lab results.

The foggy mind. My money would be on clonidine being the culprit. That's a

very common side effect of this drug.

Pierre

RE: Re: New to the group

>

>

>

> Tony,

>

>

>

> I really liked that " anyone drinking heavily will wake up in a tub of

ice " .

> I may have to borrow that line.

>

>

>

>

>

>

>

> _____

>

> * use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

>

[Guest guest]

Thanks for all your input, guys.

_____

From: Pierre L

Sent: Wednesday, May 12, 2004 9:06 PM

To: iga-nephropathy

Subject: Re: Re: New to the group

Hi .

Ok. I somehow received 's reply to this before I received the original

message. I already talked about potassium.

You know, I was on 4 BP meds at the same time a couple of years before

dialysis. Sometimes, that's just what it takes and there isn't much you can

do about it. If I were a doctor though, I would probably want one of those

to be a diuretic. You're fighting a losing battle with blood pressure pills

if you're not on a diuretic (thiazide if you have > 50% kidney function,

loop diuretic as you get below that). Maybe your doctor has his reasons, so

it might be something to ask. But, whenever you get a new pill, or an

increased dose, you have to give it a good couple of weeks at least to see

how your body responds, maybe even a month. The drugs have to reach what is

called a steady-state.

, if you're on Altace AND Avapro, both of these drugs potentially

increase your potassium level, so, I would be careful about eating too many

bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you

that, based on your lab results.

The foggy mind. My money would be on clonidine being the culprit. That's a

very common side effect of this drug.

Pierre

RE: Re: New to the group

>

>

>

> Tony,

>

>

>

> I really liked that " anyone drinking heavily will wake up in a tub of

ice " .

> I may have to borrow that line.

>

>

>

>

>

>

>

> _____

>

> * use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

>

[Guest guest]

Thanks for all your input, guys.

_____

From: Pierre L

Sent: Wednesday, May 12, 2004 9:06 PM

To: iga-nephropathy

Subject: Re: Re: New to the group

Hi .

Ok. I somehow received 's reply to this before I received the original

message. I already talked about potassium.

You know, I was on 4 BP meds at the same time a couple of years before

dialysis. Sometimes, that's just what it takes and there isn't much you can

do about it. If I were a doctor though, I would probably want one of those

to be a diuretic. You're fighting a losing battle with blood pressure pills

if you're not on a diuretic (thiazide if you have > 50% kidney function,

loop diuretic as you get below that). Maybe your doctor has his reasons, so

it might be something to ask. But, whenever you get a new pill, or an

increased dose, you have to give it a good couple of weeks at least to see

how your body responds, maybe even a month. The drugs have to reach what is

called a steady-state.

, if you're on Altace AND Avapro, both of these drugs potentially

increase your potassium level, so, I would be careful about eating too many

bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you

that, based on your lab results.

The foggy mind. My money would be on clonidine being the culprit. That's a

very common side effect of this drug.

Pierre

RE: Re: New to the group

>

>

>

> Tony,

>

>

>

> I really liked that " anyone drinking heavily will wake up in a tub of

ice " .

> I may have to borrow that line.

>

>

>

>

>

>

>

> _____

>

> * use of Yahoo! Groups is subject to the Yahoo! Terms of

> <http://docs.yahoo.com/info/terms/> Service.

>

>

>

>

[Guest guest]

Welcome to the group, Kristy.

We are the group that doesn't like to get new members, because it means they

have IgA nephropathy, but, we're glad you found us.

Pierre

new to the group

> Hi, everybody:

>

> I am new to the group. I am 25 yrs. old. I found out about 2 yrs.

> ago that I have IGA-Neph. To add to that, I have been battling

> chronic pyelonephritis since December. I am new with all of this, so

> any new info. is appreciated. Thanks to everyone - it has been a

> great help just to read these e-mails and know that there are other

> people that understands what you are going through.

>

> Kristy

>

>

[Guest guest]

Hi Kristy,

Welcome to the group. I am sorry you are battling IgAN and pyelonephritis.

I know it can feel overwhelming when you are trying to assimilate all this

information and come to an understanding of what it means in your life. You

don't mention how far advanced you are, but hopefully you are one of the

majority

who never do progress to end stage renal disease.

A great place to start is www.igan.ca, which is our sister site. I think you

will find most of your initial questions answered by reading through the

information presented there.

Please also feel free to ask any specific questions you may have.

Welcome again, and remember you are not alone in this.

[Guest guest]

Hi Kristy,

Welcome to the group. I am sorry you are battling IgAN and pyelonephritis.

I know it can feel overwhelming when you are trying to assimilate all this

information and come to an understanding of what it means in your life. You

don't mention how far advanced you are, but hopefully you are one of the

majority

who never do progress to end stage renal disease.

A great place to start is www.igan.ca, which is our sister site. I think you

will find most of your initial questions answered by reading through the

information presented there.

Please also feel free to ask any specific questions you may have.

Welcome again, and remember you are not alone in this.

[Guest guest]

Hi Kristy,

Welcome to the group. I am sorry you are battling IgAN and pyelonephritis.

I know it can feel overwhelming when you are trying to assimilate all this

information and come to an understanding of what it means in your life. You

don't mention how far advanced you are, but hopefully you are one of the

majority

who never do progress to end stage renal disease.

A great place to start is www.igan.ca, which is our sister site. I think you

will find most of your initial questions answered by reading through the

information presented there.

Please also feel free to ask any specific questions you may have.

Welcome again, and remember you are not alone in this.

[Guest guest]

Welcome to the group Kristy. I'm happy you found us, but sorry you had to.

I'm sure you will find everyone here to be very understanding and

forthcoming with answers to questions or concerns.

Welcome again,

Amy

new to the group

> Hi, everybody:

>

> I am new to the group. I am 25 yrs. old. I found out about 2 yrs.

> ago that I have IGA-Neph. To add to that, I have been battling

> chronic pyelonephritis since December. I am new with all of this, so

> any new info. is appreciated. Thanks to everyone - it has been a

> great help just to read these e-mails and know that there are other

> people that understands what you are going through.

>

> Kristy

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Welcome to the group Kristy. I'm happy you found us, but sorry you had to.

I'm sure you will find everyone here to be very understanding and

forthcoming with answers to questions or concerns.

Welcome again,

Amy

new to the group

> Hi, everybody:

>

> I am new to the group. I am 25 yrs. old. I found out about 2 yrs.

> ago that I have IGA-Neph. To add to that, I have been battling

> chronic pyelonephritis since December. I am new with all of this, so

> any new info. is appreciated. Thanks to everyone - it has been a

> great help just to read these e-mails and know that there are other

> people that understands what you are going through.

>

> Kristy

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Welcome to the group Kristy. I'm happy you found us, but sorry you had to.

I'm sure you will find everyone here to be very understanding and

forthcoming with answers to questions or concerns.

Welcome again,

Amy

new to the group

> Hi, everybody:

>

> I am new to the group. I am 25 yrs. old. I found out about 2 yrs.

> ago that I have IGA-Neph. To add to that, I have been battling

> chronic pyelonephritis since December. I am new with all of this, so

> any new info. is appreciated. Thanks to everyone - it has been a

> great help just to read these e-mails and know that there are other

> people that understands what you are going through.

>

> Kristy

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Hi and welcome to the group! Pierre has already answered your questions, but

I wanted to welcome you and echo Pierre's encouragement to read through

www.igan.ca which is our sister site.

One other thing I will add is that having IgAN does not mean you will end up

needing dialysis or a transplant. Only somewhere between 30-50% ever do reach

that point, and hopefully you will be one who beats those odds.

Congratulations on the new baby on the way.

In a message dated 6/16/2004 10:49:09 AM Pacific Daylight Time,

alwynlloyd@... writes:

> Hi I’m new to the group. I think this forum is marvellous and has taught me

> so much about my condition.

>

>

>

> I was diagnosed with IgA when I was 28 though obviously it has started some

> years before. Other than the high blood pressure I had no other symptoms, my

> serum creatinine was 133. I am now 35 and my creatinine has started to rise

> and is now 157. My question is when do you start developing symptoms of renal

> failure?

>

>

>

> As a husband and a father of an 18 month old child (with another on the way)

> I have moments of despair but this group does help me. I was also wondering

> how long it will be before I end up on dialysis, I have pretty much accepted

> that it is not a matter of if but when.

>

>

>

> Two other pieces of information may be of interest to the group. Firstly I

> am a celiac and have been on a gluten and diary free diet for about 4 years

> now. My neph doesn’t think there is a link and my creatinine has increased

> during this time, so a gluten free diet doesn’t seem to affect things.

>

>

>

> Secondly IgA seems genetic in my case as males in the last 3 generations of

> my family have suffered from kidney disease.

>

>

>

> I hope to learn a lot more from many of you. Many thanks.

[Guest guest]

Hi and welcome to the group! Pierre has already answered your questions, but

I wanted to welcome you and echo Pierre's encouragement to read through

www.igan.ca which is our sister site.

One other thing I will add is that having IgAN does not mean you will end up

needing dialysis or a transplant. Only somewhere between 30-50% ever do reach

that point, and hopefully you will be one who beats those odds.

Congratulations on the new baby on the way.

In a message dated 6/16/2004 10:49:09 AM Pacific Daylight Time,

alwynlloyd@... writes:

> Hi I’m new to the group. I think this forum is marvellous and has taught me

> so much about my condition.

>

>

>

> I was diagnosed with IgA when I was 28 though obviously it has started some

> years before. Other than the high blood pressure I had no other symptoms, my

> serum creatinine was 133. I am now 35 and my creatinine has started to rise

> and is now 157. My question is when do you start developing symptoms of renal

> failure?

>

>

>

> As a husband and a father of an 18 month old child (with another on the way)

> I have moments of despair but this group does help me. I was also wondering

> how long it will be before I end up on dialysis, I have pretty much accepted

> that it is not a matter of if but when.

>

>

>

> Two other pieces of information may be of interest to the group. Firstly I

> am a celiac and have been on a gluten and diary free diet for about 4 years

> now. My neph doesn’t think there is a link and my creatinine has increased

> during this time, so a gluten free diet doesn’t seem to affect things.

>

>

>

> Secondly IgA seems genetic in my case as males in the last 3 generations of

> my family have suffered from kidney disease.

>

>

>

> I hope to learn a lot more from many of you. Many thanks.

[Guest guest]

Hi ,

Actually, the more muscle mass you have, the larger you are, the higher

creatinine levels you seem to be able to tolerate. Us smaller people tend to

need

dialysis earlier than a larger person, but still remember that the majority

never do reach end stage renal failure.

In a message dated 6/16/2004 11:34:20 AM Pacific Daylight Time,

alwynlloyd@... writes:

> I am quite short ( 5 foot 6 inches) about 145 lbs - so is that a good thing

> when it comes to renal problems ie. will my kidneys have a bit less stress

> on them than say a larger person?

>

> .

>

[Guest guest]

Hi ,

Actually, the more muscle mass you have, the larger you are, the higher

creatinine levels you seem to be able to tolerate. Us smaller people tend to

need

dialysis earlier than a larger person, but still remember that the majority

never do reach end stage renal failure.

In a message dated 6/16/2004 11:34:20 AM Pacific Daylight Time,

alwynlloyd@... writes:

> I am quite short ( 5 foot 6 inches) about 145 lbs - so is that a good thing

> when it comes to renal problems ie. will my kidneys have a bit less stress

> on them than say a larger person?

>

> .

>

[Guest guest]

Hi ,

Actually, the more muscle mass you have, the larger you are, the higher

creatinine levels you seem to be able to tolerate. Us smaller people tend to

need

dialysis earlier than a larger person, but still remember that the majority

never do reach end stage renal failure.

In a message dated 6/16/2004 11:34:20 AM Pacific Daylight Time,

alwynlloyd@... writes:

> I am quite short ( 5 foot 6 inches) about 145 lbs - so is that a good thing

> when it comes to renal problems ie. will my kidneys have a bit less stress

> on them than say a larger person?

>

> .

>

[Guest guest]

Hi I’m new to the group. I think this forum is marvellous and has taught me so

much about my condition.

I was diagnosed with IgA when I was 28 though obviously it has started some

years before. Other than the high blood pressure I had no other symptoms, my

serum creatinine was 133. I am now 35 and my creatinine has started to rise and

is now 157. My question is when do you start developing symptoms of renal

failure?

As a husband and a father of an 18 month old child (with another on the way) I

have moments of despair but this group does help me. I was also wondering how

long it will be before I end up on dialysis, I have pretty much accepted that it

is not a matter of if but when.

Two other pieces of information may be of interest to the group. Firstly I am a

celiac and have been on a gluten and diary free diet for about 4 years now. My

neph doesn’t think there is a link and my creatinine has increased during this

time, so a gluten free diet doesn’t seem to affect things.

Secondly IgA seems genetic in my case as males in the last 3 generations of my

family have suffered from kidney disease.

I hope to learn a lot more from many of you. Many thanks.

[Guest guest]

Welcome to the group.

It's not that long ago that I was a 35 year old father, except my kids were

older than yours. Everyone's different in how fast IgAN progresses to

end-stage renal failure, if it does at all, but for comparison's sake, to

give you an idea...

I had what looked like fairly mild IgAN, diagnosed via biopsy in the summer

of 1993, but with micro blood and protein in urine long before that. At the

time of my biopsy, my serum creatinine was about the same as yours is now,

150 more or less. It took 9 years before I reached the point where I had to

start dialysis, in October of 2002. But, while I never had visible blood in

my urine, and I never had heavy proteinuria, I did have some pretty wicked,

hard to control high blood pressure. So, maybe if you can control that, you

might be able to go a long way. But don't despair. You've got a lot of life

to live before you ever get to dialysis or transplant, and a lot of life

even after that.

When do you start having symptoms. Well, in a way, you already have with the

high blood pressure. Other than that though, with the possible exception of

anemia which seems to vary greatly from one person to the next (for example,

I didn't have to be treated for it until months after I started dialysis), I

would say that some people might start some symptoms of chronic renal

insufficiency at 30% kidney function or thereabouts, and almost certainly

some between 20 and 30% kidney function. You are probably in the

neighbourhood of around 50% right now, maybe a bit more, depending on how

big you are and how much muscle you have. Look over the list of symptoms I

posted in the " Renal Insufficiency Notebook " section of www.igan.ca . You

may or may not have some of the early ones. Some people feel no symptoms at

all until they are pretty close to dialysis. Me, I started feeling some

around 30%, and, I suspect, excessive fatigue some time before that. During

the time between 20 and 30%, I had a pale grey complexion, and I tired very

easily. I also didn't have much appetite sometimes, and I tended to easily

feel nauseated.

Pierre

Re: New to the Group

Hi I'm new to the group. I think this forum is marvellous and has taught me

so much about my condition.

I was diagnosed with IgA when I was 28 though obviously it has started some

years before. Other than the high blood pressure I had no other symptoms, my

serum creatinine was 133. I am now 35 and my creatinine has started to rise

and is now 157. My question is when do you start developing symptoms of

renal failure?

As a husband and a father of an 18 month old child (with another on the way)

I have moments of despair but this group does help me. I was also wondering

how long it will be before I end up on dialysis, I have pretty much accepted

that it is not a matter of if but when.

Two other pieces of information may be of interest to the group. Firstly I

am a celiac and have been on a gluten and diary free diet for about 4 years

now. My neph doesn't think there is a link and my creatinine has increased

during this time, so a gluten free diet doesn't seem to affect things.

Secondly IgA seems genetic in my case as males in the last 3 generations of

my family have suffered from kidney disease.

I hope to learn a lot more from many of you. Many thanks.