Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Hi Dawn, First let me welcome you to the group! Glad you found us, but sorry you had reason to look for us. Your creatinine level is normal, and that is just fantastic. If your creatinine and BP are normal, you should be in great shape. One the pains, if it is the lower quadrant, left or right in your back, it could be the flank pain sometimes associated with IgAN, but if it is not in your lower back, it is probably something else. On the dark urine, is there a reddish or tea color? If so, it could be you are spilling small amounts of blood. If it is just dark, but not red or tea colored, it could be dark due to not being hydrated enough. Do you drink lots of water? With your levels, I would doubt you have any dietary restrictions, but I have to offer a disclaimer that none of us are doctors, and it is important not to take any of the posts as medical advise. You might ask your Nephrologist if your phosphorus and potassium levels are ok and if he advises any dietary restrictions. With normal kidney function indicated by your 0.8 creatinine level, I doubt you need to worry about any, but it doesn't hurt to check. No matter what your levels are though, it is important to have a Nephrologist who you feel is supporting you through the process, and that includes emotional as well as physical support. It is only natural to be concerned when you are diagnosed with any chronic illness. Just know that you have a kidney family here who will support you through this. We are here for you each step of the way Dawn! Welcome again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 You are exactly correct Amy. Only a routine urine for nitrates, or urine culture will catch an infection. Great post by the way :-) In a message dated 6/17/2004 4:02:52 PM Pacific Daylight Time, purr-fect@... writes: > I don't think the 24 hour urine testing will catch an infection...although > I > could be wrong on that...someone correct me if I am. A routine urinalysis > should catch white blood cells common in an infection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 I don't think pungent urine is a sign of IgAN, at least not if pungent means a bad odour. If it just means a stronger but normal urine smell, maybe, but a bad odour would more likely be due to infection of some kind. Pierre Re: new to the group > Hello Dawn, > > Welcome to the group. Your neph thinking it's no big deal really > amazes me. Maybe compared with his other patients it is no big deal > in the state your in now, but for you it is! > > What I find a bit strange though is that you have smelling urine. > It's something I at least do not recognize as common for Igan. Maybe > anyone else in the group has any experience? > > I'm sure you can find a lot of information and support in this group. > > > Doortje > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 I don't think pungent urine is a sign of IgAN, at least not if pungent means a bad odour. If it just means a stronger but normal urine smell, maybe, but a bad odour would more likely be due to infection of some kind. Pierre Re: new to the group > Hello Dawn, > > Welcome to the group. Your neph thinking it's no big deal really > amazes me. Maybe compared with his other patients it is no big deal > in the state your in now, but for you it is! > > What I find a bit strange though is that you have smelling urine. > It's something I at least do not recognize as common for Igan. Maybe > anyone else in the group has any experience? > > I'm sure you can find a lot of information and support in this group. > > > Doortje > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 I don't think pungent urine is a sign of IgAN, at least not if pungent means a bad odour. If it just means a stronger but normal urine smell, maybe, but a bad odour would more likely be due to infection of some kind. Pierre Re: new to the group > Hello Dawn, > > Welcome to the group. Your neph thinking it's no big deal really > amazes me. Maybe compared with his other patients it is no big deal > in the state your in now, but for you it is! > > What I find a bit strange though is that you have smelling urine. > It's something I at least do not recognize as common for Igan. Maybe > anyone else in the group has any experience? > > I'm sure you can find a lot of information and support in this group. > > > Doortje > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Hello and Thank you to everyone who responded. Amy, Sounds like we have exactly the same pain. No one knows what it is either?? Well that makes me feel a little better to know at lease I'm not alone in what I have been feeling. I have done a great number of 24 hour urines, I have never been diagnosed with bladder infection. I just was wondering what else it could be. Some one else said they didn't think is was a IGAN thing. Maybe it's not.. Is there a better diet to eat? I saw someone else asked that too. How do you know if your getting worse. I thought it was from the pain (flank pain) I was experiencing but my creatine level is lower today then two years ago. Are there other blood test they can take to make sure I'm okay? Dawn McReynolds Aurora Women's Center, Inc. Headquarters 19946 Harper Harper Woods, MI 48225 I Located in the Salvation Army Building 24140 Mound Warren, MI 48091 _____ From: Amy Griswold Sent: Thursday, June 17, 2004 2:06 PM To: iga-nephropathy Subject: Re: new to the group Hi Dawn, Welcome to the group I'm happy you found us. Your creatinine numbers look great! I wish mine were so low. ) Have you been checked for bladder infection? With the highly smelly urine that would be the first thing that pops into my head. Although when you have a lot of blood in the urine it can cause a smell like that without infection. The pains you are having on your right side...where are they located? Is it in your back near the base of your back. Or is it in the front area of your body around your hip/pelvic bone area? I know a few of us, me included, have had sharp stabbing pains on the right side in the hip joint/pelvic area that have been unexplained by our doctors to date. Mine come and go sometimes I go months without pain and then other months its a daily thing. If they are occurring in your back near the base of your back you could be experiencing flank pain, common with IgAN but not recognized as a symptom by most doctors. The pain doesn't come from the kidneys but from the surrounding area...perhaps due to irritation from the blood in the urine. Not much is known about flank pain except that many people have it in varying degrees and some never experience it. Welcome again and I hope we can all be a source of info and aid. Amy new to the group > > > > > Hello, > > > > My name is Dawn. I have been diagnosed with IGA for about two years now. > Only problem is, My Neph doesn't seem to think it's a big deal. I don't > know. My creatine level was 1.0 in 02 now it 0.8 which they say is normal. > My bp is also always normal. However, I get these pains on my right side all > the time. My urine is dark all the time and most of the time has a real > pungent smell. Can anyone tell me more about what I am feeling since my > doctor just says. Yeah, that's normal, par for the course (what does that > mean)? Thanks. It's awesome to have people to talk to about this. Everyone I > know has never even heard of it. Oh yeah. Does any one get pain through out > their body? I do and it's like a aching pain mostly in my arms and legs. > Thanks > > Dawn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 I don't think the 24 hour urine testing will catch an infection...although I could be wrong on that...someone correct me if I am. A routine urinalysis should catch white blood cells common in an infection. You might want to go to your regular doctor and ask them about the strong smelling urine. They may run some tests like a urine culture that your neph might not do. I know when I had a high amount of blood in my urine (3+) it had a distinct odor best described as a menstrual odor...you women know what I'm talking about. Do you know what your lab values are for blood in the urine? I ask because I wonder if it's dark colored due to blood or dark due to not drinking enough water. As far as knowing you are getting worse the only way to know is thru your lab tests. Fatigue can come and go, flank pain can come and go, feeling lousy can come and go...lab values tell all. I was feeling horrid when my creatinine was at 1.9...this past visit I was up to 2.4 and (with the exception of a infection in my jaw that was nearly healed) I was doing fine feeling better than when I was at 1.9. I think most of us go thru a period after diagnosis where we think everything is due to the IgAN and our kidneys getting worse is the thing that flashes thru our head with every ache and pain. It will get easier to live with as you learn more about the disease and learn about how your body deals with it. There are a few general symptoms as you get closer to renal failure that you can find on the website at http://www.igan.ca But remember not everyone with IgAN will reach end stage only 30-50% of us get to that point. You may live a long, happy, mostly healthy life with just the addition of a few pills, some routine lab tests and a few extra doctors visits a year. Stay positive! ) Amy RE: new to the group > Hello and Thank you to everyone who responded. > > > > Amy, > > Sounds like we have exactly the same pain. No one knows what it is either?? > Well that makes me feel a little better to know at lease I'm not alone in > what I have been feeling. I have done a great number of 24 hour urines, I > have never been diagnosed with bladder infection. I just was wondering what > else it could be. Some one else said they didn't think is was a IGAN thing. > Maybe it's not.. Is there a better diet to eat? I saw someone else asked > that too. How do you know if your getting worse. I thought it was from the > pain (flank pain) I was experiencing but my creatine level is lower today > then two years ago. Are there other blood test they can take to make sure > I'm okay? > > > > Dawn McReynolds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 I don't think the 24 hour urine testing will catch an infection...although I could be wrong on that...someone correct me if I am. A routine urinalysis should catch white blood cells common in an infection. You might want to go to your regular doctor and ask them about the strong smelling urine. They may run some tests like a urine culture that your neph might not do. I know when I had a high amount of blood in my urine (3+) it had a distinct odor best described as a menstrual odor...you women know what I'm talking about. Do you know what your lab values are for blood in the urine? I ask because I wonder if it's dark colored due to blood or dark due to not drinking enough water. As far as knowing you are getting worse the only way to know is thru your lab tests. Fatigue can come and go, flank pain can come and go, feeling lousy can come and go...lab values tell all. I was feeling horrid when my creatinine was at 1.9...this past visit I was up to 2.4 and (with the exception of a infection in my jaw that was nearly healed) I was doing fine feeling better than when I was at 1.9. I think most of us go thru a period after diagnosis where we think everything is due to the IgAN and our kidneys getting worse is the thing that flashes thru our head with every ache and pain. It will get easier to live with as you learn more about the disease and learn about how your body deals with it. There are a few general symptoms as you get closer to renal failure that you can find on the website at http://www.igan.ca But remember not everyone with IgAN will reach end stage only 30-50% of us get to that point. You may live a long, happy, mostly healthy life with just the addition of a few pills, some routine lab tests and a few extra doctors visits a year. Stay positive! ) Amy RE: new to the group > Hello and Thank you to everyone who responded. > > > > Amy, > > Sounds like we have exactly the same pain. No one knows what it is either?? > Well that makes me feel a little better to know at lease I'm not alone in > what I have been feeling. I have done a great number of 24 hour urines, I > have never been diagnosed with bladder infection. I just was wondering what > else it could be. Some one else said they didn't think is was a IGAN thing. > Maybe it's not.. Is there a better diet to eat? I saw someone else asked > that too. How do you know if your getting worse. I thought it was from the > pain (flank pain) I was experiencing but my creatine level is lower today > then two years ago. Are there other blood test they can take to make sure > I'm okay? > > > > Dawn McReynolds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Thanks for all the info Amy and : I will most definitely go to my and doc and talk about my urine. Ha ha ha sounds funny. I am going to drink more water. I know I don't drink enough. I'm over weight any chance IGA causes that???? Just kidding. 8>) Dawn McReynolds Aurora Women's Center, Inc. Headquarters 19946 Harper Harper Woods, MI 48225 Located in the Salvation Army Building 24140 Mound Warren, MI 48091 _____ From: Amy Griswold Sent: Thursday, June 17, 2004 7:02 PM To: iga-nephropathy Subject: Re: new to the group I don't think the 24 hour urine testing will catch an infection...although I could be wrong on that...someone correct me if I am. A routine urinalysis should catch white blood cells common in an infection. You might want to go to your regular doctor and ask them about the strong smelling urine. They may run some tests like a urine culture that your neph might not do. I know when I had a high amount of blood in my urine (3+) it had a distinct odor best described as a menstrual odor...you women know what I'm talking about. Do you know what your lab values are for blood in the urine? I ask because I wonder if it's dark colored due to blood or dark due to not drinking enough water. As far as knowing you are getting worse the only way to know is thru your lab tests. Fatigue can come and go, flank pain can come and go, feeling lousy can come and go...lab values tell all. I was feeling horrid when my creatinine was at 1.9...this past visit I was up to 2.4 and (with the exception of a infection in my jaw that was nearly healed) I was doing fine feeling better than when I was at 1.9. I think most of us go thru a period after diagnosis where we think everything is due to the IgAN and our kidneys getting worse is the thing that flashes thru our head with every ache and pain. It will get easier to live with as you learn more about the disease and learn about how your body deals with it. There are a few general symptoms as you get closer to renal failure that you can find on the website at http://www.igan.ca But remember not everyone with IgAN will reach end stage only 30-50% of us get to that point. You may live a long, happy, mostly healthy life with just the addition of a few pills, some routine lab tests and a few extra doctors visits a year. Stay positive! ) Amy RE: new to the group > Hello and Thank you to everyone who responded. > > > > Amy, > > Sounds like we have exactly the same pain. No one knows what it is either?? > Well that makes me feel a little better to know at lease I'm not alone in > what I have been feeling. I have done a great number of 24 hour urines, I > have never been diagnosed with bladder infection. I just was wondering what > else it could be. Some one else said they didn't think is was a IGAN thing. > Maybe it's not.. Is there a better diet to eat? I saw someone else asked > that too. How do you know if your getting worse. I thought it was from the > pain (flank pain) I was experiencing but my creatine level is lower today > then two years ago. Are there other blood test they can take to make sure > I'm okay? > > > > Dawn McReynolds > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 An infection can sometimes foul the urine collection and it has to be repeated. But they only check for what they are checking. Pierre Re: new to the group > I don't think the 24 hour urine testing will catch an infection...although I > could be wrong on that...someone correct me if I am. A routine urinalysis > should catch white blood cells common in an infection. You might want to go > to your regular doctor and ask them about the strong smelling urine. They > may run some tests like a urine culture that your neph might not do. I know > when I had a high amount of blood in my urine (3+) it had a distinct odor > best described as a menstrual odor...you women know what I'm talking about. > Do you know what your lab values are for blood in the urine? I ask because > I wonder if it's dark colored due to blood or dark due to not drinking > enough water. > As far as knowing you are getting worse the only way to know is thru > your lab tests. Fatigue can come and go, flank pain can come and go, > feeling lousy can come and go...lab values tell all. I was feeling horrid > when my creatinine was at 1.9...this past visit I was up to 2.4 and (with > the exception of a infection in my jaw that was nearly healed) I was doing > fine feeling better than when I was at 1.9. I think most of us go thru a > period after diagnosis where we think everything is due to the IgAN and our > kidneys getting worse is the thing that flashes thru our head with every > ache and pain. It will get easier to live with as you learn more about the > disease and learn about how your body deals with it. There are a few > general symptoms as you get closer to renal failure that you can find on the > website at http://www.igan.ca But remember not everyone with IgAN will > reach end stage only 30-50% of us get to that point. You may live a long, > happy, mostly healthy life with just the addition of a few pills, some > routine lab tests and a few extra doctors visits a year. Stay positive! ) > > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 An infection can sometimes foul the urine collection and it has to be repeated. But they only check for what they are checking. Pierre Re: new to the group > I don't think the 24 hour urine testing will catch an infection...although I > could be wrong on that...someone correct me if I am. A routine urinalysis > should catch white blood cells common in an infection. You might want to go > to your regular doctor and ask them about the strong smelling urine. They > may run some tests like a urine culture that your neph might not do. I know > when I had a high amount of blood in my urine (3+) it had a distinct odor > best described as a menstrual odor...you women know what I'm talking about. > Do you know what your lab values are for blood in the urine? I ask because > I wonder if it's dark colored due to blood or dark due to not drinking > enough water. > As far as knowing you are getting worse the only way to know is thru > your lab tests. Fatigue can come and go, flank pain can come and go, > feeling lousy can come and go...lab values tell all. I was feeling horrid > when my creatinine was at 1.9...this past visit I was up to 2.4 and (with > the exception of a infection in my jaw that was nearly healed) I was doing > fine feeling better than when I was at 1.9. I think most of us go thru a > period after diagnosis where we think everything is due to the IgAN and our > kidneys getting worse is the thing that flashes thru our head with every > ache and pain. It will get easier to live with as you learn more about the > disease and learn about how your body deals with it. There are a few > general symptoms as you get closer to renal failure that you can find on the > website at http://www.igan.ca But remember not everyone with IgAN will > reach end stage only 30-50% of us get to that point. You may live a long, > happy, mostly healthy life with just the addition of a few pills, some > routine lab tests and a few extra doctors visits a year. Stay positive! ) > > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 An infection can sometimes foul the urine collection and it has to be repeated. But they only check for what they are checking. Pierre Re: new to the group > I don't think the 24 hour urine testing will catch an infection...although I > could be wrong on that...someone correct me if I am. A routine urinalysis > should catch white blood cells common in an infection. You might want to go > to your regular doctor and ask them about the strong smelling urine. They > may run some tests like a urine culture that your neph might not do. I know > when I had a high amount of blood in my urine (3+) it had a distinct odor > best described as a menstrual odor...you women know what I'm talking about. > Do you know what your lab values are for blood in the urine? I ask because > I wonder if it's dark colored due to blood or dark due to not drinking > enough water. > As far as knowing you are getting worse the only way to know is thru > your lab tests. Fatigue can come and go, flank pain can come and go, > feeling lousy can come and go...lab values tell all. I was feeling horrid > when my creatinine was at 1.9...this past visit I was up to 2.4 and (with > the exception of a infection in my jaw that was nearly healed) I was doing > fine feeling better than when I was at 1.9. I think most of us go thru a > period after diagnosis where we think everything is due to the IgAN and our > kidneys getting worse is the thing that flashes thru our head with every > ache and pain. It will get easier to live with as you learn more about the > disease and learn about how your body deals with it. There are a few > general symptoms as you get closer to renal failure that you can find on the > website at http://www.igan.ca But remember not everyone with IgAN will > reach end stage only 30-50% of us get to that point. You may live a long, > happy, mostly healthy life with just the addition of a few pills, some > routine lab tests and a few extra doctors visits a year. Stay positive! ) > > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Hey Cystal, Did April have a growth spurt now that she's off pred? The higher number might reflect the new growth. I hear you when you say it's scary, tho. Back when was on cyclosporine, his creatine went from 0.5 to 1.1. That one had been really worried. Cy Re: new to the group > Dawn,,,,my daughter who has igan also,,,she is 11,,,she is always complaining > with leg pains,,she says her muscles ache all the time,,,i am not sure if > this has anythingt o do with having igan or not thou,,,and 0.8 is a great > number,,,my daughters was 0.6 3 months ago,,and now it is raised to 0.9,,kinda scares > me,,,good luck...and god bless you,,,,crystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Hey Cystal, Did April have a growth spurt now that she's off pred? The higher number might reflect the new growth. I hear you when you say it's scary, tho. Back when was on cyclosporine, his creatine went from 0.5 to 1.1. That one had been really worried. Cy Re: new to the group > Dawn,,,,my daughter who has igan also,,,she is 11,,,she is always complaining > with leg pains,,she says her muscles ache all the time,,,i am not sure if > this has anythingt o do with having igan or not thou,,,and 0.8 is a great > number,,,my daughters was 0.6 3 months ago,,and now it is raised to 0.9,,kinda scares > me,,,good luck...and god bless you,,,,crystal > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Dear Monty, Welcome, I'm glad that you have found this wonderful group. Everyone in this group is so very supportive. I have been in this group for a number of years and have been thankful for each and every day that I have been here. There are several people who have been where you are right now. I know that this is a lot to get your brain around, but do go to the yahoo site and read all that you can about this disease. You will be in out prayers. God bless. How old are you? What caused the docs to start looking for a problem? new to the group i just wanted to say hi to everyone i just join the group about a week ago. im at 22% kidney funcution. still trying to make since to all of this. im trying to learn all i can about igan. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Welcome to the group. 22% is pretty close to needing dialysis. I hope your doctor has started the necessary preparations, like deciding on what kind of dialysis (and getting the surgery for the access site done), getting your transplant recipient evaluation done, etc.). As much as we would like to not think about it, it's to our advantage for these things to be done well ahead of time. Pierre new to the group > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hello and welcome. I was also recently diagnosed and new to the grouop. Everyone is great and you'll learn so much here. I have. Janelle > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hello and welcome. I was also recently diagnosed and new to the grouop. Everyone is great and you'll learn so much here. I have. Janelle > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hello and welcome. I was also recently diagnosed and new to the grouop. Everyone is great and you'll learn so much here. I have. Janelle > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi Monty (I hope I have your name right), Welcome to the group. I'm sorry you have reason to be here, but very glad you found your way here. There are many other people on this list who's kidney function is more or less equivalent to yours - I think you will find yourself in good company. Am I correct in thinking you are newly diagnosed? If so, you are the second person to join us very recently who was diagnosed with such depressed kidney function. Unfortunately, there's a lot of information to make sense of. If you haven't already visited our companion web site www.igan.ca I strongly urge you check it out. There is a ton of well written information and useful links to other others. I look forward to hearing from you. Please feel free to join in discussions and ask questions! Cy new to the group > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi Monty (I hope I have your name right), Welcome to the group. I'm sorry you have reason to be here, but very glad you found your way here. There are many other people on this list who's kidney function is more or less equivalent to yours - I think you will find yourself in good company. Am I correct in thinking you are newly diagnosed? If so, you are the second person to join us very recently who was diagnosed with such depressed kidney function. Unfortunately, there's a lot of information to make sense of. If you haven't already visited our companion web site www.igan.ca I strongly urge you check it out. There is a ton of well written information and useful links to other others. I look forward to hearing from you. Please feel free to join in discussions and ask questions! Cy new to the group > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi Monty (I hope I have your name right), Welcome to the group. I'm sorry you have reason to be here, but very glad you found your way here. There are many other people on this list who's kidney function is more or less equivalent to yours - I think you will find yourself in good company. Am I correct in thinking you are newly diagnosed? If so, you are the second person to join us very recently who was diagnosed with such depressed kidney function. Unfortunately, there's a lot of information to make sense of. If you haven't already visited our companion web site www.igan.ca I strongly urge you check it out. There is a ton of well written information and useful links to other others. I look forward to hearing from you. Please feel free to join in discussions and ask questions! Cy new to the group > i just wanted to say hi to everyone i just join the group about a > week ago. im at 22% kidney funcution. still trying to make since to > all of this. im trying to learn all i can about igan. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 > Hello, my name is Janet - have had episodes of AFib for about 18 > months and short palpitations since I was a kid. I am looking > forward to getting to know other AFib folks and sharing questions and > experiences. I live in South Australia. Hi, Janet, Welcome. What's happening with you in terms of medication, etc.? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 > Hello, my name is Janet - have had episodes of AFib for about 18 > months and short palpitations since I was a kid. I am looking > forward to getting to know other AFib folks and sharing questions and > experiences. I live in South Australia. Hi, Janet, Welcome. What's happening with you in terms of medication, etc.? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 > Hello, my name is Janet - have had episodes of AFib for about 18 > months and short palpitations since I was a kid. I am looking > forward to getting to know other AFib folks and sharing questions and > experiences. I live in South Australia. Hi, Janet, Welcome. What's happening with you in terms of medication, etc.? Quote Link to comment Share on other sites More sharing options...
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