Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Tony, I really liked that " anyone drinking heavily will wake up in a tub of ice " . I may have to borrow that line. _____ * use of Yahoo! Groups is subject to the Yahoo! Terms of <http://docs.yahoo.com/info/terms/> Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Tony, I really liked that " anyone drinking heavily will wake up in a tub of ice " . I may have to borrow that line. _____ * use of Yahoo! Groups is subject to the Yahoo! Terms of <http://docs.yahoo.com/info/terms/> Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi everyone, I haven't written in awhile, because I've been so busy, or so tired, or so something. My doctor put me on Altace a couple of weeks ago, in addition to the Avapro. I was supposed to go OFF the clonidine if my blood pressure leveled out with just the other two. Well, it hasn't. In fact, for about a week, it's been 140's over 90's-high 90's. But, I was thinking, my husband bought a big bunch of bananas home from the boy scout ranch last weekend, and I've been eating one day. (Except for today.) My sodium intake has stayed about the same. So . . . . . I was wondering if the increased potassium could be responsible for the elevated blood pressure instead. Do any of you have any experience with this? Second question, sort of. Some of you know I left my old job cause I hated it. I turned around the next day and had another home health job. But the first weekI was really overwhelmed, and so they decided to start slower. Even on seeing only 3-4 patients a day, I'm still so tired at the end of the day. I feel like I've worked the entire day. And also, I feel like I'm in a huge fog. Like everything I do, I do in slow motion. It seems like I can't concentrate-things that once came easily to me, I'm just not " getting " any more. Paperwork that should take me 30 minutes takes me and hr. WE had a staff meeting last week, and everyone was talking about stuff, and it just seemed like I couldn't follow. I'm not usually like that. I've had to tell my supervisor that I'm sorry, but I'm just not up to full time work right now. I thought maybe if I worked part time, I would have more energy to spend at home. But it's not working out. It takes me ALL day to half-time work. I f I was doing full-time work, I'd be buried right now, not to mention that I would have a horrible reputation for being scatterbrained and unreliable. Anyway, I think my friend, Pam, put it the best-it's like I'm underwater. I can hear that people are talking, but I can't really make out what they're saying. I don't know if that's just my response to all the stress I've had in the past few months. Maybe I'm just grieving. I don't know. Any psychologists out there, or maybe astute people-watchers or people-studiers? Anyone else ever felt anything like this? Lastly, myl lower back keeps hurting-the way it usually does when I'm about to start my period. Only it isn't that-I just finished.Sorry I haven't written anyone else back, I guess I'm still self-centered about all this stuff. But I DO still fervently hope that Pierre gets his transplant very soon. Thanks guys, _____ From: LBusby Sent: Wednesday, May 12, 2004 4:51 PM To: iga-nephropathy Subject: RE: Re: New to the group Tony, I really liked that " anyone drinking heavily will wake up in a tub of ice " . I may have to borrow that line. _____ * use of Yahoo! Groups is subject to the Yahoo! Terms of <http://docs.yahoo.com/info/terms/> Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi everyone, I haven't written in awhile, because I've been so busy, or so tired, or so something. My doctor put me on Altace a couple of weeks ago, in addition to the Avapro. I was supposed to go OFF the clonidine if my blood pressure leveled out with just the other two. Well, it hasn't. In fact, for about a week, it's been 140's over 90's-high 90's. But, I was thinking, my husband bought a big bunch of bananas home from the boy scout ranch last weekend, and I've been eating one day. (Except for today.) My sodium intake has stayed about the same. So . . . . . I was wondering if the increased potassium could be responsible for the elevated blood pressure instead. Do any of you have any experience with this? Second question, sort of. Some of you know I left my old job cause I hated it. I turned around the next day and had another home health job. But the first weekI was really overwhelmed, and so they decided to start slower. Even on seeing only 3-4 patients a day, I'm still so tired at the end of the day. I feel like I've worked the entire day. And also, I feel like I'm in a huge fog. Like everything I do, I do in slow motion. It seems like I can't concentrate-things that once came easily to me, I'm just not " getting " any more. Paperwork that should take me 30 minutes takes me and hr. WE had a staff meeting last week, and everyone was talking about stuff, and it just seemed like I couldn't follow. I'm not usually like that. I've had to tell my supervisor that I'm sorry, but I'm just not up to full time work right now. I thought maybe if I worked part time, I would have more energy to spend at home. But it's not working out. It takes me ALL day to half-time work. I f I was doing full-time work, I'd be buried right now, not to mention that I would have a horrible reputation for being scatterbrained and unreliable. Anyway, I think my friend, Pam, put it the best-it's like I'm underwater. I can hear that people are talking, but I can't really make out what they're saying. I don't know if that's just my response to all the stress I've had in the past few months. Maybe I'm just grieving. I don't know. Any psychologists out there, or maybe astute people-watchers or people-studiers? Anyone else ever felt anything like this? Lastly, myl lower back keeps hurting-the way it usually does when I'm about to start my period. Only it isn't that-I just finished.Sorry I haven't written anyone else back, I guess I'm still self-centered about all this stuff. But I DO still fervently hope that Pierre gets his transplant very soon. Thanks guys, _____ From: LBusby Sent: Wednesday, May 12, 2004 4:51 PM To: iga-nephropathy Subject: RE: Re: New to the group Tony, I really liked that " anyone drinking heavily will wake up in a tub of ice " . I may have to borrow that line. _____ * use of Yahoo! Groups is subject to the Yahoo! Terms of <http://docs.yahoo.com/info/terms/> Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi everyone, I haven't written in awhile, because I've been so busy, or so tired, or so something. My doctor put me on Altace a couple of weeks ago, in addition to the Avapro. I was supposed to go OFF the clonidine if my blood pressure leveled out with just the other two. Well, it hasn't. In fact, for about a week, it's been 140's over 90's-high 90's. But, I was thinking, my husband bought a big bunch of bananas home from the boy scout ranch last weekend, and I've been eating one day. (Except for today.) My sodium intake has stayed about the same. So . . . . . I was wondering if the increased potassium could be responsible for the elevated blood pressure instead. Do any of you have any experience with this? Second question, sort of. Some of you know I left my old job cause I hated it. I turned around the next day and had another home health job. But the first weekI was really overwhelmed, and so they decided to start slower. Even on seeing only 3-4 patients a day, I'm still so tired at the end of the day. I feel like I've worked the entire day. And also, I feel like I'm in a huge fog. Like everything I do, I do in slow motion. It seems like I can't concentrate-things that once came easily to me, I'm just not " getting " any more. Paperwork that should take me 30 minutes takes me and hr. WE had a staff meeting last week, and everyone was talking about stuff, and it just seemed like I couldn't follow. I'm not usually like that. I've had to tell my supervisor that I'm sorry, but I'm just not up to full time work right now. I thought maybe if I worked part time, I would have more energy to spend at home. But it's not working out. It takes me ALL day to half-time work. I f I was doing full-time work, I'd be buried right now, not to mention that I would have a horrible reputation for being scatterbrained and unreliable. Anyway, I think my friend, Pam, put it the best-it's like I'm underwater. I can hear that people are talking, but I can't really make out what they're saying. I don't know if that's just my response to all the stress I've had in the past few months. Maybe I'm just grieving. I don't know. Any psychologists out there, or maybe astute people-watchers or people-studiers? Anyone else ever felt anything like this? Lastly, myl lower back keeps hurting-the way it usually does when I'm about to start my period. Only it isn't that-I just finished.Sorry I haven't written anyone else back, I guess I'm still self-centered about all this stuff. But I DO still fervently hope that Pierre gets his transplant very soon. Thanks guys, _____ From: LBusby Sent: Wednesday, May 12, 2004 4:51 PM To: iga-nephropathy Subject: RE: Re: New to the group Tony, I really liked that " anyone drinking heavily will wake up in a tub of ice " . I may have to borrow that line. _____ * use of Yahoo! Groups is subject to the Yahoo! Terms of <http://docs.yahoo.com/info/terms/> Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi . Ok. I somehow received 's reply to this before I received the original message. I already talked about potassium. You know, I was on 4 BP meds at the same time a couple of years before dialysis. Sometimes, that's just what it takes and there isn't much you can do about it. If I were a doctor though, I would probably want one of those to be a diuretic. You're fighting a losing battle with blood pressure pills if you're not on a diuretic (thiazide if you have > 50% kidney function, loop diuretic as you get below that). Maybe your doctor has his reasons, so it might be something to ask. But, whenever you get a new pill, or an increased dose, you have to give it a good couple of weeks at least to see how your body responds, maybe even a month. The drugs have to reach what is called a steady-state. , if you're on Altace AND Avapro, both of these drugs potentially increase your potassium level, so, I would be careful about eating too many bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you that, based on your lab results. The foggy mind. My money would be on clonidine being the culprit. That's a very common side effect of this drug. Pierre RE: Re: New to the group > > > > Tony, > > > > I really liked that " anyone drinking heavily will wake up in a tub of ice " . > I may have to borrow that line. > > > > > > > > _____ > > * use of Yahoo! Groups is subject to the Yahoo! Terms of > <http://docs.yahoo.com/info/terms/> Service. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi . Ok. I somehow received 's reply to this before I received the original message. I already talked about potassium. You know, I was on 4 BP meds at the same time a couple of years before dialysis. Sometimes, that's just what it takes and there isn't much you can do about it. If I were a doctor though, I would probably want one of those to be a diuretic. You're fighting a losing battle with blood pressure pills if you're not on a diuretic (thiazide if you have > 50% kidney function, loop diuretic as you get below that). Maybe your doctor has his reasons, so it might be something to ask. But, whenever you get a new pill, or an increased dose, you have to give it a good couple of weeks at least to see how your body responds, maybe even a month. The drugs have to reach what is called a steady-state. , if you're on Altace AND Avapro, both of these drugs potentially increase your potassium level, so, I would be careful about eating too many bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you that, based on your lab results. The foggy mind. My money would be on clonidine being the culprit. That's a very common side effect of this drug. Pierre RE: Re: New to the group > > > > Tony, > > > > I really liked that " anyone drinking heavily will wake up in a tub of ice " . > I may have to borrow that line. > > > > > > > > _____ > > * use of Yahoo! Groups is subject to the Yahoo! Terms of > <http://docs.yahoo.com/info/terms/> Service. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi . Ok. I somehow received 's reply to this before I received the original message. I already talked about potassium. You know, I was on 4 BP meds at the same time a couple of years before dialysis. Sometimes, that's just what it takes and there isn't much you can do about it. If I were a doctor though, I would probably want one of those to be a diuretic. You're fighting a losing battle with blood pressure pills if you're not on a diuretic (thiazide if you have > 50% kidney function, loop diuretic as you get below that). Maybe your doctor has his reasons, so it might be something to ask. But, whenever you get a new pill, or an increased dose, you have to give it a good couple of weeks at least to see how your body responds, maybe even a month. The drugs have to reach what is called a steady-state. , if you're on Altace AND Avapro, both of these drugs potentially increase your potassium level, so, I would be careful about eating too many bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you that, based on your lab results. The foggy mind. My money would be on clonidine being the culprit. That's a very common side effect of this drug. Pierre RE: Re: New to the group > > > > Tony, > > > > I really liked that " anyone drinking heavily will wake up in a tub of ice " . > I may have to borrow that line. > > > > > > > > _____ > > * use of Yahoo! Groups is subject to the Yahoo! Terms of > <http://docs.yahoo.com/info/terms/> Service. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Thanks for all your input, guys. _____ From: Pierre L Sent: Wednesday, May 12, 2004 9:06 PM To: iga-nephropathy Subject: Re: Re: New to the group Hi . Ok. I somehow received 's reply to this before I received the original message. I already talked about potassium. You know, I was on 4 BP meds at the same time a couple of years before dialysis. Sometimes, that's just what it takes and there isn't much you can do about it. If I were a doctor though, I would probably want one of those to be a diuretic. You're fighting a losing battle with blood pressure pills if you're not on a diuretic (thiazide if you have > 50% kidney function, loop diuretic as you get below that). Maybe your doctor has his reasons, so it might be something to ask. But, whenever you get a new pill, or an increased dose, you have to give it a good couple of weeks at least to see how your body responds, maybe even a month. The drugs have to reach what is called a steady-state. , if you're on Altace AND Avapro, both of these drugs potentially increase your potassium level, so, I would be careful about eating too many bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you that, based on your lab results. The foggy mind. My money would be on clonidine being the culprit. That's a very common side effect of this drug. Pierre RE: Re: New to the group > > > > Tony, > > > > I really liked that " anyone drinking heavily will wake up in a tub of ice " . > I may have to borrow that line. > > > > > > > > _____ > > * use of Yahoo! Groups is subject to the Yahoo! Terms of > <http://docs.yahoo.com/info/terms/> Service. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Thanks for all your input, guys. _____ From: Pierre L Sent: Wednesday, May 12, 2004 9:06 PM To: iga-nephropathy Subject: Re: Re: New to the group Hi . Ok. I somehow received 's reply to this before I received the original message. I already talked about potassium. You know, I was on 4 BP meds at the same time a couple of years before dialysis. Sometimes, that's just what it takes and there isn't much you can do about it. If I were a doctor though, I would probably want one of those to be a diuretic. You're fighting a losing battle with blood pressure pills if you're not on a diuretic (thiazide if you have > 50% kidney function, loop diuretic as you get below that). Maybe your doctor has his reasons, so it might be something to ask. But, whenever you get a new pill, or an increased dose, you have to give it a good couple of weeks at least to see how your body responds, maybe even a month. The drugs have to reach what is called a steady-state. , if you're on Altace AND Avapro, both of these drugs potentially increase your potassium level, so, I would be careful about eating too many bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you that, based on your lab results. The foggy mind. My money would be on clonidine being the culprit. That's a very common side effect of this drug. Pierre RE: Re: New to the group > > > > Tony, > > > > I really liked that " anyone drinking heavily will wake up in a tub of ice " . > I may have to borrow that line. > > > > > > > > _____ > > * use of Yahoo! Groups is subject to the Yahoo! Terms of > <http://docs.yahoo.com/info/terms/> Service. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Thanks for all your input, guys. _____ From: Pierre L Sent: Wednesday, May 12, 2004 9:06 PM To: iga-nephropathy Subject: Re: Re: New to the group Hi . Ok. I somehow received 's reply to this before I received the original message. I already talked about potassium. You know, I was on 4 BP meds at the same time a couple of years before dialysis. Sometimes, that's just what it takes and there isn't much you can do about it. If I were a doctor though, I would probably want one of those to be a diuretic. You're fighting a losing battle with blood pressure pills if you're not on a diuretic (thiazide if you have > 50% kidney function, loop diuretic as you get below that). Maybe your doctor has his reasons, so it might be something to ask. But, whenever you get a new pill, or an increased dose, you have to give it a good couple of weeks at least to see how your body responds, maybe even a month. The drugs have to reach what is called a steady-state. , if you're on Altace AND Avapro, both of these drugs potentially increase your potassium level, so, I would be careful about eating too many bananas. Maybe one a day is Ok, I don't know. Only your doctor can tell you that, based on your lab results. The foggy mind. My money would be on clonidine being the culprit. That's a very common side effect of this drug. Pierre RE: Re: New to the group > > > > Tony, > > > > I really liked that " anyone drinking heavily will wake up in a tub of ice " . > I may have to borrow that line. > > > > > > > > _____ > > * use of Yahoo! Groups is subject to the Yahoo! Terms of > <http://docs.yahoo.com/info/terms/> Service. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2004 Report Share Posted May 31, 2004 Welcome to the group, Kristy. We are the group that doesn't like to get new members, because it means they have IgA nephropathy, but, we're glad you found us. Pierre new to the group > Hi, everybody: > > I am new to the group. I am 25 yrs. old. I found out about 2 yrs. > ago that I have IGA-Neph. To add to that, I have been battling > chronic pyelonephritis since December. I am new with all of this, so > any new info. is appreciated. Thanks to everyone - it has been a > great help just to read these e-mails and know that there are other > people that understands what you are going through. > > Kristy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hi Kristy, Welcome to the group. I am sorry you are battling IgAN and pyelonephritis. I know it can feel overwhelming when you are trying to assimilate all this information and come to an understanding of what it means in your life. You don't mention how far advanced you are, but hopefully you are one of the majority who never do progress to end stage renal disease. A great place to start is www.igan.ca, which is our sister site. I think you will find most of your initial questions answered by reading through the information presented there. Please also feel free to ask any specific questions you may have. Welcome again, and remember you are not alone in this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hi Kristy, Welcome to the group. I am sorry you are battling IgAN and pyelonephritis. I know it can feel overwhelming when you are trying to assimilate all this information and come to an understanding of what it means in your life. You don't mention how far advanced you are, but hopefully you are one of the majority who never do progress to end stage renal disease. A great place to start is www.igan.ca, which is our sister site. I think you will find most of your initial questions answered by reading through the information presented there. Please also feel free to ask any specific questions you may have. Welcome again, and remember you are not alone in this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Hi Kristy, Welcome to the group. I am sorry you are battling IgAN and pyelonephritis. I know it can feel overwhelming when you are trying to assimilate all this information and come to an understanding of what it means in your life. You don't mention how far advanced you are, but hopefully you are one of the majority who never do progress to end stage renal disease. A great place to start is www.igan.ca, which is our sister site. I think you will find most of your initial questions answered by reading through the information presented there. Please also feel free to ask any specific questions you may have. Welcome again, and remember you are not alone in this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Welcome to the group Kristy. I'm happy you found us, but sorry you had to. I'm sure you will find everyone here to be very understanding and forthcoming with answers to questions or concerns. Welcome again, Amy new to the group > Hi, everybody: > > I am new to the group. I am 25 yrs. old. I found out about 2 yrs. > ago that I have IGA-Neph. To add to that, I have been battling > chronic pyelonephritis since December. I am new with all of this, so > any new info. is appreciated. Thanks to everyone - it has been a > great help just to read these e-mails and know that there are other > people that understands what you are going through. > > Kristy > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Welcome to the group Kristy. I'm happy you found us, but sorry you had to. I'm sure you will find everyone here to be very understanding and forthcoming with answers to questions or concerns. Welcome again, Amy new to the group > Hi, everybody: > > I am new to the group. I am 25 yrs. old. I found out about 2 yrs. > ago that I have IGA-Neph. To add to that, I have been battling > chronic pyelonephritis since December. I am new with all of this, so > any new info. is appreciated. Thanks to everyone - it has been a > great help just to read these e-mails and know that there are other > people that understands what you are going through. > > Kristy > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Welcome to the group Kristy. I'm happy you found us, but sorry you had to. I'm sure you will find everyone here to be very understanding and forthcoming with answers to questions or concerns. Welcome again, Amy new to the group > Hi, everybody: > > I am new to the group. I am 25 yrs. old. I found out about 2 yrs. > ago that I have IGA-Neph. To add to that, I have been battling > chronic pyelonephritis since December. I am new with all of this, so > any new info. is appreciated. Thanks to everyone - it has been a > great help just to read these e-mails and know that there are other > people that understands what you are going through. > > Kristy > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hi and welcome to the group! Pierre has already answered your questions, but I wanted to welcome you and echo Pierre's encouragement to read through www.igan.ca which is our sister site. One other thing I will add is that having IgAN does not mean you will end up needing dialysis or a transplant. Only somewhere between 30-50% ever do reach that point, and hopefully you will be one who beats those odds. Congratulations on the new baby on the way. In a message dated 6/16/2004 10:49:09 AM Pacific Daylight Time, alwynlloyd@... writes: > Hi I’m new to the group. I think this forum is marvellous and has taught me > so much about my condition. > > > > I was diagnosed with IgA when I was 28 though obviously it has started some > years before. Other than the high blood pressure I had no other symptoms, my > serum creatinine was 133. I am now 35 and my creatinine has started to rise > and is now 157. My question is when do you start developing symptoms of renal > failure? > > > > As a husband and a father of an 18 month old child (with another on the way) > I have moments of despair but this group does help me. I was also wondering > how long it will be before I end up on dialysis, I have pretty much accepted > that it is not a matter of if but when. > > > > Two other pieces of information may be of interest to the group. Firstly I > am a celiac and have been on a gluten and diary free diet for about 4 years > now. My neph doesn’t think there is a link and my creatinine has increased > during this time, so a gluten free diet doesn’t seem to affect things. > > > > Secondly IgA seems genetic in my case as males in the last 3 generations of > my family have suffered from kidney disease. > > > > I hope to learn a lot more from many of you. Many thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hi and welcome to the group! Pierre has already answered your questions, but I wanted to welcome you and echo Pierre's encouragement to read through www.igan.ca which is our sister site. One other thing I will add is that having IgAN does not mean you will end up needing dialysis or a transplant. Only somewhere between 30-50% ever do reach that point, and hopefully you will be one who beats those odds. Congratulations on the new baby on the way. In a message dated 6/16/2004 10:49:09 AM Pacific Daylight Time, alwynlloyd@... writes: > Hi I’m new to the group. I think this forum is marvellous and has taught me > so much about my condition. > > > > I was diagnosed with IgA when I was 28 though obviously it has started some > years before. Other than the high blood pressure I had no other symptoms, my > serum creatinine was 133. I am now 35 and my creatinine has started to rise > and is now 157. My question is when do you start developing symptoms of renal > failure? > > > > As a husband and a father of an 18 month old child (with another on the way) > I have moments of despair but this group does help me. I was also wondering > how long it will be before I end up on dialysis, I have pretty much accepted > that it is not a matter of if but when. > > > > Two other pieces of information may be of interest to the group. Firstly I > am a celiac and have been on a gluten and diary free diet for about 4 years > now. My neph doesn’t think there is a link and my creatinine has increased > during this time, so a gluten free diet doesn’t seem to affect things. > > > > Secondly IgA seems genetic in my case as males in the last 3 generations of > my family have suffered from kidney disease. > > > > I hope to learn a lot more from many of you. Many thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hi , Actually, the more muscle mass you have, the larger you are, the higher creatinine levels you seem to be able to tolerate. Us smaller people tend to need dialysis earlier than a larger person, but still remember that the majority never do reach end stage renal failure. In a message dated 6/16/2004 11:34:20 AM Pacific Daylight Time, alwynlloyd@... writes: > I am quite short ( 5 foot 6 inches) about 145 lbs - so is that a good thing > when it comes to renal problems ie. will my kidneys have a bit less stress > on them than say a larger person? > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hi , Actually, the more muscle mass you have, the larger you are, the higher creatinine levels you seem to be able to tolerate. Us smaller people tend to need dialysis earlier than a larger person, but still remember that the majority never do reach end stage renal failure. In a message dated 6/16/2004 11:34:20 AM Pacific Daylight Time, alwynlloyd@... writes: > I am quite short ( 5 foot 6 inches) about 145 lbs - so is that a good thing > when it comes to renal problems ie. will my kidneys have a bit less stress > on them than say a larger person? > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hi , Actually, the more muscle mass you have, the larger you are, the higher creatinine levels you seem to be able to tolerate. Us smaller people tend to need dialysis earlier than a larger person, but still remember that the majority never do reach end stage renal failure. In a message dated 6/16/2004 11:34:20 AM Pacific Daylight Time, alwynlloyd@... writes: > I am quite short ( 5 foot 6 inches) about 145 lbs - so is that a good thing > when it comes to renal problems ie. will my kidneys have a bit less stress > on them than say a larger person? > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Hi I’m new to the group. I think this forum is marvellous and has taught me so much about my condition. I was diagnosed with IgA when I was 28 though obviously it has started some years before. Other than the high blood pressure I had no other symptoms, my serum creatinine was 133. I am now 35 and my creatinine has started to rise and is now 157. My question is when do you start developing symptoms of renal failure? As a husband and a father of an 18 month old child (with another on the way) I have moments of despair but this group does help me. I was also wondering how long it will be before I end up on dialysis, I have pretty much accepted that it is not a matter of if but when. Two other pieces of information may be of interest to the group. Firstly I am a celiac and have been on a gluten and diary free diet for about 4 years now. My neph doesn’t think there is a link and my creatinine has increased during this time, so a gluten free diet doesn’t seem to affect things. Secondly IgA seems genetic in my case as males in the last 3 generations of my family have suffered from kidney disease. I hope to learn a lot more from many of you. Many thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Welcome to the group. It's not that long ago that I was a 35 year old father, except my kids were older than yours. Everyone's different in how fast IgAN progresses to end-stage renal failure, if it does at all, but for comparison's sake, to give you an idea... I had what looked like fairly mild IgAN, diagnosed via biopsy in the summer of 1993, but with micro blood and protein in urine long before that. At the time of my biopsy, my serum creatinine was about the same as yours is now, 150 more or less. It took 9 years before I reached the point where I had to start dialysis, in October of 2002. But, while I never had visible blood in my urine, and I never had heavy proteinuria, I did have some pretty wicked, hard to control high blood pressure. So, maybe if you can control that, you might be able to go a long way. But don't despair. You've got a lot of life to live before you ever get to dialysis or transplant, and a lot of life even after that. When do you start having symptoms. Well, in a way, you already have with the high blood pressure. Other than that though, with the possible exception of anemia which seems to vary greatly from one person to the next (for example, I didn't have to be treated for it until months after I started dialysis), I would say that some people might start some symptoms of chronic renal insufficiency at 30% kidney function or thereabouts, and almost certainly some between 20 and 30% kidney function. You are probably in the neighbourhood of around 50% right now, maybe a bit more, depending on how big you are and how much muscle you have. Look over the list of symptoms I posted in the " Renal Insufficiency Notebook " section of www.igan.ca . You may or may not have some of the early ones. Some people feel no symptoms at all until they are pretty close to dialysis. Me, I started feeling some around 30%, and, I suspect, excessive fatigue some time before that. During the time between 20 and 30%, I had a pale grey complexion, and I tired very easily. I also didn't have much appetite sometimes, and I tended to easily feel nauseated. Pierre Re: New to the Group Hi I'm new to the group. I think this forum is marvellous and has taught me so much about my condition. I was diagnosed with IgA when I was 28 though obviously it has started some years before. Other than the high blood pressure I had no other symptoms, my serum creatinine was 133. I am now 35 and my creatinine has started to rise and is now 157. My question is when do you start developing symptoms of renal failure? As a husband and a father of an 18 month old child (with another on the way) I have moments of despair but this group does help me. I was also wondering how long it will be before I end up on dialysis, I have pretty much accepted that it is not a matter of if but when. Two other pieces of information may be of interest to the group. Firstly I am a celiac and have been on a gluten and diary free diet for about 4 years now. My neph doesn't think there is a link and my creatinine has increased during this time, so a gluten free diet doesn't seem to affect things. Secondly IgA seems genetic in my case as males in the last 3 generations of my family have suffered from kidney disease. I hope to learn a lot more from many of you. Many thanks. Quote Link to comment Share on other sites More sharing options...
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