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Hi ,

Are you and from Seattle? There are four CHARGE families in WA that

are planning to have a little get together this summer (June 3 is the tenetive

date). If you guys would like to join us, you are more than welcome. All the

CHARGErs so far are under 4 years of age.

(mom to Evan 8.5 mos)

courtneyandheather wrote:

Bonnie,

I am wondering if Easter Seals has an opportunity for Patty to work

within their summer camp or respite programs. I worked for our summer

and respite programs here for 10 years, attended camp until

last year,and all of your talking about Easter Seals makes me want to

go back. I remember working at Colorado Easter Seals and we had people

with disabilities as couselors or support staff,maybe Patty could do

that as well. Some camps have set weeks for ages groups or ceratin

disabilities, one being deaf/hard or hearing and blind.

Just an idea...maybe an arts and crafts aide, junior counselor or

kitchen staff?

, friend to , 25, CHARGE

Courtbey is doing wonderful by the way, I talked to her and her staff

the other day. She had just gone summer clothes shopping and wentto a

Mariners game last weekend. Keep your fingers crossed that next

weekend goes well, it will be the first time that her Dad has seen her

since her Moms' memorial and he is taking her overnight.

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

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