Re: seizure incr with lamictal decr: our new plan -

[Guest guest]

,

Thanks for butting in! Your experience and stories has been a great

source of courage and inspiration to my this last month. Your like

my keto-goddess! It sounds like Langan is doing very well and that

makes me so happy. I can't help but think that her 'partials' will

disappear, too.

> Hi. Sorry to butt in but I just wanted to add my two cents....

>

> Langan's seizures increased when we started the diet while on

lamictal. As

> we weaned the lamictal, they spread back out but as we got to that

last tiny

> bit they got SO much worse that we wondered in that dark part of

the back of

> our heads if this diet was a huge mistake and if she needed the

drugs. We

> kept going b/c I was determined to see what happened off the

meds. After

> her last dose of lamictal, she had one of her typical seizures the

next

> night. We thought we were in for it then. Over the next week,

she had 3

> seizures that were different than any she had ever had before.

Since then,

> when she is tired she is looking like she may be having some form

of partial

> seizures where she is seeing or hearing or feeling something, but

we are not

> sure if that is actually happening or if she is just trying to

process or

> what. She has not had any of her typical seizures since that

night after

> her last dose. The other strange seizures have also disappeared.

She is

> now medicine free for 18 days. Soooo all of that to say that at

least for

> my daughter the medicine was definitely hindering the diet. No

question.

> And even in tiny amounts it was worse than when she was on her

full dose. I

> don't know the science behind it. I just know what I

experienced. All we

> went on was a lot of faith, stubborness and experience from this

group. If

> it were up to my husband or our neuro, Langan would have been back

on the

> full dose of lamictal and we would have called the diet a

failure. I am so

> glad we insisted on at least seeing what would happen without the

meds. I

> know every child is different, but I wanted to at least let you

know about

> our experience when you are deciding what to do next. You can

tell that I

> would vote to get rid of the meds and give the diet a chance!!

>

> Take care! I hope all goes well!

>

> , mom to Langan, 20 months old and keto kid since 11/03; med

free since

> 4/2/04 and working hard on seizure control!!

>

>

> >From: " " <julia.setola@f...>

> >Reply-To: ketogenic

> >To: ketogenic

> >Subject: Re: seizure incr with lamictal decr: our new

plan -

> >Gretchen

> >Date: Tue, 20 Apr 2004 15:57:45 -0000

> >

>

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>

[Guest guest]

Oh, I am far from the keto goddess.... More like the keto-clueless.... But

thanks to the experiences of the parents here, we are getting there. I just

want to do what I can to keep that cycle going!!

>

>Reply-To: ketogenic

>To: ketogenic

>Subject: Re: seizure incr with lamictal decr: our new plan -

>

>Date: Wed, 21 Apr 2004 14:07:29 -0000

>

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[Guest guest]

Oh, I am far from the keto goddess.... More like the keto-clueless.... But

thanks to the experiences of the parents here, we are getting there. I just

want to do what I can to keep that cycle going!!

>

>Reply-To: ketogenic

>To: ketogenic

>Subject: Re: seizure incr with lamictal decr: our new plan -

>

>Date: Wed, 21 Apr 2004 14:07:29 -0000

>

_________________________________________________________________

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[Guest guest]

Oh, I am far from the keto goddess.... More like the keto-clueless.... But

thanks to the experiences of the parents here, we are getting there. I just

want to do what I can to keep that cycle going!!

>

>Reply-To: ketogenic

>To: ketogenic

>Subject: Re: seizure incr with lamictal decr: our new plan -

>

>Date: Wed, 21 Apr 2004 14:07:29 -0000

>

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