starting diet-any words of wisdom?

[Guest guest]

Hi everyone! I am new to this group and have spent the last week

trying to read as many posts as I could. Your messages have

motivated, inspired and empowered us. We are getting ready to start

our 23 month old son, , on the diet on May 31. He has

generalized epilepsy and for the last 10 months has had every type

of seizure. His pattern now is about 45 atonic seizures a day. We've

tried 4 medicines (Zarontin, depakane, Topamax and Keppra) and so

far the Keppra is the only drug that has showed any influence and

even that was minimal.

We are very excited to be starting this diet. I know it is difficult

so that is why I am posting...I would appreciate any words of wisdom

or advice that you can offer us. We really want this to work and

while we've read as much as we can in books I've found that real

life experiences are the best teaching tools around.

I look forward to reading more of your posts and learning about all

of you. You all are truly inspirational parents and your little ones

are blessed to have you.

Kerri

[Guest guest]

Hello and welcome. I don't post much anymore, mainly lurk because

after 2.5 yrs. on the diet Hannah is seizure/med free. In June it

will be a year that she has been off the diet. She will be 9 later

this summer.

Her seizures were just about all Atonic. She also did not respond to

meds and after one year of trying different drugs we pushed

Cleveland Clinic to let us do the diet. No doubt about it, it is

difficult in the beginning. We would sometimes just sit and cry

together. BUT, very much worth all the work and after several months

you will realize that it just is a way of life. You won't have to

think about it constantly and the results of having Hannah med

free/fog free and seeing her bounce back to her old self were so

much worth it.

Read and read some more. If you go into this with as much info as

possible, I believe that will help. Read the posts here and just

keep as positive as you can about the road that lies ahead! I wish

you the best with . Our church and many other churches were

praying for Hannah and I know that God was in control of it all!

Take care Gail

> Hi everyone! I am new to this group and have spent the last week

> trying to read as many posts as I could. Your messages have

> motivated, inspired and empowered us. We are getting ready to

start

> our 23 month old son, , on the diet on May 31. He has

> generalized epilepsy and for the last 10 months has had every type

> of seizure. His pattern now is about 45 atonic seizures a day.

We've

> tried 4 medicines (Zarontin, depakane, Topamax and Keppra) and so

> far the Keppra is the only drug that has showed any influence and

> even that was minimal.

> We are very excited to be starting this diet. I know it is

difficult

> so that is why I am posting...I would appreciate any words of

wisdom

> or advice that you can offer us. We really want this to work and

> while we've read as much as we can in books I've found that real

> life experiences are the best teaching tools around.

> I look forward to reading more of your posts and learning about

all

> of you. You all are truly inspirational parents and your little

ones

> are blessed to have you.

> Kerri

[Guest guest]

Hello and welcome. I don't post much anymore, mainly lurk because

after 2.5 yrs. on the diet Hannah is seizure/med free. In June it

will be a year that she has been off the diet. She will be 9 later

this summer.

Her seizures were just about all Atonic. She also did not respond to

meds and after one year of trying different drugs we pushed

Cleveland Clinic to let us do the diet. No doubt about it, it is

difficult in the beginning. We would sometimes just sit and cry

together. BUT, very much worth all the work and after several months

you will realize that it just is a way of life. You won't have to

think about it constantly and the results of having Hannah med

free/fog free and seeing her bounce back to her old self were so

much worth it.

Read and read some more. If you go into this with as much info as

possible, I believe that will help. Read the posts here and just

keep as positive as you can about the road that lies ahead! I wish

you the best with . Our church and many other churches were

praying for Hannah and I know that God was in control of it all!

Take care Gail

> Hi everyone! I am new to this group and have spent the last week

> trying to read as many posts as I could. Your messages have

> motivated, inspired and empowered us. We are getting ready to

start

> our 23 month old son, , on the diet on May 31. He has

> generalized epilepsy and for the last 10 months has had every type

> of seizure. His pattern now is about 45 atonic seizures a day.

We've

> tried 4 medicines (Zarontin, depakane, Topamax and Keppra) and so

> far the Keppra is the only drug that has showed any influence and

> even that was minimal.

> We are very excited to be starting this diet. I know it is

difficult

> so that is why I am posting...I would appreciate any words of

wisdom

> or advice that you can offer us. We really want this to work and

> while we've read as much as we can in books I've found that real

> life experiences are the best teaching tools around.

> I look forward to reading more of your posts and learning about

all

> of you. You all are truly inspirational parents and your little

ones

> are blessed to have you.

> Kerri

[Guest guest]

Hello and welcome. I don't post much anymore, mainly lurk because

after 2.5 yrs. on the diet Hannah is seizure/med free. In June it

will be a year that she has been off the diet. She will be 9 later

this summer.

Her seizures were just about all Atonic. She also did not respond to

meds and after one year of trying different drugs we pushed

Cleveland Clinic to let us do the diet. No doubt about it, it is

difficult in the beginning. We would sometimes just sit and cry

together. BUT, very much worth all the work and after several months

you will realize that it just is a way of life. You won't have to

think about it constantly and the results of having Hannah med

free/fog free and seeing her bounce back to her old self were so

much worth it.

Read and read some more. If you go into this with as much info as

possible, I believe that will help. Read the posts here and just

keep as positive as you can about the road that lies ahead! I wish

you the best with . Our church and many other churches were

praying for Hannah and I know that God was in control of it all!

Take care Gail

> Hi everyone! I am new to this group and have spent the last week

> trying to read as many posts as I could. Your messages have

> motivated, inspired and empowered us. We are getting ready to

start

> our 23 month old son, , on the diet on May 31. He has

> generalized epilepsy and for the last 10 months has had every type

> of seizure. His pattern now is about 45 atonic seizures a day.

We've

> tried 4 medicines (Zarontin, depakane, Topamax and Keppra) and so

> far the Keppra is the only drug that has showed any influence and

> even that was minimal.

> We are very excited to be starting this diet. I know it is

difficult

> so that is why I am posting...I would appreciate any words of

wisdom

> or advice that you can offer us. We really want this to work and

> while we've read as much as we can in books I've found that real

> life experiences are the best teaching tools around.

> I look forward to reading more of your posts and learning about

all

> of you. You all are truly inspirational parents and your little

ones

> are blessed to have you.

> Kerri