Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Thanks, the problem isn't even that the results are inconsistant, he tested recently at 40 dB in the low frequency in one ear the other ear they couldn't test and used soundfield which I don't like if the loss is mild since one ear can accomidate for the other, not to mention he also didn't have good localization which the audi mentioned in her report. She noted a 40 dB response but couldn't get it repeated and I suspect it wasn't even a response since they were using visual reinforcement. They didn't even try to teach him play audiometry and they never repeated the test so how could they say they are inconsistant? They simply stated a 40 dB response with limited replicability and limited behavioral response, as well as poor locilization and then went on to say that this suggests normal to near normal hearing. Go figure. I asked her about it and was told that he could get inconsistant results with CAPD and that was that. For over a year they have been insisting that due to his neurological issues he has CAPD since in the past he didn't respond to anything and he only showed a mild loss on ABR. They said his behavior did not reflect what the ABR was showing them. I agreed but that doesn't mean the ABR is inaccurate, he probably has processing problems on top of it, but does that mean don't treat the hearing loss? Anyway he has improved lately acting more like a child with a mild or moderate loss and they still refuse to believe that he has one even though the tests are showing it plain and clear and to add to it in that ear that shows at minimum a 40 dB loss, he has no OAE basically confirming the loss, but they just tell me that some people with normal hearing have OAE's. I am so frustrated with them it is rediculous. They are not looking at his tests they have a belief and are ignoring what the tests say in order to make it fit their belief. I am going to take him to Phoenix though and insist that the audi there teach him the play audiometry which is is kind of getting the hang of now, and I am not letting them say it's inconsistant when they tested him once. If they test him over and over and keep getting consistant results then I underestand. I will say though with CAPD a child doesn't hear certain sounds and not others. he says nany for daddy because d looks like n but he can't hear the d. Also he says mana for maga because he can't hear the g. He does say mommy, but he also says meow, except when it is dark then he says eow. So it's apparent that he doesn't hear the m but he sees it and it is easy to know what the m sound is by seeing how the mouth is. Anyway he is saying a bunch of things now and understanding them so I think that as far as processing goes he is doing great, they think that his hearing loss is better but he still has processing, but they aren't willing to really look closely at him because they are sure they are right before they test him. It is so frustrating and I'm sorry for dumping all this on you. I have calmed down since this happened, but I am now getting ready to make a new appointment and we have had the run around from so many people that all the frustration is right on the surface again. Services denied , You wrote " The clinic in town is now telling me we aren't eligible for services because the people who determine eligibility think that he is getting inconsistant results " . Deanna also got inconsistant results throught initial testing paid for by the school district when she was 3. They said she might not understand what she is supposed to do for the testing at that age. They suggested going to a pediatric ENT for testing, which we did. Their test results showed a mild to moderate bilateral hearing loss. She doesn't have the typical banana curve either. Her results are all over the place, which also probably played a role in the initial test inconsistancies. We gave the test results from the physician to the school district and she became eligible for services. Good Luck, Tara Deanna 5 All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Thanks, the problem isn't even that the results are inconsistant, he tested recently at 40 dB in the low frequency in one ear the other ear they couldn't test and used soundfield which I don't like if the loss is mild since one ear can accomidate for the other, not to mention he also didn't have good localization which the audi mentioned in her report. She noted a 40 dB response but couldn't get it repeated and I suspect it wasn't even a response since they were using visual reinforcement. They didn't even try to teach him play audiometry and they never repeated the test so how could they say they are inconsistant? They simply stated a 40 dB response with limited replicability and limited behavioral response, as well as poor locilization and then went on to say that this suggests normal to near normal hearing. Go figure. I asked her about it and was told that he could get inconsistant results with CAPD and that was that. For over a year they have been insisting that due to his neurological issues he has CAPD since in the past he didn't respond to anything and he only showed a mild loss on ABR. They said his behavior did not reflect what the ABR was showing them. I agreed but that doesn't mean the ABR is inaccurate, he probably has processing problems on top of it, but does that mean don't treat the hearing loss? Anyway he has improved lately acting more like a child with a mild or moderate loss and they still refuse to believe that he has one even though the tests are showing it plain and clear and to add to it in that ear that shows at minimum a 40 dB loss, he has no OAE basically confirming the loss, but they just tell me that some people with normal hearing have OAE's. I am so frustrated with them it is rediculous. They are not looking at his tests they have a belief and are ignoring what the tests say in order to make it fit their belief. I am going to take him to Phoenix though and insist that the audi there teach him the play audiometry which is is kind of getting the hang of now, and I am not letting them say it's inconsistant when they tested him once. If they test him over and over and keep getting consistant results then I underestand. I will say though with CAPD a child doesn't hear certain sounds and not others. he says nany for daddy because d looks like n but he can't hear the d. Also he says mana for maga because he can't hear the g. He does say mommy, but he also says meow, except when it is dark then he says eow. So it's apparent that he doesn't hear the m but he sees it and it is easy to know what the m sound is by seeing how the mouth is. Anyway he is saying a bunch of things now and understanding them so I think that as far as processing goes he is doing great, they think that his hearing loss is better but he still has processing, but they aren't willing to really look closely at him because they are sure they are right before they test him. It is so frustrating and I'm sorry for dumping all this on you. I have calmed down since this happened, but I am now getting ready to make a new appointment and we have had the run around from so many people that all the frustration is right on the surface again. Services denied , You wrote " The clinic in town is now telling me we aren't eligible for services because the people who determine eligibility think that he is getting inconsistant results " . Deanna also got inconsistant results throught initial testing paid for by the school district when she was 3. They said she might not understand what she is supposed to do for the testing at that age. They suggested going to a pediatric ENT for testing, which we did. Their test results showed a mild to moderate bilateral hearing loss. She doesn't have the typical banana curve either. Her results are all over the place, which also probably played a role in the initial test inconsistancies. We gave the test results from the physician to the school district and she became eligible for services. Good Luck, Tara Deanna 5 All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Thanks, the problem isn't even that the results are inconsistant, he tested recently at 40 dB in the low frequency in one ear the other ear they couldn't test and used soundfield which I don't like if the loss is mild since one ear can accomidate for the other, not to mention he also didn't have good localization which the audi mentioned in her report. She noted a 40 dB response but couldn't get it repeated and I suspect it wasn't even a response since they were using visual reinforcement. They didn't even try to teach him play audiometry and they never repeated the test so how could they say they are inconsistant? They simply stated a 40 dB response with limited replicability and limited behavioral response, as well as poor locilization and then went on to say that this suggests normal to near normal hearing. Go figure. I asked her about it and was told that he could get inconsistant results with CAPD and that was that. For over a year they have been insisting that due to his neurological issues he has CAPD since in the past he didn't respond to anything and he only showed a mild loss on ABR. They said his behavior did not reflect what the ABR was showing them. I agreed but that doesn't mean the ABR is inaccurate, he probably has processing problems on top of it, but does that mean don't treat the hearing loss? Anyway he has improved lately acting more like a child with a mild or moderate loss and they still refuse to believe that he has one even though the tests are showing it plain and clear and to add to it in that ear that shows at minimum a 40 dB loss, he has no OAE basically confirming the loss, but they just tell me that some people with normal hearing have OAE's. I am so frustrated with them it is rediculous. They are not looking at his tests they have a belief and are ignoring what the tests say in order to make it fit their belief. I am going to take him to Phoenix though and insist that the audi there teach him the play audiometry which is is kind of getting the hang of now, and I am not letting them say it's inconsistant when they tested him once. If they test him over and over and keep getting consistant results then I underestand. I will say though with CAPD a child doesn't hear certain sounds and not others. he says nany for daddy because d looks like n but he can't hear the d. Also he says mana for maga because he can't hear the g. He does say mommy, but he also says meow, except when it is dark then he says eow. So it's apparent that he doesn't hear the m but he sees it and it is easy to know what the m sound is by seeing how the mouth is. Anyway he is saying a bunch of things now and understanding them so I think that as far as processing goes he is doing great, they think that his hearing loss is better but he still has processing, but they aren't willing to really look closely at him because they are sure they are right before they test him. It is so frustrating and I'm sorry for dumping all this on you. I have calmed down since this happened, but I am now getting ready to make a new appointment and we have had the run around from so many people that all the frustration is right on the surface again. Services denied , You wrote " The clinic in town is now telling me we aren't eligible for services because the people who determine eligibility think that he is getting inconsistant results " . Deanna also got inconsistant results throught initial testing paid for by the school district when she was 3. They said she might not understand what she is supposed to do for the testing at that age. They suggested going to a pediatric ENT for testing, which we did. Their test results showed a mild to moderate bilateral hearing loss. She doesn't have the typical banana curve either. Her results are all over the place, which also probably played a role in the initial test inconsistancies. We gave the test results from the physician to the school district and she became eligible for services. Good Luck, Tara Deanna 5 All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 I'm glad you're going to a different audi in Phoenix. Hopefully they will figure everything out and put an end to your frustration and the run around you are getting now. Good luck and keep us posted. Tara Services denied , You wrote " The clinic in town is now telling me we aren't eligible for services because the people who determine eligibility think that he is getting inconsistant results " . Deanna also got inconsistant results throught initial testing paid for by the school district when she was 3. They said she might not understand what she is supposed to do for the testing at that age. They suggested going to a pediatric ENT for testing, which we did. Their test results showed a mild to moderate bilateral hearing loss. She doesn't have the typical banana curve either. Her results are all over the place, which also probably played a role in the initial test inconsistancies. We gave the test results from the physician to the school district and she became eligible for services. Good Luck, Tara Deanna 5 All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
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