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WEANING TOPOMAX

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HI,

Can anyone tell me what their experience has been weaning topomax.

Joziah is down to 25/25/25 then on Monday he went to 17.5/25/25 but he

seemed " off "

His feeding schedule has been off so im sure that may have something to do

with it.

He wont wake for 11pm meals and wont drink the eggnog.

So his calories are not always consistent....

On Wednesday i put him back on 25/25/25 .. ill try again on Monday to go to

17.5/25/25

Pls shed some light..

Thank You,

Cleofi Blass

Re: Re: Goodbye Lamictal

Thanks, Glenna! It's gonna be a rocky road but we're hoping to get through

it!!

Hugs to the girls!

Re: Goodbye Lamictal

Hey ,

YIPPEEE! Langans' big brave momma is going for it! Sounds like

you've got all your ducks in a row, so I'm sure you are ready! My

very best wishes! We'll be thinking of you all!

Glenna

- In ketogenic <mailto:ketogenic >,

" langansmom " <tuckerwing@m<mailto:tuckerwing@m>...> wrote:

> Langan just took her last (hopefully!) 2.5 mg of lamictal. Wish us

> luck! We are strapping in for a wild withdrawal ride but hoping to

> come out med free on the other end!!

>

> , mom to Langan, 20 months old and keto kid since 11/03 but

> with new (great) keto center since 3/9/04, still not sz free but

> about to be med free and mom is TERRIFIED!!

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

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Guest guest

Go slow.... we didn't (although we followed doc's orders) and ended up

with the worst 3 days of our lives. Good news is that is what pushed us

over the edge to start the diet. And I don't just blame the topamax, I'm

now a firm believer in going super slow to wean (even though it is SO

hard - once you've made the decision to wean, you want to hurry up and

get if over with). And expect seizures, but stay committed to the wean.

you'll find your self thinking..... wonder if the drugs were doing more

than I think...and..... Am I crazy for taking away a seizure medicine

when my child is having seizures?? Expect that it will be emotional for

you.

K

On Sat, 3 Apr 2004 09:08:06 -0500 " CLEOFI BLASS "

writes:

> HI,

>

> Can anyone tell me what their experience has been weaning topomax.

>

>

>

> Joziah is down to 25/25/25 then on Monday he went to 17.5/25/25 but

> he

> seemed " off "

>

> His feeding schedule has been off so im sure that may have something

> to do

> with it.

>

> He wont wake for 11pm meals and wont drink the eggnog.

>

> So his calories are not always consistent....

>

>

>

> On Wednesday i put him back on 25/25/25 .. ill try again on Monday

> to go to

> 17.5/25/25

>

>

>

> Pls shed some light..

>

>

>

> Thank You,

>

> Cleofi Blass

>

> Re: Re: Goodbye Lamictal

>

>

>

> Thanks, Glenna! It's gonna be a rocky road but we're hoping to get

> through

> it!!

>

> Hugs to the girls!

>

>

> Re: Goodbye Lamictal

>

>

> Hey ,

> YIPPEEE! Langans' big brave momma is going for it! Sounds

> like

> you've got all your ducks in a row, so I'm sure you are ready! My

>

> very best wishes! We'll be thinking of you all!

>

> Glenna

>

>

> - In ketogenic <mailto:ketogenic >,

> " langansmom " <tuckerwing@m<mailto:tuckerwing@m>...> wrote:

> > Langan just took her last (hopefully!) 2.5 mg of lamictal. Wish

> us

> > luck! We are strapping in for a wild withdrawal ride but hoping

> to

> > come out med free on the other end!!

> >

> > , mom to Langan, 20 months old and keto kid since 11/03 but

>

> > with new (great) keto center since 3/9/04, still not sz free but

>

> > about to be med free and mom is TERRIFIED!!

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

> last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional

> keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe:

> ketogenic-unsubscribe

>

>

>

>

>

>

-------------------------------------------------------------------------

---

> --

>

Link to comment
Share on other sites

Guest guest

Go slow.... we didn't (although we followed doc's orders) and ended up

with the worst 3 days of our lives. Good news is that is what pushed us

over the edge to start the diet. And I don't just blame the topamax, I'm

now a firm believer in going super slow to wean (even though it is SO

hard - once you've made the decision to wean, you want to hurry up and

get if over with). And expect seizures, but stay committed to the wean.

you'll find your self thinking..... wonder if the drugs were doing more

than I think...and..... Am I crazy for taking away a seizure medicine

when my child is having seizures?? Expect that it will be emotional for

you.

K

On Sat, 3 Apr 2004 09:08:06 -0500 " CLEOFI BLASS "

writes:

> HI,

>

> Can anyone tell me what their experience has been weaning topomax.

>

>

>

> Joziah is down to 25/25/25 then on Monday he went to 17.5/25/25 but

> he

> seemed " off "

>

> His feeding schedule has been off so im sure that may have something

> to do

> with it.

>

> He wont wake for 11pm meals and wont drink the eggnog.

>

> So his calories are not always consistent....

>

>

>

> On Wednesday i put him back on 25/25/25 .. ill try again on Monday

> to go to

> 17.5/25/25

>

>

>

> Pls shed some light..

>

>

>

> Thank You,

>

> Cleofi Blass

>

> Re: Re: Goodbye Lamictal

>

>

>

> Thanks, Glenna! It's gonna be a rocky road but we're hoping to get

> through

> it!!

>

> Hugs to the girls!

>

>

> Re: Goodbye Lamictal

>

>

> Hey ,

> YIPPEEE! Langans' big brave momma is going for it! Sounds

> like

> you've got all your ducks in a row, so I'm sure you are ready! My

>

> very best wishes! We'll be thinking of you all!

>

> Glenna

>

>

> - In ketogenic <mailto:ketogenic >,

> " langansmom " <tuckerwing@m<mailto:tuckerwing@m>...> wrote:

> > Langan just took her last (hopefully!) 2.5 mg of lamictal. Wish

> us

> > luck! We are strapping in for a wild withdrawal ride but hoping

> to

> > come out med free on the other end!!

> >

> > , mom to Langan, 20 months old and keto kid since 11/03 but

>

> > with new (great) keto center since 3/9/04, still not sz free but

>

> > about to be med free and mom is TERRIFIED!!

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

> last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional

> keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe:

> ketogenic-unsubscribe

>

>

>

>

>

>

-------------------------------------------------------------------------

---

> --

>

Link to comment
Share on other sites

Guest guest

Go slow.... we didn't (although we followed doc's orders) and ended up

with the worst 3 days of our lives. Good news is that is what pushed us

over the edge to start the diet. And I don't just blame the topamax, I'm

now a firm believer in going super slow to wean (even though it is SO

hard - once you've made the decision to wean, you want to hurry up and

get if over with). And expect seizures, but stay committed to the wean.

you'll find your self thinking..... wonder if the drugs were doing more

than I think...and..... Am I crazy for taking away a seizure medicine

when my child is having seizures?? Expect that it will be emotional for

you.

K

On Sat, 3 Apr 2004 09:08:06 -0500 " CLEOFI BLASS "

writes:

> HI,

>

> Can anyone tell me what their experience has been weaning topomax.

>

>

>

> Joziah is down to 25/25/25 then on Monday he went to 17.5/25/25 but

> he

> seemed " off "

>

> His feeding schedule has been off so im sure that may have something

> to do

> with it.

>

> He wont wake for 11pm meals and wont drink the eggnog.

>

> So his calories are not always consistent....

>

>

>

> On Wednesday i put him back on 25/25/25 .. ill try again on Monday

> to go to

> 17.5/25/25

>

>

>

> Pls shed some light..

>

>

>

> Thank You,

>

> Cleofi Blass

>

> Re: Re: Goodbye Lamictal

>

>

>

> Thanks, Glenna! It's gonna be a rocky road but we're hoping to get

> through

> it!!

>

> Hugs to the girls!

>

>

> Re: Goodbye Lamictal

>

>

> Hey ,

> YIPPEEE! Langans' big brave momma is going for it! Sounds

> like

> you've got all your ducks in a row, so I'm sure you are ready! My

>

> very best wishes! We'll be thinking of you all!

>

> Glenna

>

>

> - In ketogenic <mailto:ketogenic >,

> " langansmom " <tuckerwing@m<mailto:tuckerwing@m>...> wrote:

> > Langan just took her last (hopefully!) 2.5 mg of lamictal. Wish

> us

> > luck! We are strapping in for a wild withdrawal ride but hoping

> to

> > come out med free on the other end!!

> >

> > , mom to Langan, 20 months old and keto kid since 11/03 but

>

> > with new (great) keto center since 3/9/04, still not sz free but

>

> > about to be med free and mom is TERRIFIED!!

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

> last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional

> keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe:

> ketogenic-unsubscribe

>

>

>

>

>

>

-------------------------------------------------------------------------

---

> --

>

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