Guest guest Posted January 3, 2006 Report Posted January 3, 2006 Hi, The RAI is Radio Iodine Therapy where they give you enough radiation to render the thyroid non functional over a period of time, so I am waiting and being tested ever so often to see where I stand, after it's non functioning, then I will be hypo. then I will have to take thyroid replacement hormone. My neck aches in the same area you said your does. I am not really sure what is causing mine but it didn't start until I took that radiation, so I am thinking it has something to do with that. I had no pain at all until then. My neck never swelled much, it just aches and my voice is like I'm going through adolecence. I also loose my voice very easily becoming softer and softer until it leaves. Email anytime if you want to compare notes. Sounds4heaven@ wmconnect.com Thanks Vicky > > > > > > > > > > Hi , > > > > They gave me RAI for my multitoxic goiter and like you I have neck > pain. It affects my voice, does it affects yours? There killing mine > off altogether. Did you say your goiter is toxic?I am hyperthyoid. > > > > > > > > vicky > > > Quote
Guest guest Posted January 3, 2006 Report Posted January 3, 2006 Actually, Vicky.... the damage caused to the thyroid from taking RAI happens in just a few days of ingesting it.... What you are waiting for after that period of time is for any excess hormone that is still being either released from the remaining thyroid tissue, from whatever didn't die... and the stuff that is stored as T4 in the rest of the body tissues. This doc's reference to waiting until the gland dies off.... is bothering me.... at this point death to the gland would be from antibody damage, not the radiation. I can't remember if you have Hashi's or not... sorry... it's hard to keep everyone straight in my head.... Topper ()"Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body. But rather to skid in sideways, chocolate in hand, body thoroughly used up, totally worn out and screaming "WOO-HOO what a ride!" On Tue, 03 Jan 2006 09:42:11 -0000 "Vicky" writes: Hi,The RAI is Radio Iodine Therapy where they give you enough radiation to render the thyroid non functional over a period of time, so I am waiting and being tested ever so often to see where I stand, after it's non functioning, then I will be hypo. then I will have to take thyroid replacement hormone.My neck aches in the same area you said your does. I am not really sure what is causing mine but it didn't start until I took that radiation, so I am thinking it has something to do with that. I had no pain at all until then. My neck never swelled much, it just aches and my voice is like I'm going through adolecence. I also loose my voice very easily becoming softer and softer until it leaves. Email anytime if you want to compare notes. Sounds4heaven@ wmconnect.comThanksVicky Quote
Guest guest Posted January 3, 2006 Report Posted January 3, 2006 Actually, Vicky.... the damage caused to the thyroid from taking RAI happens in just a few days of ingesting it.... What you are waiting for after that period of time is for any excess hormone that is still being either released from the remaining thyroid tissue, from whatever didn't die... and the stuff that is stored as T4 in the rest of the body tissues. This doc's reference to waiting until the gland dies off.... is bothering me.... at this point death to the gland would be from antibody damage, not the radiation. I can't remember if you have Hashi's or not... sorry... it's hard to keep everyone straight in my head.... Topper ()"Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body. But rather to skid in sideways, chocolate in hand, body thoroughly used up, totally worn out and screaming "WOO-HOO what a ride!" On Tue, 03 Jan 2006 09:42:11 -0000 "Vicky" writes: Hi,The RAI is Radio Iodine Therapy where they give you enough radiation to render the thyroid non functional over a period of time, so I am waiting and being tested ever so often to see where I stand, after it's non functioning, then I will be hypo. then I will have to take thyroid replacement hormone.My neck aches in the same area you said your does. I am not really sure what is causing mine but it didn't start until I took that radiation, so I am thinking it has something to do with that. I had no pain at all until then. My neck never swelled much, it just aches and my voice is like I'm going through adolecence. I also loose my voice very easily becoming softer and softer until it leaves. Email anytime if you want to compare notes. Sounds4heaven@ wmconnect.comThanksVicky Quote
Guest guest Posted January 4, 2006 Report Posted January 4, 2006 But that's the part that bothers me..... that could take years and years and you're gonna be miserable most of that time.... I don't want you to be miserable.. to many of us have already paid that debt...... Proper care, treatment, follow up is going to reduce or eliminate a LOT of the crap that many of us have already faced.... I don't mean to sound like a depressing poop..... I'm just concerned that he doesn't know what he's doing, or isn't explaining things to you clearly.... I'm gonna try to be quiet.... Topper ()"Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body. But rather to skid in sideways, chocolate in hand, body thoroughly used up, totally worn out and screaming "WOO-HOO what a ride!" On Wed, 04 Jan 2006 05:20:55 -0000 "Vicky" writes: Ye, My dr's approach and referrences tend to confuse me at times, with "wait until it is killed off". I think he meant wait until it is no longer producing any hormone but I have hyperthyoidism caused by multitoxic nodules and a high autoimmune response.ThanksVicky Quote
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