Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Hello! All of the sudden I feel like I'm in a room full of people I don't know and everyone is staring at me. I'm not one to be a wallflower, so on with the introduction! I'm , mother to Violet and Zoe and our surprise bean, due to make her arrival sometime around Halloween. Violet is four and Zoe is 19 months. Violet has a moderate sensorineural loss in both ears and was diagnosed at 2 years, 10 months. She was aided last July and has been wearing the aids pretty much full time ever since then. Take a look at my beauties so you know who I'm talking about: [http://www.picturetrail.com/indiegirl]www.picturetrail.com/indiegirl .. I'm sure my story isn't unique in that the late diagnosis proved to be a huge factor in Violet's speech and language development. Initially she was assessed (at 2.7 years) with a severe speech delay--18 months expressive and 19 months receptive. This was last March of 2003. We got in under the wire for Birth-3 services. She was assesed last week by a private speech therapist and her receptive was up to 2.9 years, expressive was 2.4 years. Progress, yes. Slow but sure. When she was aided last July, she had less than 50 words and signs--now she has well over 500. That being said, Violet is THE most expressive kid I know--always has been. She is so smart and can read a situation in seconds--and she's pretty good at lip reading. It was so hard to tell if she had a loss (before she was tested). I brought her in at 2 years and her doctor said she was fine--she could sing " Happy Birthday " so she was normal. Later, the same doctor called me at home on the weekend to apologize and commit to learning more about hearing loss so that she didn't make the same mistake again. I joined this list because I struggle with which path to take in regard to her education. She spent last year at a private Waldorf school (think uncoventional schooling) and at a public language preschool. The language preschool is an adequate program that didn't do much for us in regard to her language development. I do the same kinds of things with her at home--I saw nothing remarkable. The Waldorf school provides us with our community, our support and a beautiful eduactional opportunity--but one that lacks any sort of emphasis on language development. She is pretty easy-going and jumps into any situation with ease. She was also in private speech until December when her therapist said that she had all of the sounds of speech and just needed language work--which could be done in the school setting--ooooookkkkkaayyyy. I didn't buy that for a second, but pulled her because I didn't think she was getting much from the therapy with that therapist (we had to change therapists from her first therapist, whom we loved). She will re-enter private speech (2x a week) within the next month or two. So I've been reading and reading about all of the approaches: oral, total communication and ASL...and I just don't think we fit the mold for any of them. Yes, my child has a hearing loss. I'm fine with that. I would throw her into Deaf culture is that is what I thought was best for her--but Violet doesn't seem to fit in either world. The school district has a D/HH program that I observed and I wasn't knocked out. Plus, it's all day and my girl still takes naps. She needs sleep, she needs something less intense than a full-day program. The program wasn't bad...but it didn't knock me out. There is an Oral Deaf school about 1.5 hours away and I'm visiting on Friday. I also don't know if this is the right approach for us. Plus, that is at least three hours of commuting a day--with a toddler and a newborn? Um, can you say YUCK? There are no ASL-immersion programs in the area. I feel like I need to keep her in one program and keep her there all year. I don't want to divide our time like I did last year. I want her to feel confident and challenged and I want her speech to grow. I want to assist her in finding her identity either in the hearing world or the Deaf community, or both--but I'm not will to sacrifice my ideals regarding education and how children learn best. I have a Master's in Education and was a public school teacher--I feel like I have some idea of what goes on in the public school system. I taught D/HH kids in my classes and I became close to many of them. I want to be sensitive to a culture I am not a part of, but I also don't know if Violet is a part of it either. I was thinking of doing Waldorf for Violet's preschool experience. Then we'd have speech 2x a week. Then I'd also like to take an ASL class with her as well as get her involved with local D/HH playgroups. I am open to any sort of feedback you might have or opinions you want to share. Nice to meet you all! Michener Tacoma Theatre Conservatory Artistic Director jesse@... Quote Link to comment Share on other sites More sharing options...
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