Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 Dear group, On 7/9/01, I pointed out my discovery of the out-of-print book " Rheumatoid Diseases Cured At Last " (©1982, 1983, 1984) at http://www.arthritistrust.org/topics/rheumcured.html. That book describes a protocol that uses antiamoebic (or anti-ameba) medicines to treat rheumatic diseases, which are claimed to be caused by amoeba (or amebas). Since that time, I have stumbled on a second very informative web page that describes the anti-ameba protocol: " Anti-amoebic Treatment for Rheumatoid Disease " at http://www.garynull.com/Documents/Arthritis/Antiamoebic_treatment.htm. This is a well-written article, copyrighted 1986, which not only explains the anti-ameba protocol, but also deals with " alternative medicine " aspects such as diet, calcium imbalance, and fatty acid deficiency as these relate to rheumatoid diseaese. The article is certainly worth reading. The parallels are striking between the anti-micoplasma (AP) prototocol by McPherson Brown, which is based on tetracycline-class antibiotics, and the anti-ameba protocol by the Wyburn-Mason and Jack M. Blount, which is based on Metronidazole and similar anti-ameba medications. Both protocols claim to be about 70% effective in treating RA. Neither is endorsed by the rheumatoid medical establishment. The stronger claims for RA are made for the anti-ameba protocol, since many patients will have lost their arthritic pain by the time of the first follow-on appointment at 6 or 7 weeks. The AP is described as a longer-term proposition, which make take months or years. This now raises a number of questions to the group: 1. Has anyone studied the anti-ameba protocol or been on it? What has been the update since 1986? (Cooky's detailed experience follows this message.) 2. Does minocycline have anti-ameobic properties? 3. Does Metronidazole have anti-micoplasma properties? 4. If minocycline and Metronidazole are both effective but address different classes of microorganisms, could these medications not be combined? What should dosages be so as not to cause over-medication or a super Hexheimer reaction? I have personally been on the antibiotic protocol (AP) with 100 mg of minocycline per day for RA since 6/19/2001 and am optimistic, but I am willing to modify this treatment if warranted. Sincerely, Harald On 7/15/01, cooky <cooky1@...> wrote: Harold, If you read my story at http://www.rheumatic.org/cooky.htm under medical histories, you will see I was on this therapy before I started AP. I think, and my doc agrees, I was not on it long enough or I would probably had a remission at that time. It is between that therapy and AP that I received (stupid statement) my deformities. Also the tetracycline group (I read this somewhere) produces results like Flagyl [brand name for Metronidazole]. I have been on AP 4 years in October and am doing really well. No further deformities and I am, most days, pain free. I do have slight flares about 3 times a year. They are mild and the only reason I pay them any attention is that I am so pain free other times. I think you should try to stop finding things wrong with AP and get on with your life. All you are doing is upsetting people who are just starting and may never go into remission because of your negativity. cooky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 Harold, Flagyl is also used for lyme disease in many cases. The amounts are higher. Lyme is nearly identical to syphilis (also a spirochete) and in the 60s (I believe) doctors used flagyl (metrodinazol) to treat syphlis. Basically, I believe in both flagyl and doxy and feel there are roles for each in our diseases. We do not know exactly causitive factors for these immune disorders, what we have found is that many of the suspected organisms are cell wall deficient (mycoplasms, spirochetes, amoebia) and antiamoebics may target those well. In the case of lyme, the organism can morph into different types of forms (cystic, nymph, cell wall difficient ... this is my understanding.) What that might mean is that pulsing different drugs at different times might be beneficial. Also, in the case of Lyme, the bacteria replicates very slowly (every 28 days I believe) and a pulsing regime couple of times a week may be sufficient. As you may have heard, lyme is the fastest growing infectious disease in the country..and this is due to growing awareness in the population, ie people are demanding they be tested. In many cases, it is difficult to get a seropositive result. The germ can evade the system. It can be spread from human to human. I have given lyme to my husband and two children. I believe lyme is the cause of my RA. I am concerned that it may cause autoimmune disorders in the kids and we treat the and watch them carefully. I use the flagyl regime with the kids (ages 7 and 9) because they have arthritis symptoms oft and on already and the doctor feels its safe. My son has tested positve for erhlichiosis which is a terrible tick born parasite that messes with white blood cells. This is treated with a cycline like doxy. It seems to be a persistent parasite. I am sure I have it also. In this case (where we have lyme and erhlichiosis), perhaps the Doxy would be better since erhlichia is sensitive to doxy. I do not know if flagyl would act on erhlichiosis. In addition, there is another tick born parasite called babesiosis, we also have that!! (this is common that one tick may infect you with a variety of viscious parasites and bacteria.) Babesiosis is malarial like disease. Again the cyclines have some antimalarial effects and that leads me to believe that doxy may have a beneficial role in suppressing Babesiosis. NOW THAT I HAVE COMPLETELY CONFUSED EVERYONE!! Our family uses doxy mwf for the most part. on full moons and half moons (approx 28 days) we try to take flagyl 10mg/lbs with meals two days in a row. (There is some evidence the bacteria divides with moon cycles). my husband likes flagyl and says his arthritis clears with flagyl (but then sometimes he says it clears with doxy). Basically we use both and interchange. I'm not advocating this regime, I feel there is a role in picking what works best for you a staying with that. Deja.com / sci.med /disease/ lyme is a great source to pick people brains about flagyl and the benefits v. detriment. I hope this makes some sense. Good luck. Kathy rheumatic Anti-ameba Protocol vs. Anti-micoplasma Protocol Dear group, On 7/9/01, I pointed out my discovery of the out-of-print book " Rheumatoid Diseases Cured At Last " (©1982, 1983, 1984) at http://www.arthritistrust.org/topics/rheumcured.html. That book describes a protocol that uses antiamoebic (or anti-ameba) medicines to treat rheumatic diseases, which are claimed to be caused by amoeba (or amebas). Since that time, I have stumbled on a second very informative web page that describes the anti-ameba protocol: " Anti-amoebic Treatment for Rheumatoid Disease " at http://www.garynull.com/Documents/Arthritis/Antiamoebic_treatment.htm. This is a well-written article, copyrighted 1986, which not only explains the anti-ameba protocol, but also deals with " alternative medicine " aspects such as diet, calcium imbalance, and fatty acid deficiency as these relate to rheumatoid diseaese. The article is certainly worth reading. The parallels are striking between the anti-micoplasma (AP) prototocol by McPherson Brown, which is based on tetracycline-class antibiotics, and the anti-ameba protocol by the Wyburn-Mason and Jack M. Blount, which is based on Metronidazole and similar anti-ameba medications. Both protocols claim to be about 70% effective in treating RA. Neither is endorsed by the rheumatoid medical establishment. The stronger claims for RA are made for the anti-ameba protocol, since many patients will have lost their arthritic pain by the time of the first follow-on appointment at 6 or 7 weeks. The AP is described as a longer-term proposition, which make take months or years. This now raises a number of questions to the group: 1. Has anyone studied the anti-ameba protocol or been on it? What has been the update since 1986? (Cooky's detailed experience follows this message.) 2. Does minocycline have anti-ameobic properties? 3. Does Metronidazole have anti-micoplasma properties? 4. If minocycline and Metronidazole are both effective but address different classes of microorganisms, could these medications not be combined? What should dosages be so as not to cause over-medication or a super Hexheimer reaction? I have personally been on the antibiotic protocol (AP) with 100 mg of minocycline per day for RA since 6/19/2001 and am optimistic, but I am willing to modify this treatment if warranted. Sincerely, Harald On 7/15/01, cooky <cooky1@...> wrote: Harold, If you read my story at http://www.rheumatic.org/cooky.htm under medical histories, you will see I was on this therapy before I started AP. I think, and my doc agrees, I was not on it long enough or I would probably had a remission at that time. It is between that therapy and AP that I received (stupid statement) my deformities. Also the tetracycline group (I read this somewhere) produces results like Flagyl [brand name for Metronidazole]. I have been on AP 4 years in October and am doing really well. No further deformities and I am, most days, pain free. I do have slight flares about 3 times a year. They are mild and the only reason I pay them any attention is that I am so pain free other times. I think you should try to stop finding things wrong with AP and get on with your life. All you are doing is upsetting people who are just starting and may never go into remission because of your negativity. cooky To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
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