New Here

[Guest guest]

Welcome Diane to the group. It is a good group of people and we will give

you support and any help that we can. We get through this the best way we

can. Prayers are one of the biggest support that I have.

You seem to have got an awful lot in a short time. I don't think that your

doctor should call you a poor thing. You are not a poor thing. Think

positive and not negative as your doctor is treating you. I grant you that

this is not an easy thing to have but we do survive. You will more than

likely be given pain medication and other medication that your doctor

determines that you need.

I know all about the dropping of things, falling, running into things. We

all do. There are times we feel like we can't cope but with the help and

support of all on this list, we pick ourselves up and start all over again.

The stress from your separation has probably been one of the main caused of

extreme problems you are having. Stress is one of the main problems that we

all have.

You have fibromyalgia. It is not a good thing to have but you will not die

from it. Don't let people treat you as if what you have is the end of the

world. You must be more positive in your attitude and others will treat you

in a more positive manner.

We all have our bad days and our good days. It is all part of FMS. We are

here to help and support you and we will do all that we can to help but you

must help yourself too.

Please take care,

Irene

>

> Through the thick and thin and constant new handicaps I have

> one question.

> How does anyone who does not know the Lord get through this?

> Thank God he is my friend!

>

[Guest guest]

Welcome Diane to the group. It is a good group of people and we will give

you support and any help that we can. We get through this the best way we

can. Prayers are one of the biggest support that I have.

You seem to have got an awful lot in a short time. I don't think that your

doctor should call you a poor thing. You are not a poor thing. Think

positive and not negative as your doctor is treating you. I grant you that

this is not an easy thing to have but we do survive. You will more than

likely be given pain medication and other medication that your doctor

determines that you need.

I know all about the dropping of things, falling, running into things. We

all do. There are times we feel like we can't cope but with the help and

support of all on this list, we pick ourselves up and start all over again.

The stress from your separation has probably been one of the main caused of

extreme problems you are having. Stress is one of the main problems that we

all have.

You have fibromyalgia. It is not a good thing to have but you will not die

from it. Don't let people treat you as if what you have is the end of the

world. You must be more positive in your attitude and others will treat you

in a more positive manner.

We all have our bad days and our good days. It is all part of FMS. We are

here to help and support you and we will do all that we can to help but you

must help yourself too.

Please take care,

Irene

>

> Through the thick and thin and constant new handicaps I have

> one question.

> How does anyone who does not know the Lord get through this?

> Thank God he is my friend!

>

[Guest guest]

Welcome Diane to the group. It is a good group of people and we will give

you support and any help that we can. We get through this the best way we

can. Prayers are one of the biggest support that I have.

You seem to have got an awful lot in a short time. I don't think that your

doctor should call you a poor thing. You are not a poor thing. Think

positive and not negative as your doctor is treating you. I grant you that

this is not an easy thing to have but we do survive. You will more than

likely be given pain medication and other medication that your doctor

determines that you need.

I know all about the dropping of things, falling, running into things. We

all do. There are times we feel like we can't cope but with the help and

support of all on this list, we pick ourselves up and start all over again.

The stress from your separation has probably been one of the main caused of

extreme problems you are having. Stress is one of the main problems that we

all have.

You have fibromyalgia. It is not a good thing to have but you will not die

from it. Don't let people treat you as if what you have is the end of the

world. You must be more positive in your attitude and others will treat you

in a more positive manner.

We all have our bad days and our good days. It is all part of FMS. We are

here to help and support you and we will do all that we can to help but you

must help yourself too.

Please take care,

Irene

>

> Through the thick and thin and constant new handicaps I have

> one question.

> How does anyone who does not know the Lord get through this?

> Thank God he is my friend!

>

[Guest guest]

Welcome to the group, Diane. We all have various symptoms, but I certainly

saw myself in a lot of yours. Stick around, people have lots to offer here.

Darcy

[Guest guest]

Welcome to the group, Diane. We all have various symptoms, but I certainly

saw myself in a lot of yours. Stick around, people have lots to offer here.

Darcy

[Guest guest]

Welcome to the group, Diane. We all have various symptoms, but I certainly

saw myself in a lot of yours. Stick around, people have lots to offer here.

Darcy

[Guest guest]

Hi Diane,

Welcome to the list, I'm so happy you found us!

My name is Joy, I'm 28 and I was just diagnosed in January. I've had

symptoms since I was 8 yrs. old though. Life has been tough and with so

many unexplained pains and illnesses

My first husband left me in the middle of my first severe flare as an adult.

I was 23 and took a break from work because my dying grandma (who I just

learned also had FMS and MPS) told me I needed to or my body would punish me

for it. I guess she understood more than I ever realized! My X husband

thought I was lazy and a bad wife. He never beleived me that I was in so

much pain.

I'm sorry to hear about your separation, I bet it's much harder once you've

been together for so long and I know the stress just aggrivates your pain.

Hang in there!

I also work full time as an Executive Assistant. I've had a hard time

keeping up and I haven't been on time to work in over a month!

Oh it's a struggle, but it sure does help to know we're not alone.

Joy

nickname: Fawn

28 yrs. old

dx 1/01, FMS symptoms for 19 yrs.

live with Navy SO

Baby cat 10 yrs old

Hobbies: Cars, Gardening, Tropical Fish, Karaoke

San Diego, CA

ICQ: 19951984

AOL IM: Fawndles

YAHOO: Fawnz73rs

New here

My name is Diane and I just joined today. I am 41 years old and work full

time. I am separated from my husband of 17 years and have a 20 year old and

15 year old daughter. Aprl lives in burg with her two sons, Jordan 3

and Darien 8 mts. Krystal Lei and I live about 12 blocks from my hubby, whom

I left May 1st.

Unfortunately, it took the Doctor forever to get to the bottom line and I

actually FORCED him to sit and read my chart with me. I had no idea what FMS

was so I wasn't steering him in any direction except to put the puzzle

pieces

together. On my chart was Chronic Fatigue, depression, arthritis, Irritable

bowel syndrome, lack of full night sleep, severe PMS,

chemical imbalance of the brain and Hypothyroidism. After he read through

the

chart he said, " What do you think it is? " I said I didn't know but it is

getting worse. He diagnosed me with FMS and ran some test. I had no clue

what

FMS was but I knew it was a nasty so and so! I went to the library and read

as much as I could find. Went to the bookstore and bought 2 thick ones. I

read the one that is now my Bible but stopped. I could not read anymore, it

was too depressing. I told no one for 3 weeks. My Mother saw the book in my

car and said, " Why don't you ask your Doctor to test you for that? " I was so

depressed all I could say was he did.

My Mom started crying and I didn't tell another sole for another 3 weeks.

I could not face it, could not believe that the things in the book were ME.

So, I made an appointment with another Dr. and he listened to my symptoms

and

knew right away so he did the trigger points thing and tried to break it to

me gently but I knew. So, I went to another Doctor and told him one Doctor

diagnosed me and I needed a second opinion. That is my Rheumy. He agreed

with

my family Doctor. My family Doctor recommended physical and occupational

therapy. I just knew the Therapist was going to say I didn't have Fibro and

was misdiagnosed.

Well, it didn't go that way, he said, " How long have you been diagnosed? "

When I said October 2000 he said you poor girl, all that time without pain

relief! I scanned through my Bible several times since than. I still can't

read the whole thing yet. As I pass through each stage I read the chapter of

the symptom.

My hands/fingers, open and shut at will. This means I throw stuff and drop

it. I stagger like I am drunk and fall every once in a while when trying to

rise. I stutter and my speech gets worse each day. The pain in my ribs and

buttocks are the worse with those charlie horse type cramps. I have the same

cramps all over my body but those 2 areas raise the most havoc.

I have all the little stuff like dry eyes, skin, Rheumy arthritis, bite my

tongue until it bleeds, and those tingles of feeling like your body parts

went to sleep. Through the thick and thin and constant new handicaps I have

one question.

How does anyone who does not know the Lord get through this?

Thank God he is my friend!

Diane

[Guest guest]

In a message dated 5/24/01 1:12:11 AM Eastern Daylight Time,

joy@... writes:

> Hi Diane,

>

> Welcome to the list, I'm so happy you found us!

> My name is Joy, I'm 28 and I was just diagnosed in January. I've had

> symptoms since I was 8 yrs. old though. Life has been tough and with so

> many unexplained pains and illnesses

>

>

Diane,

I'm sorry I missed your introduction. Joy is right , this is a hard

illness and you will get a lot of supprot here. Joy, sorry I jumped in here,

but your my computer genius buddy.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

[Guest guest]

In a message dated 5/24/01 1:12:11 AM Eastern Daylight Time,

joy@... writes:

> Hi Diane,

>

> Welcome to the list, I'm so happy you found us!

> My name is Joy, I'm 28 and I was just diagnosed in January. I've had

> symptoms since I was 8 yrs. old though. Life has been tough and with so

> many unexplained pains and illnesses

>

>

Diane,

I'm sorry I missed your introduction. Joy is right , this is a hard

illness and you will get a lot of supprot here. Joy, sorry I jumped in here,

but your my computer genius buddy.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

[Guest guest]

In a message dated 5/24/01 1:12:11 AM Eastern Daylight Time,

joy@... writes:

> Hi Diane,

>

> Welcome to the list, I'm so happy you found us!

> My name is Joy, I'm 28 and I was just diagnosed in January. I've had

> symptoms since I was 8 yrs. old though. Life has been tough and with so

> many unexplained pains and illnesses

>

>

Diane,

I'm sorry I missed your introduction. Joy is right , this is a hard

illness and you will get a lot of supprot here. Joy, sorry I jumped in here,

but your my computer genius buddy.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

[Guest guest]

abraxis3@...

Hi Diane,

WELCOME!!! There's lots of great people here! We're

all in the same boat, one way or another, and being

able to talk with people that know what you're talking

about is so healing.

LOL

Sue

Mother of 2 grown children

1 husband

2 cats

1 canary

2 Karaoke machines

Diagnosed 4 years ago, but have had it most of my

life!

--- faydra913@... wrote:

> In a message dated 5/24/01 1:12:11 AM Eastern

> Daylight Time,

> joy@... writes:

>

>

> > Hi Diane,

> >

> > Welcome to the list, I'm so happy you found us!

> > My name is Joy, I'm 28 and I was just diagnosed in

> January. I've had

> > symptoms since I was 8 yrs. old though. Life has

> been tough and with so

> > many unexplained pains and illnesses

> >

> >

>

> Diane,

> I'm sorry I missed your introduction. Joy is

> right , this is a hard

> illness and you will get a lot of supprot here.

> Joy, sorry I jumped in here,

> but your my computer genius buddy.

> Kathy D.

> Diagnosed in 98

> Live in Western Massachusetts

> Married for almost 19yrs, to a sweetheart

> Mother to 16 and 14

> My Rottie dog Shelby

> Spooky the cat

> Hobbies: Boating, Learning this computer

> Arts & Crafts, and a passionate reader

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

abraxis3@...

Hi Diane,

WELCOME!!! There's lots of great people here! We're

all in the same boat, one way or another, and being

able to talk with people that know what you're talking

about is so healing.

LOL

Sue

Mother of 2 grown children

1 husband

2 cats

1 canary

2 Karaoke machines

Diagnosed 4 years ago, but have had it most of my

life!

--- faydra913@... wrote:

> In a message dated 5/24/01 1:12:11 AM Eastern

> Daylight Time,

> joy@... writes:

>

>

> > Hi Diane,

> >

> > Welcome to the list, I'm so happy you found us!

> > My name is Joy, I'm 28 and I was just diagnosed in

> January. I've had

> > symptoms since I was 8 yrs. old though. Life has

> been tough and with so

> > many unexplained pains and illnesses

> >

> >

>

> Diane,

> I'm sorry I missed your introduction. Joy is

> right , this is a hard

> illness and you will get a lot of supprot here.

> Joy, sorry I jumped in here,

> but your my computer genius buddy.

> Kathy D.

> Diagnosed in 98

> Live in Western Massachusetts

> Married for almost 19yrs, to a sweetheart

> Mother to 16 and 14

> My Rottie dog Shelby

> Spooky the cat

> Hobbies: Boating, Learning this computer

> Arts & Crafts, and a passionate reader

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

abraxis3@...

Hi Diane,

WELCOME!!! There's lots of great people here! We're

all in the same boat, one way or another, and being

able to talk with people that know what you're talking

about is so healing.

LOL

Sue

Mother of 2 grown children

1 husband

2 cats

1 canary

2 Karaoke machines

Diagnosed 4 years ago, but have had it most of my

life!

--- faydra913@... wrote:

> In a message dated 5/24/01 1:12:11 AM Eastern

> Daylight Time,

> joy@... writes:

>

>

> > Hi Diane,

> >

> > Welcome to the list, I'm so happy you found us!

> > My name is Joy, I'm 28 and I was just diagnosed in

> January. I've had

> > symptoms since I was 8 yrs. old though. Life has

> been tough and with so

> > many unexplained pains and illnesses

> >

> >

>

> Diane,

> I'm sorry I missed your introduction. Joy is

> right , this is a hard

> illness and you will get a lot of supprot here.

> Joy, sorry I jumped in here,

> but your my computer genius buddy.

> Kathy D.

> Diagnosed in 98

> Live in Western Massachusetts

> Married for almost 19yrs, to a sweetheart

> Mother to 16 and 14

> My Rottie dog Shelby

> Spooky the cat

> Hobbies: Boating, Learning this computer

> Arts & Crafts, and a passionate reader

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Darin.. My name is ,, and I am also one of the few males with this

'thing'. Mine is so bad that I can't even work, and am on long term

disability through my company, IBM. I really cannot 'pin down' exactly when

I first got this thing, but I have been chronically ill for years. I turn 35

this Sept 14th, and have 3 precious children, and a now estranged wife who

has major emotional issues of her own to deal with. (you can see me and my

clan at : http://watters.faithweb.com )

have you ever found anything to deal with the muscle weakness?

I've noticed mine has been getting so bad lately in my arms and fingers that

I have had to actually focus and concentrate in order to do very basic

things like typing or holding a glass.

remember, that we are all here for you in this group as best as we are able.

We may not be able to help with the physical part of this disease, but we

all can try to be there for you emotionally.

Blessings,

new here

> i just wanted to say hi to all my fellow " sufferers " . i had cfs

> since i was 15. a bout with the dreaded epstein barr virus started it

> for me. i'm now 31 and it seems to be fibromyalgia now . the brain

> fogs have been there through the years as well as the fatigue but

> this year the pain really started. i have had head aches and such

> through the years and increasing aches but i really hurt bad now.

> almost daily is the " pain " and i cherish the days of just aches. i

> am one of the unlucky males to get this. i hope this group helps

> because i'm really frustrated with this disease. thanks ...darin

>

>

> SEND POST TO: fibromyalgia-cfs

>

[Guest guest]

Hi Darin.. My name is ,, and I am also one of the few males with this

'thing'. Mine is so bad that I can't even work, and am on long term

disability through my company, IBM. I really cannot 'pin down' exactly when

I first got this thing, but I have been chronically ill for years. I turn 35

this Sept 14th, and have 3 precious children, and a now estranged wife who

has major emotional issues of her own to deal with. (you can see me and my

clan at : http://watters.faithweb.com )

have you ever found anything to deal with the muscle weakness?

I've noticed mine has been getting so bad lately in my arms and fingers that

I have had to actually focus and concentrate in order to do very basic

things like typing or holding a glass.

remember, that we are all here for you in this group as best as we are able.

We may not be able to help with the physical part of this disease, but we

all can try to be there for you emotionally.

Blessings,

new here

> i just wanted to say hi to all my fellow " sufferers " . i had cfs

> since i was 15. a bout with the dreaded epstein barr virus started it

> for me. i'm now 31 and it seems to be fibromyalgia now . the brain

> fogs have been there through the years as well as the fatigue but

> this year the pain really started. i have had head aches and such

> through the years and increasing aches but i really hurt bad now.

> almost daily is the " pain " and i cherish the days of just aches. i

> am one of the unlucky males to get this. i hope this group helps

> because i'm really frustrated with this disease. thanks ...darin

>

>

> SEND POST TO: fibromyalgia-cfs

>

[Guest guest]

Hi Darin.. My name is ,, and I am also one of the few males with this

'thing'. Mine is so bad that I can't even work, and am on long term

disability through my company, IBM. I really cannot 'pin down' exactly when

I first got this thing, but I have been chronically ill for years. I turn 35

this Sept 14th, and have 3 precious children, and a now estranged wife who

has major emotional issues of her own to deal with. (you can see me and my

clan at : http://watters.faithweb.com )

have you ever found anything to deal with the muscle weakness?

I've noticed mine has been getting so bad lately in my arms and fingers that

I have had to actually focus and concentrate in order to do very basic

things like typing or holding a glass.

remember, that we are all here for you in this group as best as we are able.

We may not be able to help with the physical part of this disease, but we

all can try to be there for you emotionally.

Blessings,

new here

> i just wanted to say hi to all my fellow " sufferers " . i had cfs

> since i was 15. a bout with the dreaded epstein barr virus started it

> for me. i'm now 31 and it seems to be fibromyalgia now . the brain

> fogs have been there through the years as well as the fatigue but

> this year the pain really started. i have had head aches and such

> through the years and increasing aches but i really hurt bad now.

> almost daily is the " pain " and i cherish the days of just aches. i

> am one of the unlucky males to get this. i hope this group helps

> because i'm really frustrated with this disease. thanks ...darin

>

>

> SEND POST TO: fibromyalgia-cfs

>

[Guest guest]

Welcome Darin,

I too have suffered with diffrent " symptoms " of this syndrome, (too

many to list) I too cherish those days when I just " ache " . And I've had two

days in a row now! YAY! I have my days where I am extremely frustrated, but I

too now, have some sembelece of peace, at least knowing what has caused all

this stuff to have been going on with me. I know you'll find caring people

here as I have. Welcome!

*hugs*

-Lori

[Guest guest]

Welcome Darin,

I too have suffered with diffrent " symptoms " of this syndrome, (too

many to list) I too cherish those days when I just " ache " . And I've had two

days in a row now! YAY! I have my days where I am extremely frustrated, but I

too now, have some sembelece of peace, at least knowing what has caused all

this stuff to have been going on with me. I know you'll find caring people

here as I have. Welcome!

*hugs*

-Lori

[Guest guest]

Welcome Darin,

I too have suffered with diffrent " symptoms " of this syndrome, (too

many to list) I too cherish those days when I just " ache " . And I've had two

days in a row now! YAY! I have my days where I am extremely frustrated, but I

too now, have some sembelece of peace, at least knowing what has caused all

this stuff to have been going on with me. I know you'll find caring people

here as I have. Welcome!

*hugs*

-Lori

[Guest guest]

Welcome to the list. We are a very caring and supportive group. We will try

to help you as much as we can. There is a lot of good information that goes

through this list. We are all frustrated and unable to cope at times too.

Please join in the discussions about any problems that you are having.

Take care,

Irene

Co-Moderator

> i just wanted to say hi to all my fellow " sufferers " . i had cfs

> since i was 15. a bout with the dreaded epstein barr virus started it

> for me. i'm now 31 and it seems to be Fibromyalgia now. the brain

> fogs have been there through the years as well as the fatigue but

> this year the pain really started. i have had head aches and such

> through the years and increasing aches but i really hurt bad now.

> almost daily is the " pain " and i cherish the days of just aches. i

> am one of the unlucky males to get this. i hope this group helps

> because I'm really frustrated with this disease. thanks ...darin

>

>

[Guest guest]

Welcome to the list. We are a very caring and supportive group. We will try

to help you as much as we can. There is a lot of good information that goes

through this list. We are all frustrated and unable to cope at times too.

Please join in the discussions about any problems that you are having.

Take care,

Irene

Co-Moderator

> i just wanted to say hi to all my fellow " sufferers " . i had cfs

> since i was 15. a bout with the dreaded epstein barr virus started it

> for me. i'm now 31 and it seems to be Fibromyalgia now. the brain

> fogs have been there through the years as well as the fatigue but

> this year the pain really started. i have had head aches and such

> through the years and increasing aches but i really hurt bad now.

> almost daily is the " pain " and i cherish the days of just aches. i

> am one of the unlucky males to get this. i hope this group helps

> because I'm really frustrated with this disease. thanks ...darin

>

>

[Guest guest]

Welcome to the list. We are a very caring and supportive group. We will try

to help you as much as we can. There is a lot of good information that goes

through this list. We are all frustrated and unable to cope at times too.

Please join in the discussions about any problems that you are having.

Take care,

Irene

Co-Moderator

> i just wanted to say hi to all my fellow " sufferers " . i had cfs

> since i was 15. a bout with the dreaded epstein barr virus started it

> for me. i'm now 31 and it seems to be Fibromyalgia now. the brain

> fogs have been there through the years as well as the fatigue but

> this year the pain really started. i have had head aches and such

> through the years and increasing aches but i really hurt bad now.

> almost daily is the " pain " and i cherish the days of just aches. i

> am one of the unlucky males to get this. i hope this group helps

> because I'm really frustrated with this disease. thanks ...darin

>

>

[Guest guest]

Welcome, Darin.

I am on this list because my husband has fms. He is not interested in

socializing at all, let alone on an e-mail list, so I am here to learn all I can

and see things from his perspective. But because he is a " he " , I am

particularly interested in 's perspective, and now yours.

My husband is also frustrated, and is still in denial about a lot of things.

And he, too, complains about muscle weakness, especially in his arms. My

husband will be 34 next week, so he is the same age group as . In his

case, it appears a traumatic event triggered his illness, though I don't think

his symptoms are as bad as others on this list; he is still able to carry on a

relatively normal life, although he spends about half his time resting and/or

recovering from things.

For example, we drove from Seattle to Portland today and met his dad there to

turn our kids (6 and 8) over for the rest of the summer, and by the time we got

back to Seattle his back was so stiff he said it hurt to breathe. He didn't

even fight when I gave him some Tylenol and some Advil, which he usually refuses

to take. He says he still hurts, which I don't doubt, but the intense pain is

gone from his face now and he is moving normally again, so I think the

Tylenol/Advil combination might just work for him. He's not taking anything

else for pain of any kind.

Anyway, as you can see, this is a pretty open and welcoming group, and we are

looking forward to hearing from you more.

Angie Madsen

Helpless spouse

new here

i just wanted to say hi to all my fellow " sufferers " . i had cfs

since i was 15. a bout with the dreaded epstein barr virus started it

for me. i'm now 31 and it seems to be fibromyalgia now . the brain

fogs have been there through the years as well as the fatigue but

this year the pain really started. i have had head aches and such

through the years and increasing aches but i really hurt bad now.

almost daily is the " pain " and i cherish the days of just aches. i

am one of the unlucky males to get this. i hope this group helps

because i'm really frustrated with this disease. thanks ...darin

SEND POST TO: fibromyalgia-cfs

[Guest guest]

Welcome, Darin.

I am on this list because my husband has fms. He is not interested in

socializing at all, let alone on an e-mail list, so I am here to learn all I can

and see things from his perspective. But because he is a " he " , I am

particularly interested in 's perspective, and now yours.

My husband is also frustrated, and is still in denial about a lot of things.

And he, too, complains about muscle weakness, especially in his arms. My

husband will be 34 next week, so he is the same age group as . In his

case, it appears a traumatic event triggered his illness, though I don't think

his symptoms are as bad as others on this list; he is still able to carry on a

relatively normal life, although he spends about half his time resting and/or

recovering from things.

For example, we drove from Seattle to Portland today and met his dad there to

turn our kids (6 and 8) over for the rest of the summer, and by the time we got

back to Seattle his back was so stiff he said it hurt to breathe. He didn't

even fight when I gave him some Tylenol and some Advil, which he usually refuses

to take. He says he still hurts, which I don't doubt, but the intense pain is

gone from his face now and he is moving normally again, so I think the

Tylenol/Advil combination might just work for him. He's not taking anything

else for pain of any kind.

Anyway, as you can see, this is a pretty open and welcoming group, and we are

looking forward to hearing from you more.

Angie Madsen

Helpless spouse

new here

i just wanted to say hi to all my fellow " sufferers " . i had cfs

since i was 15. a bout with the dreaded epstein barr virus started it

for me. i'm now 31 and it seems to be fibromyalgia now . the brain

fogs have been there through the years as well as the fatigue but

this year the pain really started. i have had head aches and such

through the years and increasing aches but i really hurt bad now.

almost daily is the " pain " and i cherish the days of just aches. i

am one of the unlucky males to get this. i hope this group helps

because i'm really frustrated with this disease. thanks ...darin

SEND POST TO: fibromyalgia-cfs

[Guest guest]

Welcome, Darin.

I am on this list because my husband has fms. He is not interested in

socializing at all, let alone on an e-mail list, so I am here to learn all I can

and see things from his perspective. But because he is a " he " , I am

particularly interested in 's perspective, and now yours.

My husband is also frustrated, and is still in denial about a lot of things.

And he, too, complains about muscle weakness, especially in his arms. My

husband will be 34 next week, so he is the same age group as . In his

case, it appears a traumatic event triggered his illness, though I don't think

his symptoms are as bad as others on this list; he is still able to carry on a

relatively normal life, although he spends about half his time resting and/or

recovering from things.

For example, we drove from Seattle to Portland today and met his dad there to

turn our kids (6 and 8) over for the rest of the summer, and by the time we got

back to Seattle his back was so stiff he said it hurt to breathe. He didn't

even fight when I gave him some Tylenol and some Advil, which he usually refuses

to take. He says he still hurts, which I don't doubt, but the intense pain is

gone from his face now and he is moving normally again, so I think the

Tylenol/Advil combination might just work for him. He's not taking anything

else for pain of any kind.

Anyway, as you can see, this is a pretty open and welcoming group, and we are

looking forward to hearing from you more.

Angie Madsen

Helpless spouse

new here

i just wanted to say hi to all my fellow " sufferers " . i had cfs

since i was 15. a bout with the dreaded epstein barr virus started it

for me. i'm now 31 and it seems to be fibromyalgia now . the brain

fogs have been there through the years as well as the fatigue but

this year the pain really started. i have had head aches and such

through the years and increasing aches but i really hurt bad now.

almost daily is the " pain " and i cherish the days of just aches. i

am one of the unlucky males to get this. i hope this group helps

because i'm really frustrated with this disease. thanks ...darin

SEND POST TO: fibromyalgia-cfs