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Hi everybody,

Once agian, we have an update to the CHARGE Syndrome

Foundation website www.chargesyndrome.org to anounce! The

" About CHARGE " link has been updated - that means there is

up to date information on diagnsis of CHARGE (and the gene)

including lots and lots of photos illustrating the different

features of CHARGE. Go take a look! You'll see many of

your friends!

An remember, if you like all that the Foundation does for

you (website, Manual, Conferneces...) - please join, and

maybe send an additional contribution (I've been listening

to spring fund drive on NPR all week, sorry). It's how we

survive! We also take suggestions for addtions and

improvements!

Meg

Meg Hefner, M.S.

Genetic Counselor

St. Louis, MO

hefnerma@... meg@...

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