Re: Sensory Issues (formerly Speech Therapy and CI candidacy...)

[Guest guest]

This topic fascinates me. Since our son, Ian's hearing loss was discovered so

late and it was one of several issues that were evolving, we never paid much

attention to sensory issues. But they were there and were mentioned by a few

of the doctors. Just never as anything serious ... more like a side note.

Ian has always had a sensitivity to textures. Some foods he simply will not

eat -- lima beans and mushrooms immediately come to mind. His reason -- he

doesn't mind the flavor, but the texture is horrible to him. The most pronounced

issue is clothing. Seams on socks that hit his toes in a certain way will drive

him nuts. If a shirt has an even slightly rough texture to it, he will

scratch as though he was wearing wool next to his skin. And I don't mean that

the

fabric would feel rough to you or me, just to him

So, now when I go shopping I have a habit of touching the shirts in the men's

departments as I walk through there. I'll come home with a t-shirt or dress

shirt when there is no occassion or reason to have bought anything. No reason

except that I found a soft and " cozy " shirt that I know my son will love and

wear.

I've always just considered this to be my wonderfully off-beat kid. I tease

him that he has champaigne taste on a kool-aide budget. The first time he felt

silk and cashmere, he thought he'd discovered heaven-on-earth. Then I had him

look at the price tags, and he experienced " sitcker shock " for the first time

as well. (LOL) The new micro fibers are very soft -- and affordable, so he

can wait for the silk and cashmere for when he is rich and famous.

Best -- Jill

Mom to Ian (13, HOH bilateral moderate loss) and (10)

[Guest guest]

My 10 yr old son with a severe/profound loss will not wear any jean

material, or material that is rough like that. He will go running if

anyone approaches him with jeans. He will wear sweat pants, nylon

running pants and pants like Dockers but forget the jeans.

He is also very sensitive when it comes to food. His diet basically

consists of PB & J, chicken nuggets, pizza, bananas, pop tarts, hot

dogs. He will eat cooked ham but no chicken, hamburg or pork chops.

It can get a bit frustrating at times!

He was seen by an OT last year and was diagnosed with SID.

J

Bangor WA

mom to , 10, severe/profound bilateral sensioneural loss,

SEE/oral,SID, asthma

, 8, speech therapy for hypernasality

ph,5, speech therapy for articulation errors

> This topic fascinates me. Since our son, Ian's hearing loss was

discovered so

> late and it was one of several issues that were evolving, we never

paid much

> attention to sensory issues. But they were there and were

mentioned by a few

> of the doctors. Just never as anything serious ... more like a

side note.

>

> Ian has always had a sensitivity to textures. Some foods he simply

will not

> eat -- lima beans and mushrooms immediately come to mind. His

reason -- he

> doesn't mind the flavor, but the texture is horrible to him. The

most pronounced

> issue is clothing. Seams on socks that hit his toes in a certain

way will drive

> him nuts. If a shirt has an even slightly rough texture to it, he

will

> scratch as though he was wearing wool next to his skin. And I

don't mean that the

> fabric would feel rough to you or me, just to him

>

> So, now when I go shopping I have a habit of touching the shirts

in the men's

> departments as I walk through there. I'll come home with a t-shirt

or dress

> shirt when there is no occassion or reason to have bought

anything. No reason

> except that I found a soft and " cozy " shirt that I know my son

will love and

> wear.

>

> I've always just considered this to be my wonderfully off-beat

kid. I tease

> him that he has champaigne taste on a kool-aide budget. The first

time he felt

> silk and cashmere, he thought he'd discovered heaven-on-earth.

Then I had him

> look at the price tags, and he experienced " sitcker shock " for the

first time

> as well. (LOL) The new micro fibers are very soft -- and

affordable, so he

> can wait for the silk and cashmere for when he is rich and famous.

>

> Best -- Jill

>

> Mom to Ian (13, HOH bilateral moderate loss) and (10)

>

>

>

[Guest guest]

Wow! This sounds exactly like my 10 yr old (also severe-profound, now

with CI), both the clothing and the food. Did the OT have any

suggestions, particularly with respect to diet? Lately I've been trying

to force my son to eat more things, but he truly seems unable to swallow

" real " meat. He is also extremely sensitive to smell.

mom to , 10, N24C

alcojo94 wrote:

>My 10 yr old son with a severe/profound loss will not wear any jean

>material, or material that is rough like that. He will go running if

>anyone approaches him with jeans. He will wear sweat pants, nylon

>running pants and pants like Dockers but forget the jeans.

>

>He is also very sensitive when it comes to food. His diet basically

>consists of PB & J, chicken nuggets, pizza, bananas, pop tarts, hot

>dogs. He will eat cooked ham but no chicken, hamburg or pork chops.

>It can get a bit frustrating at times!

>

>He was seen by an OT last year and was diagnosed with SID.

>

> J

>Bangor WA

>mom to , 10, severe/profound bilateral sensioneural loss,

>SEE/oral,SID, asthma

>, 8, speech therapy for hypernasality

>ph,5, speech therapy for articulation errors

>

>

>

>

>

>>This topic fascinates me. Since our son, Ian's hearing loss was

>>

>>

>discovered so

>

>

>>late and it was one of several issues that were evolving, we never

>>

>>

>paid much

>

>

>>attention to sensory issues. But they were there and were

>>

>>

>mentioned by a few

>

>

>>of the doctors. Just never as anything serious ... more like a

>>

>>

>side note.

>

>

>>Ian has always had a sensitivity to textures. Some foods he simply

>>

>>

>will not

>

>

>>eat -- lima beans and mushrooms immediately come to mind. His

>>

>>

>reason -- he

>

>

>>doesn't mind the flavor, but the texture is horrible to him. The

>>

>>

>most pronounced

>

>

>>issue is clothing. Seams on socks that hit his toes in a certain

>>

>>

>way will drive

>

>

>>him nuts. If a shirt has an even slightly rough texture to it, he

>>

>>

>will

>

>

>>scratch as though he was wearing wool next to his skin. And I

>>

>>

>don't mean that the

>

>

>>fabric would feel rough to you or me, just to him

>>

>>So, now when I go shopping I have a habit of touching the shirts

>>

>>

>in the men's

>

>

>>departments as I walk through there. I'll come home with a t-shirt

>>

>>

>or dress

>

>

>>shirt when there is no occassion or reason to have bought

>>

>>

>anything. No reason

>

>

>>except that I found a soft and " cozy " shirt that I know my son

>>

>>

>will love and

>

>

>>wear.

>>

>>I've always just considered this to be my wonderfully off-beat

>>

>>

>kid. I tease

>

>

>>him that he has champaigne taste on a kool-aide budget. The first

>>

>>

>time he felt

>

>

>>silk and cashmere, he thought he'd discovered heaven-on-earth.

>>

>>

>Then I had him

>

>

>>look at the price tags, and he experienced " sitcker shock " for the

>>

>>

>first time

>

>

>>as well. (LOL) The new micro fibers are very soft -- and

>>

>>

>affordable, so he

>

>

>>can wait for the silk and cashmere for when he is rich and famous.

>>

>>Best -- Jill

>>

>>Mom to Ian (13, HOH bilateral moderate loss) and (10)

>>

>>

>>

[Guest guest]

Wow! This sounds exactly like my 10 yr old (also severe-profound, now

with CI), both the clothing and the food. Did the OT have any

suggestions, particularly with respect to diet? Lately I've been trying

to force my son to eat more things, but he truly seems unable to swallow

" real " meat. He is also extremely sensitive to smell.

mom to , 10, N24C

alcojo94 wrote:

>My 10 yr old son with a severe/profound loss will not wear any jean

>material, or material that is rough like that. He will go running if

>anyone approaches him with jeans. He will wear sweat pants, nylon

>running pants and pants like Dockers but forget the jeans.

>

>He is also very sensitive when it comes to food. His diet basically

>consists of PB & J, chicken nuggets, pizza, bananas, pop tarts, hot

>dogs. He will eat cooked ham but no chicken, hamburg or pork chops.

>It can get a bit frustrating at times!

>

>He was seen by an OT last year and was diagnosed with SID.

>

> J

>Bangor WA

>mom to , 10, severe/profound bilateral sensioneural loss,

>SEE/oral,SID, asthma

>, 8, speech therapy for hypernasality

>ph,5, speech therapy for articulation errors

>

>

>

>

>

>>This topic fascinates me. Since our son, Ian's hearing loss was

>>

>>

>discovered so

>

>

>>late and it was one of several issues that were evolving, we never

>>

>>

>paid much

>

>

>>attention to sensory issues. But they were there and were

>>

>>

>mentioned by a few

>

>

>>of the doctors. Just never as anything serious ... more like a

>>

>>

>side note.

>

>

>>Ian has always had a sensitivity to textures. Some foods he simply

>>

>>

>will not

>

>

>>eat -- lima beans and mushrooms immediately come to mind. His

>>

>>

>reason -- he

>

>

>>doesn't mind the flavor, but the texture is horrible to him. The

>>

>>

>most pronounced

>

>

>>issue is clothing. Seams on socks that hit his toes in a certain

>>

>>

>way will drive

>

>

>>him nuts. If a shirt has an even slightly rough texture to it, he

>>

>>

>will

>

>

>>scratch as though he was wearing wool next to his skin. And I

>>

>>

>don't mean that the

>

>

>>fabric would feel rough to you or me, just to him

>>

>>So, now when I go shopping I have a habit of touching the shirts

>>

>>

>in the men's

>

>

>>departments as I walk through there. I'll come home with a t-shirt

>>

>>

>or dress

>

>

>>shirt when there is no occassion or reason to have bought

>>

>>

>anything. No reason

>

>

>>except that I found a soft and " cozy " shirt that I know my son

>>

>>

>will love and

>

>

>>wear.

>>

>>I've always just considered this to be my wonderfully off-beat

>>

>>

>kid. I tease

>

>

>>him that he has champaigne taste on a kool-aide budget. The first

>>

>>

>time he felt

>

>

>>silk and cashmere, he thought he'd discovered heaven-on-earth.

>>

>>

>Then I had him

>

>

>>look at the price tags, and he experienced " sitcker shock " for the

>>

>>

>first time

>

>

>>as well. (LOL) The new micro fibers are very soft -- and

>>

>>

>affordable, so he

>

>

>>can wait for the silk and cashmere for when he is rich and famous.

>>

>>Best -- Jill

>>

>>Mom to Ian (13, HOH bilateral moderate loss) and (10)

>>

>>

>>

[Guest guest]

Wow! This sounds exactly like my 10 yr old (also severe-profound, now

with CI), both the clothing and the food. Did the OT have any

suggestions, particularly with respect to diet? Lately I've been trying

to force my son to eat more things, but he truly seems unable to swallow

" real " meat. He is also extremely sensitive to smell.

mom to , 10, N24C

alcojo94 wrote:

>My 10 yr old son with a severe/profound loss will not wear any jean

>material, or material that is rough like that. He will go running if

>anyone approaches him with jeans. He will wear sweat pants, nylon

>running pants and pants like Dockers but forget the jeans.

>

>He is also very sensitive when it comes to food. His diet basically

>consists of PB & J, chicken nuggets, pizza, bananas, pop tarts, hot

>dogs. He will eat cooked ham but no chicken, hamburg or pork chops.

>It can get a bit frustrating at times!

>

>He was seen by an OT last year and was diagnosed with SID.

>

> J

>Bangor WA

>mom to , 10, severe/profound bilateral sensioneural loss,

>SEE/oral,SID, asthma

>, 8, speech therapy for hypernasality

>ph,5, speech therapy for articulation errors

>

>

>

>

>

>>This topic fascinates me. Since our son, Ian's hearing loss was

>>

>>

>discovered so

>

>

>>late and it was one of several issues that were evolving, we never

>>

>>

>paid much

>

>

>>attention to sensory issues. But they were there and were

>>

>>

>mentioned by a few

>

>

>>of the doctors. Just never as anything serious ... more like a

>>

>>

>side note.

>

>

>>Ian has always had a sensitivity to textures. Some foods he simply

>>

>>

>will not

>

>

>>eat -- lima beans and mushrooms immediately come to mind. His

>>

>>

>reason -- he

>

>

>>doesn't mind the flavor, but the texture is horrible to him. The

>>

>>

>most pronounced

>

>

>>issue is clothing. Seams on socks that hit his toes in a certain

>>

>>

>way will drive

>

>

>>him nuts. If a shirt has an even slightly rough texture to it, he

>>

>>

>will

>

>

>>scratch as though he was wearing wool next to his skin. And I

>>

>>

>don't mean that the

>

>

>>fabric would feel rough to you or me, just to him

>>

>>So, now when I go shopping I have a habit of touching the shirts

>>

>>

>in the men's

>

>

>>departments as I walk through there. I'll come home with a t-shirt

>>

>>

>or dress

>

>

>>shirt when there is no occassion or reason to have bought

>>

>>

>anything. No reason

>

>

>>except that I found a soft and " cozy " shirt that I know my son

>>

>>

>will love and

>

>

>>wear.

>>

>>I've always just considered this to be my wonderfully off-beat

>>

>>

>kid. I tease

>

>

>>him that he has champaigne taste on a kool-aide budget. The first

>>

>>

>time he felt

>

>

>>silk and cashmere, he thought he'd discovered heaven-on-earth.

>>

>>

>Then I had him

>

>

>>look at the price tags, and he experienced " sitcker shock " for the

>>

>>

>first time

>

>

>>as well. (LOL) The new micro fibers are very soft -- and

>>

>>

>affordable, so he

>

>

>>can wait for the silk and cashmere for when he is rich and famous.

>>

>>Best -- Jill

>>

>>Mom to Ian (13, HOH bilateral moderate loss) and (10)

>>

>>

>>