Re: Monika & A Rick Update :o)

[Guest guest]

Donna..You have such a great attitude and you are right. Cherish life on a

daily basis. Things get better. faith is our constant companion and I feel very

sad for

the young man (?) who is so mixed up,angry and frustrated. He told us he

lives in

Waco,Tx.,,is 32,has some personal problems and is a bit angry with life. I

made some

phome calls and think I might have a response before noon tomorrow for

Roirae,we

have several Angel groups throught the area and they do their utmpst to

assist people

who have so many problems. Take care, hugs and prayers Nick & Jane

[Guest guest]

Donna..You have such a great attitude and you are right. Cherish life on a

daily basis. Things get better. faith is our constant companion and I feel very

sad for

the young man (?) who is so mixed up,angry and frustrated. He told us he

lives in

Waco,Tx.,,is 32,has some personal problems and is a bit angry with life. I

made some

phome calls and think I might have a response before noon tomorrow for

Roirae,we

have several Angel groups throught the area and they do their utmpst to

assist people

who have so many problems. Take care, hugs and prayers Nick & Jane

[Guest guest]

Donna..You have such a great attitude and you are right. Cherish life on a

daily basis. Things get better. faith is our constant companion and I feel very

sad for

the young man (?) who is so mixed up,angry and frustrated. He told us he

lives in

Waco,Tx.,,is 32,has some personal problems and is a bit angry with life. I

made some

phome calls and think I might have a response before noon tomorrow for

Roirae,we

have several Angel groups throught the area and they do their utmpst to

assist people

who have so many problems. Take care, hugs and prayers Nick & Jane

[Guest guest]

Donna,

It is a joy to hear that you and Rick are having some pleasure. That

Rick feels well enough to play golf is just terrific. I hope you got

in some fun activities, too.

Sharon

> Monika .......... I'm sooo glad you and Bert had a great time!!

> What a blessing that is. Thanks for the sweet comments about

Rick's

> improvement. He continues to amaze me and everyone else around

> him. He has been feeling MUCH better physically over the last two

> weeks. We went to Hot Springs (about 2 1/2 hours away) for a big

> Festival (related to his work) .......... the trip was provided by

> the company and was the first " fun " thing we've done since his

brain

> tumor diagnosis. Believe it or not ....... he played 14 holes of

> golf on Thursday, and 18 holes on Friday!!!!! He was a bit tired

in

> the evenings, but that was just fine ....... we just hung out in

the

> hotel room and relaxed. We both needed that.

>

> So ....... he's still improving .... physically. Still having some

> mental issues ...... but so far we're dealing with those. I've

> kind of adjusted to his personality changes .... and I'm just

> thankful he is doing as well as he is. If Rick can do this well,

> there is certainly HOPE for those with less tumor burden than him.

> You just have to keep fighting, keep believing, and cherish each

and

> every day. )

>

> Best Wishes to All of You!!

> Donna Sisco

> S/O Rick, 50, Arkansas

> 09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

> 60%+ Tumor Burden in Liver

> 09/24/02 - 10cm Tumor removed from Colon

> 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

> months

> 06/11/03 - Appt at MD - Suggested changing chemo –

failing

> current treatment

> 07/25/03 - Began Oxaliplatin/Xeloda Chemo

> 10/20/03 - Increased Xeloda – Still failing treatment

> 11/12/03 - Added Celebrex - continued failure

> 01/15/04 - Switched to FOLFOX4 chemo

> 02/23/04 - CEA drops 80 points

> 02/25/04 - First Symptoms of Brain Problem

> 03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Junction of Left

> Frontal and Parietal Lobe

> 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

> 03/15/04 - Last WBR Treatment

> 03/18/04 – Took last Decadron - extremely fast weaning process

> 03/22/04 - First Grand Mal Seizure (5 day hospital stay)

> 03/22/04 - Back on Decadron, added Dilantin & Insulin

> 04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

> 04/13/04 – Not metabolizing Dilantin – adding Keppra

> 04/20/04 - Switched to CPT-11 with Erbitux

> 05/04/04 – Weaning from Dilantin, staying on Keppra

> 05/13/04 – CT Scans showed minimal shrinkage in brain tumor & liver

> tumors, CEA dropped from 360 to 61, also some reduction of swelling

> around BT

> 05/17/04 – Reduced Decadron to 2mgs/day

[Guest guest]

Donna,

It is a joy to hear that you and Rick are having some pleasure. That

Rick feels well enough to play golf is just terrific. I hope you got

in some fun activities, too.

Sharon

> Monika .......... I'm sooo glad you and Bert had a great time!!

> What a blessing that is. Thanks for the sweet comments about

Rick's

> improvement. He continues to amaze me and everyone else around

> him. He has been feeling MUCH better physically over the last two

> weeks. We went to Hot Springs (about 2 1/2 hours away) for a big

> Festival (related to his work) .......... the trip was provided by

> the company and was the first " fun " thing we've done since his

brain

> tumor diagnosis. Believe it or not ....... he played 14 holes of

> golf on Thursday, and 18 holes on Friday!!!!! He was a bit tired

in

> the evenings, but that was just fine ....... we just hung out in

the

> hotel room and relaxed. We both needed that.

>

> So ....... he's still improving .... physically. Still having some

> mental issues ...... but so far we're dealing with those. I've

> kind of adjusted to his personality changes .... and I'm just

> thankful he is doing as well as he is. If Rick can do this well,

> there is certainly HOPE for those with less tumor burden than him.

> You just have to keep fighting, keep believing, and cherish each

and

> every day. )

>

> Best Wishes to All of You!!

> Donna Sisco

> S/O Rick, 50, Arkansas

> 09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

> 60%+ Tumor Burden in Liver

> 09/24/02 - 10cm Tumor removed from Colon

> 10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

> months

> 06/11/03 - Appt at MD - Suggested changing chemo –

failing

> current treatment

> 07/25/03 - Began Oxaliplatin/Xeloda Chemo

> 10/20/03 - Increased Xeloda – Still failing treatment

> 11/12/03 - Added Celebrex - continued failure

> 01/15/04 - Switched to FOLFOX4 chemo

> 02/23/04 - CEA drops 80 points

> 02/25/04 - First Symptoms of Brain Problem

> 03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Junction of Left

> Frontal and Parietal Lobe

> 03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

> 03/15/04 - Last WBR Treatment

> 03/18/04 – Took last Decadron - extremely fast weaning process

> 03/22/04 - First Grand Mal Seizure (5 day hospital stay)

> 03/22/04 - Back on Decadron, added Dilantin & Insulin

> 04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

> 04/13/04 – Not metabolizing Dilantin – adding Keppra

> 04/20/04 - Switched to CPT-11 with Erbitux

> 05/04/04 – Weaning from Dilantin, staying on Keppra

> 05/13/04 – CT Scans showed minimal shrinkage in brain tumor & liver

> tumors, CEA dropped from 360 to 61, also some reduction of swelling

> around BT

> 05/17/04 – Reduced Decadron to 2mgs/day