Hearing loss (mis)diagnosis

[Guest guest]

Hi All,

Michele, thanks for the info on handle trianing. I am going to contact them.

Lombard is not that far from where we live.

Just an update on my daughter's hearing loss.

8 months back, she was diagonised with conductive hearing loss (two or three

ABRs before that showed mixed mild to moderate hearing ). She has hearing

aids for conductive hearing loss now. SHe is a charger too. (CHD7 gene). SHe

also has facial nerve palsy

recently had a CT scan done for her. It showed deficient apical turns of

cochlea. talked to her ENT over the weekend.

She was not too concerned or think that facial nerve palsy was due to any

fluid or pressure on the nerve in the ear.

Of concern to us right now is - she said that because of malformed cochlea,

hearing loss is sensorineural and she might loose whatever hearing she has

(not sure when but most likely she will). did anybody experience this.

this news was devastating for us.

even if it is sensorineural, how can she loose whatever she already has.

does it atleast not stay the way it is.

are there any aggressive proactive options that we can do to atleast retain

the current function of the cochlea.

facial palsy - the side she has facial palsy - the nerve is smaller. does

that mean it is more vulnerable.

any responses are helpful and appreciated.

thanks folks.

Rita