Re: Hello/is update/reply ann

[Guest guest]

> Hi Penny,

>

> Re: EEG, of course you definitely want to see some improvement.

The EEG

> will be the brain's

>

> picture of what you see in is that day. It sure sounds like

she is

> better clinically. Losing

>

> some of those dulling AED's will probably help her eeg

background. Her

> brain will not be as anesthesized!

>

>

>

> since the lowered dose of med she has become more awake and happy

at

>

> times,,, only 7 seizures last week and they were hardly the bad

>

> ones we saw before,,,

>

> [Ann Shepard] Yipee

>

>

>

> this week alittle different,, thoughhhhh

>

> nights she is haveing about two a night , different seizure then i

>

> have ever seen before, almost looks like convulsions,,,, last much

>

> much longer 9 to 12 minuutes and it actaully looks as if she is

in

>

> pain, her little face jsut criches right up....

>

> [Ann Shepard] what's her body doing?

>

>

>

> during the day if we see a seizure they have been brief, but this

>

> week just like at night she seems to have a long seizure that

makes

>

> her sleep for hours in the sfternoons early evenings...

>

> but we are wating it out to see if maybe it is just related to the

>

> decrease of the med....

>

> [Ann Shepard] Possibly so. There is always fallout when you wean.

>

>

>

> the only difference from doing so well last week to these

seizures

>

> this week is her glucose numbers, last week she barely came down

>

> below 80 and this week is back in the 60 to 70 range again,,,, i

>

> thought the lower the better but maybe not for her,,, also,,, we

did

>

> not change anything so whyy the difference in glucose numbers?

>

>

>

> [Ann Shepard] In reading side effects of trileptal, I found things

like

> stomach upset, allergy-like runny nose or stuffy nose. Could it

be that a

> lowered dose is easing these types of side effects? If so, her

glucose

> would go down. Glucose is affected by so many things.

>

>

>

> any how

>

> we have a much happier girl these days even with the increase in

>

> seizures at least when she is awake she is happy happy happy big

>

> difference then when she got 6ml of trileptal she was a zombie all

>

> dya every day and did nothing but sleep.

>

>

>

> registered her for fall GRADE K !! how exciting is that!

>

> [Ann Shepard] it is OH SO EXCITING!!!

>

> hugs from maine Penny

>

> best wishes from Ann, mom to Lynden

>

>

>

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>