Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 is she writing this stuff down coz then u could loo and tell the drs its silly i know stupid stupid > > Ok, I might just be paranoid but you know the saying " when something > seems to good to be true it is " well I'm kind of feeling that. I have > this nurse in my home 8 hours a day 4 days a week. I faught to get to > here and now I'm wondering if I should have. She seems perfect. She > comes with her uniform on every time which is a new concept to me > (very professional). She seems to LOVE alissa to death maybe a little > too much if that's possible. She is around the age of 50 and has no > kids of her own (really doesnt' matter. I went out this afternoon and > she told me that Alissa had an episode where she stopped breathing and > turned blue. I've NEVER seen Alissa do that. For the first time I > actually didn't believe her. I'm not sure if I didn't believe her or > didn't want to believe her. I'm not use to having someone in my home. > I didn't pick this nurse. The agency did. I don't know what to do > cause I really need help yet I have this trust issue. Anyone have > some advice? Am I just being paranoid? > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 is she writing this stuff down coz then u could loo and tell the drs its silly i know stupid stupid > > Ok, I might just be paranoid but you know the saying " when something > seems to good to be true it is " well I'm kind of feeling that. I have > this nurse in my home 8 hours a day 4 days a week. I faught to get to > here and now I'm wondering if I should have. She seems perfect. She > comes with her uniform on every time which is a new concept to me > (very professional). She seems to LOVE alissa to death maybe a little > too much if that's possible. She is around the age of 50 and has no > kids of her own (really doesnt' matter. I went out this afternoon and > she told me that Alissa had an episode where she stopped breathing and > turned blue. I've NEVER seen Alissa do that. For the first time I > actually didn't believe her. I'm not sure if I didn't believe her or > didn't want to believe her. I'm not use to having someone in my home. > I didn't pick this nurse. The agency did. I don't know what to do > cause I really need help yet I have this trust issue. Anyone have > some advice? Am I just being paranoid? > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 , Either option is possible. I would want to know more about it - what happened before, what happened after, who did she report it to and so on. Not calling an ambulance is normal for a nurse if the child begins to breath again right away and there are no other signs that it might happen again. Was she being fed? Was she in a deep sleep? Any other symptoms that happened at the same time? As for the trust leaving someone else with my child - I have not had home nursing for Dylan so am no use to you there - seems a very tough thing to do! Kim On 2/28/06 9:35 PM, " matthew_steven_alissa " wrote: > I'm not sure if I didn't believe her or > didn't want to believe her Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 , We had nursing care for years. Some were my best friends, a few not as close, and a few I asked the agency to not send back. It certainly is a major change in household dynamics, and in the dynamics between you and Alissa. But right now, you have a specific situation you need to address. I presume she works for an agency. She should be charting daily, everything that happens, and everything she does during her shift. More information re: what she said happened, where was she returning from when she found Alissa not breathing. What is her explanation of what happened. What does she think was responsible for the episode. With information, you could call Alissa's charge nurse at the hospital and her PCP and ENT to see if this is a new development for Alissa, and if it makes sense in light of her current medical complications, and what kind of follow-up they recommend For the moment, I believe you need to act on the information as if nothing is amiss, and find out what might be going on with Alissa. And you'll feel better if you are in the house along with the nurse, for now. in Ma. Mom to , 20 yrs old (CHARGE), 22 yrs. and partner to Alan (12 years now) Quote Link to comment Share on other sites More sharing options...
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