Re: Amelie school issues!!

[Guest guest]

Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of the room

let alone to school at age 2. We had teachers for the deaf/hard of hearing

and blind/visually impaired, & an early interventionist who came to the

house from age 6mos - until school (five) who taught her and taught *me* how

to work with her. She did go to a little daycare/preschool at about 4 just

to get her ready socially for school, etc. Maybe it is for the best, but I

sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY too

protective still and " nobody " could take care of her the way I could back

then (in my humble opinion ha ha ha)...

Good luck with the decisions and upcoming surgery and BTW, you will LOVE

gmail...in particular for CHARGE mail...it's oodles better.

Love & hugs,

--

Weir

kawfolks@...

http://lemonsandlollipops.blogspot.com

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of the room

let alone to school at age 2. We had teachers for the deaf/hard of hearing

and blind/visually impaired, & an early interventionist who came to the

house from age 6mos - until school (five) who taught her and taught *me* how

to work with her. She did go to a little daycare/preschool at about 4 just

to get her ready socially for school, etc. Maybe it is for the best, but I

sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY too

protective still and " nobody " could take care of her the way I could back

then (in my humble opinion ha ha ha)...

Good luck with the decisions and upcoming surgery and BTW, you will LOVE

gmail...in particular for CHARGE mail...it's oodles better.

Love & hugs,

--

Weir

kawfolks@...

http://lemonsandlollipops.blogspot.com

http://ca.geocities.com/weirfamilyrogers

[Guest guest]

Tim stated early inervention at 3 mos. 2 hours aweek with spec. ed teacher

, speech, pt and ot and he had 2 hour addtional pt and speech. at 3 he went

1/2 day everyday pre-k for 3 years. then all day kind.

in spec.ed/ reg/ ed situation. until he started falling behind in 1st gr.

then we fought to get him in hard of hearing and deaf school--doing much

better there 3 yrs now.

it depends on the individual child and schools, but fight for what you think

your child needs!!

mom to tim 10 ChARGE, keegan 8 liam 5 wife to pat

Amelie school issues!!

> Back in the land of the charge living!! thanks to gmail and

> chantelle ellen and lisa and all who advised it!!

>

> Amelies key worker has suggested i go to see the school where they

> want to send her!! they say age 2 she should be part time which will

> be January, but because of her extra requirements and needs i should

> be starting this process no later than July.

>

> firstly, I am not keen on our local health authority school, its

> very clean and apparently very good, but after going to the CHARGE

> syndrome UK annual get together at the Royal Cheadle school for the

> deaf, this is where we want her to go, its all about money and

> funding and fighting your local authorities.

>

> also very impotantly how can we even contemplate school with another

> operation fast looming!! but at the same time we dont want to fall

> further behind with her progress which as you all know is very slow

> due to 11 of her 15 months in hospital!!

>

> what should we do for the best...is she too young at 2, what do the

> kids over the pond do???

>

> not important i know but starting to get stressed about this school

> business!!

>

> love Les and amelie xx and chanclan

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Tim stated early inervention at 3 mos. 2 hours aweek with spec. ed teacher

, speech, pt and ot and he had 2 hour addtional pt and speech. at 3 he went

1/2 day everyday pre-k for 3 years. then all day kind.

in spec.ed/ reg/ ed situation. until he started falling behind in 1st gr.

then we fought to get him in hard of hearing and deaf school--doing much

better there 3 yrs now.

it depends on the individual child and schools, but fight for what you think

your child needs!!

mom to tim 10 ChARGE, keegan 8 liam 5 wife to pat

Amelie school issues!!

> Back in the land of the charge living!! thanks to gmail and

> chantelle ellen and lisa and all who advised it!!

>

> Amelies key worker has suggested i go to see the school where they

> want to send her!! they say age 2 she should be part time which will

> be January, but because of her extra requirements and needs i should

> be starting this process no later than July.

>

> firstly, I am not keen on our local health authority school, its

> very clean and apparently very good, but after going to the CHARGE

> syndrome UK annual get together at the Royal Cheadle school for the

> deaf, this is where we want her to go, its all about money and

> funding and fighting your local authorities.

>

> also very impotantly how can we even contemplate school with another

> operation fast looming!! but at the same time we dont want to fall

> further behind with her progress which as you all know is very slow

> due to 11 of her 15 months in hospital!!

>

> what should we do for the best...is she too young at 2, what do the

> kids over the pond do???

>

> not important i know but starting to get stressed about this school

> business!!

>

> love Les and amelie xx and chanclan

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

i totally agree noone can look after our children the way we do, i

think they are rushing me..... we too have deaf/blind and play

support coming to the house but not every week, perhaps i should

push for weekly..

as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

try to enable it it doesnt work....crappy with these things

LES x

ps whats BTW ????????

>

> Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

the room

> let alone to school at age 2. We had teachers for the deaf/hard

of hearing

> and blind/visually impaired, & an early interventionist who came

to the

> house from age 6mos - until school (five) who taught her and

taught *me* how

> to work with her. She did go to a little daycare/preschool at

about 4 just

> to get her ready socially for school, etc. Maybe it is for the

best, but I

> sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

too

> protective still and " nobody " could take care of her the way I

could back

> then (in my humble opinion ha ha ha)...

> Good luck with the decisions and upcoming surgery and BTW, you

will LOVE

> gmail...in particular for CHARGE mail...it's oodles better.

> Love & hugs,

>

>

>

> --

> Weir

> kawfolks@...

> http://lemonsandlollipops.blogspot.com

> http://ca.geocities.com/weirfamily@...

>

>

>

[Guest guest]

Thanks , it appears the majority of children i know, seem to do

better in a school for the deaf, not generalised special needs

schools. so i think i will stick to the Cheadle deaf school and push

the local authorities

love les x

-- In CHARGE , " PAT & MARIA HALLORAN "

wrote:

>

> Tim stated early inervention at 3 mos. 2 hours aweek with spec.

ed teacher

> , speech, pt and ot and he had 2 hour addtional pt and speech. at

3 he went

> 1/2 day everyday pre-k for 3 years. then all day kind.

> in spec.ed/ reg/ ed situation. until he started falling behind in

1st gr.

> then we fought to get him in hard of hearing and deaf school--

doing much

> better there 3 yrs now.

>

> it depends on the individual child and schools, but fight for what

you think

> your child needs!!

>

> mom to tim 10 ChARGE, keegan 8 liam 5 wife to pat

> Amelie school issues!!

>

>

> > Back in the land of the charge living!! thanks to gmail and

> > chantelle ellen and lisa and all who advised it!!

> >

> > Amelies key worker has suggested i go to see the school where

they

> > want to send her!! they say age 2 she should be part time which

will

> > be January, but because of her extra requirements and needs i

should

> > be starting this process no later than July.

> >

> > firstly, I am not keen on our local health authority school, its

> > very clean and apparently very good, but after going to the

CHARGE

> > syndrome UK annual get together at the Royal Cheadle school for

the

> > deaf, this is where we want her to go, its all about money and

> > funding and fighting your local authorities.

> >

> > also very impotantly how can we even contemplate school with

another

> > operation fast looming!! but at the same time we dont want to

fall

> > further behind with her progress which as you all know is very

slow

> > due to 11 of her 15 months in hospital!!

> >

> > what should we do for the best...is she too young at 2, what do

the

> > kids over the pond do???

> >

> > not important i know but starting to get stressed about this

school

> > business!!

> >

> > love Les and amelie xx and chanclan

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

membership in

> > the CHARGE Syndrome Foundation; for information about the CHARGE

Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

Thanks , it appears the majority of children i know, seem to do

better in a school for the deaf, not generalised special needs

schools. so i think i will stick to the Cheadle deaf school and push

the local authorities

love les x

-- In CHARGE , " PAT & MARIA HALLORAN "

wrote:

>

> Tim stated early inervention at 3 mos. 2 hours aweek with spec.

ed teacher

> , speech, pt and ot and he had 2 hour addtional pt and speech. at

3 he went

> 1/2 day everyday pre-k for 3 years. then all day kind.

> in spec.ed/ reg/ ed situation. until he started falling behind in

1st gr.

> then we fought to get him in hard of hearing and deaf school--

doing much

> better there 3 yrs now.

>

> it depends on the individual child and schools, but fight for what

you think

> your child needs!!

>

> mom to tim 10 ChARGE, keegan 8 liam 5 wife to pat

> Amelie school issues!!

>

>

> > Back in the land of the charge living!! thanks to gmail and

> > chantelle ellen and lisa and all who advised it!!

> >

> > Amelies key worker has suggested i go to see the school where

they

> > want to send her!! they say age 2 she should be part time which

will

> > be January, but because of her extra requirements and needs i

should

> > be starting this process no later than July.

> >

> > firstly, I am not keen on our local health authority school, its

> > very clean and apparently very good, but after going to the

CHARGE

> > syndrome UK annual get together at the Royal Cheadle school for

the

> > deaf, this is where we want her to go, its all about money and

> > funding and fighting your local authorities.

> >

> > also very impotantly how can we even contemplate school with

another

> > operation fast looming!! but at the same time we dont want to

fall

> > further behind with her progress which as you all know is very

slow

> > due to 11 of her 15 months in hospital!!

> >

> > what should we do for the best...is she too young at 2, what do

the

> > kids over the pond do???

> >

> > not important i know but starting to get stressed about this

school

> > business!!

> >

> > love Les and amelie xx and chanclan

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

membership in

> > the CHARGE Syndrome Foundation; for information about the CHARGE

Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

Here's our experience.....

was in a school for the deaf for almost two years (services at home until

she turned three). While the school was great for deaf children - it was not

good for . It was just not equipped for treating the entire . When

we saw special needs schools we were so excited because they are designed for

kids just like - music therapy, softer floors, less concrete, adapted

chairs, therapy tools, motor rooms, etc. The deaf school was very dangerous for

merely by design (lots of steps, sharp corners, tons of concrete!). We

are overjoyed with 's new school (special needs school with 12 kids and 2

to 1 adult per child ratio - pt, ot, speech therapists on staff). She is doing

things we still can't believe she's doing - they are just trained to work with

her brain and body. It is not in the public school system and we pay dearly for

it but it is an answer to prayers for us.

I hope you find what you are comfortable with and feel safe with!

Lori Myers

Spouse - Trent, Children - (8), (5, CHARGE Syndrome, Congenital

Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal

Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of

12/22/04!, and Emma (3)

Dallas, Texas

Amelie school issues!!

>

>

> > Back in the land of the charge living!! thanks to gmail and

> > chantelle ellen and lisa and all who advised it!!

> >

> > Amelies key worker has suggested i go to see the school where

they

> > want to send her!! they say age 2 she should be part time which

will

> > be January, but because of her extra requirements and needs i

should

> > be starting this process no later than July.

> >

> > firstly, I am not keen on our local health authority school, its

> > very clean and apparently very good, but after going to the

CHARGE

> > syndrome UK annual get together at the Royal Cheadle school for

the

> > deaf, this is where we want her to go, its all about money and

> > funding and fighting your local authorities.

> >

> > also very impotantly how can we even contemplate school with

another

> > operation fast looming!! but at the same time we dont want to

fall

> > further behind with her progress which as you all know is very

slow

> > due to 11 of her 15 months in hospital!!

> >

> > what should we do for the best...is she too young at 2, what do

the

> > kids over the pond do???

> >

> > not important i know but starting to get stressed about this

school

> > business!!

> >

> > love Les and amelie xx and chanclan

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

membership in

> > the CHARGE Syndrome Foundation; for information about the CHARGE

Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

Here's our experience.....

was in a school for the deaf for almost two years (services at home until

she turned three). While the school was great for deaf children - it was not

good for . It was just not equipped for treating the entire . When

we saw special needs schools we were so excited because they are designed for

kids just like - music therapy, softer floors, less concrete, adapted

chairs, therapy tools, motor rooms, etc. The deaf school was very dangerous for

merely by design (lots of steps, sharp corners, tons of concrete!). We

are overjoyed with 's new school (special needs school with 12 kids and 2

to 1 adult per child ratio - pt, ot, speech therapists on staff). She is doing

things we still can't believe she's doing - they are just trained to work with

her brain and body. It is not in the public school system and we pay dearly for

it but it is an answer to prayers for us.

I hope you find what you are comfortable with and feel safe with!

Lori Myers

Spouse - Trent, Children - (8), (5, CHARGE Syndrome, Congenital

Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal

Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of

12/22/04!, and Emma (3)

Dallas, Texas

Amelie school issues!!

>

>

> > Back in the land of the charge living!! thanks to gmail and

> > chantelle ellen and lisa and all who advised it!!

> >

> > Amelies key worker has suggested i go to see the school where

they

> > want to send her!! they say age 2 she should be part time which

will

> > be January, but because of her extra requirements and needs i

should

> > be starting this process no later than July.

> >

> > firstly, I am not keen on our local health authority school, its

> > very clean and apparently very good, but after going to the

CHARGE

> > syndrome UK annual get together at the Royal Cheadle school for

the

> > deaf, this is where we want her to go, its all about money and

> > funding and fighting your local authorities.

> >

> > also very impotantly how can we even contemplate school with

another

> > operation fast looming!! but at the same time we dont want to

fall

> > further behind with her progress which as you all know is very

slow

> > due to 11 of her 15 months in hospital!!

> >

> > what should we do for the best...is she too young at 2, what do

the

> > kids over the pond do???

> >

> > not important i know but starting to get stressed about this

school

> > business!!

> >

> > love Les and amelie xx and chanclan

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

membership in

> > the CHARGE Syndrome Foundation; for information about the CHARGE

Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

Here's our experience.....

was in a school for the deaf for almost two years (services at home until

she turned three). While the school was great for deaf children - it was not

good for . It was just not equipped for treating the entire . When

we saw special needs schools we were so excited because they are designed for

kids just like - music therapy, softer floors, less concrete, adapted

chairs, therapy tools, motor rooms, etc. The deaf school was very dangerous for

merely by design (lots of steps, sharp corners, tons of concrete!). We

are overjoyed with 's new school (special needs school with 12 kids and 2

to 1 adult per child ratio - pt, ot, speech therapists on staff). She is doing

things we still can't believe she's doing - they are just trained to work with

her brain and body. It is not in the public school system and we pay dearly for

it but it is an answer to prayers for us.

I hope you find what you are comfortable with and feel safe with!

Lori Myers

Spouse - Trent, Children - (8), (5, CHARGE Syndrome, Congenital

Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal

Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of

12/22/04!, and Emma (3)

Dallas, Texas

Amelie school issues!!

>

>

> > Back in the land of the charge living!! thanks to gmail and

> > chantelle ellen and lisa and all who advised it!!

> >

> > Amelies key worker has suggested i go to see the school where

they

> > want to send her!! they say age 2 she should be part time which

will

> > be January, but because of her extra requirements and needs i

should

> > be starting this process no later than July.

> >

> > firstly, I am not keen on our local health authority school, its

> > very clean and apparently very good, but after going to the

CHARGE

> > syndrome UK annual get together at the Royal Cheadle school for

the

> > deaf, this is where we want her to go, its all about money and

> > funding and fighting your local authorities.

> >

> > also very impotantly how can we even contemplate school with

another

> > operation fast looming!! but at the same time we dont want to

fall

> > further behind with her progress which as you all know is very

slow

> > due to 11 of her 15 months in hospital!!

> >

> > what should we do for the best...is she too young at 2, what do

the

> > kids over the pond do???

> >

> > not important i know but starting to get stressed about this

school

> > business!!

> >

> > love Les and amelie xx and chanclan

> >

> >

> >

> >

> >

> > CHARGE SYNDROME LISTSERV PHOTO PAGE:

> > http://www.imagestation.com/album/?id=2117043995

> >

> > Membership of this email support group does not constitute

membership in

> > the CHARGE Syndrome Foundation; for information about the CHARGE

Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org

> >

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

[Guest guest]

Lesley-

I got very stressed out as well when we switched from Early Intervention

(birth-3 services-- often provided at home) to the preschool special

education system. We agonized over IL School for the Deaf or IL School for

the Visually Impaired. Both are less than a 1 hour bus ride from our home

so both were real possibilities.

But Aubrie didn't even have her hearing aides at the time -- she seemed to

be an aural child and we hoped she'd be oral too -- so ISD didn't fit. Most

of her peers there were non-verbal, signing, and significantly hearing

impaired.

ISVI didn't use sign -- the rest of the kids can't see well enough, but they

can hear! We were using sign as a bridge to oral speech -- so ISVI wasn't

quite right either.

Even last year, I revisited ISD to consider changing her there. She's

totally verbal now, but they have a great program there and could certainly

benefit from signing. However, her age-mates there are still mostly

nonverbal so it's still not a good fit.

Our kids don't really " fit " perfectly anywhere so you have to carefully

weight the pros and cons of every potential setting. The biggest thing is

to figure out what her needs are and then figure out where those can best be

met. It's a huge decision! What kept me sane was reminding myself that

whatever we chose wasn't forever. At any time, we could change her

placement if needed.

If Amelie's hearing loss is profound, then the deaf school may be a

no-brainer. Whatever you decide is best for her needs, fight for her to be

there and to get every service needed. Then, if her needs change, or things

don't go as planned, fight for the changes you think she needs.

Good luck!

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley-

I got very stressed out as well when we switched from Early Intervention

(birth-3 services-- often provided at home) to the preschool special

education system. We agonized over IL School for the Deaf or IL School for

the Visually Impaired. Both are less than a 1 hour bus ride from our home

so both were real possibilities.

But Aubrie didn't even have her hearing aides at the time -- she seemed to

be an aural child and we hoped she'd be oral too -- so ISD didn't fit. Most

of her peers there were non-verbal, signing, and significantly hearing

impaired.

ISVI didn't use sign -- the rest of the kids can't see well enough, but they

can hear! We were using sign as a bridge to oral speech -- so ISVI wasn't

quite right either.

Even last year, I revisited ISD to consider changing her there. She's

totally verbal now, but they have a great program there and could certainly

benefit from signing. However, her age-mates there are still mostly

nonverbal so it's still not a good fit.

Our kids don't really " fit " perfectly anywhere so you have to carefully

weight the pros and cons of every potential setting. The biggest thing is

to figure out what her needs are and then figure out where those can best be

met. It's a huge decision! What kept me sane was reminding myself that

whatever we chose wasn't forever. At any time, we could change her

placement if needed.

If Amelie's hearing loss is profound, then the deaf school may be a

no-brainer. Whatever you decide is best for her needs, fight for her to be

there and to get every service needed. Then, if her needs change, or things

don't go as planned, fight for the changes you think she needs.

Good luck!

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley-

I got very stressed out as well when we switched from Early Intervention

(birth-3 services-- often provided at home) to the preschool special

education system. We agonized over IL School for the Deaf or IL School for

the Visually Impaired. Both are less than a 1 hour bus ride from our home

so both were real possibilities.

But Aubrie didn't even have her hearing aides at the time -- she seemed to

be an aural child and we hoped she'd be oral too -- so ISD didn't fit. Most

of her peers there were non-verbal, signing, and significantly hearing

impaired.

ISVI didn't use sign -- the rest of the kids can't see well enough, but they

can hear! We were using sign as a bridge to oral speech -- so ISVI wasn't

quite right either.

Even last year, I revisited ISD to consider changing her there. She's

totally verbal now, but they have a great program there and could certainly

benefit from signing. However, her age-mates there are still mostly

nonverbal so it's still not a good fit.

Our kids don't really " fit " perfectly anywhere so you have to carefully

weight the pros and cons of every potential setting. The biggest thing is

to figure out what her needs are and then figure out where those can best be

met. It's a huge decision! What kept me sane was reminding myself that

whatever we chose wasn't forever. At any time, we could change her

placement if needed.

If Amelie's hearing loss is profound, then the deaf school may be a

no-brainer. Whatever you decide is best for her needs, fight for her to be

there and to get every service needed. Then, if her needs change, or things

don't go as planned, fight for the changes you think she needs.

Good luck!

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Hi Lesley,

Just wanted to share where we are with ....all services (teachers for

VI, hearing, pre-school portage ) come to our house. VI teacher

fortnightly, Hearing - termly and Portage monthly.

will start a mainstream Pre School (with support) in October when he

is 3 - just 2 mornings a week to begin with. After that we have currently

no idea! But I don't let myself feel rushed into deciding...

When he was a baby we were told there was the option of attending a special

school nursery at age 2 if we wanted, but it wasn't very local and there was

no way was venturing out of the home at that age...so we did not

pursue it. We felt his needs would be better met by a One to One at home

(Me or his nanny on the 2 days I go to work) and I am confident it was the

right decision for him. Although I know of course that others have seen

their child make huge progress by attending a special school from 2yrs. You

have to do what is right for you.

Re the LEA - They cannot tell you what to do, you are not obligated to enter

your child into Education until age 5...and even then School isn't a legal

obligation - only getting " an Education " - so you can of course Home Educate

- something we are also considering for . As Michele wrote our

children don't tend to easily " fit " school so we may do part time at school

and then home educate part time to make sure gets the independance and

blindness skills we feel school may struggle to provide to the level and

scale I want. (eg. mobility skills, braille etc). I know we can get these

provisions included at school but the emphasis may be stronger coming from

home. We also want him to participate in certain sports/activities etc which

may not be available at School.

So when time allows - and not whilst operations are pending...I would look

at their suggested special school, plus visit all the schools you are

interested in, but don't feel pressured by anyone!

You haven't really had much time with Amelie at home yet yourselves so i can

understand why it seems too soon to contemplate sending her out into the

world yet...!

is xx

(Mum to , UK, 2)

>

>

>

> i totally agree noone can look after our children the way we do, i

> think they are rushing me..... we too have deaf/blind and play

> support coming to the house but not every week, perhaps i should

> push for weekly..

>

> as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> try to enable it it doesnt work....crappy with these things

>

> LES x

> ps whats BTW ????????

>

>

>

>

>

>

> >

> > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> the room

> > let alone to school at age 2. We had teachers for the deaf/hard

> of hearing

> > and blind/visually impaired, & an early interventionist who came

> to the

> > house from age 6mos - until school (five) who taught her and

> taught *me* how

> > to work with her. She did go to a little daycare/preschool at

> about 4 just

> > to get her ready socially for school, etc. Maybe it is for the

> best, but I

> > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> too

> > protective still and " nobody " could take care of her the way I

> could back

> > then (in my humble opinion ha ha ha)...

> > Good luck with the decisions and upcoming surgery and BTW, you

> will LOVE

> > gmail...in particular for CHARGE mail...it's oodles better.

> > Love & hugs,

> >

> >

> >

> > --

> > Weir

> > kawfolks@...

> > http://lemonsandlollipops.blogspot.com

> > http://ca.geocities.com/weirfamily@...

> >

> >

> >

[Guest guest]

Hi Lesley,

Just wanted to share where we are with ....all services (teachers for

VI, hearing, pre-school portage ) come to our house. VI teacher

fortnightly, Hearing - termly and Portage monthly.

will start a mainstream Pre School (with support) in October when he

is 3 - just 2 mornings a week to begin with. After that we have currently

no idea! But I don't let myself feel rushed into deciding...

When he was a baby we were told there was the option of attending a special

school nursery at age 2 if we wanted, but it wasn't very local and there was

no way was venturing out of the home at that age...so we did not

pursue it. We felt his needs would be better met by a One to One at home

(Me or his nanny on the 2 days I go to work) and I am confident it was the

right decision for him. Although I know of course that others have seen

their child make huge progress by attending a special school from 2yrs. You

have to do what is right for you.

Re the LEA - They cannot tell you what to do, you are not obligated to enter

your child into Education until age 5...and even then School isn't a legal

obligation - only getting " an Education " - so you can of course Home Educate

- something we are also considering for . As Michele wrote our

children don't tend to easily " fit " school so we may do part time at school

and then home educate part time to make sure gets the independance and

blindness skills we feel school may struggle to provide to the level and

scale I want. (eg. mobility skills, braille etc). I know we can get these

provisions included at school but the emphasis may be stronger coming from

home. We also want him to participate in certain sports/activities etc which

may not be available at School.

So when time allows - and not whilst operations are pending...I would look

at their suggested special school, plus visit all the schools you are

interested in, but don't feel pressured by anyone!

You haven't really had much time with Amelie at home yet yourselves so i can

understand why it seems too soon to contemplate sending her out into the

world yet...!

is xx

(Mum to , UK, 2)

>

>

>

> i totally agree noone can look after our children the way we do, i

> think they are rushing me..... we too have deaf/blind and play

> support coming to the house but not every week, perhaps i should

> push for weekly..

>

> as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> try to enable it it doesnt work....crappy with these things

>

> LES x

> ps whats BTW ????????

>

>

>

>

>

>

> >

> > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> the room

> > let alone to school at age 2. We had teachers for the deaf/hard

> of hearing

> > and blind/visually impaired, & an early interventionist who came

> to the

> > house from age 6mos - until school (five) who taught her and

> taught *me* how

> > to work with her. She did go to a little daycare/preschool at

> about 4 just

> > to get her ready socially for school, etc. Maybe it is for the

> best, but I

> > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> too

> > protective still and " nobody " could take care of her the way I

> could back

> > then (in my humble opinion ha ha ha)...

> > Good luck with the decisions and upcoming surgery and BTW, you

> will LOVE

> > gmail...in particular for CHARGE mail...it's oodles better.

> > Love & hugs,

> >

> >

> >

> > --

> > Weir

> > kawfolks@...

> > http://lemonsandlollipops.blogspot.com

> > http://ca.geocities.com/weirfamily@...

> >

> >

> >

[Guest guest]

Hi Lesley,

Just wanted to share where we are with ....all services (teachers for

VI, hearing, pre-school portage ) come to our house. VI teacher

fortnightly, Hearing - termly and Portage monthly.

will start a mainstream Pre School (with support) in October when he

is 3 - just 2 mornings a week to begin with. After that we have currently

no idea! But I don't let myself feel rushed into deciding...

When he was a baby we were told there was the option of attending a special

school nursery at age 2 if we wanted, but it wasn't very local and there was

no way was venturing out of the home at that age...so we did not

pursue it. We felt his needs would be better met by a One to One at home

(Me or his nanny on the 2 days I go to work) and I am confident it was the

right decision for him. Although I know of course that others have seen

their child make huge progress by attending a special school from 2yrs. You

have to do what is right for you.

Re the LEA - They cannot tell you what to do, you are not obligated to enter

your child into Education until age 5...and even then School isn't a legal

obligation - only getting " an Education " - so you can of course Home Educate

- something we are also considering for . As Michele wrote our

children don't tend to easily " fit " school so we may do part time at school

and then home educate part time to make sure gets the independance and

blindness skills we feel school may struggle to provide to the level and

scale I want. (eg. mobility skills, braille etc). I know we can get these

provisions included at school but the emphasis may be stronger coming from

home. We also want him to participate in certain sports/activities etc which

may not be available at School.

So when time allows - and not whilst operations are pending...I would look

at their suggested special school, plus visit all the schools you are

interested in, but don't feel pressured by anyone!

You haven't really had much time with Amelie at home yet yourselves so i can

understand why it seems too soon to contemplate sending her out into the

world yet...!

is xx

(Mum to , UK, 2)

>

>

>

> i totally agree noone can look after our children the way we do, i

> think they are rushing me..... we too have deaf/blind and play

> support coming to the house but not every week, perhaps i should

> push for weekly..

>

> as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> try to enable it it doesnt work....crappy with these things

>

> LES x

> ps whats BTW ????????

>

>

>

>

>

>

> >

> > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> the room

> > let alone to school at age 2. We had teachers for the deaf/hard

> of hearing

> > and blind/visually impaired, & an early interventionist who came

> to the

> > house from age 6mos - until school (five) who taught her and

> taught *me* how

> > to work with her. She did go to a little daycare/preschool at

> about 4 just

> > to get her ready socially for school, etc. Maybe it is for the

> best, but I

> > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> too

> > protective still and " nobody " could take care of her the way I

> could back

> > then (in my humble opinion ha ha ha)...

> > Good luck with the decisions and upcoming surgery and BTW, you

> will LOVE

> > gmail...in particular for CHARGE mail...it's oodles better.

> > Love & hugs,

> >

> >

> >

> > --

> > Weir

> > kawfolks@...

> > http://lemonsandlollipops.blogspot.com

> > http://ca.geocities.com/weirfamily@...

> >

> >

> >

[Guest guest]

Thanks Loris is and Michele,

school advice, it does seem very complicated...and the statement from

Michele seems so perfect, its the fact that our charge children dont

seem to fit in with any one particular school which i find mind

blowing!! I will make arrangements to see both of them, and try to get

Amelie hearing and visually impaired teachers to come with us if they

can, one school is only 15 mins away and the other 45 mins away.

thanks les x

> Hi Lesley,

>

> Just wanted to share where we are with ....all services (teachers for

> VI, hearing, pre-school portage ) come to our house. VI teacher

> fortnightly, Hearing - termly and Portage monthly.

>

> will start a mainstream Pre School (with support) in October when he

> is 3 - just 2 mornings a week to begin with. After that we have currently

> no idea! But I don't let myself feel rushed into deciding...

>

> When he was a baby we were told there was the option of attending a special

> school nursery at age 2 if we wanted, but it wasn't very local and there was

> no way was venturing out of the home at that age...so we did not

> pursue it. We felt his needs would be better met by a One to One at home

> (Me or his nanny on the 2 days I go to work) and I am confident it was the

> right decision for him. Although I know of course that others have seen

> their child make huge progress by attending a special school from 2yrs. You

> have to do what is right for you.

>

> Re the LEA - They cannot tell you what to do, you are not obligated to enter

> your child into Education until age 5...and even then School isn't a legal

> obligation - only getting " an Education " - so you can of course Home Educate

> - something we are also considering for . As Michele wrote our

> children don't tend to easily " fit " school so we may do part time at school

> and then home educate part time to make sure gets the independance and

> blindness skills we feel school may struggle to provide to the level and

> scale I want. (eg. mobility skills, braille etc). I know we can get these

> provisions included at school but the emphasis may be stronger coming from

> home. We also want him to participate in certain sports/activities etc which

> may not be available at School.

>

> So when time allows - and not whilst operations are pending...I would look

> at their suggested special school, plus visit all the schools you are

> interested in, but don't feel pressured by anyone!

> You haven't really had much time with Amelie at home yet yourselves so i can

> understand why it seems too soon to contemplate sending her out into the

> world yet...!

>

> is xx

> (Mum to , UK, 2)

>

>

> >

> >

> >

> > i totally agree noone can look after our children the way we do, i

> > think they are rushing me..... we too have deaf/blind and play

> > support coming to the house but not every week, perhaps i should

> > push for weekly..

> >

> > as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> > try to enable it it doesnt work....crappy with these things

> >

> > LES x

> > ps whats BTW ????????

> >

> >

> >

> >

> >

> >

> > >

> > > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> > the room

> > > let alone to school at age 2. We had teachers for the deaf/hard

> > of hearing

> > > and blind/visually impaired, & an early interventionist who came

> > to the

> > > house from age 6mos - until school (five) who taught her and

> > taught *me* how

> > > to work with her. She did go to a little daycare/preschool at

> > about 4 just

> > > to get her ready socially for school, etc. Maybe it is for the

> > best, but I

> > > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> > too

> > > protective still and " nobody " could take care of her the way I

> > could back

> > > then (in my humble opinion ha ha ha)...

> > > Good luck with the decisions and upcoming surgery and BTW, you

> > will LOVE

> > > gmail...in particular for CHARGE mail...it's oodles better.

> > > Love & hugs,

> > >

> > >

> > >

> > > --

> > > Weir

> > > kawfolks@...

> > > http://lemonsandlollipops.blogspot.com

> > > http://ca.geocities.com/weirfamily@...

> > >

> > >

> > >

[Guest guest]

Thanks Loris is and Michele,

school advice, it does seem very complicated...and the statement from

Michele seems so perfect, its the fact that our charge children dont

seem to fit in with any one particular school which i find mind

blowing!! I will make arrangements to see both of them, and try to get

Amelie hearing and visually impaired teachers to come with us if they

can, one school is only 15 mins away and the other 45 mins away.

thanks les x

> Hi Lesley,

>

> Just wanted to share where we are with ....all services (teachers for

> VI, hearing, pre-school portage ) come to our house. VI teacher

> fortnightly, Hearing - termly and Portage monthly.

>

> will start a mainstream Pre School (with support) in October when he

> is 3 - just 2 mornings a week to begin with. After that we have currently

> no idea! But I don't let myself feel rushed into deciding...

>

> When he was a baby we were told there was the option of attending a special

> school nursery at age 2 if we wanted, but it wasn't very local and there was

> no way was venturing out of the home at that age...so we did not

> pursue it. We felt his needs would be better met by a One to One at home

> (Me or his nanny on the 2 days I go to work) and I am confident it was the

> right decision for him. Although I know of course that others have seen

> their child make huge progress by attending a special school from 2yrs. You

> have to do what is right for you.

>

> Re the LEA - They cannot tell you what to do, you are not obligated to enter

> your child into Education until age 5...and even then School isn't a legal

> obligation - only getting " an Education " - so you can of course Home Educate

> - something we are also considering for . As Michele wrote our

> children don't tend to easily " fit " school so we may do part time at school

> and then home educate part time to make sure gets the independance and

> blindness skills we feel school may struggle to provide to the level and

> scale I want. (eg. mobility skills, braille etc). I know we can get these

> provisions included at school but the emphasis may be stronger coming from

> home. We also want him to participate in certain sports/activities etc which

> may not be available at School.

>

> So when time allows - and not whilst operations are pending...I would look

> at their suggested special school, plus visit all the schools you are

> interested in, but don't feel pressured by anyone!

> You haven't really had much time with Amelie at home yet yourselves so i can

> understand why it seems too soon to contemplate sending her out into the

> world yet...!

>

> is xx

> (Mum to , UK, 2)

>

>

> >

> >

> >

> > i totally agree noone can look after our children the way we do, i

> > think they are rushing me..... we too have deaf/blind and play

> > support coming to the house but not every week, perhaps i should

> > push for weekly..

> >

> > as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> > try to enable it it doesnt work....crappy with these things

> >

> > LES x

> > ps whats BTW ????????

> >

> >

> >

> >

> >

> >

> > >

> > > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> > the room

> > > let alone to school at age 2. We had teachers for the deaf/hard

> > of hearing

> > > and blind/visually impaired, & an early interventionist who came

> > to the

> > > house from age 6mos - until school (five) who taught her and

> > taught *me* how

> > > to work with her. She did go to a little daycare/preschool at

> > about 4 just

> > > to get her ready socially for school, etc. Maybe it is for the

> > best, but I

> > > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> > too

> > > protective still and " nobody " could take care of her the way I

> > could back

> > > then (in my humble opinion ha ha ha)...

> > > Good luck with the decisions and upcoming surgery and BTW, you

> > will LOVE

> > > gmail...in particular for CHARGE mail...it's oodles better.

> > > Love & hugs,

> > >

> > >

> > >

> > > --

> > > Weir

> > > kawfolks@...

> > > http://lemonsandlollipops.blogspot.com

> > > http://ca.geocities.com/weirfamily@...

> > >

> > >

> > >

[Guest guest]

Thanks Loris is and Michele,

school advice, it does seem very complicated...and the statement from

Michele seems so perfect, its the fact that our charge children dont

seem to fit in with any one particular school which i find mind

blowing!! I will make arrangements to see both of them, and try to get

Amelie hearing and visually impaired teachers to come with us if they

can, one school is only 15 mins away and the other 45 mins away.

thanks les x

> Hi Lesley,

>

> Just wanted to share where we are with ....all services (teachers for

> VI, hearing, pre-school portage ) come to our house. VI teacher

> fortnightly, Hearing - termly and Portage monthly.

>

> will start a mainstream Pre School (with support) in October when he

> is 3 - just 2 mornings a week to begin with. After that we have currently

> no idea! But I don't let myself feel rushed into deciding...

>

> When he was a baby we were told there was the option of attending a special

> school nursery at age 2 if we wanted, but it wasn't very local and there was

> no way was venturing out of the home at that age...so we did not

> pursue it. We felt his needs would be better met by a One to One at home

> (Me or his nanny on the 2 days I go to work) and I am confident it was the

> right decision for him. Although I know of course that others have seen

> their child make huge progress by attending a special school from 2yrs. You

> have to do what is right for you.

>

> Re the LEA - They cannot tell you what to do, you are not obligated to enter

> your child into Education until age 5...and even then School isn't a legal

> obligation - only getting " an Education " - so you can of course Home Educate

> - something we are also considering for . As Michele wrote our

> children don't tend to easily " fit " school so we may do part time at school

> and then home educate part time to make sure gets the independance and

> blindness skills we feel school may struggle to provide to the level and

> scale I want. (eg. mobility skills, braille etc). I know we can get these

> provisions included at school but the emphasis may be stronger coming from

> home. We also want him to participate in certain sports/activities etc which

> may not be available at School.

>

> So when time allows - and not whilst operations are pending...I would look

> at their suggested special school, plus visit all the schools you are

> interested in, but don't feel pressured by anyone!

> You haven't really had much time with Amelie at home yet yourselves so i can

> understand why it seems too soon to contemplate sending her out into the

> world yet...!

>

> is xx

> (Mum to , UK, 2)

>

>

> >

> >

> >

> > i totally agree noone can look after our children the way we do, i

> > think they are rushing me..... we too have deaf/blind and play

> > support coming to the house but not every week, perhaps i should

> > push for weekly..

> >

> > as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> > try to enable it it doesnt work....crappy with these things

> >

> > LES x

> > ps whats BTW ????????

> >

> >

> >

> >

> >

> >

> > >

> > > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> > the room

> > > let alone to school at age 2. We had teachers for the deaf/hard

> > of hearing

> > > and blind/visually impaired, & an early interventionist who came

> > to the

> > > house from age 6mos - until school (five) who taught her and

> > taught *me* how

> > > to work with her. She did go to a little daycare/preschool at

> > about 4 just

> > > to get her ready socially for school, etc. Maybe it is for the

> > best, but I

> > > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> > too

> > > protective still and " nobody " could take care of her the way I

> > could back

> > > then (in my humble opinion ha ha ha)...

> > > Good luck with the decisions and upcoming surgery and BTW, you

> > will LOVE

> > > gmail...in particular for CHARGE mail...it's oodles better.

> > > Love & hugs,

> > >

> > >

> > >

> > > --

> > > Weir

> > > kawfolks@...

> > > http://lemonsandlollipops.blogspot.com

> > > http://ca.geocities.com/weirfamily@...

> > >

> > >

> > >

[Guest guest]

i agree with michelle i am one of thos3 kids who doeswnt exactly fit in

anywhere im visualy impared deaf in a chair but here in aus there istn a

thing for all that or there is butr its way out west or eather for the

interlectual here i go again its all for the interlectual well i am going to

tell you how we did and you see wat i mean ok priamry school great s chool

specail needs all that acutaly could of stayed up till year 12 yay way out

west an hour away that was ok in a way to till they decided to move further

out west and combine with an interlectual one so off i went to balmain with

a special unit sp as they call it physical disabilites all kinds there cp

mainly and spinal bifita and stuff all chairs soem visualy but no deaf

people great there wonderful till year 8 they said in three years you will

all be moving again year 11 was at balmain startecd pathways everyone

understood my needs even in main school i could have water when i needed it

well i didnt ever quite fit in non verbal people all this then georgi

apeared now shes non verbal but it was funny i could talk and then i was off

at blackwattle that was ok to interlectual unit now but we were in phyical

unit too 8 months for us to move in to the unit stuck in demountable first

day heard teacher rang mum at night from her house said to her marea your a

lawyer can ;you pls write say you wont let you kid in where this carpet in

breeding germs and well they sorted that out then just as i was leaving last

year there were plans last ;year to almamate with the interlectual unit coz

no one was coming from balmain they were all going to another school coz

they did that a few weeks ago saw wone of the toher mums from there i was

liek we r lucky we arent there coz theres no lone there next year no one

again georgis even going full main school she was like bloody hell we r

lucky people fight for it to be different doesnt work so they just move the

kids stupid system really hugs ellen

>

> Thanks Loris is and Michele,

>

> school advice, it does seem very complicated...and the statement from

> Michele seems so perfect, its the fact that our charge children dont

> seem to fit in with any one particular school which i find mind

> blowing!! I will make arrangements to see both of them, and try to get

> Amelie hearing and visually impaired teachers to come with us if they

> can, one school is only 15 mins away and the other 45 mins away.

>

> thanks les x

>

>

> > Hi Lesley,

> >

> > Just wanted to share where we are with ....all services (teachers

> for

> > VI, hearing, pre-school portage ) come to our house. VI teacher

> > fortnightly, Hearing - termly and Portage monthly.

> >

> > will start a mainstream Pre School (with support) in October when

> he

> > is 3 - just 2 mornings a week to begin with. After that we have

> currently

> > no idea! But I don't let myself feel rushed into deciding...

> >

> > When he was a baby we were told there was the option of attending a

> special

> > school nursery at age 2 if we wanted, but it wasn't very local and there

> was

> > no way was venturing out of the home at that age...so we did not

> > pursue it. We felt his needs would be better met by a One to One at

> home

> > (Me or his nanny on the 2 days I go to work) and I am confident it was

> the

> > right decision for him. Although I know of course that others have seen

> > their child make huge progress by attending a special school from 2yrs.

> You

> > have to do what is right for you.

> >

> > Re the LEA - They cannot tell you what to do, you are not obligated to

> enter

> > your child into Education until age 5...and even then School isn't a

> legal

> > obligation - only getting " an Education " - so you can of course Home

> Educate

> > - something we are also considering for . As Michele wrote our

> > children don't tend to easily " fit " school so we may do part time at

> school

> > and then home educate part time to make sure gets the independance

> and

> > blindness skills we feel school may struggle to provide to the level and

> > scale I want. (eg. mobility skills, braille etc). I know we can get

> these

> > provisions included at school but the emphasis may be stronger coming

> from

> > home. We also want him to participate in certain sports/activities etc

> which

> > may not be available at School.

> >

> > So when time allows - and not whilst operations are pending...I would

> look

> > at their suggested special school, plus visit all the schools you are

> > interested in, but don't feel pressured by anyone!

> > You haven't really had much time with Amelie at home yet yourselves so i

> can

> > understand why it seems too soon to contemplate sending her out into the

> > world yet...!

> >

> > is xx

> > (Mum to , UK, 2)

> >

> >

> > >

> > >

> > >

> > > i totally agree noone can look after our children the way we do, i

> > > think they are rushing me..... we too have deaf/blind and play

> > > support coming to the house but not every week, perhaps i should

> > > push for weekly..

> > >

> > > as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> > > try to enable it it doesnt work....crappy with these things

> > >

> > > LES x

> > > ps whats BTW ????????

> > >

> > >

> > >

> > >

> > >

> > >

> > > >

> > > > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> > > the room

> > > > let alone to school at age 2. We had teachers for the deaf/hard

> > > of hearing

> > > > and blind/visually impaired, & an early interventionist who came

> > > to the

> > > > house from age 6mos - until school (five) who taught her and

> > > taught *me* how

> > > > to work with her. She did go to a little daycare/preschool at

> > > about 4 just

> > > > to get her ready socially for school, etc. Maybe it is for the

> > > best, but I

> > > > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> > > too

> > > > protective still and " nobody " could take care of her the way I

> > > could back

> > > > then (in my humble opinion ha ha ha)...

> > > > Good luck with the decisions and upcoming surgery and BTW, you

> > > will LOVE

> > > > gmail...in particular for CHARGE mail...it's oodles better.

> > > > Love & hugs,

> > > >

> > > >

> > > >

> > > > --

> > > > Weir

> > > > kawfolks@...

> > > > http://lemonsandlollipops.blogspot.com

> > > > http://ca.geocities.com/weirfamily@...

> > > >

> > > >

> > > >

[Guest guest]

i agree with michelle i am one of thos3 kids who doeswnt exactly fit in

anywhere im visualy impared deaf in a chair but here in aus there istn a

thing for all that or there is butr its way out west or eather for the

interlectual here i go again its all for the interlectual well i am going to

tell you how we did and you see wat i mean ok priamry school great s chool

specail needs all that acutaly could of stayed up till year 12 yay way out

west an hour away that was ok in a way to till they decided to move further

out west and combine with an interlectual one so off i went to balmain with

a special unit sp as they call it physical disabilites all kinds there cp

mainly and spinal bifita and stuff all chairs soem visualy but no deaf

people great there wonderful till year 8 they said in three years you will

all be moving again year 11 was at balmain startecd pathways everyone

understood my needs even in main school i could have water when i needed it

well i didnt ever quite fit in non verbal people all this then georgi

apeared now shes non verbal but it was funny i could talk and then i was off

at blackwattle that was ok to interlectual unit now but we were in phyical

unit too 8 months for us to move in to the unit stuck in demountable first

day heard teacher rang mum at night from her house said to her marea your a

lawyer can ;you pls write say you wont let you kid in where this carpet in

breeding germs and well they sorted that out then just as i was leaving last

year there were plans last ;year to almamate with the interlectual unit coz

no one was coming from balmain they were all going to another school coz

they did that a few weeks ago saw wone of the toher mums from there i was

liek we r lucky we arent there coz theres no lone there next year no one

again georgis even going full main school she was like bloody hell we r

lucky people fight for it to be different doesnt work so they just move the

kids stupid system really hugs ellen

>

> Thanks Loris is and Michele,

>

> school advice, it does seem very complicated...and the statement from

> Michele seems so perfect, its the fact that our charge children dont

> seem to fit in with any one particular school which i find mind

> blowing!! I will make arrangements to see both of them, and try to get

> Amelie hearing and visually impaired teachers to come with us if they

> can, one school is only 15 mins away and the other 45 mins away.

>

> thanks les x

>

>

> > Hi Lesley,

> >

> > Just wanted to share where we are with ....all services (teachers

> for

> > VI, hearing, pre-school portage ) come to our house. VI teacher

> > fortnightly, Hearing - termly and Portage monthly.

> >

> > will start a mainstream Pre School (with support) in October when

> he

> > is 3 - just 2 mornings a week to begin with. After that we have

> currently

> > no idea! But I don't let myself feel rushed into deciding...

> >

> > When he was a baby we were told there was the option of attending a

> special

> > school nursery at age 2 if we wanted, but it wasn't very local and there

> was

> > no way was venturing out of the home at that age...so we did not

> > pursue it. We felt his needs would be better met by a One to One at

> home

> > (Me or his nanny on the 2 days I go to work) and I am confident it was

> the

> > right decision for him. Although I know of course that others have seen

> > their child make huge progress by attending a special school from 2yrs.

> You

> > have to do what is right for you.

> >

> > Re the LEA - They cannot tell you what to do, you are not obligated to

> enter

> > your child into Education until age 5...and even then School isn't a

> legal

> > obligation - only getting " an Education " - so you can of course Home

> Educate

> > - something we are also considering for . As Michele wrote our

> > children don't tend to easily " fit " school so we may do part time at

> school

> > and then home educate part time to make sure gets the independance

> and

> > blindness skills we feel school may struggle to provide to the level and

> > scale I want. (eg. mobility skills, braille etc). I know we can get

> these

> > provisions included at school but the emphasis may be stronger coming

> from

> > home. We also want him to participate in certain sports/activities etc

> which

> > may not be available at School.

> >

> > So when time allows - and not whilst operations are pending...I would

> look

> > at their suggested special school, plus visit all the schools you are

> > interested in, but don't feel pressured by anyone!

> > You haven't really had much time with Amelie at home yet yourselves so i

> can

> > understand why it seems too soon to contemplate sending her out into the

> > world yet...!

> >

> > is xx

> > (Mum to , UK, 2)

> >

> >

> > >

> > >

> > >

> > > i totally agree noone can look after our children the way we do, i

> > > think they are rushing me..... we too have deaf/blind and play

> > > support coming to the house but not every week, perhaps i should

> > > push for weekly..

> > >

> > > as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> > > try to enable it it doesnt work....crappy with these things

> > >

> > > LES x

> > > ps whats BTW ????????

> > >

> > >

> > >

> > >

> > >

> > >

> > > >

> > > > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> > > the room

> > > > let alone to school at age 2. We had teachers for the deaf/hard

> > > of hearing

> > > > and blind/visually impaired, & an early interventionist who came

> > > to the

> > > > house from age 6mos - until school (five) who taught her and

> > > taught *me* how

> > > > to work with her. She did go to a little daycare/preschool at

> > > about 4 just

> > > > to get her ready socially for school, etc. Maybe it is for the

> > > best, but I

> > > > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> > > too

> > > > protective still and " nobody " could take care of her the way I

> > > could back

> > > > then (in my humble opinion ha ha ha)...

> > > > Good luck with the decisions and upcoming surgery and BTW, you

> > > will LOVE

> > > > gmail...in particular for CHARGE mail...it's oodles better.

> > > > Love & hugs,

> > > >

> > > >

> > > >

> > > > --

> > > > Weir

> > > > kawfolks@...

> > > > http://lemonsandlollipops.blogspot.com

> > > > http://ca.geocities.com/weirfamily@...

> > > >

> > > >

> > > >

[Guest guest]

i agree with michelle i am one of thos3 kids who doeswnt exactly fit in

anywhere im visualy impared deaf in a chair but here in aus there istn a

thing for all that or there is butr its way out west or eather for the

interlectual here i go again its all for the interlectual well i am going to

tell you how we did and you see wat i mean ok priamry school great s chool

specail needs all that acutaly could of stayed up till year 12 yay way out

west an hour away that was ok in a way to till they decided to move further

out west and combine with an interlectual one so off i went to balmain with

a special unit sp as they call it physical disabilites all kinds there cp

mainly and spinal bifita and stuff all chairs soem visualy but no deaf

people great there wonderful till year 8 they said in three years you will

all be moving again year 11 was at balmain startecd pathways everyone

understood my needs even in main school i could have water when i needed it

well i didnt ever quite fit in non verbal people all this then georgi

apeared now shes non verbal but it was funny i could talk and then i was off

at blackwattle that was ok to interlectual unit now but we were in phyical

unit too 8 months for us to move in to the unit stuck in demountable first

day heard teacher rang mum at night from her house said to her marea your a

lawyer can ;you pls write say you wont let you kid in where this carpet in

breeding germs and well they sorted that out then just as i was leaving last

year there were plans last ;year to almamate with the interlectual unit coz

no one was coming from balmain they were all going to another school coz

they did that a few weeks ago saw wone of the toher mums from there i was

liek we r lucky we arent there coz theres no lone there next year no one

again georgis even going full main school she was like bloody hell we r

lucky people fight for it to be different doesnt work so they just move the

kids stupid system really hugs ellen

>

> Thanks Loris is and Michele,

>

> school advice, it does seem very complicated...and the statement from

> Michele seems so perfect, its the fact that our charge children dont

> seem to fit in with any one particular school which i find mind

> blowing!! I will make arrangements to see both of them, and try to get

> Amelie hearing and visually impaired teachers to come with us if they

> can, one school is only 15 mins away and the other 45 mins away.

>

> thanks les x

>

>

> > Hi Lesley,

> >

> > Just wanted to share where we are with ....all services (teachers

> for

> > VI, hearing, pre-school portage ) come to our house. VI teacher

> > fortnightly, Hearing - termly and Portage monthly.

> >

> > will start a mainstream Pre School (with support) in October when

> he

> > is 3 - just 2 mornings a week to begin with. After that we have

> currently

> > no idea! But I don't let myself feel rushed into deciding...

> >

> > When he was a baby we were told there was the option of attending a

> special

> > school nursery at age 2 if we wanted, but it wasn't very local and there

> was

> > no way was venturing out of the home at that age...so we did not

> > pursue it. We felt his needs would be better met by a One to One at

> home

> > (Me or his nanny on the 2 days I go to work) and I am confident it was

> the

> > right decision for him. Although I know of course that others have seen

> > their child make huge progress by attending a special school from 2yrs.

> You

> > have to do what is right for you.

> >

> > Re the LEA - They cannot tell you what to do, you are not obligated to

> enter

> > your child into Education until age 5...and even then School isn't a

> legal

> > obligation - only getting " an Education " - so you can of course Home

> Educate

> > - something we are also considering for . As Michele wrote our

> > children don't tend to easily " fit " school so we may do part time at

> school

> > and then home educate part time to make sure gets the independance

> and

> > blindness skills we feel school may struggle to provide to the level and

> > scale I want. (eg. mobility skills, braille etc). I know we can get

> these

> > provisions included at school but the emphasis may be stronger coming

> from

> > home. We also want him to participate in certain sports/activities etc

> which

> > may not be available at School.

> >

> > So when time allows - and not whilst operations are pending...I would

> look

> > at their suggested special school, plus visit all the schools you are

> > interested in, but don't feel pressured by anyone!

> > You haven't really had much time with Amelie at home yet yourselves so i

> can

> > understand why it seems too soon to contemplate sending her out into the

> > world yet...!

> >

> > is xx

> > (Mum to , UK, 2)

> >

> >

> > >

> > >

> > >

> > > i totally agree noone can look after our children the way we do, i

> > > think they are rushing me..... we too have deaf/blind and play

> > > support coming to the house but not every week, perhaps i should

> > > push for weekly..

> > >

> > > as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> > > try to enable it it doesnt work....crappy with these things

> > >

> > > LES x

> > > ps whats BTW ????????

> > >

> > >

> > >

> > >

> > >

> > >

> > > >

> > > > Age 2???!? yikes...I sure wasn't ready for sending Kennedy out of

> > > the room

> > > > let alone to school at age 2. We had teachers for the deaf/hard

> > > of hearing

> > > > and blind/visually impaired, & an early interventionist who came

> > > to the

> > > > house from age 6mos - until school (five) who taught her and

> > > taught *me* how

> > > > to work with her. She did go to a little daycare/preschool at

> > > about 4 just

> > > > to get her ready socially for school, etc. Maybe it is for the

> > > best, but I

> > > > sure as HECK wasn't ready to send Kennedy anywhere at age 2...WAY

> > > too

> > > > protective still and " nobody " could take care of her the way I

> > > could back

> > > > then (in my humble opinion ha ha ha)...

> > > > Good luck with the decisions and upcoming surgery and BTW, you

> > > will LOVE

> > > > gmail...in particular for CHARGE mail...it's oodles better.

> > > > Love & hugs,

> > > >

> > > >

> > > >

> > > > --

> > > > Weir

> > > > kawfolks@...

> > > > http://lemonsandlollipops.blogspot.com

> > > > http://ca.geocities.com/weirfamily@...

> > > >

> > > >

> > > >

[Guest guest]

>

> i totally agree noone can look after our children the way we do, i

> think they are rushing me..... we too have deaf/blind and play

> support coming to the house but not every week, perhaps i should

> push for weekly..

>

> as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> try to enable it it doesnt work....crappy with these things

>

> LES x

> ps whats BTW ????????

>

BTW = by the way. You need to " always allow pop-ups " from googlemail.com -

that should stop your popup blocker from doing its' job...

Good luck and do what YOU feel is right for you and Amelie...

luv,

Lis

[Guest guest]

>

> i totally agree noone can look after our children the way we do, i

> think they are rushing me..... we too have deaf/blind and play

> support coming to the house but not every week, perhaps i should

> push for weekly..

>

> as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> try to enable it it doesnt work....crappy with these things

>

> LES x

> ps whats BTW ????????

>

BTW = by the way. You need to " always allow pop-ups " from googlemail.com -

that should stop your popup blocker from doing its' job...

Good luck and do what YOU feel is right for you and Amelie...

luv,

Lis

[Guest guest]

>

> i totally agree noone can look after our children the way we do, i

> think they are rushing me..... we too have deaf/blind and play

> support coming to the house but not every week, perhaps i should

> push for weekly..

>

> as for GMAIL it keeps saying GRRRi have a pop somthing , and when i

> try to enable it it doesnt work....crappy with these things

>

> LES x

> ps whats BTW ????????

>

BTW = by the way. You need to " always allow pop-ups " from googlemail.com -

that should stop your popup blocker from doing its' job...

Good luck and do what YOU feel is right for you and Amelie...

luv,

Lis