Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 I'm feeling so frustrated I don't know if I have the knack to make soap. First of all my first batch of soap was just some basic soap with some fragrance added. My second batch I had to throw out because it was smelling real bad. The third I was taking out of the molds this morning after setting for three days are real gooey and slimy and did not hold the color. What am I doing wrong. Someone please help and tell me that this is normal at the beginning. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 I'm feeling so frustrated I don't know if I have the knack to make soap. First of all my first batch of soap was just some basic soap with some fragrance added. My second batch I had to throw out because it was smelling real bad. The third I was taking out of the molds this morning after setting for three days are real gooey and slimy and did not hold the color. What am I doing wrong. Someone please help and tell me that this is normal at the beginning. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Diane, What kind of water are you using? ARe you weighing everything? If you would post your complete recipes, including processing temps, someone one will helpyou out. Sherry in Aberdeen Re: frustrated >I'm feeling so frustrated I don't know if I have the knack to make soap. >First of all my first batch of soap was just some basic soap with some >fragrance added. My second batch I had to throw out because it was smelling >real bad. The third I was taking out of the molds this morning after setting >for three days are real gooey and slimy and did not hold the color. What am >I doing wrong. Someone please help and tell me that this is normal at the >beginning. > Dianne > > > >------------------------------------------------------------------------ >Get paid for the stuff you know! >Get answers for the stuff you don’t. And get $10 to spend on the site! >http://click./1/2200/0/_/533249/_/956675260/ >------------------------------------------------------------------------ > >Check out our homepage at http://www.angelfire.com/mi/Soapmaking101/index.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Larrae Are you asking me or another Dianne. Just wondering don't want to ignore you if it me your asking. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Larrae Are you asking me or another Dianne. Just wondering don't want to ignore you if it me your asking. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Larrae Are you asking me or another Dianne. Just wondering don't want to ignore you if it me your asking. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 > Larrae > Are you asking me or another Dianne. Just wondering don't want to > ignore you if it me your asking. > Dianne yes sweets it is you....how's the soap coming along? have you discovered a tried and true recipe that serves you well yet? hope all is well, larrae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 > Larrae > Are you asking me or another Dianne. Just wondering don't want to > ignore you if it me your asking. > Dianne yes sweets it is you....how's the soap coming along? have you discovered a tried and true recipe that serves you well yet? hope all is well, larrae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 I would add that RAI is absorbed, in smaller amounts, by other organs besides the thyroid, including breast tissue, the genitals, pancreas, and the gastric mucosa. RAI causes either cell death or DNA mutations to any cells unfortunate enough to be at its path length. RAI has a short half-life, meaning half of the dose is diminished in about 8 days. Then half of this dose is diminished in another 8 days. I contaminated the entire nuclear chemistry department of the lab I worked in after being ablated, and I continued to have measureable amounts of radioiodine in my urine for 4 weeks. To say that the dose is quickly depleted is simply not true. In the meantime we're exposing our families, friends and coworkers to radioiodine. Long term studies show a small but significant increase in certain cancers, including those of the thyroid gland and small bowel, after RAI. Although the follicular cells of our thyroid are destroyed, we continue to have a basement membrane of other cells that can become cancerous. There is a small but significant increase in damage to the parathyroid glands after radioiodine. A number of people experience hypoparathyroidism. After RAI, increases in antibody titers affect lab tests, making hypothyroidism extremely difficult to treat. Patients who had RAI have an increased risk for developing fibromyalgia, which is also related to hypothyroidism. I suspect that many of us are kept hypothyroid because of a poor understanding of lab test interpretation. These are off the top of my head, Terry, so I'm sure I can come up with more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 I would add that RAI is absorbed, in smaller amounts, by other organs besides the thyroid, including breast tissue, the genitals, pancreas, and the gastric mucosa. RAI causes either cell death or DNA mutations to any cells unfortunate enough to be at its path length. RAI has a short half-life, meaning half of the dose is diminished in about 8 days. Then half of this dose is diminished in another 8 days. I contaminated the entire nuclear chemistry department of the lab I worked in after being ablated, and I continued to have measureable amounts of radioiodine in my urine for 4 weeks. To say that the dose is quickly depleted is simply not true. In the meantime we're exposing our families, friends and coworkers to radioiodine. Long term studies show a small but significant increase in certain cancers, including those of the thyroid gland and small bowel, after RAI. Although the follicular cells of our thyroid are destroyed, we continue to have a basement membrane of other cells that can become cancerous. There is a small but significant increase in damage to the parathyroid glands after radioiodine. A number of people experience hypoparathyroidism. After RAI, increases in antibody titers affect lab tests, making hypothyroidism extremely difficult to treat. Patients who had RAI have an increased risk for developing fibromyalgia, which is also related to hypothyroidism. I suspect that many of us are kept hypothyroid because of a poor understanding of lab test interpretation. These are off the top of my head, Terry, so I'm sure I can come up with more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 I would add that RAI is absorbed, in smaller amounts, by other organs besides the thyroid, including breast tissue, the genitals, pancreas, and the gastric mucosa. RAI causes either cell death or DNA mutations to any cells unfortunate enough to be at its path length. RAI has a short half-life, meaning half of the dose is diminished in about 8 days. Then half of this dose is diminished in another 8 days. I contaminated the entire nuclear chemistry department of the lab I worked in after being ablated, and I continued to have measureable amounts of radioiodine in my urine for 4 weeks. To say that the dose is quickly depleted is simply not true. In the meantime we're exposing our families, friends and coworkers to radioiodine. Long term studies show a small but significant increase in certain cancers, including those of the thyroid gland and small bowel, after RAI. Although the follicular cells of our thyroid are destroyed, we continue to have a basement membrane of other cells that can become cancerous. There is a small but significant increase in damage to the parathyroid glands after radioiodine. A number of people experience hypoparathyroidism. After RAI, increases in antibody titers affect lab tests, making hypothyroidism extremely difficult to treat. Patients who had RAI have an increased risk for developing fibromyalgia, which is also related to hypothyroidism. I suspect that many of us are kept hypothyroid because of a poor understanding of lab test interpretation. These are off the top of my head, Terry, so I'm sure I can come up with more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Great idea, Terry! I'd add something pragmatic to the top ten (maybe we need eleven or twelve): why opt for a permanent, non-reversible procedure before trying temporary measures, like medication, that will either result in remission or buy you time to research all your options and make a well-informed decision. That one really sold me while I was trying to decide! B Frustrated Hi everyone, I can't believe I'm still not able to access my email from here, but I can't. Yahoo is taking its sweet time in fixing me up again I guess, despite my fixing everything just the way they request that I do it. Anyway, I hope that one of these emails will finally come through back to me, but if not I can for now visit the archives. I have thought about starting a little project, prompted by my doctor's yet again pressing for RAI, and so many others whose doc's have done the same. I'd like to title it " Top Ten Reasons Why I'll Never Have RAI " , and really put together a succinct, compelling list that anybody who wants to, can print out and bring to the doctors appointment. It needs to be a quick read, cause the doctors won't look at anything much else I don't think. (don't laugh, or maybe do, here). I figure input from the members who HAVE had RAI is the quickest and most effective way to get to the meat of the problems, but then, there may be reasons we who have opted not to do it can add, as well. Maybe it will be a top 20 list! I came up with 10 reasons myself, pretty quickly. I'm going to put them down, but only as motivators to get the rest of you working on the problem. If, of course, you think it's a good idea. Here they are, but please, contribute better ones than mine! 1 I know what hypo feels like, and it¹s awful, even for a few days. I can¹t imagine being condemned to experience it for longer 2 RAI is " killing the messenger " but not attacking the root cause of the disease 3 After RAI the thyroid spends a good amount of time dying, releasing toxic amounts of hormone during the process 4 There is no perfect replacement hormone available 5 Chance of TED increases dramatically 6 Nothing on earth will ever convince me that radiation at that level won¹t eventually cause cancer 7 Don¹t know anyone who has had RAI that hasn¹t gained a lot of weight 8 Hyper is controllable over the long term with medicine and there¹s a chance of remission 9 RAI is a permanent and irrevocable decision 10 Just about everyone I¹ve corresponded with that has had RAI regrets it Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Great idea, Terry! I'd add something pragmatic to the top ten (maybe we need eleven or twelve): why opt for a permanent, non-reversible procedure before trying temporary measures, like medication, that will either result in remission or buy you time to research all your options and make a well-informed decision. That one really sold me while I was trying to decide! B Frustrated Hi everyone, I can't believe I'm still not able to access my email from here, but I can't. Yahoo is taking its sweet time in fixing me up again I guess, despite my fixing everything just the way they request that I do it. Anyway, I hope that one of these emails will finally come through back to me, but if not I can for now visit the archives. I have thought about starting a little project, prompted by my doctor's yet again pressing for RAI, and so many others whose doc's have done the same. I'd like to title it " Top Ten Reasons Why I'll Never Have RAI " , and really put together a succinct, compelling list that anybody who wants to, can print out and bring to the doctors appointment. It needs to be a quick read, cause the doctors won't look at anything much else I don't think. (don't laugh, or maybe do, here). I figure input from the members who HAVE had RAI is the quickest and most effective way to get to the meat of the problems, but then, there may be reasons we who have opted not to do it can add, as well. Maybe it will be a top 20 list! I came up with 10 reasons myself, pretty quickly. I'm going to put them down, but only as motivators to get the rest of you working on the problem. If, of course, you think it's a good idea. Here they are, but please, contribute better ones than mine! 1 I know what hypo feels like, and it¹s awful, even for a few days. I can¹t imagine being condemned to experience it for longer 2 RAI is " killing the messenger " but not attacking the root cause of the disease 3 After RAI the thyroid spends a good amount of time dying, releasing toxic amounts of hormone during the process 4 There is no perfect replacement hormone available 5 Chance of TED increases dramatically 6 Nothing on earth will ever convince me that radiation at that level won¹t eventually cause cancer 7 Don¹t know anyone who has had RAI that hasn¹t gained a lot of weight 8 Hyper is controllable over the long term with medicine and there¹s a chance of remission 9 RAI is a permanent and irrevocable decision 10 Just about everyone I¹ve corresponded with that has had RAI regrets it Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Elaine, The top of your head is worth 100 of mine, since you have so much personal experience combined with education and expertise. I'm waiting for Jody's input, which I am sure will come too, and everyone else to get a crack at this-- then I want to try to put it all in some kind of version the doctors can understand (short sentences, single concepts) if I am capable of that. I seem to be back getting my email from group, finally, too. Yay! Terry > From: daisyelaine@... > Reply-To: graves_support > Date: Sat, 9 Feb 2002 23:49:54 EST > To: graves_support > Subject: Re: Frustrated > > I would add that > RAI is absorbed, in smaller amounts, by other organs besides the thyroid, > including breast tissue, the genitals, pancreas, and the gastric mucosa. RAI > causes either cell death or DNA mutations to any cells unfortunate enough to > be at its path length. > > RAI has a short half-life, meaning half of the dose is diminished in about 8 > days. Then half of this dose is diminished in another 8 days. I contaminated > the entire nuclear chemistry department of the lab I worked in after being > ablated, and I continued to have measureable amounts of radioiodine in my > urine for 4 weeks. To say that the dose is quickly depleted is simply not > true. In the meantime we're exposing our families, friends and coworkers to > radioiodine. > > Long term studies show a small but significant increase in certain cancers, > including those of the thyroid gland and small bowel, after RAI. Although the > follicular cells of our thyroid are destroyed, we continue to have a basement > membrane of other cells that can become cancerous. > > There is a small but significant increase in damage to the parathyroid glands > after radioiodine. A number of people experience hypoparathyroidism. > > After RAI, increases in antibody titers affect lab tests, making > hypothyroidism extremely difficult to treat. Patients who had RAI have an > increased risk for developing fibromyalgia, which is also related to > hypothyroidism. I suspect that many of us are kept hypothyroid because of a > poor understanding of lab test interpretation. > > These are off the top of my head, Terry, so I'm sure I can come up with more. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Elaine, The top of your head is worth 100 of mine, since you have so much personal experience combined with education and expertise. I'm waiting for Jody's input, which I am sure will come too, and everyone else to get a crack at this-- then I want to try to put it all in some kind of version the doctors can understand (short sentences, single concepts) if I am capable of that. I seem to be back getting my email from group, finally, too. Yay! Terry > From: daisyelaine@... > Reply-To: graves_support > Date: Sat, 9 Feb 2002 23:49:54 EST > To: graves_support > Subject: Re: Frustrated > > I would add that > RAI is absorbed, in smaller amounts, by other organs besides the thyroid, > including breast tissue, the genitals, pancreas, and the gastric mucosa. RAI > causes either cell death or DNA mutations to any cells unfortunate enough to > be at its path length. > > RAI has a short half-life, meaning half of the dose is diminished in about 8 > days. Then half of this dose is diminished in another 8 days. I contaminated > the entire nuclear chemistry department of the lab I worked in after being > ablated, and I continued to have measureable amounts of radioiodine in my > urine for 4 weeks. To say that the dose is quickly depleted is simply not > true. In the meantime we're exposing our families, friends and coworkers to > radioiodine. > > Long term studies show a small but significant increase in certain cancers, > including those of the thyroid gland and small bowel, after RAI. Although the > follicular cells of our thyroid are destroyed, we continue to have a basement > membrane of other cells that can become cancerous. > > There is a small but significant increase in damage to the parathyroid glands > after radioiodine. A number of people experience hypoparathyroidism. > > After RAI, increases in antibody titers affect lab tests, making > hypothyroidism extremely difficult to treat. Patients who had RAI have an > increased risk for developing fibromyalgia, which is also related to > hypothyroidism. I suspect that many of us are kept hypothyroid because of a > poor understanding of lab test interpretation. > > These are off the top of my head, Terry, so I'm sure I can come up with more. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Elaine, The top of your head is worth 100 of mine, since you have so much personal experience combined with education and expertise. I'm waiting for Jody's input, which I am sure will come too, and everyone else to get a crack at this-- then I want to try to put it all in some kind of version the doctors can understand (short sentences, single concepts) if I am capable of that. I seem to be back getting my email from group, finally, too. Yay! Terry > From: daisyelaine@... > Reply-To: graves_support > Date: Sat, 9 Feb 2002 23:49:54 EST > To: graves_support > Subject: Re: Frustrated > > I would add that > RAI is absorbed, in smaller amounts, by other organs besides the thyroid, > including breast tissue, the genitals, pancreas, and the gastric mucosa. RAI > causes either cell death or DNA mutations to any cells unfortunate enough to > be at its path length. > > RAI has a short half-life, meaning half of the dose is diminished in about 8 > days. Then half of this dose is diminished in another 8 days. I contaminated > the entire nuclear chemistry department of the lab I worked in after being > ablated, and I continued to have measureable amounts of radioiodine in my > urine for 4 weeks. To say that the dose is quickly depleted is simply not > true. In the meantime we're exposing our families, friends and coworkers to > radioiodine. > > Long term studies show a small but significant increase in certain cancers, > including those of the thyroid gland and small bowel, after RAI. Although the > follicular cells of our thyroid are destroyed, we continue to have a basement > membrane of other cells that can become cancerous. > > There is a small but significant increase in damage to the parathyroid glands > after radioiodine. A number of people experience hypoparathyroidism. > > After RAI, increases in antibody titers affect lab tests, making > hypothyroidism extremely difficult to treat. Patients who had RAI have an > increased risk for developing fibromyalgia, which is also related to > hypothyroidism. I suspect that many of us are kept hypothyroid because of a > poor understanding of lab test interpretation. > > These are off the top of my head, Terry, so I'm sure I can come up with more. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 , I'll add this too. Thanks, Terry > > Reply-To: graves_support > Date: Sat, 9 Feb 2002 22:20:23 -0600 > To: <graves_support > > Subject: Re: Frustrated > > Great idea, Terry! > > I'd add something pragmatic to the top ten (maybe we need eleven or twelve): > why opt for a permanent, non-reversible procedure before trying temporary > measures, like medication, that will either result in remission or buy you > time to research all your options and make a well-informed decision. > > That one really sold me while I was trying to decide! > > B > > > Frustrated > > > Hi everyone, > > I can't believe I'm still not able to access my email from here, but I > can't. Yahoo is taking its sweet time in fixing me up again I guess, despite > my fixing everything just the way they request that I do it. Anyway, I hope > that one of these emails will finally come through back to me, but if not I > can for now visit the archives. > > I have thought about starting a little project, prompted by my doctor's yet > again pressing for RAI, and so many others whose doc's have done the same. > > I'd like to title it " Top Ten Reasons Why I'll Never Have RAI " , and really > put together a succinct, compelling list that anybody who wants to, can > print out and bring to the doctors appointment. It needs to be a quick read, > cause the doctors won't look at anything much else I don't think. (don't > laugh, or maybe do, here). > > I figure input from the members who HAVE had RAI is the quickest and most > effective way to get to the meat of the problems, but then, there may be > reasons we who have opted not to do it can add, as well. Maybe it will be a > top 20 list! I came up with 10 reasons myself, pretty quickly. I'm going to > put them down, but only as motivators to get the rest of you working on the > problem. If, of course, you think it's a good idea. > > Here they are, but please, contribute better ones than mine! > > 1 I know what hypo feels like, and it¹s awful, even for a few days. I can¹t > imagine being condemned to experience it for longer > 2 RAI is " killing the messenger " but not attacking the root cause of the > disease > 3 After RAI the thyroid spends a good amount of time dying, releasing toxic > amounts of hormone during the process > 4 There is no perfect replacement hormone available > 5 Chance of TED increases dramatically > 6 Nothing on earth will ever convince me that radiation at that level won¹t > eventually cause cancer > 7 Don¹t know anyone who has had RAI that hasn¹t gained a lot of weight > 8 Hyper is controllable over the long term with medicine and there¹s a > chance of remission > 9 RAI is a permanent and irrevocable decision > 10 Just about everyone I¹ve corresponded with that has had RAI regrets it > > Terry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 , I'll add this too. Thanks, Terry > > Reply-To: graves_support > Date: Sat, 9 Feb 2002 22:20:23 -0600 > To: <graves_support > > Subject: Re: Frustrated > > Great idea, Terry! > > I'd add something pragmatic to the top ten (maybe we need eleven or twelve): > why opt for a permanent, non-reversible procedure before trying temporary > measures, like medication, that will either result in remission or buy you > time to research all your options and make a well-informed decision. > > That one really sold me while I was trying to decide! > > B > > > Frustrated > > > Hi everyone, > > I can't believe I'm still not able to access my email from here, but I > can't. Yahoo is taking its sweet time in fixing me up again I guess, despite > my fixing everything just the way they request that I do it. Anyway, I hope > that one of these emails will finally come through back to me, but if not I > can for now visit the archives. > > I have thought about starting a little project, prompted by my doctor's yet > again pressing for RAI, and so many others whose doc's have done the same. > > I'd like to title it " Top Ten Reasons Why I'll Never Have RAI " , and really > put together a succinct, compelling list that anybody who wants to, can > print out and bring to the doctors appointment. It needs to be a quick read, > cause the doctors won't look at anything much else I don't think. (don't > laugh, or maybe do, here). > > I figure input from the members who HAVE had RAI is the quickest and most > effective way to get to the meat of the problems, but then, there may be > reasons we who have opted not to do it can add, as well. Maybe it will be a > top 20 list! I came up with 10 reasons myself, pretty quickly. I'm going to > put them down, but only as motivators to get the rest of you working on the > problem. If, of course, you think it's a good idea. > > Here they are, but please, contribute better ones than mine! > > 1 I know what hypo feels like, and it¹s awful, even for a few days. I can¹t > imagine being condemned to experience it for longer > 2 RAI is " killing the messenger " but not attacking the root cause of the > disease > 3 After RAI the thyroid spends a good amount of time dying, releasing toxic > amounts of hormone during the process > 4 There is no perfect replacement hormone available > 5 Chance of TED increases dramatically > 6 Nothing on earth will ever convince me that radiation at that level won¹t > eventually cause cancer > 7 Don¹t know anyone who has had RAI that hasn¹t gained a lot of weight > 8 Hyper is controllable over the long term with medicine and there¹s a > chance of remission > 9 RAI is a permanent and irrevocable decision > 10 Just about everyone I¹ve corresponded with that has had RAI regrets it > > Terry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 , I'll add this too. Thanks, Terry > > Reply-To: graves_support > Date: Sat, 9 Feb 2002 22:20:23 -0600 > To: <graves_support > > Subject: Re: Frustrated > > Great idea, Terry! > > I'd add something pragmatic to the top ten (maybe we need eleven or twelve): > why opt for a permanent, non-reversible procedure before trying temporary > measures, like medication, that will either result in remission or buy you > time to research all your options and make a well-informed decision. > > That one really sold me while I was trying to decide! > > B > > > Frustrated > > > Hi everyone, > > I can't believe I'm still not able to access my email from here, but I > can't. Yahoo is taking its sweet time in fixing me up again I guess, despite > my fixing everything just the way they request that I do it. Anyway, I hope > that one of these emails will finally come through back to me, but if not I > can for now visit the archives. > > I have thought about starting a little project, prompted by my doctor's yet > again pressing for RAI, and so many others whose doc's have done the same. > > I'd like to title it " Top Ten Reasons Why I'll Never Have RAI " , and really > put together a succinct, compelling list that anybody who wants to, can > print out and bring to the doctors appointment. It needs to be a quick read, > cause the doctors won't look at anything much else I don't think. (don't > laugh, or maybe do, here). > > I figure input from the members who HAVE had RAI is the quickest and most > effective way to get to the meat of the problems, but then, there may be > reasons we who have opted not to do it can add, as well. Maybe it will be a > top 20 list! I came up with 10 reasons myself, pretty quickly. I'm going to > put them down, but only as motivators to get the rest of you working on the > problem. If, of course, you think it's a good idea. > > Here they are, but please, contribute better ones than mine! > > 1 I know what hypo feels like, and it¹s awful, even for a few days. I can¹t > imagine being condemned to experience it for longer > 2 RAI is " killing the messenger " but not attacking the root cause of the > disease > 3 After RAI the thyroid spends a good amount of time dying, releasing toxic > amounts of hormone during the process > 4 There is no perfect replacement hormone available > 5 Chance of TED increases dramatically > 6 Nothing on earth will ever convince me that radiation at that level won¹t > eventually cause cancer > 7 Don¹t know anyone who has had RAI that hasn¹t gained a lot of weight > 8 Hyper is controllable over the long term with medicine and there¹s a > chance of remission > 9 RAI is a permanent and irrevocable decision > 10 Just about everyone I¹ve corresponded with that has had RAI regrets it > > Terry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Wonderful idea Terry, I recently saw else where , a post saying that our thyroids are DISEASED, and since this is TRUE, ATDs are only putting off the inevitable. Thank goodness I know otherwise, as this word is still echoing in my mind. So now my special thank you again to , who used the word HEALTHY thyroid, and got through to me one time in recent history. My point concerns the wording of #2...perhaps using the word HEALTHY thyroid in describing the messenger, might help someone. -Pam- still having trouble turning off 'that' replaying tape in my mind Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Wonderful idea Terry, I recently saw else where , a post saying that our thyroids are DISEASED, and since this is TRUE, ATDs are only putting off the inevitable. Thank goodness I know otherwise, as this word is still echoing in my mind. So now my special thank you again to , who used the word HEALTHY thyroid, and got through to me one time in recent history. My point concerns the wording of #2...perhaps using the word HEALTHY thyroid in describing the messenger, might help someone. -Pam- still having trouble turning off 'that' replaying tape in my mind Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Wonderful idea Terry, I recently saw else where , a post saying that our thyroids are DISEASED, and since this is TRUE, ATDs are only putting off the inevitable. Thank goodness I know otherwise, as this word is still echoing in my mind. So now my special thank you again to , who used the word HEALTHY thyroid, and got through to me one time in recent history. My point concerns the wording of #2...perhaps using the word HEALTHY thyroid in describing the messenger, might help someone. -Pam- still having trouble turning off 'that' replaying tape in my mind Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 Hi Terry, What wonderful ideas you have! The symptoms list has been invaluable for the new people, I now keep it on my desk top to send them directly. I think this idea is just as wonderful. I am thinking on what I would like to see on it too. I know one of them would be It is a MYTH that hypO is easier to treat. And the one about graves is an immune system disease NOT a thyroid disease is also a must. As for any others, most will probably be the same as you have listed and what Elaine has done. I do have one suggestion though. If this is going to be used with doctors, it is going to become another effort by us to train doctors into a different mode of treating. I agree, to catch their eyes, the list must be short and to the point...but...I think each point needs to be explained as shortly as possible, so *maybe* having a second or second and third page attachment to it with explanations they can't argue with would be a good idea. Even if they don't read those in front of patients, hopefully they will take the time and read it when we are out of sight. I think for many, reading our reasons would be like the 'curiosity killed the cat, satisfaction brought it back' kind of thing. The danger with one liners only is that they can then argue every point made on them with 2/3 sentences to refute everything we come up with. With longer explanations (2/3 sentences of our own) on a separate page would stop them in their tracks. But this is just my take on it. I know that, even though my doctor does not do RAI on anyone anymore, I would take it in to her to share with her colleagues anyhow I'd be happy to work on this with you, as if you really need my help but if you do, let me know. Thank you so much for this idea, it is truly excellent! And Elaine... maybe another graves book on some of the things we have in the archives, like this list, the extended symptoms list, Do's and Don'ts for graves, for the eye disease...some simple ideas? Maybe that is really reaching on my part, but I do love your books TTYL Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 , Hi, is there any way I could get a copy of that article that was in JAMA? Thanks, Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 , Hi, is there any way I could get a copy of that article that was in JAMA? Thanks, Doris Quote Link to comment Share on other sites More sharing options...
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