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Re: Hope!

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Epilepsy took my

> son away, the ketogenic diet has given him back to me.

>

Thanks for sharing your story!! It's great to hear that is

doing so well. The diet has been our miracle, too. I say the words

you wrote (above) to someone at least once a week. We just returned

from visiting family and friends in another state. They've not seen

our daughter since she started the diet, although we've kept them up

to date about her progress. They were all AMAZED to see how well she

is doing now... vs. last year when things were so difficult.

Cammie

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Hi ,

my son is called as well, we are in the UK on the keto diet for 6m.We

too researched it ,asked for it and also waited years.

I think one of the other mums mentioned you.Are you Ema?

I am Nicola.You can email me privately.

Congrats on being drug free adn fighting for your son.Talk soon, N

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It's a small world - I'm in the UK and guess what - my son's also a

! We've been on the MCT-oil keto diet under Alder Hey since

November, which isn't bad seeing as had his first fit on 2nd

May 2003 - went downhill very rapidly, diagnosed with Lennox Gastaut

and tried lots of meds over last (horrendous) summer - I pushed for

the Ketogenic diet and fortunately his neuro was all for it - he's

been a different boy since Christmas - feels like we're winning him

back again!

Gail

> > Hi ,

> > my son is called as well, we are in the UK on the keto

diet

> for 6m.We

> > too researched it ,asked for it and also waited years.

> > I think one of the other mums mentioned you.Are you Ema?

> > I am Nicola.You can email me privately.

> > Congrats on being drug free adn fighting for your son.Talk soon,

N

> >

> >

> >

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Guest guest

It's a small world - I'm in the UK and guess what - my son's also a

! We've been on the MCT-oil keto diet under Alder Hey since

November, which isn't bad seeing as had his first fit on 2nd

May 2003 - went downhill very rapidly, diagnosed with Lennox Gastaut

and tried lots of meds over last (horrendous) summer - I pushed for

the Ketogenic diet and fortunately his neuro was all for it - he's

been a different boy since Christmas - feels like we're winning him

back again!

Gail

> > Hi ,

> > my son is called as well, we are in the UK on the keto

diet

> for 6m.We

> > too researched it ,asked for it and also waited years.

> > I think one of the other mums mentioned you.Are you Ema?

> > I am Nicola.You can email me privately.

> > Congrats on being drug free adn fighting for your son.Talk soon,

N

> >

> >

> >

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