Re: Personal CHARGE Blogs and Web Sites

[Guest guest]

Feel free to add Cedie's - http://cedielynn.blogspot.com/

Eva is such a doll:-)

Mock

> > > >

> > > > Hello everyone!!!

> > > >

> > > > It seems like more and more CHARGE families are having

websites

> > > and blogs dedicated to their little one's progress...as well as

> > > adult CHARGErs chronicling (sp?) their lives. I absolutely

love

> > > this and think how wonderful it would have been to read some of

> > > these when Max was first diagnosed. I remember having a very

> > > difficult time locating personal stories.

> > > >

> > > > What does everything think about having a list of CHARGE

> > > personal sites linked to the CHARGE foundation website? I

think

> > > reading about the parent's love of their CHARGE child and

reading

> > > about an adult's success would be very encouraging for a

> families.

> > > >

> > > > Just a thought!

> > > >

> > > >

> > > > Amy McKinley

> > > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> > > > maxupdate.blogspot.com

> > > >

> > > > ---------------------------------

> > > > How low will we go? Check out Yahoo! Messenger's low PC-to-

> Phone

> > > call rates.

> > > >

> > > >

[Guest guest]

Thanks !!

Crystal and Eva (1st birthday in 2 days CHARGER)

> > > > >

> > > > > Hello everyone!!!

> > > > >

> > > > > It seems like more and more CHARGE families are having

> websites

> > > > and blogs dedicated to their little one's progress...as well

as

> > > > adult CHARGErs chronicling (sp?) their lives. I absolutely

> love

> > > > this and think how wonderful it would have been to read some

of

> > > > these when Max was first diagnosed. I remember having a very

> > > > difficult time locating personal stories.

> > > > >

> > > > > What does everything think about having a list of CHARGE

> > > > personal sites linked to the CHARGE foundation website? I

> think

> > > > reading about the parent's love of their CHARGE child and

> reading

> > > > about an adult's success would be very encouraging for a

> > families.

> > > > >

> > > > > Just a thought!

> > > > >

> > > > >

> > > > > Amy McKinley

> > > > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months

corrected)

> > > > > maxupdate.blogspot.com

> > > > >

> > > > > ---------------------------------

> > > > > How low will we go? Check out Yahoo! Messenger's low PC-

to-

> > Phone

> > > > call rates.

> > > > >

> > > > >

[Guest guest]

Thanks !!

Crystal and Eva (1st birthday in 2 days CHARGER)

> > > > >

> > > > > Hello everyone!!!

> > > > >

> > > > > It seems like more and more CHARGE families are having

> websites

> > > > and blogs dedicated to their little one's progress...as well

as

> > > > adult CHARGErs chronicling (sp?) their lives. I absolutely

> love

> > > > this and think how wonderful it would have been to read some

of

> > > > these when Max was first diagnosed. I remember having a very

> > > > difficult time locating personal stories.

> > > > >

> > > > > What does everything think about having a list of CHARGE

> > > > personal sites linked to the CHARGE foundation website? I

> think

> > > > reading about the parent's love of their CHARGE child and

> reading

> > > > about an adult's success would be very encouraging for a

> > families.

> > > > >

> > > > > Just a thought!

> > > > >

> > > > >

> > > > > Amy McKinley

> > > > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months

corrected)

> > > > > maxupdate.blogspot.com

> > > > >

> > > > > ---------------------------------

> > > > > How low will we go? Check out Yahoo! Messenger's low PC-

to-

> > Phone

> > > > call rates.

> > > > >

> > > > >

[Guest guest]

Hi Amy

I'm more of a lurker on this list but I wanted to chime in here &

add my blog to the list. It's not soley about but you can see

how he's doing & what we're up to.

is doing so great these days (he's 7 1/2). I should get more

involved here as I do have questions from time to time. We recently

found the most amazing school & we're so happy after 18 months

of total school hell.

Here is my blog: http://moriahbettencourt.typepad.com

Moriah Bettencourt

>

> Hello everyone!!!

>

> It seems like more and more CHARGE families are having websites

and blogs dedicated to their little one's progress...as well as

adult CHARGErs chronicling (sp?) their lives. I absolutely love

this and think how wonderful it would have been to read some of

these when Max was first diagnosed. I remember having a very

difficult time locating personal stories.

>

> What does everything think about having a list of CHARGE

personal sites linked to the CHARGE foundation website? I think

reading about the parent's love of their CHARGE child and reading

about an adult's success would be very encouraging for a families.

>

> Just a thought!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Hi Amy

I'm more of a lurker on this list but I wanted to chime in here &

add my blog to the list. It's not soley about but you can see

how he's doing & what we're up to.

is doing so great these days (he's 7 1/2). I should get more

involved here as I do have questions from time to time. We recently

found the most amazing school & we're so happy after 18 months

of total school hell.

Here is my blog: http://moriahbettencourt.typepad.com

Moriah Bettencourt

>

> Hello everyone!!!

>

> It seems like more and more CHARGE families are having websites

and blogs dedicated to their little one's progress...as well as

adult CHARGErs chronicling (sp?) their lives. I absolutely love

this and think how wonderful it would have been to read some of

these when Max was first diagnosed. I remember having a very

difficult time locating personal stories.

>

> What does everything think about having a list of CHARGE

personal sites linked to the CHARGE foundation website? I think

reading about the parent's love of their CHARGE child and reading

about an adult's success would be very encouraging for a families.

>

> Just a thought!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Hi Amy

I'm more of a lurker on this list but I wanted to chime in here &

add my blog to the list. It's not soley about but you can see

how he's doing & what we're up to.

is doing so great these days (he's 7 1/2). I should get more

involved here as I do have questions from time to time. We recently

found the most amazing school & we're so happy after 18 months

of total school hell.

Here is my blog: http://moriahbettencourt.typepad.com

Moriah Bettencourt

>

> Hello everyone!!!

>

> It seems like more and more CHARGE families are having websites

and blogs dedicated to their little one's progress...as well as

adult CHARGErs chronicling (sp?) their lives. I absolutely love

this and think how wonderful it would have been to read some of

these when Max was first diagnosed. I remember having a very

difficult time locating personal stories.

>

> What does everything think about having a list of CHARGE

personal sites linked to the CHARGE foundation website? I think

reading about the parent's love of their CHARGE child and reading

about an adult's success would be very encouraging for a families.

>

> Just a thought!

>

>

> Amy McKinley

> Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> maxupdate.blogspot.com

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

[Guest guest]

Hi Amy!

Of course I remember you, when I seen your name I posted! I love

your blog too, Max reminds me soooo much of when was a

baby. Reading your blog is like going back to that little squishy

baby I loved so much . Hopefully someday I'll be up in your area &

we can get together. We love it up there & one of my good friends

just had a baby up there.

I do want to try to get more involved here, I tried a couple of

times but it's hard to keep up with. I need to figure out how to

change my email address through here because the one on my profile

is no longer active.

Talk to you soon!

Moriah

> >

> > Hello everyone!!!

> >

> > It seems like more and more CHARGE families are having websites

> and blogs dedicated to their little one's progress...as well as

> adult CHARGErs chronicling (sp?) their lives. I absolutely love

> this and think how wonderful it would have been to read some of

> these when Max was first diagnosed. I remember having a very

> difficult time locating personal stories.

> >

> > What does everything think about having a list of CHARGE

> personal sites linked to the CHARGE foundation website? I think

> reading about the parent's love of their CHARGE child and reading

> about an adult's success would be very encouraging for a

families.

> >

> > Just a thought!

> >

> >

> > Amy McKinley

> > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

> > maxupdate.blogspot.com

> >

> > ---------------------------------

> > How low will we go? Check out Yahoo! Messenger's low PC-to-

Phone

> call rates.

> >

> >