Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 If you mean like a journal or blogging site? I think that would be totaly cool! kinda like a place to all posts our stories, thoughts, random stuff that we would like to put in a journal site? I like that idea Amy, maby you should talk to Belinda, she has some webspace or something that could be a blog like thing. We actualy set up a board like this a while back. (last year) I stress that anyone reading these posts and original post, we are all on the understanding that non of this is ment to replace this charge list. Thats very important. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 If you mean like a journal or blogging site? I think that would be totaly cool! kinda like a place to all posts our stories, thoughts, random stuff that we would like to put in a journal site? I like that idea Amy, maby you should talk to Belinda, she has some webspace or something that could be a blog like thing. We actualy set up a board like this a while back. (last year) I stress that anyone reading these posts and original post, we are all on the understanding that non of this is ment to replace this charge list. Thats very important. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 If you mean like a journal or blogging site? I think that would be totaly cool! kinda like a place to all posts our stories, thoughts, random stuff that we would like to put in a journal site? I like that idea Amy, maby you should talk to Belinda, she has some webspace or something that could be a blog like thing. We actualy set up a board like this a while back. (last year) I stress that anyone reading these posts and original post, we are all on the understanding that non of this is ment to replace this charge list. Thats very important. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Amy I think its a fab idea, but i am no good and would not be able to set mine up. unless someone gave me step by step instruction, i have tried to leave messages on a flew charge kids sites and it wont accept me without my password!! just dont get these things very slow with IT, so it would need to be simple in my case!! les > > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Amy I think its a fab idea, but i am no good and would not be able to set mine up. unless someone gave me step by step instruction, i have tried to leave messages on a flew charge kids sites and it wont accept me without my password!! just dont get these things very slow with IT, so it would need to be simple in my case!! les > > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Amy I think its a fab idea, but i am no good and would not be able to set mine up. unless someone gave me step by step instruction, i have tried to leave messages on a flew charge kids sites and it wont accept me without my password!! just dont get these things very slow with IT, so it would need to be simple in my case!! les > > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Actually that is a fun idea too Chantelle but I was thinking something totally different. Sorry everyone, let me clarify. I meant adding the links to the various blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, Chip, Kennedy, etc. etc. etc.) Does that make sense? Thanks Chantelle as always for your good input too!!! You should have a blog of your very own! You have a lot to teach the world!!! Chantelle McLaren wrote: If you mean like a journal or blogging site? I think that would be totaly cool! kinda like a place to all posts our stories, thoughts, random stuff that we would like to put in a journal site? I like that idea Amy, maby you should talk to Belinda, she has some webspace or something that could be a blog like thing. We actualy set up a board like this a while back. (last year) I stress that anyone reading these posts and original post, we are all on the understanding that non of this is ment to replace this charge list. Thats very important. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Actually that is a fun idea too Chantelle but I was thinking something totally different. Sorry everyone, let me clarify. I meant adding the links to the various blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, Chip, Kennedy, etc. etc. etc.) Does that make sense? Thanks Chantelle as always for your good input too!!! You should have a blog of your very own! You have a lot to teach the world!!! Chantelle McLaren wrote: If you mean like a journal or blogging site? I think that would be totaly cool! kinda like a place to all posts our stories, thoughts, random stuff that we would like to put in a journal site? I like that idea Amy, maby you should talk to Belinda, she has some webspace or something that could be a blog like thing. We actualy set up a board like this a while back. (last year) I stress that anyone reading these posts and original post, we are all on the understanding that non of this is ment to replace this charge list. Thats very important. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Hi Amy, I do kinda have my own blog space, I dont post often. I think though you need to be a myspace member to read it, I dunno. Here is the url to my profile http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile & friendid=286865\ 47<http://profile.myspace.com/index.cfm?useaction=user.viewprofile & friendid=2868\ 6547> Chantelle > > Actually that is a fun idea too Chantelle but I was thinking something > totally different. > > Sorry everyone, let me clarify. I meant adding the links to the various > blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, > Chip, Kennedy, etc. etc. etc.) Does that make sense? > > Thanks Chantelle as always for your good input too!!! You should have a > blog of your very own! You have a lot to teach the world!!! > > Chantelle McLaren wrote: > If you mean like a journal or blogging site? I think that would be totaly > cool! kinda like a place to all posts our stories, thoughts, random stuff > that we would like to put in a journal site? I like that idea > > Amy, maby you should talk to Belinda, she has some webspace or something > that could be a blog like thing. We actualy set up a board like this a > while > back. (last year) > > > I stress that anyone reading these posts and original post, we are all on > the understanding that non of this is ment to replace this charge list. > Thats very important. > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Hi Amy, I do kinda have my own blog space, I dont post often. I think though you need to be a myspace member to read it, I dunno. Here is the url to my profile http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile & friendid=286865\ 47<http://profile.myspace.com/index.cfm?useaction=user.viewprofile & friendid=2868\ 6547> Chantelle > > Actually that is a fun idea too Chantelle but I was thinking something > totally different. > > Sorry everyone, let me clarify. I meant adding the links to the various > blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, > Chip, Kennedy, etc. etc. etc.) Does that make sense? > > Thanks Chantelle as always for your good input too!!! You should have a > blog of your very own! You have a lot to teach the world!!! > > Chantelle McLaren wrote: > If you mean like a journal or blogging site? I think that would be totaly > cool! kinda like a place to all posts our stories, thoughts, random stuff > that we would like to put in a journal site? I like that idea > > Amy, maby you should talk to Belinda, she has some webspace or something > that could be a blog like thing. We actualy set up a board like this a > while > back. (last year) > > > I stress that anyone reading these posts and original post, we are all on > the understanding that non of this is ment to replace this charge list. > Thats very important. > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2006 Report Share Posted April 6, 2006 Hi Amy, I do kinda have my own blog space, I dont post often. I think though you need to be a myspace member to read it, I dunno. Here is the url to my profile http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile & friendid=286865\ 47<http://profile.myspace.com/index.cfm?useaction=user.viewprofile & friendid=2868\ 6547> Chantelle > > Actually that is a fun idea too Chantelle but I was thinking something > totally different. > > Sorry everyone, let me clarify. I meant adding the links to the various > blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, > Chip, Kennedy, etc. etc. etc.) Does that make sense? > > Thanks Chantelle as always for your good input too!!! You should have a > blog of your very own! You have a lot to teach the world!!! > > Chantelle McLaren wrote: > If you mean like a journal or blogging site? I think that would be totaly > cool! kinda like a place to all posts our stories, thoughts, random stuff > that we would like to put in a journal site? I like that idea > > Amy, maby you should talk to Belinda, she has some webspace or something > that could be a blog like thing. We actualy set up a board like this a > while > back. (last year) > > > I stress that anyone reading these posts and original post, we are all on > the understanding that non of this is ment to replace this charge list. > Thats very important. > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 I have my own blog, but I really don't post a lot about my CHARGE experience, though in past I have complained about how unfairly treated I was by fellow students. I also have myspace, don't use it much. Just use it to look up people! > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Personal " CHARGE " Blogs and Web Sites >Date: Thu, 6 Apr 2006 14:20:50 -0700 (PDT) > >Actually that is a fun idea too Chantelle but I was thinking something >totally different. > > Sorry everyone, let me clarify. I meant adding the links to the various >blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, >Chip, Kennedy, etc. etc. etc.) Does that make sense? > >Thanks Chantelle as always for your good input too!!! You should have a >blog of your very own! You have a lot to teach the world!!! > >Chantelle McLaren wrote: > If you mean like a journal or blogging site? I think that would be >totaly >cool! kinda like a place to all posts our stories, thoughts, random stuff >that we would like to put in a journal site? I like that idea > >Amy, maby you should talk to Belinda, she has some webspace or something >that could be a blog like thing. We actualy set up a board like this a >while >back. (last year) > > >I stress that anyone reading these posts and original post, we are all on >the understanding that non of this is ment to replace this charge list. >Thats very important. > >Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 I have my own blog, but I really don't post a lot about my CHARGE experience, though in past I have complained about how unfairly treated I was by fellow students. I also have myspace, don't use it much. Just use it to look up people! > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Personal " CHARGE " Blogs and Web Sites >Date: Thu, 6 Apr 2006 14:20:50 -0700 (PDT) > >Actually that is a fun idea too Chantelle but I was thinking something >totally different. > > Sorry everyone, let me clarify. I meant adding the links to the various >blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, >Chip, Kennedy, etc. etc. etc.) Does that make sense? > >Thanks Chantelle as always for your good input too!!! You should have a >blog of your very own! You have a lot to teach the world!!! > >Chantelle McLaren wrote: > If you mean like a journal or blogging site? I think that would be >totaly >cool! kinda like a place to all posts our stories, thoughts, random stuff >that we would like to put in a journal site? I like that idea > >Amy, maby you should talk to Belinda, she has some webspace or something >that could be a blog like thing. We actualy set up a board like this a >while >back. (last year) > > >I stress that anyone reading these posts and original post, we are all on >the understanding that non of this is ment to replace this charge list. >Thats very important. > >Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 I have my own blog, but I really don't post a lot about my CHARGE experience, though in past I have complained about how unfairly treated I was by fellow students. I also have myspace, don't use it much. Just use it to look up people! > >Reply-To: CHARGE >To: CHARGE >Subject: Re: Personal " CHARGE " Blogs and Web Sites >Date: Thu, 6 Apr 2006 14:20:50 -0700 (PDT) > >Actually that is a fun idea too Chantelle but I was thinking something >totally different. > > Sorry everyone, let me clarify. I meant adding the links to the various >blogs and websites that are already set up (Max, Evan, Cedie, Eva?, Ellen, >Chip, Kennedy, etc. etc. etc.) Does that make sense? > >Thanks Chantelle as always for your good input too!!! You should have a >blog of your very own! You have a lot to teach the world!!! > >Chantelle McLaren wrote: > If you mean like a journal or blogging site? I think that would be >totaly >cool! kinda like a place to all posts our stories, thoughts, random stuff >that we would like to put in a journal site? I like that idea > >Amy, maby you should talk to Belinda, she has some webspace or something >that could be a blog like thing. We actualy set up a board like this a >while >back. (last year) > > >I stress that anyone reading these posts and original post, we are all on >the understanding that non of this is ment to replace this charge list. >Thats very important. > >Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 sounds like a good idea my online journal thing dont really talk bout charge that much eather i talk more a about wat im doing and how im doing > > I have my own blog, but I really don't post a lot about my CHARGE > experience, though in past I have complained about how unfairly treated I > was by fellow students. I also have myspace, don't use it much. Just use > it to look up people! > > > > > > > > > > > > >Reply-To: CHARGE > >To: CHARGE > >Subject: Re: Personal " CHARGE " Blogs and Web Sites > >Date: Thu, 6 Apr 2006 14:20:50 -0700 (PDT) > > > >Actually that is a fun idea too Chantelle but I was thinking something > >totally different. > > > > Sorry everyone, let me clarify. I meant adding the links to the > various > >blogs and websites that are already set up (Max, Evan, Cedie, Eva?, > Ellen, > >Chip, Kennedy, etc. etc. etc.) Does that make sense? > > > >Thanks Chantelle as always for your good input too!!! You should have a > >blog of your very own! You have a lot to teach the world!!! > > > >Chantelle McLaren wrote: > > If you mean like a journal or blogging site? I think that would be > >totaly > >cool! kinda like a place to all posts our stories, thoughts, random stuff > >that we would like to put in a journal site? I like that idea > > > >Amy, maby you should talk to Belinda, she has some webspace or something > >that could be a blog like thing. We actualy set up a board like this a > >while > >back. (last year) > > > > > >I stress that anyone reading these posts and original post, we are all on > >the understanding that non of this is ment to replace this charge list. > >Thats very important. > > > >Chantelle > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Kim, I think thats an awsome idea!! Crystal and Eva (1st birthday in 5 days Charger) > > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Kim, I think thats an awsome idea!! Crystal and Eva (1st birthday in 5 days Charger) > > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Kim, I think thats an awsome idea!! Crystal and Eva (1st birthday in 5 days Charger) > > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 That is a good idea. As a new parent to this site, I would find that helpful, especially if those sites give a little background and pictures. > > > > Hello everyone!!! > > > > It seems like more and more CHARGE families are having websites > and blogs dedicated to their little one's progress...as well as > adult CHARGErs chronicling (sp?) their lives. I absolutely love > this and think how wonderful it would have been to read some of > these when Max was first diagnosed. I remember having a very > difficult time locating personal stories. > > > > What does everything think about having a list of CHARGE > personal sites linked to the CHARGE foundation website? I think > reading about the parent's love of their CHARGE child and reading > about an adult's success would be very encouraging for a families. > > > > Just a thought! > > > > > > Amy McKinley > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > > maxupdate.blogspot.com > > > > --------------------------------- > > How low will we go? Check out Yahoo! Messenger's low PC-to- Phone > call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 That is a good idea. As a new parent to this site, I would find that helpful, especially if those sites give a little background and pictures. > > > > Hello everyone!!! > > > > It seems like more and more CHARGE families are having websites > and blogs dedicated to their little one's progress...as well as > adult CHARGErs chronicling (sp?) their lives. I absolutely love > this and think how wonderful it would have been to read some of > these when Max was first diagnosed. I remember having a very > difficult time locating personal stories. > > > > What does everything think about having a list of CHARGE > personal sites linked to the CHARGE foundation website? I think > reading about the parent's love of their CHARGE child and reading > about an adult's success would be very encouraging for a families. > > > > Just a thought! > > > > > > Amy McKinley > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > > maxupdate.blogspot.com > > > > --------------------------------- > > How low will we go? Check out Yahoo! Messenger's low PC-to- Phone > call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 That is a good idea. As a new parent to this site, I would find that helpful, especially if those sites give a little background and pictures. > > > > Hello everyone!!! > > > > It seems like more and more CHARGE families are having websites > and blogs dedicated to their little one's progress...as well as > adult CHARGErs chronicling (sp?) their lives. I absolutely love > this and think how wonderful it would have been to read some of > these when Max was first diagnosed. I remember having a very > difficult time locating personal stories. > > > > What does everything think about having a list of CHARGE > personal sites linked to the CHARGE foundation website? I think > reading about the parent's love of their CHARGE child and reading > about an adult's success would be very encouraging for a families. > > > > Just a thought! > > > > > > Amy McKinley > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > > maxupdate.blogspot.com > > > > --------------------------------- > > How low will we go? Check out Yahoo! Messenger's low PC-to- Phone > call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 I have a page for Eva as most of you know and I if anyone wants me to add their page to her group I would be glad to just let me know the site address!! I know my friends and family would love to see more CHARGERS and how things are going for them. Crystal and Eva (1st birthday in 4 days CHARGER) http://www.babysites.com/sites/crystalm1476/ > > > > > > Hello everyone!!! > > > > > > It seems like more and more CHARGE families are having websites > > and blogs dedicated to their little one's progress...as well as > > adult CHARGErs chronicling (sp?) their lives. I absolutely love > > this and think how wonderful it would have been to read some of > > these when Max was first diagnosed. I remember having a very > > difficult time locating personal stories. > > > > > > What does everything think about having a list of CHARGE > > personal sites linked to the CHARGE foundation website? I think > > reading about the parent's love of their CHARGE child and reading > > about an adult's success would be very encouraging for a families. > > > > > > Just a thought! > > > > > > > > > Amy McKinley > > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > > > maxupdate.blogspot.com > > > > > > --------------------------------- > > > How low will we go? Check out Yahoo! Messenger's low PC-to- Phone > > call rates. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Thanks!! I add your website to Evas page. Crystal and Eva (1st birthday in 4 days CHARGER) > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Thanks!! I add your website to Evas page. Crystal and Eva (1st birthday in 4 days CHARGER) > Hello everyone!!! > > It seems like more and more CHARGE families are having websites and blogs dedicated to their little one's progress...as well as adult CHARGErs chronicling (sp?) their lives. I absolutely love this and think how wonderful it would have been to read some of these when Max was first diagnosed. I remember having a very difficult time locating personal stories. > > What does everything think about having a list of CHARGE personal sites linked to the CHARGE foundation website? I think reading about the parent's love of their CHARGE child and reading about an adult's success would be very encouraging for a families. > > Just a thought! > > > Amy McKinley > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > maxupdate.blogspot.com > > --------------------------------- > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Feel free to add Cedie's - http://cedielynn.blogspot.com/ Eva is such a doll:-) Mock > > > > > > > > Hello everyone!!! > > > > > > > > It seems like more and more CHARGE families are having websites > > > and blogs dedicated to their little one's progress...as well as > > > adult CHARGErs chronicling (sp?) their lives. I absolutely love > > > this and think how wonderful it would have been to read some of > > > these when Max was first diagnosed. I remember having a very > > > difficult time locating personal stories. > > > > > > > > What does everything think about having a list of CHARGE > > > personal sites linked to the CHARGE foundation website? I think > > > reading about the parent's love of their CHARGE child and reading > > > about an adult's success would be very encouraging for a > families. > > > > > > > > Just a thought! > > > > > > > > > > > > Amy McKinley > > > > Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected) > > > > maxupdate.blogspot.com > > > > > > > > --------------------------------- > > > > How low will we go? Check out Yahoo! Messenger's low PC-to- > Phone > > > call rates. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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