Guest guest Posted April 6, 2006 Report Posted April 6, 2006 That's awesome Crystal! > > Childerns hospital of Wisconsin emailed me again and now I have 2 more > fundraisers we going to help with by telling Eva's story. There is a > pancake breakfest in May and a Regatta in Sept. They will be printing > her story so people will be taking it home to read so more people will > learn about CHARGE and I am so happy about that! > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted April 6, 2006 Report Posted April 6, 2006 I agree! Congratulations! > >Reply-To: CHARGE >To: CHARGE >Subject: Re: I got 2 more!! >Date: Thu, 6 Apr 2006 14:27:39 -0300 > >That's awesome Crystal! > > > > > > > > > Childerns hospital of Wisconsin emailed me again and now I have 2 more > > fundraisers we going to help with by telling Eva's story. There is a > > pancake breakfest in May and a Regatta in Sept. They will be printing > > her story so people will be taking it home to read so more people will > > learn about CHARGE and I am so happy about that! > > > > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support group does not constitute membership in > > the CHARGE Syndrome Foundation; for information about the CHARGE >Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote
Guest guest Posted April 6, 2006 Report Posted April 6, 2006 well done Crystal the more awareness of charge the better, especially if the professionals get to see or read it. les x > > > > > > Childerns hospital of Wisconsin emailed me again and now I have 2 more > > > fundraisers we going to help with by telling Eva's story. There is a > > > pancake breakfest in May and a Regatta in Sept. They will be printing > > > her story so people will be taking it home to read so more people will > > > learn about CHARGE and I am so happy about that! > > > > > > > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > > http://www.imagestation.com/album/?id=2117043995 > > > > > > Membership of this email support group does not constitute membership in > > > the CHARGE Syndrome Foundation; for information about the CHARGE > >Syndrome > > > Foundation or to become a member (and get the newsletter), > > > please contact marion@... or visit > > > the web site at http://www.chargesyndrome.org > > > > > > 8th International > > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > > www.chargesyndrome.org or by calling 1-. > > > Quote
Guest guest Posted April 6, 2006 Report Posted April 6, 2006 well done Crystal the more awareness of charge the better, especially if the professionals get to see or read it. les x > > > > > > Childerns hospital of Wisconsin emailed me again and now I have 2 more > > > fundraisers we going to help with by telling Eva's story. There is a > > > pancake breakfest in May and a Regatta in Sept. They will be printing > > > her story so people will be taking it home to read so more people will > > > learn about CHARGE and I am so happy about that! > > > > > > > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > > http://www.imagestation.com/album/?id=2117043995 > > > > > > Membership of this email support group does not constitute membership in > > > the CHARGE Syndrome Foundation; for information about the CHARGE > >Syndrome > > > Foundation or to become a member (and get the newsletter), > > > please contact marion@... or visit > > > the web site at http://www.chargesyndrome.org > > > > > > 8th International > > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > > www.chargesyndrome.org or by calling 1-. > > > Quote
Guest guest Posted April 6, 2006 Report Posted April 6, 2006 well done Crystal the more awareness of charge the better, especially if the professionals get to see or read it. les x > > > > > > Childerns hospital of Wisconsin emailed me again and now I have 2 more > > > fundraisers we going to help with by telling Eva's story. There is a > > > pancake breakfest in May and a Regatta in Sept. They will be printing > > > her story so people will be taking it home to read so more people will > > > learn about CHARGE and I am so happy about that! > > > > > > > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > > http://www.imagestation.com/album/?id=2117043995 > > > > > > Membership of this email support group does not constitute membership in > > > the CHARGE Syndrome Foundation; for information about the CHARGE > >Syndrome > > > Foundation or to become a member (and get the newsletter), > > > please contact marion@... or visit > > > the web site at http://www.chargesyndrome.org > > > > > > 8th International > > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > > www.chargesyndrome.org or by calling 1-. > > > Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 yehaaaaaaaaaaaa ur great mumm;y ur on m y top ten mummy list LOL > > well done Crystal the more awareness of charge the better, > especially if the professionals get to see or read it. > > les x > > > > > > > > > > > Childerns hospital of Wisconsin emailed me again and now I > have 2 more > > > > fundraisers we going to help with by telling Eva's story. > There is a > > > > pancake breakfest in May and a Regatta in Sept. They will be > printing > > > > her story so people will be taking it home to read so more > people will > > > > learn about CHARGE and I am so happy about that! > > > > > > > > > > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > > > > > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > > > http://www.imagestation.com/album/?id=2117043995 > > > > > > > > Membership of this email support group does not constitute > membership in > > > > the CHARGE Syndrome Foundation; for information about the > CHARGE > > >Syndrome > > > > Foundation or to become a member (and get the newsletter), > > > > please contact marion@... or visit > > > > the web site at http://www.chargesyndrome.org > > > > > > > > 8th International > > > > CHARGE Syndrome Conference, July, 2007. Information will be > available at > > > > www.chargesyndrome.org or by calling 1-. > > > > Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 yehaaaaaaaaaaaa ur great mumm;y ur on m y top ten mummy list LOL > > well done Crystal the more awareness of charge the better, > especially if the professionals get to see or read it. > > les x > > > > > > > > > > > Childerns hospital of Wisconsin emailed me again and now I > have 2 more > > > > fundraisers we going to help with by telling Eva's story. > There is a > > > > pancake breakfest in May and a Regatta in Sept. They will be > printing > > > > her story so people will be taking it home to read so more > people will > > > > learn about CHARGE and I am so happy about that! > > > > > > > > > > > > Crystal and Eva (1st birthday in 5 days CHARGER) > > > > > > > > > > > > > > > > > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > > > http://www.imagestation.com/album/?id=2117043995 > > > > > > > > Membership of this email support group does not constitute > membership in > > > > the CHARGE Syndrome Foundation; for information about the > CHARGE > > >Syndrome > > > > Foundation or to become a member (and get the newsletter), > > > > please contact marion@... or visit > > > > the web site at http://www.chargesyndrome.org > > > > > > > > 8th International > > > > CHARGE Syndrome Conference, July, 2007. Information will be > available at > > > > www.chargesyndrome.org or by calling 1-. > > > > Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 Crystal, Wow, keep spreading the word. When you get the print out of the write up would you send it to the Foundation so that they can print it in the Newsletter? I think the families will enjoy it and it might give them ideas. Remember not all the families are on this list. And Happy 1st Birthday to Miss Eva. Look how great your life has changed by being blessed with the miracle of having Eva. Congratulations in many ways. Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 Crystal, Wow, keep spreading the word. When you get the print out of the write up would you send it to the Foundation so that they can print it in the Newsletter? I think the families will enjoy it and it might give them ideas. Remember not all the families are on this list. And Happy 1st Birthday to Miss Eva. Look how great your life has changed by being blessed with the miracle of having Eva. Congratulations in many ways. Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 bonnie while u said not every family is on here it sure does seem like it soemtiems And another thing some people in the foundation get the american newsletter for isntance think we acutaly get it sometimes so thats a great idea > > Crystal, > > Wow, keep spreading the word. > > When you get the print out of the write up would you send it to the > Foundation so that they can print it in the Newsletter? I think the > families will > enjoy it and it might give them ideas. Remember not all the families are > on this > list. > > And Happy 1st Birthday to Miss Eva. Look how great your life has changed > by > being blessed with the miracle of having Eva. > > Congratulations in many ways. > > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 bonnie while u said not every family is on here it sure does seem like it soemtiems And another thing some people in the foundation get the american newsletter for isntance think we acutaly get it sometimes so thats a great idea > > Crystal, > > Wow, keep spreading the word. > > When you get the print out of the write up would you send it to the > Foundation so that they can print it in the Newsletter? I think the > families will > enjoy it and it might give them ideas. Remember not all the families are > on this > list. > > And Happy 1st Birthday to Miss Eva. Look how great your life has changed > by > being blessed with the miracle of having Eva. > > Congratulations in many ways. > > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 bonnie while u said not every family is on here it sure does seem like it soemtiems And another thing some people in the foundation get the american newsletter for isntance think we acutaly get it sometimes so thats a great idea > > Crystal, > > Wow, keep spreading the word. > > When you get the print out of the write up would you send it to the > Foundation so that they can print it in the Newsletter? I think the > families will > enjoy it and it might give them ideas. Remember not all the families are > on this > list. > > And Happy 1st Birthday to Miss Eva. Look how great your life has changed > by > being blessed with the miracle of having Eva. > > Congratulations in many ways. > > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote
Guest guest Posted April 7, 2006 Report Posted April 7, 2006 Bonnie thank you so much!! I will try and get a copy to the foundation as soon as it comes out. We will also be doing a radio telathon in June or July also for the hospital so there I will get to a whole county!! I hope the right people hear it and want to help me get even more info out there. Crystal and Eva (1st birthday in 4 days CHARGER) Crystal > > Crystal, > > Wow, keep spreading the word. > > When you get the print out of the write up would you send it to the > Foundation so that they can print it in the Newsletter? I think the families will > enjoy it and it might give them ideas. Remember not all the families are on this > list. > > And Happy 1st Birthday to Miss Eva. Look how great your life has changed by > being blessed with the miracle of having Eva. > > Congratulations in many ways. > > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote
Guest guest Posted April 8, 2006 Report Posted April 8, 2006 Ellen, It does seem like all families are on this list but they aren't. There are tons and tons more out there. Isn't that sad that they aren't on? Still though the number keeps growing and growing. Yippee. The newsletter is great, isn't it? Thanks to n, and Meg, and...... Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote
Guest guest Posted April 8, 2006 Report Posted April 8, 2006 Ellen, It does seem like all families are on this list but they aren't. There are tons and tons more out there. Isn't that sad that they aren't on? Still though the number keeps growing and growing. Yippee. The newsletter is great, isn't it? Thanks to n, and Meg, and...... Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote
Guest guest Posted April 8, 2006 Report Posted April 8, 2006 Ellen, It does seem like all families are on this list but they aren't. There are tons and tons more out there. Isn't that sad that they aren't on? Still though the number keeps growing and growing. Yippee. The newsletter is great, isn't it? Thanks to n, and Meg, and...... Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.