Guest guest Posted March 28, 2006 Report Posted March 28, 2006 Dear Ellen I think you could be right, Amelie has a gastrostomy fed through to her jejunum, and this week her poops have been extra wet liquid in fact, they said she hasnt grown any bugs it could be the erythromycin, but what your describing makes complete sense, I will discuss this today, with docs, the neurologist came to see her but doesnt think its related to there field, so this is very plausable. lots of love, not had chance to speak to you in ages.lol lesley x Amelie xx Quote
Guest guest Posted March 29, 2006 Report Posted March 29, 2006 ees is suposed to help it has with me and i call it that lol donno y coz theres no s in it got it form the drs who allways did it > > Dear Ellen > > I think you could be right, Amelie has a gastrostomy fed through to > her jejunum, and this week her poops have been extra wet liquid in > fact, they said she hasnt grown any bugs it could be the erythromycin, > but what your describing makes complete sense, I will discuss this > today, with docs, the neurologist came to see her but doesnt think its > related to there field, so this is very plausable. > > lots of love, not had chance to speak to you in ages.lol > lesley x Amelie xx > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted March 29, 2006 Report Posted March 29, 2006 ees is suposed to help it has with me and i call it that lol donno y coz theres no s in it got it form the drs who allways did it > > Dear Ellen > > I think you could be right, Amelie has a gastrostomy fed through to > her jejunum, and this week her poops have been extra wet liquid in > fact, they said she hasnt grown any bugs it could be the erythromycin, > but what your describing makes complete sense, I will discuss this > today, with docs, the neurologist came to see her but doesnt think its > related to there field, so this is very plausable. > > lots of love, not had chance to speak to you in ages.lol > lesley x Amelie xx > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support group does not constitute membership in > the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
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