easter seals combining with aussie compananies to make a differene

[Guest guest]

well thought soem of you would be intrested in this specialy bonnie as patty

uses it well i saw an article in the services newsletter that i get that was

talking about disabilites and stuff it was saying easter seals which patty

uses and soem other chargers in here so want bonnie to read but they are

seaking help from places over here like northcott which i use a service

provider for phyiscial disabled to make them a better place so no wodner

easter selas finaly gets patty:) coz northoctt totoaly gets me and they are

in this programme to help improve knowlege botu disabilites and not just

charge though i am their only charger but bout everything and are helping

them to understand that physical disabled doesnt mean interlectualy disabled

it is a gereat thing and if any of you use easter seals congeratualate them

on their refforts to understand us better coz of people over here who do

acutlay get it gotta love places liek northcott also on that i dont know if

i told you but they are planning to change their tenders well i got another

thing to be assesed again for finding which i only got last year well dotn

need that for now YAY dadc looks at interlecutal northcott and easter seals

look at the big picture lets keep the big picture of the phyicaly disabled

person out there!!!!!!!1 hugs ellen

[Guest guest]

Holy smokes, I didn't know they were around the world. WOW!

You are right Ellen but I have to say the Easter Seals in CT wasn't like the

one here in Boston. I think it had to do with location, funding, and plain

old lack of experience of staff. They evaluated Patty in CT and openly said

they had nothing for her. At least they were honest. That is something quite

admirable. So even thought hey didn't have appropriate services they were still

great.

The one Patty is at now is just fantastic. No, it's FANTASTIC!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Holy smokes, I didn't know they were around the world. WOW!

You are right Ellen but I have to say the Easter Seals in CT wasn't like the

one here in Boston. I think it had to do with location, funding, and plain

old lack of experience of staff. They evaluated Patty in CT and openly said

they had nothing for her. At least they were honest. That is something quite

admirable. So even thought hey didn't have appropriate services they were still

great.

The one Patty is at now is just fantastic. No, it's FANTASTIC!

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

My experience with Easter Seals was horrific. In their defense, they

were very generous in offering my son " PICL " fund money, which is

Partnership in Community Living. They asked what I needed and wanted

most for my son at that time (it was a one-time grant) and they

bought him a new bed and set aside money to pay for a year supply

of " big kid " diapers.

However, we had to have a one-to-one aide in order for my son to use

any type of afterschool " latchkey " program and summer programs. We

contracted Easter Seals to provide this service. Our first personal

assistant asked me for a ride home the first day, saying she forgot

her bus money. She then would show up late and many of the school

staff members said she spoke very harshly with my son. Finally, she

just didn't show up ever again. It took them 5 months to find a

replacement and during this time, my son's special ed teacher

volunteered to step in until we got the replacement. I don't know

what happened, but shortly after the aide " quit " , the casemanager

quit as well! When they finally found a replacement, she seemed

okay. She was also a CNA, which was nice. I found out, though, from

my younger daughter, that the aide was signing them out every day

and taking them to Wal-Mart, shopping for 2 hours or more, every

single day! All this when my son was supposed to be playing and

interacting with his peers. She also was constantly on her cell

phone. They hired another aide at the same time to cover the days

that the first aide couldn't be there. The second aide was WONDERFUL-

-an ex-teacher who took the initiative with my son in getting him to

interact with the other children. When I asked that the second aide

be my son's sole aide, they wouldn't allow it and she ended up

quitting because she wasn't getting enough hours. I asked that the

first aide be spoken to about her shopping sprees and cell phone

time, and she quit shortly after that. We got another aide, a male,

who seemed friendly enough and had some experience as he was an aide

in a state hospital. Halfway through the summer program, he just

stopped showing up! I finally told Easter Seals to forget it, and

asked my mother to help watch him until I finished school. I hated

to burden her because she cares for my 89 year-old grandmother, but

she begged me to watch him because she hated seeing what was going

on with him.

I received a call from the Easter Seals director apologizing for the

situation. The begged for us to continue our services, and said they

would promise to find an aide that had experience and would

be " right " for . Our final aide was a male. When I met him

for the first time, he told me he was a " rising rap star " and hip-

hop dancer with a record deal in the works. This made me immediately

suspicious, not because of what he did, but because I knew he wasn't

very serious about this job. He was great and full of energy and

engaged in playing, but the school staff complained he was

sexually harassing the other teenage afterschool group leaders and

he was very disruptive with the other children in 's group.

He butted heads with the sweet retiree who was my son's group leader

and one day she came to me in tears, saying that the aide kept

separating from the regular ed. kids and telling her " he

can't " do anything. She had known my son for over a year and

knew what he was capable of and was frustrated because, in her

attempts to talk to the aide about his separating , he

ridiculed her and was defensive and mean to her. He was another that

was late all the time. I was in school and there were many times

that I had to leave class 25 miles away and come pick up my son

because he was late or didn't show up. He never called me or the

school to let anyone know and when I called him, he would make up

stories about things, when I knew he was doing things for his record

deal.

Anyway, sorry for rambling, but I have been hesitant to seek

services here in Virginia because of my negative experience. It is

such a shame that things aren't consistent within the same agency.

If we ever return home to Hawaii again, I will never ever seek any

type of services from them. The receive lots of public support in

Hawaii from very large and well known companies, so I don't

understand why they are hiring such inexperienced, unprofessional

care staff. Unfortunately for me, they were the only providers of

personal assistant services under the MR funding umbrella.

[Guest guest]

My experience with Easter Seals was horrific. In their defense, they

were very generous in offering my son " PICL " fund money, which is

Partnership in Community Living. They asked what I needed and wanted

most for my son at that time (it was a one-time grant) and they

bought him a new bed and set aside money to pay for a year supply

of " big kid " diapers.

However, we had to have a one-to-one aide in order for my son to use

any type of afterschool " latchkey " program and summer programs. We

contracted Easter Seals to provide this service. Our first personal

assistant asked me for a ride home the first day, saying she forgot

her bus money. She then would show up late and many of the school

staff members said she spoke very harshly with my son. Finally, she

just didn't show up ever again. It took them 5 months to find a

replacement and during this time, my son's special ed teacher

volunteered to step in until we got the replacement. I don't know

what happened, but shortly after the aide " quit " , the casemanager

quit as well! When they finally found a replacement, she seemed

okay. She was also a CNA, which was nice. I found out, though, from

my younger daughter, that the aide was signing them out every day

and taking them to Wal-Mart, shopping for 2 hours or more, every

single day! All this when my son was supposed to be playing and

interacting with his peers. She also was constantly on her cell

phone. They hired another aide at the same time to cover the days

that the first aide couldn't be there. The second aide was WONDERFUL-

-an ex-teacher who took the initiative with my son in getting him to

interact with the other children. When I asked that the second aide

be my son's sole aide, they wouldn't allow it and she ended up

quitting because she wasn't getting enough hours. I asked that the

first aide be spoken to about her shopping sprees and cell phone

time, and she quit shortly after that. We got another aide, a male,

who seemed friendly enough and had some experience as he was an aide

in a state hospital. Halfway through the summer program, he just

stopped showing up! I finally told Easter Seals to forget it, and

asked my mother to help watch him until I finished school. I hated

to burden her because she cares for my 89 year-old grandmother, but

she begged me to watch him because she hated seeing what was going

on with him.

I received a call from the Easter Seals director apologizing for the

situation. The begged for us to continue our services, and said they

would promise to find an aide that had experience and would

be " right " for . Our final aide was a male. When I met him

for the first time, he told me he was a " rising rap star " and hip-

hop dancer with a record deal in the works. This made me immediately

suspicious, not because of what he did, but because I knew he wasn't

very serious about this job. He was great and full of energy and

engaged in playing, but the school staff complained he was

sexually harassing the other teenage afterschool group leaders and

he was very disruptive with the other children in 's group.

He butted heads with the sweet retiree who was my son's group leader

and one day she came to me in tears, saying that the aide kept

separating from the regular ed. kids and telling her " he

can't " do anything. She had known my son for over a year and

knew what he was capable of and was frustrated because, in her

attempts to talk to the aide about his separating , he

ridiculed her and was defensive and mean to her. He was another that

was late all the time. I was in school and there were many times

that I had to leave class 25 miles away and come pick up my son

because he was late or didn't show up. He never called me or the

school to let anyone know and when I called him, he would make up

stories about things, when I knew he was doing things for his record

deal.

Anyway, sorry for rambling, but I have been hesitant to seek

services here in Virginia because of my negative experience. It is

such a shame that things aren't consistent within the same agency.

If we ever return home to Hawaii again, I will never ever seek any

type of services from them. The receive lots of public support in

Hawaii from very large and well known companies, so I don't

understand why they are hiring such inexperienced, unprofessional

care staff. Unfortunately for me, they were the only providers of

personal assistant services under the MR funding umbrella.

[Guest guest]

My experience with Easter Seals was horrific. In their defense, they

were very generous in offering my son " PICL " fund money, which is

Partnership in Community Living. They asked what I needed and wanted

most for my son at that time (it was a one-time grant) and they

bought him a new bed and set aside money to pay for a year supply

of " big kid " diapers.

However, we had to have a one-to-one aide in order for my son to use

any type of afterschool " latchkey " program and summer programs. We

contracted Easter Seals to provide this service. Our first personal

assistant asked me for a ride home the first day, saying she forgot

her bus money. She then would show up late and many of the school

staff members said she spoke very harshly with my son. Finally, she

just didn't show up ever again. It took them 5 months to find a

replacement and during this time, my son's special ed teacher

volunteered to step in until we got the replacement. I don't know

what happened, but shortly after the aide " quit " , the casemanager

quit as well! When they finally found a replacement, she seemed

okay. She was also a CNA, which was nice. I found out, though, from

my younger daughter, that the aide was signing them out every day

and taking them to Wal-Mart, shopping for 2 hours or more, every

single day! All this when my son was supposed to be playing and

interacting with his peers. She also was constantly on her cell

phone. They hired another aide at the same time to cover the days

that the first aide couldn't be there. The second aide was WONDERFUL-

-an ex-teacher who took the initiative with my son in getting him to

interact with the other children. When I asked that the second aide

be my son's sole aide, they wouldn't allow it and she ended up

quitting because she wasn't getting enough hours. I asked that the

first aide be spoken to about her shopping sprees and cell phone

time, and she quit shortly after that. We got another aide, a male,

who seemed friendly enough and had some experience as he was an aide

in a state hospital. Halfway through the summer program, he just

stopped showing up! I finally told Easter Seals to forget it, and

asked my mother to help watch him until I finished school. I hated

to burden her because she cares for my 89 year-old grandmother, but

she begged me to watch him because she hated seeing what was going

on with him.

I received a call from the Easter Seals director apologizing for the

situation. The begged for us to continue our services, and said they

would promise to find an aide that had experience and would

be " right " for . Our final aide was a male. When I met him

for the first time, he told me he was a " rising rap star " and hip-

hop dancer with a record deal in the works. This made me immediately

suspicious, not because of what he did, but because I knew he wasn't

very serious about this job. He was great and full of energy and

engaged in playing, but the school staff complained he was

sexually harassing the other teenage afterschool group leaders and

he was very disruptive with the other children in 's group.

He butted heads with the sweet retiree who was my son's group leader

and one day she came to me in tears, saying that the aide kept

separating from the regular ed. kids and telling her " he

can't " do anything. She had known my son for over a year and

knew what he was capable of and was frustrated because, in her

attempts to talk to the aide about his separating , he

ridiculed her and was defensive and mean to her. He was another that

was late all the time. I was in school and there were many times

that I had to leave class 25 miles away and come pick up my son

because he was late or didn't show up. He never called me or the

school to let anyone know and when I called him, he would make up

stories about things, when I knew he was doing things for his record

deal.

Anyway, sorry for rambling, but I have been hesitant to seek

services here in Virginia because of my negative experience. It is

such a shame that things aren't consistent within the same agency.

If we ever return home to Hawaii again, I will never ever seek any

type of services from them. The receive lots of public support in

Hawaii from very large and well known companies, so I don't

understand why they are hiring such inexperienced, unprofessional

care staff. Unfortunately for me, they were the only providers of

personal assistant services under the MR funding umbrella.

[Guest guest]

What a nightmare! I am so sorry! I can only imagine how frustrating that must

have been!!!

manuula70 wrote: My experience with Easter Seals was

horrific. In their defense, they

were very generous in offering my son " PICL " fund money, which is

Partnership in Community Living. They asked what I needed and wanted

most for my son at that time (it was a one-time grant) and they

bought him a new bed and set aside money to pay for a year supply

of " big kid " diapers.

However, we had to have a one-to-one aide in order for my son to use

any type of afterschool " latchkey " program and summer programs. We

contracted Easter Seals to provide this service. Our first personal

assistant asked me for a ride home the first day, saying she forgot

her bus money. She then would show up late and many of the school

staff members said she spoke very harshly with my son. Finally, she

just didn't show up ever again. It took them 5 months to find a

replacement and during this time, my son's special ed teacher

volunteered to step in until we got the replacement. I don't know

what happened, but shortly after the aide " quit " , the casemanager

quit as well! When they finally found a replacement, she seemed

okay. She was also a CNA, which was nice. I found out, though, from

my younger daughter, that the aide was signing them out every day

and taking them to Wal-Mart, shopping for 2 hours or more, every

single day! All this when my son was supposed to be playing and

interacting with his peers. She also was constantly on her cell

phone. They hired another aide at the same time to cover the days

that the first aide couldn't be there. The second aide was WONDERFUL-

-an ex-teacher who took the initiative with my son in getting him to

interact with the other children. When I asked that the second aide

be my son's sole aide, they wouldn't allow it and she ended up

quitting because she wasn't getting enough hours. I asked that the

first aide be spoken to about her shopping sprees and cell phone

time, and she quit shortly after that. We got another aide, a male,

who seemed friendly enough and had some experience as he was an aide

in a state hospital. Halfway through the summer program, he just

stopped showing up! I finally told Easter Seals to forget it, and

asked my mother to help watch him until I finished school. I hated

to burden her because she cares for my 89 year-old grandmother, but

she begged me to watch him because she hated seeing what was going

on with him.

I received a call from the Easter Seals director apologizing for the

situation. The begged for us to continue our services, and said they

would promise to find an aide that had experience and would

be " right " for . Our final aide was a male. When I met him

for the first time, he told me he was a " rising rap star " and hip-

hop dancer with a record deal in the works. This made me immediately

suspicious, not because of what he did, but because I knew he wasn't

very serious about this job. He was great and full of energy and

engaged in playing, but the school staff complained he was

sexually harassing the other teenage afterschool group leaders and

he was very disruptive with the other children in 's group.

He butted heads with the sweet retiree who was my son's group leader

and one day she came to me in tears, saying that the aide kept

separating from the regular ed. kids and telling her " he

can't " do anything. She had known my son for over a year and

knew what he was capable of and was frustrated because, in her

attempts to talk to the aide about his separating , he

ridiculed her and was defensive and mean to her. He was another that

was late all the time. I was in school and there were many times

that I had to leave class 25 miles away and come pick up my son

because he was late or didn't show up. He never called me or the

school to let anyone know and when I called him, he would make up

stories about things, when I knew he was doing things for his record

deal.

Anyway, sorry for rambling, but I have been hesitant to seek

services here in Virginia because of my negative experience. It is

such a shame that things aren't consistent within the same agency.

If we ever return home to Hawaii again, I will never ever seek any

type of services from them. The receive lots of public support in

Hawaii from very large and well known companies, so I don't

understand why they are hiring such inexperienced, unprofessional

care staff. Unfortunately for me, they were the only providers of

personal assistant services under the MR funding umbrella.

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

What a nightmare! I am so sorry! I can only imagine how frustrating that must

have been!!!

manuula70 wrote: My experience with Easter Seals was

horrific. In their defense, they

were very generous in offering my son " PICL " fund money, which is

Partnership in Community Living. They asked what I needed and wanted

most for my son at that time (it was a one-time grant) and they

bought him a new bed and set aside money to pay for a year supply

of " big kid " diapers.

However, we had to have a one-to-one aide in order for my son to use

any type of afterschool " latchkey " program and summer programs. We

contracted Easter Seals to provide this service. Our first personal

assistant asked me for a ride home the first day, saying she forgot

her bus money. She then would show up late and many of the school

staff members said she spoke very harshly with my son. Finally, she

just didn't show up ever again. It took them 5 months to find a

replacement and during this time, my son's special ed teacher

volunteered to step in until we got the replacement. I don't know

what happened, but shortly after the aide " quit " , the casemanager

quit as well! When they finally found a replacement, she seemed

okay. She was also a CNA, which was nice. I found out, though, from

my younger daughter, that the aide was signing them out every day

and taking them to Wal-Mart, shopping for 2 hours or more, every

single day! All this when my son was supposed to be playing and

interacting with his peers. She also was constantly on her cell

phone. They hired another aide at the same time to cover the days

that the first aide couldn't be there. The second aide was WONDERFUL-

-an ex-teacher who took the initiative with my son in getting him to

interact with the other children. When I asked that the second aide

be my son's sole aide, they wouldn't allow it and she ended up

quitting because she wasn't getting enough hours. I asked that the

first aide be spoken to about her shopping sprees and cell phone

time, and she quit shortly after that. We got another aide, a male,

who seemed friendly enough and had some experience as he was an aide

in a state hospital. Halfway through the summer program, he just

stopped showing up! I finally told Easter Seals to forget it, and

asked my mother to help watch him until I finished school. I hated

to burden her because she cares for my 89 year-old grandmother, but

she begged me to watch him because she hated seeing what was going

on with him.

I received a call from the Easter Seals director apologizing for the

situation. The begged for us to continue our services, and said they

would promise to find an aide that had experience and would

be " right " for . Our final aide was a male. When I met him

for the first time, he told me he was a " rising rap star " and hip-

hop dancer with a record deal in the works. This made me immediately

suspicious, not because of what he did, but because I knew he wasn't

very serious about this job. He was great and full of energy and

engaged in playing, but the school staff complained he was

sexually harassing the other teenage afterschool group leaders and

he was very disruptive with the other children in 's group.

He butted heads with the sweet retiree who was my son's group leader

and one day she came to me in tears, saying that the aide kept

separating from the regular ed. kids and telling her " he

can't " do anything. She had known my son for over a year and

knew what he was capable of and was frustrated because, in her

attempts to talk to the aide about his separating , he

ridiculed her and was defensive and mean to her. He was another that

was late all the time. I was in school and there were many times

that I had to leave class 25 miles away and come pick up my son

because he was late or didn't show up. He never called me or the

school to let anyone know and when I called him, he would make up

stories about things, when I knew he was doing things for his record

deal.

Anyway, sorry for rambling, but I have been hesitant to seek

services here in Virginia because of my negative experience. It is

such a shame that things aren't consistent within the same agency.

If we ever return home to Hawaii again, I will never ever seek any

type of services from them. The receive lots of public support in

Hawaii from very large and well known companies, so I don't

understand why they are hiring such inexperienced, unprofessional

care staff. Unfortunately for me, they were the only providers of

personal assistant services under the MR funding umbrella.

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

What a nightmare! I am so sorry! I can only imagine how frustrating that must

have been!!!

manuula70 wrote: My experience with Easter Seals was

horrific. In their defense, they

were very generous in offering my son " PICL " fund money, which is

Partnership in Community Living. They asked what I needed and wanted

most for my son at that time (it was a one-time grant) and they

bought him a new bed and set aside money to pay for a year supply

of " big kid " diapers.

However, we had to have a one-to-one aide in order for my son to use

any type of afterschool " latchkey " program and summer programs. We

contracted Easter Seals to provide this service. Our first personal

assistant asked me for a ride home the first day, saying she forgot

her bus money. She then would show up late and many of the school

staff members said she spoke very harshly with my son. Finally, she

just didn't show up ever again. It took them 5 months to find a

replacement and during this time, my son's special ed teacher

volunteered to step in until we got the replacement. I don't know

what happened, but shortly after the aide " quit " , the casemanager

quit as well! When they finally found a replacement, she seemed

okay. She was also a CNA, which was nice. I found out, though, from

my younger daughter, that the aide was signing them out every day

and taking them to Wal-Mart, shopping for 2 hours or more, every

single day! All this when my son was supposed to be playing and

interacting with his peers. She also was constantly on her cell

phone. They hired another aide at the same time to cover the days

that the first aide couldn't be there. The second aide was WONDERFUL-

-an ex-teacher who took the initiative with my son in getting him to

interact with the other children. When I asked that the second aide

be my son's sole aide, they wouldn't allow it and she ended up

quitting because she wasn't getting enough hours. I asked that the

first aide be spoken to about her shopping sprees and cell phone

time, and she quit shortly after that. We got another aide, a male,

who seemed friendly enough and had some experience as he was an aide

in a state hospital. Halfway through the summer program, he just

stopped showing up! I finally told Easter Seals to forget it, and

asked my mother to help watch him until I finished school. I hated

to burden her because she cares for my 89 year-old grandmother, but

she begged me to watch him because she hated seeing what was going

on with him.

I received a call from the Easter Seals director apologizing for the

situation. The begged for us to continue our services, and said they

would promise to find an aide that had experience and would

be " right " for . Our final aide was a male. When I met him

for the first time, he told me he was a " rising rap star " and hip-

hop dancer with a record deal in the works. This made me immediately

suspicious, not because of what he did, but because I knew he wasn't

very serious about this job. He was great and full of energy and

engaged in playing, but the school staff complained he was

sexually harassing the other teenage afterschool group leaders and

he was very disruptive with the other children in 's group.

He butted heads with the sweet retiree who was my son's group leader

and one day she came to me in tears, saying that the aide kept

separating from the regular ed. kids and telling her " he

can't " do anything. She had known my son for over a year and

knew what he was capable of and was frustrated because, in her

attempts to talk to the aide about his separating , he

ridiculed her and was defensive and mean to her. He was another that

was late all the time. I was in school and there were many times

that I had to leave class 25 miles away and come pick up my son

because he was late or didn't show up. He never called me or the

school to let anyone know and when I called him, he would make up

stories about things, when I knew he was doing things for his record

deal.

Anyway, sorry for rambling, but I have been hesitant to seek

services here in Virginia because of my negative experience. It is

such a shame that things aren't consistent within the same agency.

If we ever return home to Hawaii again, I will never ever seek any

type of services from them. The receive lots of public support in

Hawaii from very large and well known companies, so I don't

understand why they are hiring such inexperienced, unprofessional

care staff. Unfortunately for me, they were the only providers of

personal assistant services under the MR funding umbrella.

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

they will all figure out wat we need soem day with the help of places here

and over the world i hope LOL i HOPE

>

> What a nightmare! I am so sorry! I can only imagine how frustrating that

> must have been!!!

>

> manuula70 wrote: My experience with Easter Seals was

> horrific. In their defense, they

> were very generous in offering my son " PICL " fund money, which is

> Partnership in Community Living. They asked what I needed and wanted

> most for my son at that time (it was a one-time grant) and they

> bought him a new bed and set aside money to pay for a year supply

> of " big kid " diapers.

>

> However, we had to have a one-to-one aide in order for my son to use

> any type of afterschool " latchkey " program and summer programs. We

> contracted Easter Seals to provide this service. Our first personal

> assistant asked me for a ride home the first day, saying she forgot

> her bus money. She then would show up late and many of the school

> staff members said she spoke very harshly with my son. Finally, she

> just didn't show up ever again. It took them 5 months to find a

> replacement and during this time, my son's special ed teacher

> volunteered to step in until we got the replacement. I don't know

> what happened, but shortly after the aide " quit " , the casemanager

> quit as well! When they finally found a replacement, she seemed

> okay. She was also a CNA, which was nice. I found out, though, from

> my younger daughter, that the aide was signing them out every day

> and taking them to Wal-Mart, shopping for 2 hours or more, every

> single day! All this when my son was supposed to be playing and

> interacting with his peers. She also was constantly on her cell

> phone. They hired another aide at the same time to cover the days

> that the first aide couldn't be there. The second aide was WONDERFUL-

> -an ex-teacher who took the initiative with my son in getting him to

> interact with the other children. When I asked that the second aide

> be my son's sole aide, they wouldn't allow it and she ended up

> quitting because she wasn't getting enough hours. I asked that the

> first aide be spoken to about her shopping sprees and cell phone

> time, and she quit shortly after that. We got another aide, a male,

> who seemed friendly enough and had some experience as he was an aide

> in a state hospital. Halfway through the summer program, he just

> stopped showing up! I finally told Easter Seals to forget it, and

> asked my mother to help watch him until I finished school. I hated

> to burden her because she cares for my 89 year-old grandmother, but

> she begged me to watch him because she hated seeing what was going

> on with him.

>

> I received a call from the Easter Seals director apologizing for the

> situation. The begged for us to continue our services, and said they

> would promise to find an aide that had experience and would

> be " right " for . Our final aide was a male. When I met him

> for the first time, he told me he was a " rising rap star " and hip-

> hop dancer with a record deal in the works. This made me immediately

> suspicious, not because of what he did, but because I knew he wasn't

> very serious about this job. He was great and full of energy and

> engaged in playing, but the school staff complained he was

> sexually harassing the other teenage afterschool group leaders and

> he was very disruptive with the other children in 's group.

> He butted heads with the sweet retiree who was my son's group leader

> and one day she came to me in tears, saying that the aide kept

> separating from the regular ed. kids and telling her " he

> can't " do anything. She had known my son for over a year and

> knew what he was capable of and was frustrated because, in her

> attempts to talk to the aide about his separating , he

> ridiculed her and was defensive and mean to her. He was another that

> was late all the time. I was in school and there were many times

> that I had to leave class 25 miles away and come pick up my son

> because he was late or didn't show up. He never called me or the

> school to let anyone know and when I called him, he would make up

> stories about things, when I knew he was doing things for his record

> deal.

> Anyway, sorry for rambling, but I have been hesitant to seek

> services here in Virginia because of my negative experience. It is

> such a shame that things aren't consistent within the same agency.

> If we ever return home to Hawaii again, I will never ever seek any

> type of services from them. The receive lots of public support in

> Hawaii from very large and well known companies, so I don't

> understand why they are hiring such inexperienced, unprofessional

> care staff. Unfortunately for me, they were the only providers of

> personal assistant services under the MR funding umbrella.

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

>

>

>

[Guest guest]

they will all figure out wat we need soem day with the help of places here

and over the world i hope LOL i HOPE

>

> What a nightmare! I am so sorry! I can only imagine how frustrating that

> must have been!!!

>

> manuula70 wrote: My experience with Easter Seals was

> horrific. In their defense, they

> were very generous in offering my son " PICL " fund money, which is

> Partnership in Community Living. They asked what I needed and wanted

> most for my son at that time (it was a one-time grant) and they

> bought him a new bed and set aside money to pay for a year supply

> of " big kid " diapers.

>

> However, we had to have a one-to-one aide in order for my son to use

> any type of afterschool " latchkey " program and summer programs. We

> contracted Easter Seals to provide this service. Our first personal

> assistant asked me for a ride home the first day, saying she forgot

> her bus money. She then would show up late and many of the school

> staff members said she spoke very harshly with my son. Finally, she

> just didn't show up ever again. It took them 5 months to find a

> replacement and during this time, my son's special ed teacher

> volunteered to step in until we got the replacement. I don't know

> what happened, but shortly after the aide " quit " , the casemanager

> quit as well! When they finally found a replacement, she seemed

> okay. She was also a CNA, which was nice. I found out, though, from

> my younger daughter, that the aide was signing them out every day

> and taking them to Wal-Mart, shopping for 2 hours or more, every

> single day! All this when my son was supposed to be playing and

> interacting with his peers. She also was constantly on her cell

> phone. They hired another aide at the same time to cover the days

> that the first aide couldn't be there. The second aide was WONDERFUL-

> -an ex-teacher who took the initiative with my son in getting him to

> interact with the other children. When I asked that the second aide

> be my son's sole aide, they wouldn't allow it and she ended up

> quitting because she wasn't getting enough hours. I asked that the

> first aide be spoken to about her shopping sprees and cell phone

> time, and she quit shortly after that. We got another aide, a male,

> who seemed friendly enough and had some experience as he was an aide

> in a state hospital. Halfway through the summer program, he just

> stopped showing up! I finally told Easter Seals to forget it, and

> asked my mother to help watch him until I finished school. I hated

> to burden her because she cares for my 89 year-old grandmother, but

> she begged me to watch him because she hated seeing what was going

> on with him.

>

> I received a call from the Easter Seals director apologizing for the

> situation. The begged for us to continue our services, and said they

> would promise to find an aide that had experience and would

> be " right " for . Our final aide was a male. When I met him

> for the first time, he told me he was a " rising rap star " and hip-

> hop dancer with a record deal in the works. This made me immediately

> suspicious, not because of what he did, but because I knew he wasn't

> very serious about this job. He was great and full of energy and

> engaged in playing, but the school staff complained he was

> sexually harassing the other teenage afterschool group leaders and

> he was very disruptive with the other children in 's group.

> He butted heads with the sweet retiree who was my son's group leader

> and one day she came to me in tears, saying that the aide kept

> separating from the regular ed. kids and telling her " he

> can't " do anything. She had known my son for over a year and

> knew what he was capable of and was frustrated because, in her

> attempts to talk to the aide about his separating , he

> ridiculed her and was defensive and mean to her. He was another that

> was late all the time. I was in school and there were many times

> that I had to leave class 25 miles away and come pick up my son

> because he was late or didn't show up. He never called me or the

> school to let anyone know and when I called him, he would make up

> stories about things, when I knew he was doing things for his record

> deal.

> Anyway, sorry for rambling, but I have been hesitant to seek

> services here in Virginia because of my negative experience. It is

> such a shame that things aren't consistent within the same agency.

> If we ever return home to Hawaii again, I will never ever seek any

> type of services from them. The receive lots of public support in

> Hawaii from very large and well known companies, so I don't

> understand why they are hiring such inexperienced, unprofessional

> care staff. Unfortunately for me, they were the only providers of

> personal assistant services under the MR funding umbrella.

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

>

>

>

[Guest guest]

they will all figure out wat we need soem day with the help of places here

and over the world i hope LOL i HOPE

>

> What a nightmare! I am so sorry! I can only imagine how frustrating that

> must have been!!!

>

> manuula70 wrote: My experience with Easter Seals was

> horrific. In their defense, they

> were very generous in offering my son " PICL " fund money, which is

> Partnership in Community Living. They asked what I needed and wanted

> most for my son at that time (it was a one-time grant) and they

> bought him a new bed and set aside money to pay for a year supply

> of " big kid " diapers.

>

> However, we had to have a one-to-one aide in order for my son to use

> any type of afterschool " latchkey " program and summer programs. We

> contracted Easter Seals to provide this service. Our first personal

> assistant asked me for a ride home the first day, saying she forgot

> her bus money. She then would show up late and many of the school

> staff members said she spoke very harshly with my son. Finally, she

> just didn't show up ever again. It took them 5 months to find a

> replacement and during this time, my son's special ed teacher

> volunteered to step in until we got the replacement. I don't know

> what happened, but shortly after the aide " quit " , the casemanager

> quit as well! When they finally found a replacement, she seemed

> okay. She was also a CNA, which was nice. I found out, though, from

> my younger daughter, that the aide was signing them out every day

> and taking them to Wal-Mart, shopping for 2 hours or more, every

> single day! All this when my son was supposed to be playing and

> interacting with his peers. She also was constantly on her cell

> phone. They hired another aide at the same time to cover the days

> that the first aide couldn't be there. The second aide was WONDERFUL-

> -an ex-teacher who took the initiative with my son in getting him to

> interact with the other children. When I asked that the second aide

> be my son's sole aide, they wouldn't allow it and she ended up

> quitting because she wasn't getting enough hours. I asked that the

> first aide be spoken to about her shopping sprees and cell phone

> time, and she quit shortly after that. We got another aide, a male,

> who seemed friendly enough and had some experience as he was an aide

> in a state hospital. Halfway through the summer program, he just

> stopped showing up! I finally told Easter Seals to forget it, and

> asked my mother to help watch him until I finished school. I hated

> to burden her because she cares for my 89 year-old grandmother, but

> she begged me to watch him because she hated seeing what was going

> on with him.

>

> I received a call from the Easter Seals director apologizing for the

> situation. The begged for us to continue our services, and said they

> would promise to find an aide that had experience and would

> be " right " for . Our final aide was a male. When I met him

> for the first time, he told me he was a " rising rap star " and hip-

> hop dancer with a record deal in the works. This made me immediately

> suspicious, not because of what he did, but because I knew he wasn't

> very serious about this job. He was great and full of energy and

> engaged in playing, but the school staff complained he was

> sexually harassing the other teenage afterschool group leaders and

> he was very disruptive with the other children in 's group.

> He butted heads with the sweet retiree who was my son's group leader

> and one day she came to me in tears, saying that the aide kept

> separating from the regular ed. kids and telling her " he

> can't " do anything. She had known my son for over a year and

> knew what he was capable of and was frustrated because, in her

> attempts to talk to the aide about his separating , he

> ridiculed her and was defensive and mean to her. He was another that

> was late all the time. I was in school and there were many times

> that I had to leave class 25 miles away and come pick up my son

> because he was late or didn't show up. He never called me or the

> school to let anyone know and when I called him, he would make up

> stories about things, when I knew he was doing things for his record

> deal.

> Anyway, sorry for rambling, but I have been hesitant to seek

> services here in Virginia because of my negative experience. It is

> such a shame that things aren't consistent within the same agency.

> If we ever return home to Hawaii again, I will never ever seek any

> type of services from them. The receive lots of public support in

> Hawaii from very large and well known companies, so I don't

> understand why they are hiring such inexperienced, unprofessional

> care staff. Unfortunately for me, they were the only providers of

> personal assistant services under the MR funding umbrella.

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

>

>

>