Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi Phil, I want to thank you again for taking the time to share your experiences with us here in the group. I guess I eavesdropped a bit on your message to Saro and Rohan, but I found it fascinating. It is really helping me to have an adult put some of these things in context, things I can only wonder about with my 6 year old daughter (feelings, side affects, etc.). Reading your story has also helped me be even more determined to do my best to help her conquer this. I wish you well, Glenna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi Phil, I want to thank you again for taking the time to share your experiences with us here in the group. I guess I eavesdropped a bit on your message to Saro and Rohan, but I found it fascinating. It is really helping me to have an adult put some of these things in context, things I can only wonder about with my 6 year old daughter (feelings, side affects, etc.). Reading your story has also helped me be even more determined to do my best to help her conquer this. I wish you well, Glenna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi Phil, I want to thank you again for taking the time to share your experiences with us here in the group. I guess I eavesdropped a bit on your message to Saro and Rohan, but I found it fascinating. It is really helping me to have an adult put some of these things in context, things I can only wonder about with my 6 year old daughter (feelings, side affects, etc.). Reading your story has also helped me be even more determined to do my best to help her conquer this. I wish you well, Glenna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Dear Saro & Glenna, Many thanks for your compliments from you both, if only to re-assure me I haven't simply been posting spam through our group. Saro you astonish me in the way Rohan is being treated at school, specifically in the way he's being segregated from other pupils/classmates solely for the reason he has epilepsy. Could the school explain to you who's benefit it serves; Is it a practice they use to protect children with disabilities from other children or visa versa, it begs the question. People are people first and foremost and to look upon them any differently because the happen to have epilepsy is just wrong, period. I'm sorry but that's a touchy subject with me and likely to prompt me to climb onto my soap box. We " label " foodstuffs, drugs and other goods but we should never label people. By Rohan or other children not being allowed to integrate with the other pupils is doing just that. You may notice I never use the term " Epileptic " , it doesn't make people any different if they do have epilepsy, so what. To some extent I can see where they're coming from insisting on Rohan wearing the helmet from classroom to classroom, it could quite possibly have something to do with the school's or local education authority's insurance policy covering their public liability aspects and risks. My general practitioner (GP) during my early childhood recommended to the school, avoid exertion, no physical exercise, swimming, football and the like....... Apparently in the later years the ethos changed, where possible I shouldn't be treated any differently than the other children, so long as there was supervision provided to all, which there always was within the school environment. It is important every child has the freedom to develop in all areas of education to the best of their ability, to the best of " their " own ability, like with any child, if they're gifted in any aspect of learning help them excel there, none of us fair well in ALL subjects, but where drugs can impede the learning potential of anybody then it seems only fair and wise to go with whatever they show better prospects in. What I would recommend as vital within school life is that any child, especially one taking medication and who may require additional support (eg: should seizures be in abundance), that as many allies/teachers who a son/daughter can run to at any time. If there's a lack of understanding by most staff of epilepsy, as in my case, it is important that a child can turn to someone. Back in the seventies I had one specific teacher I could lean on and obviously the headmaster was always there. I left school just two basic qualifications, maths and physics, nothing to write home about really, but in my opinion general education simply makes you familiar with certain subjects. You never really start learning properly until you either join the workplace or seek further education. I'm self-taught regarding typing which I think I do pretty well, even though my grammar could be polished up a bit, and ok so I cheat with the spell-checker from time to time lol Then again who doesn't ? I hope some of the above is of some help, Best wishes, Phil Re: Re: Thanks Phil Hi Phil, I can only say how grateful I'm too, to you for sharing with us your experiences. BTW sorry for writing on the subject line of my previous post. I'll write again asking more questions/details if you don't mind. You seem to be coping remarkably well with your epilepsy and associated problems and it's an inspiration to us. We are having a few problems with Rohan's school where they are not letting him join his peers at lunch times and breaks (he has to stay in a room with other kids who have a disability ) They also want him to wear his helmet all the time instead of just when moving from class to class etc. They are being too cautious and Rohan feels (so do we) that it is unnecessasrily restricting his life even further. Sorry for the moan! I do wish more dr.s were like yours. I'm looking forward to seeing that Cyberonics Video someday. Saro Glenna Steele wrote: > Hi Phil, > I want to thank you again for taking the time to share your > experiences with us here in the group. I guess I eavesdropped a bit > on your message to Saro and Rohan, but I found it fascinating. It is > really helping me to have an adult put some of these things in > context, things I can only wonder about with my 6 year old daughter > (feelings, side affects, etc.). Reading your story has also helped > me be even more determined to do my best to help her conquer this. > > I wish you well, > > Glenna > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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