Guest guest Posted March 8, 2006 Report Posted March 8, 2006 Hi All, Thank again for such a deep discussion. I did see you post DeeDee, Thanks! And I got yours Tia!! I am overwhelmed right now. I am ready for CHARGE Syndrome to be done now. I think I am in denial...like it really might have an obscure cure. One would think that I have accepted this as part of our family. I keep wondering when its going to fade away. I am sooooo impatient with right now. And I feel so terrible about it. But I am at a loss. How do I accept that this not going to fade or go away? I am in contact with another mom whose daughter is following similar delevopment patterns like . How do I encourage her when I feel at such a loss? Right now I can't tell if she has " CHARGE " behaviours or what is going on. I am truly sad. I love this girl so much and I just do not know what to do, where to go, or how to help her. Keeping up with life, this list, my job and my famliy as a whole... A vent for me but no one I know knows how I feel right now and I just don't know where to go. I feel like I should be stronger.... A bad night...until tomorow.... Colleen Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.