Langan Update- Slowing the Wean

[Guest guest]

Hello all. Well, we made it down to 25 mg of lamictal but it is

time to SLOW DOWN I think. Langan had been handling the reductions

so well, after the first one, that I thought she would be fine if we

continued to lower by 12.5 mg every 14 days. WRONG! I should have

listened to the people who have been through this.... This past

reduction has been a nightmare! Crazy sleeplessness, so cranky I

wonder if it is the same child, and- just when you think you've seen

it all- today she pulled a new trick. She has always had seizures

only upon awakening (whether they wake her up or not, who knows, but

it is always right when she wakes up). Today during her nap, her

little arms and legs moved like she was having a seizure, only very

slow and not rhythmic, like 7 times and then she turned on her side

and kept sleeping. Never opened her eyes; never woke up; never

showed any sign that she was in distress; never changed her

breathing to the strange raspy breathing that is the hallmark of her

seizures. Bizarre. I can only assume it was some sort of sleep

seizure. I sleep with her so I know she has never done this

before. Then, during her afternoon nap, she woke up doing the

strange shiver/tremble that she did after her initial wean. Soooooo

we are slowing it down. Part of me wonders if it is a sign that we

need to speed it up- toxicity or something- since her ketones were

over the top and they never are at that time of day. But it sounds

from the experiences on this board that slowing down is the right

way to go. Any thoughts?

, mom to Langan, 18 months old and keto kid since 11/03

[Guest guest]

No great thoughts (I think I've used all mine up!), just well wishes!

Glenna

[Guest guest]

Thanks, Glenna! We can use all the good thoughts we can get!

Last night was a good one- Langan slept better than she has since the last

reduction and woke up happy, so we'll see.

How is Macie? I think of you guys all the time!

>From: jgmsteele@...

>Reply-To: ketogenic

>To: ketogenic

>Subject: Re: Langan Update- Slowing the Wean

>Date: Fri, 13 Feb 2004 18:47:17 -0000

>

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[Guest guest]

Thanks, Glenna! We can use all the good thoughts we can get!

Last night was a good one- Langan slept better than she has since the last

reduction and woke up happy, so we'll see.

How is Macie? I think of you guys all the time!

>From: jgmsteele@...

>Reply-To: ketogenic

>To: ketogenic

>Subject: Re: Langan Update- Slowing the Wean

>Date: Fri, 13 Feb 2004 18:47:17 -0000

>

_________________________________________________________________

Click here for a FREE online computer virus scan from McAfee.

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963