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  • 3 months later...
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My daughter was started on Naprosyn a couple of weeks ago. Since then I

noticed Some bruises on her legs. Has any one else noticed this? Teri

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My daughter, Kelsey, has poly jra and has been on Naprosyn for exactly 4

weeks now. She has these nodules on both of her hands in the exact same

place right above her wrists that have just about disappeared and sometimes

her hands look slightly bruised. They don't look bruised all the time but I

have noticed that before. My husband has a rheumatoid disease called

erythema nodosum which causes nodules to break out on him that look like

bruises also when they are clearing up. I always thought it was just from

the inflammation... never related it to the Naprosyn. I am now curious to

know if the medicine could cause it????

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Hi Teri,

I know for sure that using steroids can cause this type of bruising but

I'm not sure if the same holds true for NSAIDs. My son's shins have

bruises on them that seems to take forever to go away. A slight little

bump and it almost looks like he's been battered :(

It definitely takes his body longer for this sort of bruising to heal. I

always blamed that on the prednisone but maybe taking NSAIDs regularly

plays a part in it, too?

Take care,

Georgina

THep115@... wrote:

>

> My daughter was started on Naprosyn a couple of weeks ago. Since then I

> noticed Some bruises on her legs. Has any one else noticed this? Teri

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Georgina, Thanks for the reply. I did some research and one of the side

effects of naprosyn is bruising. Im waiting to see if the bruising goes away

before i call the rheumy, but i dont want to wait to long but i dont want to

cry wolf. I will let you know what happens. Teri

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Terri

the brusieing should be brought to the doctors attention

melissa took enteric asprin and it caused bruiseing and they took her off

i know you dont want to holler wolf but if the doctor dont know how is he to

get the right medicine eventually they did put melissa on voltaren so far

its helping

no bruiseing call the nurse with your concern they will understand

Robbin

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  • 2 months later...
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i aint sure on that medication

but has increased her appetite with Voltaren

in feb 2000 this child weighted 79 pounds

now she weighs 114 pounds

a big weight gain shes not fat she has just started and the doctor said it

is a growth spurt she will gain weight then shoot up

lololol

but at 13 years old sees the weight and has toned her eating some

but this child is always hungry now

Robbin

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,

Kelsey has been on Naprosyn since April, and for the past few weeks we have

noticed her eating alot, also. She has been a little piglet! I never

thought of her appetite increase to be related to the Naprosyn. She always

ate real well before she got sick, so I figured the appetite was a good sign

she's feeling good. Kelsey sees her rheum. next week, I think I'll ask about

that.

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When my daughter started naprosen she had a decrease in appetite. And lost

5 pounds(she only weighed 27 at the start). I discussed it with her rheumy

and he thought it was from the pain not naprosen. When we put her on

methotrexate her appetite returned to normal.

Charlene

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In a message dated 8/2/00 8:43:02 AM Central Daylight Time,

imshellrenee@... writes:

<< so I figured the appetite was a good sign

she's feeling good >>

This is how i feel about it too..........I think the reason they want to know

as with any anti inflammatory it can cause the stomach to bleed, then you

would see a decrease in appetite. Does your doctor do stool samples on the

kiddos that re on anti inflammatories?? AJ

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Kelsey's doctor has never done a stool sample, but she told me specifically

what to look for as far as blood in it. So far the Naprosyn hasn't upset her

stomach at all. Her doctor told me to use Children's Mylanta if it did, so I

have some on hand. Stomach bleeding is the one side effect I worry about the

most.

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In a message dated 8/4/00 9:28:27 AM Central Daylight Time,

imshellrenee@... writes:

<< look for as far as blood in it >>

Just so you know it is not always visible to the naked eye. Although

sometimes it is, at 9 months holly had more blood than poop in here diaper

one time, scared the bejeebers right out of me as it was very early in

diagnosis. Of course it was late at night, but I called her ped anyway, he

very calmly says to me okay bring her in tomorrow and if anything else

happens to call him back. I no more than hung up the phone and she projectile

vomits across the livingroom. So I called him right back but of course you

have to call the service then wait for him to call back. He then again very

calmly says okay its fine bring her in tomorrow call me if anything else

happens. I was scared to death that night don't think I slept at all sat in

the recliner with her in my arms and just watched her all night. Needless to

say she was fine, but it was a rough time for me. AJ

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Georgina,

Kelsey sees her rheum. on Friday and I plan to ask if we should do a stool

sample. My mom is a nurse for a gastroenterologist and he said if her doctor

won't order it that he will have it done. Its so scary to know these kids

could have stomach bleeding and not even know. I still feel fortunate that

so far the Naprosyn hasn't upset Kelsey's stomach, but I know that don't mean

anything! Thanks for the advice, and more so thanks for caring :-)

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is on 250mg/day of naprosyn. Her rheumy has never ordered and blood

tests or stools for occult blood. Does anyone else in the group have the same

experience? has been on naprosyn for about 6 months now and the doctor

doesn't seem to concerned because her appetite is good and she is gaining

weight. Any input is much appreciated. Thanks, Teri

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Teri

is not on nap but on Voltaren she gets blood drawn from her rhuemy

every 3 months and from her Primary doctor every 2 months lolololol she

knows where they need to take the blood from they use to have to just dig for

it

but i learned to say you get 1 stick if you dont get it then you dont get the

second chance so we try to make sure we get the same lab tech each time

i would ask you doctor for blood work and why is he not doing them

Robbin

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Teri,

Our experience with Kelsey is the same. Her doctor hasn't ordered any tests,

and like her appetite is great, no tummy aches, and she has also been

gaining weight. She started off taking 250mg per day as well, but now takes

an extra 1/2 tsp at night. (She weighs approx 35lbs, not sure exactly on

height) She's been taking it since April. Again, I plan to ask her rheum

on Friday.

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Hi ,

When my son Josh has active arthritis, his appetite tends to decrease. I

haven't noticed that his NSAID itself (which isn't Naprosyn, but instead

Indomethacin) seems to make much of a difference. He's been taking

25mgs, twice a day, for about 5 years. The one med that definitely does

seem to affect his appetite, and it is known as one of the possible side

effects, is prednisone. That's another med he's been taking daily ever

since the JRA started but often when he is flaring badly and not doing

well, and we have to make an increase in the dose, his appetite gets

much stronger. After a while, or as we decrease, his eating tends to

stabilize again. Like right now. He's taking 12.5mgs a day, which is a

moderate to high amount, but since we've been gradually decreasing he

isn't eating excessively anymore. If we were to bump it up, he'd

probably become ravenous.

So, though I can't help much with the original Naprosyn question, if

ever needs to take steroids you may very well expect to see her

eating lots more than usual in the beginning, and putting on weight

rather quickly.

Take care,

Georgina

Younge wrote:

>

> Hi,

> I have a question concerning Naprosyn. We went to our rheumy last week

> and she asked if I had noticed a decrease in appetite with . (She

> was in the time frame of before meds began) I didn't think so, but then

> the more I think of it, since we've been on Naprosyn, has been

> eating a lot. So now I'm confused. I don't necessarily think that

> had a loss of appetite, but am wondering if one of the side effects of

> Naprosyn is INCREASE in appetite. I didn't know if someone else had

> noticed this or not. It's kind of nice since it needs to be taken with

> food, but I'd just like to know which way to look at this for future

> reference.

>

>

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Hi ,

Be careful. I know this goes contrary to what we've all been told but at

one time when Josh's stool looked very normal, his hematocrit was too

low and he was having more than usual fatigue so they tested it anyway.

And even though it was a normal looking brown stool, not the black,

tarry type I had been told to look for, it tested positive for blood.

Sometimes you just can't tell by the naked eye and you may need to have

the stool tested once or twice a year, just to be sure, as long as

they're taking NSAIDs regularly. Children tend not to complain about

their symptoms. Especially when it's something that you can't see, like

a scratch or something.

Take care,

Georgina

imshellrenee@... wrote:

>

> Kelsey's doctor has never done a stool sample, but she told me specifically

> what to look for as far as blood in it. So far the Naprosyn hasn't upset her

> stomach at all. Her doctor told me to use Children's Mylanta if it did, so I

> have some on hand. Stomach bleeding is the one side effect I worry about the

> most.

>

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Very scary story! You must have been so worried! I think I might have

panicked.

~Georgina

ajaomom@... wrote:

>

> In a message dated 8/4/00 9:28:27 AM Central Daylight Time,

> imshellrenee@... writes:

>

> << look for as far as blood in it >>

>

> Just so you know it is not always visible to the naked eye. Although

> sometimes it is, at 9 months holly had more blood than poop in here diaper

> one time, scared the bejeebers right out of me as it was very early in

> diagnosis. Of course it was late at night, but I called her ped anyway, he

> very calmly says to me okay bring her in tomorrow and if anything else

> happens to call him back. I no more than hung up the phone and she projectile

> vomits across the livingroom. So I called him right back but of course you

> have to call the service then wait for him to call back. He then again very

> calmly says okay its fine bring her in tomorrow call me if anything else

> happens. I was scared to death that night don't think I slept at all sat in

> the recliner with her in my arms and just watched her all night. Needless to

> say she was fine, but it was a rough time for me. AJ

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Tori was on naprosyn for 2 years and her doctor never asked for a

stool sample. She is now switching to something else though due to

scaring on her face from the naprosyn.

Take care,

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  • 3 months later...

Hi all - just in general on depression...

I haven't been around for a while, busy with life and all sorts. The

comment below caught my attention. My seven year old has been diagnosed

with JRA for over a year now and for the last five months has been going to

a child therapist. She helped us to realise that in general was

suffering from quite chronic depression brought on by her illness and the

many ups and debilitating downs that go with it as you all know so well.

Things like that felt different or that it was her fault that she was

sick. The outcome has been really positive. Together we've identified

different ways of dealing with life situations that happen to Megs every

day. It has also been a huge help for me in the way I see the disease and

that in turn has had a beneficial effect on Megs. I used to be quite scared

of the whole thing, whereas now, I am more positive and focus more on how we

deal with it together day by day and into the future as it is indefinite

disease.

Anyway, just thought I'd add my 10 cents worth... It is not the cheapest

option, but it sure worked for us.. Be interesting to see how other parents

deal with this in their own homes - any tips??

Ady Ogilvie

tel: 011 686 6323

fax: 011 686 6666

Cell: 083 412 0174

aogilvie@...

" What day is it? - 'It's today' - squeaked Piglet. 'My favourite day' - said

Pooh. " A.A. Milne

> naprosyn

>

> Hi all,

> I was just wondering if naprosyn can cause depression. My daughter,

> has only been on it now for a week and a half after the diagnosis of

> Juvenile idiopathic arthritis - rheumatoid factor negative - the Dr

> decided that this meds would be the best for her. But she is down, has

> headaches and said she doesn't feel herself and wants her old self back.

> Not like her at all.

> Her joints- knee, ankle, elbow, fingers are swollen and painful -she has a

> splint for her little fingers and is booked into hospital in Feb for joint

> injections which will hopefully give her some mobility back in her left

> arm.

> Anyway I " m hope all is well with everyone

> Take care,

>

>

>

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I don't know if the drug can cause depression but when my 13 year old was

diagnosed one month ago he too went into a sort of depression. He takes

Celebrex for his inflammation. At first he was upset quite alot over things

that usually didn't bother him. We began researching this disease and

educating him about it. It has helped. Although he is still in pain, he

works at his pt and tries his best at everything. His mood has improved. He

is still tired all the time, more than I think a 13 year old boy should be,

but I guess thats part of this jra. He also gets more headaches. So perhaps,

if you can explain things to her at her age level, it may help. Chris

understands this disease is part of him and while it can't be cured yet, we

can try different things to make him more comfortable. We are still in the

trial and error phase of medications. For I think his first reaction

when this was made definite ( he tested positive and has the ana marker)was

he felt a bit of grief for his " old self " . At his age he could understand

that he had this and it won't just go away. We had hoped as I said before

that the doctor could " fix this " . So obviously we all have some adjusting to

do. Hope this helps you feel better. I have learned so much in just one

month reading everyones messages about different ways to deal with all this

- this is really a great place! Michele

naprosyn

Hi all,

I was just wondering if naprosyn can cause depression. My daughter,

has only been on it now for a week and a half after the diagnosis of

Juvenile idiopathic arthritis - rheumatoid factor negative - the Dr decided

that this meds would be the best for her. But she is down, has headaches and

said she doesn't feel herself and wants her old self back. Not like her at

all.

Her joints- knee, ankle, elbow, fingers are swollen and painful -she has a

splint for her little fingers and is booked into hospital in Feb for joint

injections which will hopefully give her some mobility back in her left arm.

Anyway I " m hope all is well with everyone

Take care,

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Ady,

Zhondrese went to counseling here to and she was very depressed too. As

matter of fact she did 3 yrs. of counseling before we moved back home and it

worked really well for us to. Well, since we've been back home she's been in

counseling off/on for this last year and we also do the family counseling as

a group. It helps also and we were Blessed to get free counseling this time.

I feel that counseling really does help us all deal with the chronid disease

better than we use too and my boy aren't as jealous as they use to be. This

has help Drese's attitude and behavior aot too. It even helped her grades and

her taking her meds some too, because at one time your couldn't pay her to

take any of her meds. I'm curios too. :-)

Ywellen

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Hi there

Did Zhondrese ever battle with other kids and their reactions to her

arthritis? I know that sometimes takes strain from others because she

cannot do everything that they can - she tries to play catchers, but can

never keep up with the other kids, and always ends up being " on " !!. She

tries anyway, but I know they tease her sometimes. Therapy has helped

enormously with this one.... She feels very isolated sometimes. Some time

back I had e-mails from other kids via their parents to and it helped

her enormously to know that there are other children out there who deal with

exactly what she does. Also when the medication works the arthritis doesn't

become her " whole " world.

It is a pity that this kind of thing is so expensive especially for little

people who can sometimes benefit so much.

Ady Ogilvie

tel: 011 686 6323

fax: 011 686 6666

Cell: 083 412 0174

aogilvie@...

" What day is it? - 'It's today' - squeaked Piglet. 'My favourite day' - said

Pooh. " A.A. Milne

> Re: naprosyn

>

> Ady,

> Zhondrese went to counseling here to and she was very depressed too.

> As

> matter of fact she did 3 yrs. of counseling before we moved back home and

> it

> worked really well for us to. Well, since we've been back home she's been

> in

> counseling off/on for this last year and we also do the family counseling

> as

> a group. It helps also and we were Blessed to get free counseling this

> time.

> I feel that counseling really does help us all deal with the chronid

> disease

> better than we use too and my boy aren't as jealous as they use to be.

> This

> has help Drese's attitude and behavior aot too. It even helped her grades

> and

> her taking her meds some too, because at one time your couldn't pay her to

>

> take any of her meds. I'm curios too. :-)

> Ywellen

>

>

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Ady,

Yes, she battles with other children about her arthritis and her teachers

too. When they are playing kick ball she can't play because her feet are

affected too. Drese is a fighter and tries her best too, to hang in there

with the other kids. Children can be so cruel to her then that makes her

start fighting them. She was a cheerleader this year and you talk about some

cruel children. One girl even tripped her just so see her cry mean huh? Well

don't just think adults are rude, because children are just as rude.

Ywellen

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