Re: Update -- vacation from chemo

[Guest guest]

Joe - I don't want to make you disappointed, but I am almost a year

from my last oxali treatment and my toes are still numb. (My

fingers did get better quickly though.)

It's a small price to pay, I guess.

Good luck!

Jodi

> At the end of my last infusion with Oxaliplatin and Leucovorin I

> turned beet red and I had a red rash on my arms. The onc said it was

> an allergic reaction to the Oxaliplatin so I asked for an extra week

> before the next session. He agreed.

>

> I finished the session I was in with no further problems -- I only

> get Oxaliplatin the first day, after that it's just 5-FU and

> Leucovorin.

>

> Yesterday I went back for my 11th session. I was disappointed that

> the extra week did little to reduce the finger and toe numbness

> (peripheral neuropathy) and my cold sensitivity from the

> Oxaliplatin. They gave me some benedryl and peptid (IV) and then I

> got my Oxaliplatin and Leucovorin. I showed a very minor reaction so

> I guess the benedryl works. It made me sleepy so I took a nap during

> the 2-hour infusion. I'm back on my regular schedule now. Two more

> sessions and then a CT scan to check on progress.

>

> The good news was that my CEA level from Tuesday was 8.4 ng/ml --

> almost normal since I'm not a smoker.

>

> -joe-

[Guest guest]

Jodi, I had no idea that the effects last that long....oh my

goodness. My mom has numb toes too from MAC-321 (clinical trial

chemo for lung cancer) and they don't want to give her anymore right

now until it goes away. Bert's feet always feel cold to him, even

though they are not at all cold to the touch. If you still have numb

toes after a year, that answers why Bert's " cold feet " sensation

didn't go away after his six week chemo break. I never cease

learning from this board.

Hugs,

Monika

> > At the end of my last infusion with Oxaliplatin and Leucovorin I

> > turned beet red and I had a red rash on my arms. The onc said it

was

> > an allergic reaction to the Oxaliplatin so I asked for an extra

week

> > before the next session. He agreed.

> >

> > I finished the session I was in with no further problems -- I

only

> > get Oxaliplatin the first day, after that it's just 5-FU and

> > Leucovorin.

> >

> > Yesterday I went back for my 11th session. I was disappointed

that

> > the extra week did little to reduce the finger and toe numbness

> > (peripheral neuropathy) and my cold sensitivity from the

> > Oxaliplatin. They gave me some benedryl and peptid (IV) and then

I

> > got my Oxaliplatin and Leucovorin. I showed a very minor reaction

so

> > I guess the benedryl works. It made me sleepy so I took a nap

during

> > the 2-hour infusion. I'm back on my regular schedule now. Two

more

> > sessions and then a CT scan to check on progress.

> >

> > The good news was that my CEA level from Tuesday was 8.4 ng/ml --

> > almost normal since I'm not a smoker.

> >

> > -joe-

[Guest guest]

Jodi, I had no idea that the effects last that long....oh my

goodness. My mom has numb toes too from MAC-321 (clinical trial

chemo for lung cancer) and they don't want to give her anymore right

now until it goes away. Bert's feet always feel cold to him, even

though they are not at all cold to the touch. If you still have numb

toes after a year, that answers why Bert's " cold feet " sensation

didn't go away after his six week chemo break. I never cease

learning from this board.

Hugs,

Monika

> > At the end of my last infusion with Oxaliplatin and Leucovorin I

> > turned beet red and I had a red rash on my arms. The onc said it

was

> > an allergic reaction to the Oxaliplatin so I asked for an extra

week

> > before the next session. He agreed.

> >

> > I finished the session I was in with no further problems -- I

only

> > get Oxaliplatin the first day, after that it's just 5-FU and

> > Leucovorin.

> >

> > Yesterday I went back for my 11th session. I was disappointed

that

> > the extra week did little to reduce the finger and toe numbness

> > (peripheral neuropathy) and my cold sensitivity from the

> > Oxaliplatin. They gave me some benedryl and peptid (IV) and then

I

> > got my Oxaliplatin and Leucovorin. I showed a very minor reaction

so

> > I guess the benedryl works. It made me sleepy so I took a nap

during

> > the 2-hour infusion. I'm back on my regular schedule now. Two

more

> > sessions and then a CT scan to check on progress.

> >

> > The good news was that my CEA level from Tuesday was 8.4 ng/ml --

> > almost normal since I'm not a smoker.

> >

> > -joe-

[Guest guest]

It's not too bad, and I'm used to it, but there is definitely some

residual numbness...I try to look on the bright side and figure I can

now more painlessly wear all of my trendy pointy shoes like the sex

and the city girls since I'm an nyc chiquita.

> > > At the end of my last infusion with Oxaliplatin and Leucovorin I

> > > turned beet red and I had a red rash on my arms. The onc said it

> was

> > > an allergic reaction to the Oxaliplatin so I asked for an extra

> week

> > > before the next session. He agreed.

> > >

> > > I finished the session I was in with no further problems -- I

> only

> > > get Oxaliplatin the first day, after that it's just 5-FU and

> > > Leucovorin.

> > >

> > > Yesterday I went back for my 11th session. I was disappointed

> that

> > > the extra week did little to reduce the finger and toe numbness

> > > (peripheral neuropathy) and my cold sensitivity from the

> > > Oxaliplatin. They gave me some benedryl and peptid (IV) and then

> I

> > > got my Oxaliplatin and Leucovorin. I showed a very minor reaction

> so

> > > I guess the benedryl works. It made me sleepy so I took a nap

> during

> > > the 2-hour infusion. I'm back on my regular schedule now. Two

> more

> > > sessions and then a CT scan to check on progress.

> > >

> > > The good news was that my CEA level from Tuesday was 8.4 ng/ml --

> > > almost normal since I'm not a smoker.

> > >

> > > -joe-