Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 I have a hard time with the digest style, I can't seem to really figure out how to see all of the posts, either way I would be sifting through all the posts. It's not really a problem just takes a while for me to read. I was going to join the other list but it costs $40 for one person to join for a limited time, and money is really really short right now. I really want to get advice from professionals, however sometimes I need to go somewhere where there are none, just because often it is the professionals getting me so stressed out telling me that his loss doesn't matter and we should be looking at other issues. We have looked at other issues but the fact is we are getting no where without focusing on the hearing issues. My point is everything I read tells me that anything over 15 dB in children can be harmful to their ability to learn and he is 30 and they are so reluctant to even call that a loss, even for adults that is considered a loss. So when they start telling me stuff like this I just want to run somewhere far away from professionals. Then I start having lots of questions and want to ask the professionals. I basically want to know how to read the tests so I don't have to trust the audi's, because I don't trust them since we have seen now 6 different ones and had his papers reviewed by more and while some are helpful none have wanted to do anything about it. joining other lists mentioned having a lot of email in her inbox...I wanted to mention something to you all. I recommended that also consider joining the PDHH list because that list does have a couple audiologists, who are also parents of deaf/Deaf kids and several parent advocates. Listen Up has great parents who certainly have become experts in raising deaf/hh kids. PDHH has the same parents many of whom are on this list too. Although PDHH gets " heated " now and then, having been a member of both lists for many years, I see the value and appreciate the education I get from both lists, and I'm happy I have that option available Most lists, including this one, let the subscribers set the mail to digest form. Listen Up does this, and so does Parent Deaf HH. Actually all the lists I subscribe to have this feature. I get Listen Up at work in digest, and in hotmail I get individual emails. Using this option helps you manage your mail better. If anybody needs help with this, let us know. . _________________________________________________________________ Tired of slow downloads? Compare online deals from your local high-speed providers now. https://broadband.msn.com All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 , Joining PDHH does not cost anything. Joining American Society for Deaf Children does. But joining the listserv is free. I am very frugal; if it cost me to join the list I wouldn't! In the lower portion of the page, you will see Archived News, then a red hyperlink that says join ASDC, then PARENTDEAF HH Archive. The word " Archive " is in blue and is hyperlinked - click on that and the rest is self explanatory. I don't want you to stress over it - joining it is up to you - I just wanted you to have other options open to you. >I was going to join the other list but it costs $40 for one person to join >for a limited time, and money is really really short right now. I really >want to get advice from professionals, however sometimes I need to go >somewhere where there are none, just because often it is the professionals >getting me so stressed out telling me that his loss doesn't matter and we >should be looking at other issues>>>>>> The professionals on the list - the audiologists and advocates - are also parents of deaf children. They go thru and fight the same battles as we do. I would even venture that they have seen children with hearing losses similar to your son's - with similar issues going on as well - and could offer some good direction. Best wishes, mary _________________________________________________________________ Have fun customizing MSN Messenger — learn how here! http://www.msnmessenger-download.com/tracking/reach_customize Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 I just looked at the ASDC site again. To the right, there is a list of QUICK LINKS. The first item under Quick Links is the Listserv. That provides you another way to join if interested. I just wanted you to know....there are two ways to join that other list, free, on the site. _________________________________________________________________ Working moms: Find helpful tips here on managing kids, home, work — and yourself. http://special.msn.com/msnbc/workingmom.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 , I'm on the PDDH list, but haven't seen a post in awhile -- is it just not active right now, or have I been dropped? Thanks! Stefanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Ok thanks, I wanted to ask questions but more than a few times I felt like pulling my hair out after talking to people because as soon as I say he has problems with his head they suddenly turn everything off regarding his hearing, it's like an automatic off button. Anyway so that's why I like having a list like this to come to when the professionals are stressing me out. Re: joining other lists , Joining PDHH does not cost anything. Joining American Society for Deaf Children does. But joining the listserv is free. I am very frugal; if it cost me to join the list I wouldn't! In the lower portion of the page, you will see Archived News, then a red hyperlink that says join ASDC, then PARENTDEAF HH Archive. The word " Archive " is in blue and is hyperlinked - click on that and the rest is self explanatory. I don't want you to stress over it - joining it is up to you - I just wanted you to have other options open to you. >I was going to join the other list but it costs $40 for one person to join >for a limited time, and money is really really short right now. I really >want to get advice from professionals, however sometimes I need to go >somewhere where there are none, just because often it is the professionals >getting me so stressed out telling me that his loss doesn't matter and we >should be looking at other issues>>>>>> The professionals on the list - the audiologists and advocates - are also parents of deaf children. They go thru and fight the same battles as we do. I would even venture that they have seen children with hearing losses similar to your son's - with similar issues going on as well - and could offer some good direction. Best wishes, mary _________________________________________________________________ Have fun customizing MSN Messenger - learn how here! http://www.msnmessenger-download.com/tracking/reach_customize All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.