Re: Re: PLEASE! Liquid Diet Help.....Bill & Cleofi

[Guest guest]

I get microlipid from www.shieldhealthcare.com

<http://www.shieldhealthcare.com/>

Or www.themedicalbox.com <http://www.themedicalbox.com/>

Your Very Welcome! Anytime!

Thank You,

Cleofi Blass

PLEASE! Liquid Diet Help.....

>

>

>

> Hopkins doesn't participate in NY's Medicaid program, so I have to

> figure the calculations myself to determine how much of the

> prescription they will cover....my local pediatrician will have to

> write the prescriptions.

>

> I am told Jimmy will require 5 bottles per day. I know this

includes

> RCF, Microlipid, and Polycose. Can anyone give me the approximate

> dosages of each (Jimmy is approx 23 pounds and 2 years old)per

bottle?

>

> Medicaid pays for " 600 caloric units per month " total, of all 3

> products. 1 caloric unit = calories per can divided by 100. I

> figured that RCF is 81 cals per 100ml, there are 200ml per can,

which

> equals 243 caloric units per month (5 cans per day for 30 days).

>

> And I thought math would NEVER come in handy!!!! Glad I paid

> attention in class! PLEASE help me! I would like to get all of

this

> figured out so that I can have the formula I will need when we get

> back home, as Hopkins says they will give you only enough to come

> home with the day your child is released from the hospital!

>

> Thanks!

>

> Sue Ellen:)

>

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional

> keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

>

>

>

>

[Guest guest]

I get microlipid from www.shieldhealthcare.com

<http://www.shieldhealthcare.com/>

Or www.themedicalbox.com <http://www.themedicalbox.com/>

Your Very Welcome! Anytime!

Thank You,

Cleofi Blass

PLEASE! Liquid Diet Help.....

>

>

>

> Hopkins doesn't participate in NY's Medicaid program, so I have to

> figure the calculations myself to determine how much of the

> prescription they will cover....my local pediatrician will have to

> write the prescriptions.

>

> I am told Jimmy will require 5 bottles per day. I know this

includes

> RCF, Microlipid, and Polycose. Can anyone give me the approximate

> dosages of each (Jimmy is approx 23 pounds and 2 years old)per

bottle?

>

> Medicaid pays for " 600 caloric units per month " total, of all 3

> products. 1 caloric unit = calories per can divided by 100. I

> figured that RCF is 81 cals per 100ml, there are 200ml per can,

which

> equals 243 caloric units per month (5 cans per day for 30 days).

>

> And I thought math would NEVER come in handy!!!! Glad I paid

> attention in class! PLEASE help me! I would like to get all of

this

> figured out so that I can have the formula I will need when we get

> back home, as Hopkins says they will give you only enough to come

> home with the day your child is released from the hospital!

>

> Thanks!

>

> Sue Ellen:)

>

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a

last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional

> keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

>

>

>

>

[Guest guest]

You should be able to use safflower oil in a pinch. Get the computer

program so that you can do the calculations. I found that adding some

cream helped to mix it. I would use a syringe and suck it up then push

it back quickly into the cup or bowl a few times to get it mixed. My

daughter can stand a slow intermittent feed with a syringe. We were all

set to get a pump when I saw another parent doing this in the cafeteria.

Good luck on the diet,

Bill

sueellenholmes wrote:

> Sorry for taking so long to respond! My son has been in the hospital

> due to pneumonia. (This has become a common occurance, and I am told

> to " get used to it " because he has severe CP and doesn't move around

> a lot.)

>

> Anyway, I was told by local doctors that Jimmy would need 5 cans per

> day. Obviously, this mistake just confirms that it is a REALLY GOOD

> idea to travel 6 hours to start the diet at Hopkins!!!!!!!!

>

> Thank you, Cleofi, Bill, and everyone for responding to my

> questions! You guys are great!

>

> -Sue Ellen:)

>

> P.S. I was told by Mead , as well as over 10 different

> pharmacies, that Microlipid is very often on backorder. What do you

> guys do if you run out, especially since they only let you refill

> prescriptions 10 days ahead of time, so you never know until " the

> last minute " that there is none available for weeks!!!! This blows

> the whole diet, right??!!

>

> Sue Ellen:)

>

>

>

>

>

>> Sue Ellen.

>>

>>

>>

>>I Have a program called Nutrigenie and i plugged in your sons stats.

>>

>>

>>

>>Your son has caloric need of 782, protein 16, Carbs 4 & Fat 78

>>

>>My boy has caloric need of 975, protein 16, Carbs 9, and Fat 97 and

>

> his

>

>>formula is 23 grams of microlipid or Canola oil, 3 grams of

>

> polycose, and

>

>>173 ml of RCF, Thats only a little over a can of RCF a day.

>>

>>How did you get 5 cans?

>>

>>

>>

>>Thank You,

>>

>>Cleofi Blass

>>

>> PLEASE! Liquid Diet Help.....

>>

>>

>>

>>Hopkins doesn't participate in NY's Medicaid program, so I have to

>>figure the calculations myself to determine how much of the

>>prescription they will cover....my local pediatrician will have to

>>write the prescriptions.

>>

>>I am told Jimmy will require 5 bottles per day. I know this

>

> includes

>

>>RCF, Microlipid, and Polycose. Can anyone give me the approximate

>>dosages of each (Jimmy is approx 23 pounds and 2 years old)per

>

> bottle?

>

>>Medicaid pays for " 600 caloric units per month " total, of all 3

>>products. 1 caloric unit = calories per can divided by 100. I

>>figured that RCF is 81 cals per 100ml, there are 200ml per can,

>

> which

>

>>equals 243 caloric units per month (5 cans per day for 30 days).

>>

>>And I thought math would NEVER come in handy!!!! Glad I paid

>>attention in class! PLEASE help me! I would like to get all of

>

> this

>

>>figured out so that I can have the formula I will need when we get

>>back home, as Hopkins says they will give you only enough to come

>>home with the day your child is released from the hospital!

>>

>>Thanks!

>>

>>Sue Ellen:)

>>

>>

>>

>>

>>

>>

>> " The Ketogenic Diet....a realistic treatment option, NOT just a

>

> last

>

>>resort! "

>>

>> List is for parent to parent support only.

>> It is important to get medical advice from a

>

> professional

>

>>keto team!

>> Subscribe: ketogenic-subscribe

>> Unsubscribe: ketogenic-unsubscribe

>>

>>

>>

>>

>>

>>

>>

>>

>>