Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hugs and prayer for her and that everything goes smooth foryou both! Crystal and Eva (10 month charger) > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hugs and prayer for her and that everything goes smooth foryou both! Crystal and Eva (10 month charger) > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hugs and prayer for her and that everything goes smooth foryou both! Crystal and Eva (10 month charger) > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 hope it goes well ive had teeth in the cleft it gets annoying > > Hugs and prayer for her and that everything goes smooth foryou both! > > Crystal and Eva (10 month charger) > > > > > > > Hey everyone, > > > > Just an update on Makenna. She is having surgery Tuesday. She is > > having muscles cut in both eyes to help with crossing. Ear wax > > removed from both ears with probable tube replacement. A good > exam of > > her tonsils and adenoids and two teeth pulled. She has to have > the > > two teeth pulled that are back in her cleft area. They are very > hard > > to reach for brushing and they think it is better to just pull > them > > than to risk infection if they start rotting. Wish her luck, boy > does > > this get harder and harder as they get older. She is such a > trooper > > though. This is number 14 I believe! Poor baby, I haven't even > had a > > surgery. It is outpatient, but I will probably be off list for a > > couple of days. > > > > , mom to Makenna, age 5 > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 hope it goes well ive had teeth in the cleft it gets annoying > > Hugs and prayer for her and that everything goes smooth foryou both! > > Crystal and Eva (10 month charger) > > > > > > > Hey everyone, > > > > Just an update on Makenna. She is having surgery Tuesday. She is > > having muscles cut in both eyes to help with crossing. Ear wax > > removed from both ears with probable tube replacement. A good > exam of > > her tonsils and adenoids and two teeth pulled. She has to have > the > > two teeth pulled that are back in her cleft area. They are very > hard > > to reach for brushing and they think it is better to just pull > them > > than to risk infection if they start rotting. Wish her luck, boy > does > > this get harder and harder as they get older. She is such a > trooper > > though. This is number 14 I believe! Poor baby, I haven't even > had a > > surgery. It is outpatient, but I will probably be off list for a > > couple of days. > > > > , mom to Makenna, age 5 > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 hope it goes well ive had teeth in the cleft it gets annoying > > Hugs and prayer for her and that everything goes smooth foryou both! > > Crystal and Eva (10 month charger) > > > > > > > Hey everyone, > > > > Just an update on Makenna. She is having surgery Tuesday. She is > > having muscles cut in both eyes to help with crossing. Ear wax > > removed from both ears with probable tube replacement. A good > exam of > > her tonsils and adenoids and two teeth pulled. She has to have > the > > two teeth pulled that are back in her cleft area. They are very > hard > > to reach for brushing and they think it is better to just pull > them > > than to risk infection if they start rotting. Wish her luck, boy > does > > this get harder and harder as they get older. She is such a > trooper > > though. This is number 14 I believe! Poor baby, I haven't even > had a > > surgery. It is outpatient, but I will probably be off list for a > > couple of days. > > > > , mom to Makenna, age 5 > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 I'll be thinking of Makenna. It is amazing how our kids are so brave and come through these things as they do. Good luck with everything! , mom to Zachary 4.5 years and Carmen 20 months (CHARGE) > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 I'll be thinking of Makenna. It is amazing how our kids are so brave and come through these things as they do. Good luck with everything! , mom to Zachary 4.5 years and Carmen 20 months (CHARGE) > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 I'll be thinking of Makenna. It is amazing how our kids are so brave and come through these things as they do. Good luck with everything! , mom to Zachary 4.5 years and Carmen 20 months (CHARGE) > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , Makenna, you and Jay will be in my thoughts and prayers. Hope all goes well for you all. Give Makenna a big hug for me. Mom to , 3 yrs. katiesusil wrote: Hey everyone, Just an update on Makenna. She is having surgery Tuesday. She is having muscles cut in both eyes to help with crossing. Ear wax removed from both ears with probable tube replacement. A good exam of her tonsils and adenoids and two teeth pulled. She has to have the two teeth pulled that are back in her cleft area. They are very hard to reach for brushing and they think it is better to just pull them than to risk infection if they start rotting. Wish her luck, boy does this get harder and harder as they get older. She is such a trooper though. This is number 14 I believe! Poor baby, I haven't even had a surgery. It is outpatient, but I will probably be off list for a couple of days. , mom to Makenna, age 5 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , Makenna, you and Jay will be in my thoughts and prayers. Hope all goes well for you all. Give Makenna a big hug for me. Mom to , 3 yrs. katiesusil wrote: Hey everyone, Just an update on Makenna. She is having surgery Tuesday. She is having muscles cut in both eyes to help with crossing. Ear wax removed from both ears with probable tube replacement. A good exam of her tonsils and adenoids and two teeth pulled. She has to have the two teeth pulled that are back in her cleft area. They are very hard to reach for brushing and they think it is better to just pull them than to risk infection if they start rotting. Wish her luck, boy does this get harder and harder as they get older. She is such a trooper though. This is number 14 I believe! Poor baby, I haven't even had a surgery. It is outpatient, but I will probably be off list for a couple of days. , mom to Makenna, age 5 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , Makenna, you and Jay will be in my thoughts and prayers. Hope all goes well for you all. Give Makenna a big hug for me. Mom to , 3 yrs. katiesusil wrote: Hey everyone, Just an update on Makenna. She is having surgery Tuesday. She is having muscles cut in both eyes to help with crossing. Ear wax removed from both ears with probable tube replacement. A good exam of her tonsils and adenoids and two teeth pulled. She has to have the two teeth pulled that are back in her cleft area. They are very hard to reach for brushing and they think it is better to just pull them than to risk infection if they start rotting. Wish her luck, boy does this get harder and harder as they get older. She is such a trooper though. This is number 14 I believe! Poor baby, I haven't even had a surgery. It is outpatient, but I will probably be off list for a couple of days. , mom to Makenna, age 5 CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , Best wishes on Makenna's surgery and a speedy recovery for everyone! Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Good luck to you all, loves and hugs to Makenna. sounds like a full M.O.T. love Lesleyx > > Hey everyone, > > Just an update on Makenna. She is having surgery Tuesday. She is > having muscles cut in both eyes to help with crossing. Ear wax > removed from both ears with probable tube replacement. A good exam of > her tonsils and adenoids and two teeth pulled. She has to have the > two teeth pulled that are back in her cleft area. They are very hard > to reach for brushing and they think it is better to just pull them > than to risk infection if they start rotting. Wish her luck, boy does > this get harder and harder as they get older. She is such a trooper > though. This is number 14 I believe! Poor baby, I haven't even had a > surgery. It is outpatient, but I will probably be off list for a > couple of days. > > , mom to Makenna, age 5 > Quote Link to comment Share on other sites More sharing options...
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