Guest guest Posted February 20, 2006 Report Posted February 20, 2006 Deedee- Stamina is an issue for Aubrie too. And haven't people seen improvement in muscle tone too? I will print your post and share it with our ENT at next visit just in case she thinks it should prompt more aggressive treatment on our part. I agree that the size issue is less intense for a girl. Right now it works to her favor to be smaller cuz her voice and speech " fits " her size somewhat. And people think she's so smart cuz she sometimes acts older than she looks (even if it's still acting younger than she is). Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote
Guest guest Posted February 20, 2006 Report Posted February 20, 2006 Deedee- Stamina is an issue for Aubrie too. And haven't people seen improvement in muscle tone too? I will print your post and share it with our ENT at next visit just in case she thinks it should prompt more aggressive treatment on our part. I agree that the size issue is less intense for a girl. Right now it works to her favor to be smaller cuz her voice and speech " fits " her size somewhat. And people think she's so smart cuz she sometimes acts older than she looks (even if it's still acting younger than she is). Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote
Guest guest Posted February 20, 2006 Report Posted February 20, 2006 stamina for me to i am slowly getting b etter > > Deedee- > Stamina is an issue for Aubrie too. And haven't people seen improvement > in > muscle tone too? I will print your post and share it with our ENT at next > visit just in case she thinks it should prompt more aggressive treatment > on > our part. I agree that the size issue is less intense for a girl. Right > now it works to her favor to be smaller cuz her voice and speech " fits " > her > size somewhat. And people think she's so smart cuz she sometimes acts > older > than she looks (even if it's still acting younger than she is). > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.