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Re: Beginning growth hormone next week

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Deedee-

Stamina is an issue for Aubrie too. And haven't people seen improvement in

muscle tone too? I will print your post and share it with our ENT at next

visit just in case she thinks it should prompt more aggressive treatment on

our part. I agree that the size issue is less intense for a girl. Right

now it works to her favor to be smaller cuz her voice and speech " fits " her

size somewhat. And people think she's so smart cuz she sometimes acts older

than she looks (even if it's still acting younger than she is).

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

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Deedee-

Stamina is an issue for Aubrie too. And haven't people seen improvement in

muscle tone too? I will print your post and share it with our ENT at next

visit just in case she thinks it should prompt more aggressive treatment on

our part. I agree that the size issue is less intense for a girl. Right

now it works to her favor to be smaller cuz her voice and speech " fits " her

size somewhat. And people think she's so smart cuz she sometimes acts older

than she looks (even if it's still acting younger than she is).

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

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stamina for me to i am slowly getting b etter

>

> Deedee-

> Stamina is an issue for Aubrie too. And haven't people seen improvement

> in

> muscle tone too? I will print your post and share it with our ENT at next

> visit just in case she thinks it should prompt more aggressive treatment

> on

> our part. I agree that the size issue is less intense for a girl. Right

> now it works to her favor to be smaller cuz her voice and speech " fits "

> her

> size somewhat. And people think she's so smart cuz she sometimes acts

> older

> than she looks (even if it's still acting younger than she is).

>

> Michele W

> mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

> (CHARGE Syndrome Canada - http://www.chargesyndrome.ca)

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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