Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Deedee- Stamina is an issue for Aubrie too. And haven't people seen improvement in muscle tone too? I will print your post and share it with our ENT at next visit just in case she thinks it should prompt more aggressive treatment on our part. I agree that the size issue is less intense for a girl. Right now it works to her favor to be smaller cuz her voice and speech " fits " her size somewhat. And people think she's so smart cuz she sometimes acts older than she looks (even if it's still acting younger than she is). Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Deedee- Stamina is an issue for Aubrie too. And haven't people seen improvement in muscle tone too? I will print your post and share it with our ENT at next visit just in case she thinks it should prompt more aggressive treatment on our part. I agree that the size issue is less intense for a girl. Right now it works to her favor to be smaller cuz her voice and speech " fits " her size somewhat. And people think she's so smart cuz she sometimes acts older than she looks (even if it's still acting younger than she is). Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 stamina for me to i am slowly getting b etter > > Deedee- > Stamina is an issue for Aubrie too. And haven't people seen improvement > in > muscle tone too? I will print your post and share it with our ENT at next > visit just in case she thinks it should prompt more aggressive treatment > on > our part. I agree that the size issue is less intense for a girl. Right > now it works to her favor to be smaller cuz her voice and speech " fits " > her > size somewhat. And people think she's so smart cuz she sometimes acts > older > than she looks (even if it's still acting younger than she is). > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.