Guest guest Posted February 24, 2006 Report Posted February 24, 2006 no ive had no probs with flying except the4 poppign of my earswich happens to everyone there is one prob though but then hes nto on feeds is he jsut that dotn thionk they have soemwhere you can put the pump if you need to charge it but that doesnt matter to you but its soemthign weve often thought about if i wanted to go further than nz which is lie the distant ull be going lol ellen in sunn hot aus > > To all CHARGErs, and parents of, in the list.. > > This time my question refers to FLYING. > Any particular experience or problem to share regarding this? > > I'm taking Aidan in Spring to my hometown and that trip involves 2 > short flights: 45 mins + 2 hours.. but as it'll be the first time > he'll be flying, I would like to know about your experiences, in case > there's something about it I should be aware of.. just in case! > > Thank you in advance for your inputs, as always.. > > Greetings from dark cloudy (but dry!) Ireland, > > > Pat, mum to the Little Warrior (10 months old; 8 months corrected) > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted February 24, 2006 Report Posted February 24, 2006 Pat- We've always flown quite successfully. Even when Aubrie was little, she did just fine. If Aidan has tubes/grommets in his ears, that will eliminate the pressure build up the rest of us feel. I hope your trips are successful. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote
Guest guest Posted February 24, 2006 Report Posted February 24, 2006 Pat, Carmen had no trouble at all flying. I did buy her a seat to be comfortable and to use her car seat, but she sat on my lap most of the time. I had no trouble getting all her equipment through either--they were great! I was worried about her getting sick on the plane because of recycled air--so I bought a mini air purifier that she wore around her neck. It is supposed to turn negative ions into positive ones and it works in a 3 foot perimeter of ther person wearing it. I got it from tone and it was $60 bucks. I don't know if it worked or not, but I do know that Carmen stayed healthy out entire 2 week trip to Disney and she wore it on the plane there and back and in all public places. It helped me be a little more relaxed! Take care!!! > > To all CHARGErs, and parents of, in the list.. > > This time my question refers to FLYING. > Any particular experience or problem to share regarding this? > > I'm taking Aidan in Spring to my hometown and that trip involves 2 > short flights: 45 mins + 2 hours.. but as it'll be the first time > he'll be flying, I would like to know about your experiences, in case > there's something about it I should be aware of.. just in case! > > Thank you in advance for your inputs, as always.. > > Greetings from dark cloudy (but dry!) Ireland, > > > Pat, mum to the Little Warrior (10 months old; 8 months corrected) > Quote
Guest guest Posted February 24, 2006 Report Posted February 24, 2006 Pat, Carmen had no trouble at all flying. I did buy her a seat to be comfortable and to use her car seat, but she sat on my lap most of the time. I had no trouble getting all her equipment through either--they were great! I was worried about her getting sick on the plane because of recycled air--so I bought a mini air purifier that she wore around her neck. It is supposed to turn negative ions into positive ones and it works in a 3 foot perimeter of ther person wearing it. I got it from tone and it was $60 bucks. I don't know if it worked or not, but I do know that Carmen stayed healthy out entire 2 week trip to Disney and she wore it on the plane there and back and in all public places. It helped me be a little more relaxed! Take care!!! > > To all CHARGErs, and parents of, in the list.. > > This time my question refers to FLYING. > Any particular experience or problem to share regarding this? > > I'm taking Aidan in Spring to my hometown and that trip involves 2 > short flights: 45 mins + 2 hours.. but as it'll be the first time > he'll be flying, I would like to know about your experiences, in case > there's something about it I should be aware of.. just in case! > > Thank you in advance for your inputs, as always.. > > Greetings from dark cloudy (but dry!) Ireland, > > > Pat, mum to the Little Warrior (10 months old; 8 months corrected) > Quote
Guest guest Posted February 24, 2006 Report Posted February 24, 2006 We took my daughter to Hawaii a year ago in December. SHe was three at the time. We had no problems what so ever and it was a nine hour flight. She has tubes in her ears so there was no problem with pressure. I would recommend putting your carseat in as luggage instead of having him sit in it. They are to cumbersome. We just took lots to do. Also, if he is on liquid formula take it as a carryon. I called the formula company and was told it would freeze under the plane and it wouldn't be good anymore. Good luck , mom to Makenna > > To all CHARGErs, and parents of, in the list.. > > This time my question refers to FLYING. > Any particular experience or problem to share regarding this? > > I'm taking Aidan in Spring to my hometown and that trip involves 2 > short flights: 45 mins + 2 hours.. but as it'll be the first time > he'll be flying, I would like to know about your experiences, in case > there's something about it I should be aware of.. just in case! > > Thank you in advance for your inputs, as always.. > > Greetings from dark cloudy (but dry!) Ireland, > > > Pat, mum to the Little Warrior (10 months old; 8 months corrected) > Quote
Guest guest Posted February 25, 2006 Report Posted February 25, 2006 Pat, Kennedy's had no adverse reactions to flying (other than being hyper sometimes!!!) - we have flown with her a fair number of times. Good luck with the flight! Enjoy your trip, Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 Good evening from Ireland, everybody! Thank you for the replies So apparently there's nothing to worry about.. for once! What a relief! Aidan does not have any tube or contrivance in his ears for the moment so maybe, just in case, I'll talk to the paediatrician or ENT before flying to see if there's anything they have to point out regarding his ears. Also, I found interesting that " air purifier " you mentioned, , the one for Carmen. What exactly is it? And how big? Of course, needless to mention, I'm more excited than Aidan and his daddy together about the trip! And there's still some months to go!! LOL Pat PS> Ellen, could you post some of your hot sunshine for me, pleeease? I saw a bright sphere in the sky yesterday, but I'm not sure if it is the same sun as they one you Aussies have down there.. or maybe it's just running out of batteries by the time it gets up here!! LOL XD Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 Pat, The air purifier is actually only about 1/4 inch wide and about 3 inches long. It clips to Carmen's clothes or she can wear it around her neck. It is called the PureIon Travel Ionic Air Purifier and you can find it on www.brookstone.com or try clicking on the link below. http://www.brookstone.com/shop/product.asp?product_code=446773 & search_type=searc\ h & search_words=pureion%20travel & prodtemp=t2 & cm_re=Result*R1C1*T By the way, Pat, Sheila is getting so excited about her trip to Ireland in June! I hope you two have a chance to connect while she's in Galway, as I know she would love to see Aidan. I'll keep you posted as to when she'll be there, the hotel she's staying, etc. Take care and have a wonderful time on your trip. Good luck with getting Aidan there safe and healthy! > > Good evening from Ireland, everybody! > > Thank you for the replies > > So apparently there's nothing to worry about.. for once! > What a relief! > > Aidan does not have any tube or contrivance in his ears for the > moment so maybe, just in case, I'll talk to the paediatrician or ENT > before flying to see if there's anything they have to point out > regarding his ears. > > Also, I found interesting that " air purifier " you mentioned, > , the one for Carmen. What exactly is it? And how big? > > Of course, needless to mention, I'm more excited than Aidan and his > daddy together about the trip! And there's still some months to go!! > LOL > > > Pat > > PS> Ellen, could you post some of your hot sunshine for me, > pleeease? > I saw a bright sphere in the sky yesterday, but I'm not sure if it > is the same sun as they one you Aussies have down there.. or maybe > it's just running out of batteries by the time it gets up here!! > LOL XD > Quote
Guest guest Posted February 26, 2006 Report Posted February 26, 2006 Pat, The only pain in the neck thing for us was the travel insurance because of congenital heart problems (though now repaired). Shopped around and all ludicrously expensive. We did find the least expensive thanks to another CHARGE land person. Can't recall who but if you want the details, we can look up quite easily. Otherwise, our very long flight to Miami last year was surprisingly painless. Both girls were complete stars and were easily kept occupied or asleep. Of course your flight is not that far so hopefully even easier. Your excitement is so infectious. Enjoy your trip when it comes around. Flo > > Good evening from Ireland, everybody! > > Thank you for the replies > > So apparently there's nothing to worry about.. for once! > What a relief! > > Aidan does not have any tube or contrivance in his ears for the > moment so maybe, just in case, I'll talk to the paediatrician or ENT > before flying to see if there's anything they have to point out > regarding his ears. > > Also, I found interesting that " air purifier " you mentioned, > , the one for Carmen. What exactly is it? And how big? > > Of course, needless to mention, I'm more excited than Aidan and his > daddy together about the trip! And there's still some months to go!! > LOL > > > Pat > > PS> Ellen, could you post some of your hot sunshine for me, > pleeease? > I saw a bright sphere in the sky yesterday, but I'm not sure if it > is the same sun as they one you Aussies have down there.. or maybe > it's just running out of batteries by the time it gets up here!! > LOL XD > > > > > > Quote
Guest guest Posted February 27, 2006 Report Posted February 27, 2006 LOL you should of seen the storm we had last night it was huge > > Pat, > The only pain in the neck thing for us was the travel insurance because of > congenital heart problems (though now repaired). Shopped around and all > ludicrously expensive. We did find the least expensive thanks to another > CHARGE land person. Can't recall who but if you want the details, we can > look up quite easily. Otherwise, our very long flight to Miami last year > was surprisingly painless. Both girls were complete stars and were easily > kept occupied or asleep. Of course your flight is not that far so > hopefully > even easier. > > Your excitement is so infectious. Enjoy your trip when it comes around. > > Flo > > > > > > > Good evening from Ireland, everybody! > > > > Thank you for the replies > > > > So apparently there's nothing to worry about.. for once! > > What a relief! > > > > Aidan does not have any tube or contrivance in his ears for the > > moment so maybe, just in case, I'll talk to the paediatrician or ENT > > before flying to see if there's anything they have to point out > > regarding his ears. > > > > Also, I found interesting that " air purifier " you mentioned, > > , the one for Carmen. What exactly is it? And how big? > > > > Of course, needless to mention, I'm more excited than Aidan and his > > daddy together about the trip! And there's still some months to go!! > > LOL > > > > > > Pat > > > > PS> Ellen, could you post some of your hot sunshine for me, > > pleeease? > > I saw a bright sphere in the sky yesterday, but I'm not sure if it > > is the same sun as they one you Aussies have down there.. or maybe > > it's just running out of batteries by the time it gets up here!! > > LOL XD > > > > > > > > > > > > > > > Quote
Guest guest Posted February 27, 2006 Report Posted February 27, 2006 LOL you should of seen the storm we had last night it was huge > > Pat, > The only pain in the neck thing for us was the travel insurance because of > congenital heart problems (though now repaired). Shopped around and all > ludicrously expensive. We did find the least expensive thanks to another > CHARGE land person. Can't recall who but if you want the details, we can > look up quite easily. Otherwise, our very long flight to Miami last year > was surprisingly painless. Both girls were complete stars and were easily > kept occupied or asleep. Of course your flight is not that far so > hopefully > even easier. > > Your excitement is so infectious. Enjoy your trip when it comes around. > > Flo > > > > > > > Good evening from Ireland, everybody! > > > > Thank you for the replies > > > > So apparently there's nothing to worry about.. for once! > > What a relief! > > > > Aidan does not have any tube or contrivance in his ears for the > > moment so maybe, just in case, I'll talk to the paediatrician or ENT > > before flying to see if there's anything they have to point out > > regarding his ears. > > > > Also, I found interesting that " air purifier " you mentioned, > > , the one for Carmen. What exactly is it? And how big? > > > > Of course, needless to mention, I'm more excited than Aidan and his > > daddy together about the trip! And there's still some months to go!! > > LOL > > > > > > Pat > > > > PS> Ellen, could you post some of your hot sunshine for me, > > pleeease? > > I saw a bright sphere in the sky yesterday, but I'm not sure if it > > is the same sun as they one you Aussies have down there.. or maybe > > it's just running out of batteries by the time it gets up here!! > > LOL XD > > > > > > > > > > > > > > > Quote
Guest guest Posted February 27, 2006 Report Posted February 27, 2006 LOL you should of seen the storm we had last night it was huge > > Pat, > The only pain in the neck thing for us was the travel insurance because of > congenital heart problems (though now repaired). Shopped around and all > ludicrously expensive. We did find the least expensive thanks to another > CHARGE land person. Can't recall who but if you want the details, we can > look up quite easily. Otherwise, our very long flight to Miami last year > was surprisingly painless. Both girls were complete stars and were easily > kept occupied or asleep. Of course your flight is not that far so > hopefully > even easier. > > Your excitement is so infectious. Enjoy your trip when it comes around. > > Flo > > > > > > > Good evening from Ireland, everybody! > > > > Thank you for the replies > > > > So apparently there's nothing to worry about.. for once! > > What a relief! > > > > Aidan does not have any tube or contrivance in his ears for the > > moment so maybe, just in case, I'll talk to the paediatrician or ENT > > before flying to see if there's anything they have to point out > > regarding his ears. > > > > Also, I found interesting that " air purifier " you mentioned, > > , the one for Carmen. What exactly is it? And how big? > > > > Of course, needless to mention, I'm more excited than Aidan and his > > daddy together about the trip! And there's still some months to go!! > > LOL > > > > > > Pat > > > > PS> Ellen, could you post some of your hot sunshine for me, > > pleeease? > > I saw a bright sphere in the sky yesterday, but I'm not sure if it > > is the same sun as they one you Aussies have down there.. or maybe > > it's just running out of batteries by the time it gets up here!! > > LOL XD > > > > > > > > > > > > > > > Quote
Guest guest Posted February 28, 2006 Report Posted February 28, 2006 I find even at 9 that we take a flight approved car seat for Dylan - would be a nightmare without! When he was young he handled the pressure changes okay - now he is learning to yawn to handle it. Kim > We took my daughter to Hawaii a year ago in December. SHe was three > at the time. We had no problems what so ever and it was a nine hour > flight. She has tubes in her ears so there was no problem with > pressure. I would recommend putting your carseat in as luggage > instead of having him sit in it. They are to cumbersome. We just > took lots to do. Also, if he is on liquid formula take it as a > carryon. I called the formula company and was told it would freeze > under the plane and it wouldn't be good anymore. Good luck > > , mom to Makenna > > >> >> To all CHARGErs, and parents of, in the list.. >> >> This time my question refers to FLYING. >> Any particular experience or problem to share regarding this? >> >> I'm taking Aidan in Spring to my hometown and that trip involves 2 >> short flights: 45 mins + 2 hours.. but as it'll be the first time >> he'll be flying, I would like to know about your experiences, in > case >> there's something about it I should be aware of.. just in case! >> >> Thank you in advance for your inputs, as always.. >> >> Greetings from dark cloudy (but dry!) Ireland, >> >> >> Pat, mum to the Little Warrior (10 months old; 8 months corrected) >> > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted February 28, 2006 Report Posted February 28, 2006 I find even at 9 that we take a flight approved car seat for Dylan - would be a nightmare without! When he was young he handled the pressure changes okay - now he is learning to yawn to handle it. Kim > We took my daughter to Hawaii a year ago in December. SHe was three > at the time. We had no problems what so ever and it was a nine hour > flight. She has tubes in her ears so there was no problem with > pressure. I would recommend putting your carseat in as luggage > instead of having him sit in it. They are to cumbersome. We just > took lots to do. Also, if he is on liquid formula take it as a > carryon. I called the formula company and was told it would freeze > under the plane and it wouldn't be good anymore. Good luck > > , mom to Makenna > > >> >> To all CHARGErs, and parents of, in the list.. >> >> This time my question refers to FLYING. >> Any particular experience or problem to share regarding this? >> >> I'm taking Aidan in Spring to my hometown and that trip involves 2 >> short flights: 45 mins + 2 hours.. but as it'll be the first time >> he'll be flying, I would like to know about your experiences, in > case >> there's something about it I should be aware of.. just in case! >> >> Thank you in advance for your inputs, as always.. >> >> Greetings from dark cloudy (but dry!) Ireland, >> >> >> Pat, mum to the Little Warrior (10 months old; 8 months corrected) >> > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted March 2, 2006 Report Posted March 2, 2006 Pat - Ethan flew for the first time last summer to the CHARGE conference at age 3. I was worried too how he would do, but he was great. I'm not sure if your son is tube fed, but if he is, and you would have to do any feedings on the plane, be sure to check with the airline if your feeding pump is approved to be used while in flight. Have a good trip. Jody Pat wrote: To all CHARGErs, and parents of, in the list.. This time my question refers to FLYING. Any particular experience or problem to share regarding this? I'm taking Aidan in Spring to my hometown and that trip involves 2 short flights: 45 mins + 2 hours.. but as it'll be the first time he'll be flying, I would like to know about your experiences, in case there's something about it I should be aware of.. just in case! Thank you in advance for your inputs, as always.. Greetings from dark cloudy (but dry!) Ireland, Pat, mum to the Little Warrior (10 months old; 8 months corrected) CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.