Re: Is my son a candidate for SCD?

[Guest guest]

>

>

> Hello,

>

> my name is ken I live in NJ and have a 6-3/4 year old autistic son.

Ken,

Rice is not included in SCD as it is suspected as being just as indigestible and

harmful as grain to a damaged gut. SCD can be implemented without dairy and is

always worth a one month trial. Given the progress you have made you may want to

continue what you are doing but WITHOUT RICE AND POTATOES.

Carol F.

Toronto, Celiac, SCD 4 yrs.

[Guest guest]

is always worth a one month trial. Given the progress you have made

you may want to continue what you are doing but WITHOUT RICE AND

POTATOES.

> .

Thank you for your kind comments and quick reply

It is just we have made so many gains in all we have done, we have

been through underweight from 3 months to 3 years, meltdowns from

removing offending foods, duping metals and behavior changes from

chelation and finally got some weight on him after being GFCF for 3

years.

With all his food allergies there is pretty much no other substitutes

to work with.

Any comments?

Thanks

If there is someone that has overcome a similar circumstance I would

love to hear from?

If anyone would like to give their opinion on having cleaned up the

gut from yeast infections and having good stools while suspecting a

behavior issue with rice I would love to hear from you.

Also I know there have been stories of parents who didn't have a gut

condition and benefited from SCD

Thanks again

Kenny V

[Guest guest]

>

> is always worth a one month trial. Given the progress you have made

> you may want to continue what you are doing but WITHOUT RICE AND

> POTATOES.

> > .

>

> Thank you for your kind comments and quick reply

>

> With all his food allergies there is pretty much no other substitutes

> to work with.

> Any comments?

> Thanks

>

> If there is someone that has overcome a similar circumstance I would

> love to hear from?

> If anyone would like to give their opinion on having cleaned up the

> gut from yeast infections and having good stools while suspecting a

> behavior issue with rice I would love to hear from you.

>

> Also I know there have been stories of parents who didn't have a gut

> condition and benefited from SCD

>

> Thanks again

> Kenny V

Kenny,

For more info on rice and potatoes see pages 28 and 37 of Breaking the Vicious

Cycle and the index..

We make delicious French fries and chips from carrots and Butternut squash that

satisfies carb craving, We even have a recipe for chicken nuggets

Carol F.

Toronto, Celiac, SCD 4 yrs.

[Guest guest]

" With all his food allergies there is pretty much no other

substitutes to work with.

Any comments? "

Kenny,

Maybe I missed it, but I don't remember what food allergies you

mentioned. What all is he allergic to?

We have kids with all sorts of allergies on this list and I am sure

that there is at least one other person whose child has similar

allergies to yours that can help you transition to SCD.

Please provide us with a list of all food allergies (and by this, I

mean foods that actually cause a reaction of some sort).

Also, if you can tell us what happens when he eats the offending

foods, that might give us clues too.

Jody

mom to -5 and -8

SCD 22 months

[Guest guest]

By removing rice and potatoes, and substituting SCD favorites such as peas,

meats, & cheese, you will be increasing your son's glutamate load. ASD

children, unlike persons afflicted with ONLY gut dysfuction, have an enormous

problem w/glutamate receptors.

I believe the latest research has concluded that leaky gut/colitis is

secondary in ASD children. My son has a multitude of metabolic and genetic

issues

that SCD only would never fix. Consider the following supp's if you embark on

an SCD journey: methly b12 shots/cream, digestive enzymes, magnesium,

selenium, electrolytes, etc..... I would not supplement calcium or l-glutamate.

Hoping your son's forward progress continues,

Sharlene

[Guest guest]

--->

> One thing that we recently suspect is he craves rice, so that might

> be a red flag to a HIDDEN intolerance issue.

>

Ken, It is so interesting that you say this....My 8 yo NT (UC)

daughter is on SCD...my 5 yo (dx anxiety, language processing, dev

del....pdd-like) daughter is not...yet it is my 5 yo who also craves

rice like your son... if it were up to her, she would eat rice,

pasta, popcorn and cookies all day/every day, and up until 2 years

ago milk would have been included - however I have eliminated liquid

dairy from her diet. I hope to eventually get her on an SCD diet, but

I still need to get over the hurdle of my UC daughter and her year-

long bloody stools.

(8 yo - UC, scd 5 1/2 weeks)

[Guest guest]

-Kenny, My autistic daughter also had gains on gf/cf, not to the

extent of your son. She still has runny stools most of the time. By

the end of a year on gf/cf she would have days where all she would

eat was potatoes, ricemilk and fruit. This concerned me because we've

always been told to be suspicious of any cravings in these kids. I

believe the fact that he craves rice is a good indication that he

could benefit from this diet and might still have a little tummy

mending left to do.

-- In pecanbread , " Jody G. " <momtobandj@b...>

wrote:

>

> " With all his food allergies there is pretty much no other

> substitutes to work with.

> Any comments? "

>

> Kenny,

>

> Maybe I missed it, but I don't remember what food allergies you

> mentioned. What all is he allergic to?

> We have kids with all sorts of allergies on this list and I am sure

> that there is at least one other person whose child has similar

> allergies to yours that can help you transition to SCD.

>

> Please provide us with a list of all food allergies (and by this, I

> mean foods that actually cause a reaction of some sort).

> Also, if you can tell us what happens when he eats the offending

> foods, that might give us clues too.

>

> Jody

> mom to -5 and -8

> SCD 22 months

[Guest guest]

so what should we do with the glutamate-overload?

Re: Re: Is my son a candidate for SCD?

>

> By removing rice and potatoes, and substituting SCD favorites such as

> peas,

> meats, & cheese, you will be increasing your son's glutamate load. ASD

> children, unlike persons afflicted with ONLY gut dysfuction, have an

> enormous

> problem w/glutamate receptors.

>

> I believe the latest research has concluded that leaky gut/colitis is

> secondary in ASD children. My son has a multitude of metabolic and

> genetic issues

> that SCD only would never fix. Consider the following supp's if you

> embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes, magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium or

> l-glutamate.

> Hoping your son's forward progress continues,

> Sharlene

>

>

>

[Guest guest]

so what should we do with the glutamate-overload?

Re: Re: Is my son a candidate for SCD?

>

> By removing rice and potatoes, and substituting SCD favorites such as

> peas,

> meats, & cheese, you will be increasing your son's glutamate load. ASD

> children, unlike persons afflicted with ONLY gut dysfuction, have an

> enormous

> problem w/glutamate receptors.

>

> I believe the latest research has concluded that leaky gut/colitis is

> secondary in ASD children. My son has a multitude of metabolic and

> genetic issues

> that SCD only would never fix. Consider the following supp's if you

> embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes, magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium or

> l-glutamate.

> Hoping your son's forward progress continues,

> Sharlene

>

>

>

[Guest guest]

so what should we do with the glutamate-overload?

Re: Re: Is my son a candidate for SCD?

>

> By removing rice and potatoes, and substituting SCD favorites such as

> peas,

> meats, & cheese, you will be increasing your son's glutamate load. ASD

> children, unlike persons afflicted with ONLY gut dysfuction, have an

> enormous

> problem w/glutamate receptors.

>

> I believe the latest research has concluded that leaky gut/colitis is

> secondary in ASD children. My son has a multitude of metabolic and

> genetic issues

> that SCD only would never fix. Consider the following supp's if you

> embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes, magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium or

> l-glutamate.

> Hoping your son's forward progress continues,

> Sharlene

>

>

>

[Guest guest]

Jake did not do well on SCD, that is not a hypothesis. Elaine's daughter

had UC, she did not have autism.

I do; however, believe that with severe gut disorders, you have to eliminate

all poly and di-saccharides to heal the gut. Unfortunately, children w/severe

metabolic and/or chemical imbalances and/or gene mutations will not be able

to do SCD by itself without supplementation. I am talking from experience.

Sharlene

[Guest guest]

> By removing rice and potatoes, and substituting SCD favorites such as peas,

> meats, & cheese, you will be increasing your son's glutamate load. ASD

> children, unlike persons afflicted with ONLY gut dysfuction, have an enormous

> problem w/glutamate receptors.

>

> I believe the latest research has concluded that leaky gut/colitis is

> secondary in ASD children. My son has a multitude of metabolic and genetic

issues

> that SCD only would never fix. Consider the following supp's if you embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes, magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium or

l-glutamate.

> Hoping your son's forward progress continues,

> Sharlene

Would Sheila or Jody G. please clarify this post. I do not understand it.

Thanks.

Carol F.

Toronto, Celiac, SCD 4 yrs.

[Guest guest]

>

> I believe the latest research has concluded that leaky gut/colitis is

> secondary in ASD children. My son has a multitude of metabolic and genetic

issues

> that SCD only would never fix. Consider the following supp's if you embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes, magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium or

l-glutamate.

> Hoping your son's forward progress continues,

> Sharlene

Sharlene,

Elaine says:

" There are many hypothesis (less than theories) that are being presented re

ASD. They are far from proven and often are the result of the work of one

or two researchers and should be examined carefully for their validity.

They may or may not prove to be the " missing piece of the puzzle " in finding

the underlying cause/s for autism spectrum disorders. Sharlene's email

relating to glutamate receptors is an hypothesis - it has not been

conclusively shown to become a theory (proven without a doubt).

The so-called anecdotal evidence we witness on pecanbread, where parent

after parent have seen the remarkable improvement after implementing SCD,

is impressive. It requires no great experimentation with the numerous

supplements based on various hypothesis (although it recognizes that some

supplements have been shown to be effective especially when implemented with

SCD) and is a nutritious diet, beyond most others.

" Healing the Gut " is what pecanbread is about and until others can show the

impressive results that SCD achieves, we cannot consider gut problems to be

secondary in most cases of regressive autism. We believe it is primary! "

Carol F.

Toronto, Celiac, SCD 4 yrs.

[Guest guest]

> Jake did not do well on SCD, that is not a hypothesis. Elaine's daughter

> had UC, she did not have autism.

> I do; however, believe that with severe gut disorders, you have to eliminate

> all poly and di-saccharides to heal the gut. Unfortunately, children w/severe

> metabolic and/or chemical imbalances and/or gene mutations will not be able

> to do SCD by itself without supplementation. I am talking from experience.

> Sharlene

Sharlene,

Do you realize that Elaine never proposed SCD for autism? A group of parents

started this list because their ASD children were having some remarkable

results. It came to Elaine's attention. She admitted to bot being totally

familiar with the supplementation which is more of a requirement for autism kids

on SCD than adults with gastric issues. Since about 80% of the children on this

list show improvement and many lose their diagnosis the anecdotal eveidence of

positive results is there. And according to a Harvard study. 46% of autism kids

have digestive problems making them good candidates for SCD.

Despite all that-- we know and we say that SCD is not going to be the answer for

everyone. If it were, it would be headlined in every newspaper, and other major

media. I am sorry it was not the answer for you and presume you did it

correctly.

Supplementation is a very delicate protocol that requires experimentation and

expertise. We were fortunate to have input here from several experts who enabled

the creation of an extensive list of legals and illegals.

Although you haven't mentioned what diet you are following, I regret SCD wasn't

for you but if something else is working, isn't that what really counts?

Carol F.

Toronto, Celiac, SCD 4 yrs.

[Guest guest]

Hi Ken,

> i am not sure if he would benefit nor know how i would incorporate

> this because he has a limited diet already.

> In addition he has a class 4 allergic reaction to all dairy

products

> including eggs.

> One thing that we recently suspect is he craves rice, so that

might

> be a red flag to a HIDDEN intolerance issue.

> how would we know if this type of diet would be for him?

These two things are red flags. That he has a limited dietand that

he craves rice and potatoes. Since the diet is a healing diet

you'd start with easy to digest foods and gradually work up to more

complex foods as the gut heals. Many have found as the body heals

that foods that they had intolerances to before were gradually added

back into their diets with success. (*Although Elaine cautions

against trying foods that evoke an anapylactic reaction*) In

addition to this children who had previously fixated on certain

foods gradually started to add more foods into their diet. There

have been countless reports of children eating fruits and vegetables

much to their parents amazement.

> would you think if he is doing well with behavior/digestion he is

a

> likely candidate for this diet?

Absolutely, because removing the complex carbs will allow healing on

a microscopic level. The complex carbs not only harm the body they

stress the body and make it harder to function. My husband who has

no bowel trouble is also on the diet. When he is home and eating

SCD food he feels great. When he started the diet he was floored by

how different he felt. He was more clear-headed and had energy like

when he was a kid. When he travels on business and eats SAD food he

feels bloated, is crabby (don't tell him that) and is very sluggish.

> Are there specific types of rice in the form they are farmed,

> processed, cooked ect... that are not a digestive problem that we

can

> continue to give if eliminating rice/potato is not the case?

Sorry, but no. It is not the form or the farming but the actual

structure of the starch molecules in rice.

Sheila 46 mos SCD, 20 yrs UC

mom of SCD 31 mos

[Guest guest]

What about the problems ASD kids have with methalation pathways, therefore

the MB12 is a huge help to these kids along with glutathione,

folinic acid and other things exclusive to the individual child? This was

and is the conclusion based on past and recent DAN conferences.

Kathy,

Abby's mom

" It requires no great experimentation with the numerous

> supplements based on various hypothesis (although it recognizes that some

> supplements have been shown to be effective especially when implemented

> with

> SCD) and is a nutritious diet, beyond most others. "

>

>

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

What about the problems ASD kids have with methalation pathways, therefore

the MB12 is a huge help to these kids along with glutathione,

folinic acid and other things exclusive to the individual child? This was

and is the conclusion based on past and recent DAN conferences.

Kathy,

Abby's mom

" It requires no great experimentation with the numerous

> supplements based on various hypothesis (although it recognizes that some

> supplements have been shown to be effective especially when implemented

> with

> SCD) and is a nutritious diet, beyond most others. "

>

>

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

What about the problems ASD kids have with methalation pathways, therefore

the MB12 is a huge help to these kids along with glutathione,

folinic acid and other things exclusive to the individual child? This was

and is the conclusion based on past and recent DAN conferences.

Kathy,

Abby's mom

" It requires no great experimentation with the numerous

> supplements based on various hypothesis (although it recognizes that some

> supplements have been shown to be effective especially when implemented

> with

> SCD) and is a nutritious diet, beyond most others. "

>

>

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Hi Sharlene,

> I believe the latest research has concluded that leaky gut/colitis

is

> secondary in ASD children. My son has a multitude of metabolic

and genetic issues

> that SCD only would never fix. Consider the following supp's if

you embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes,

magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium

or l-glutamate.

For some ASD kids SCD alone gives amazing results. But some other

kids also have phenol issues, others are picky eaters, some get

shots and supplements, some have allergies etc. Although many cases

are very similar there are always slight variations depending on the

individual.

It is a good idea to have these suggestions filed away if Ken's son

takes the same path as your son. But we won't know that until he

cuts out the complex carbs and sees what foods he will eat and can

tolerate.

Sheila 46 mos SCD, 20 yrs UC

mom of SCD 31 mos

[Guest guest]

Hi Sharlene,

> I believe the latest research has concluded that leaky gut/colitis

is

> secondary in ASD children. My son has a multitude of metabolic

and genetic issues

> that SCD only would never fix. Consider the following supp's if

you embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes,

magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium

or l-glutamate.

For some ASD kids SCD alone gives amazing results. But some other

kids also have phenol issues, others are picky eaters, some get

shots and supplements, some have allergies etc. Although many cases

are very similar there are always slight variations depending on the

individual.

It is a good idea to have these suggestions filed away if Ken's son

takes the same path as your son. But we won't know that until he

cuts out the complex carbs and sees what foods he will eat and can

tolerate.

Sheila 46 mos SCD, 20 yrs UC

mom of SCD 31 mos

[Guest guest]

Hi Sharlene,

> I believe the latest research has concluded that leaky gut/colitis

is

> secondary in ASD children. My son has a multitude of metabolic

and genetic issues

> that SCD only would never fix. Consider the following supp's if

you embark on

> an SCD journey: methly b12 shots/cream, digestive enzymes,

magnesium,

> selenium, electrolytes, etc..... I would not supplement calcium

or l-glutamate.

For some ASD kids SCD alone gives amazing results. But some other

kids also have phenol issues, others are picky eaters, some get

shots and supplements, some have allergies etc. Although many cases

are very similar there are always slight variations depending on the

individual.

It is a good idea to have these suggestions filed away if Ken's son

takes the same path as your son. But we won't know that until he

cuts out the complex carbs and sees what foods he will eat and can

tolerate.

Sheila 46 mos SCD, 20 yrs UC

mom of SCD 31 mos

[Guest guest]

Hi Kathy,

> What about the problems ASD kids have with methalation pathways,

therefore

> the MB12 is a huge help to these kids along with glutathione,

> folinic acid and other things exclusive to the individual child?

> > (although it recognizes that some

> > supplements have been shown to be effective especially when

implemented

> > with

> > SCD) and is a nutritious diet, beyond most others. "

I think that you and Elaine are saying the same thing, just in

different ways . Depending on the *individual* some need the

supplements, but others don't. But first, the diet has to change

(toss out the complex carbs) for those who are taking supplements

otherwise they won't absorb them properly. That's why SCD can be so

effective it will help uncover extreme deficiences if they exist and

then allow that problem to be tackled as needed.

Sheila 46 mos SCD, 20 yrs UC

mom of SCD 31 mos