Guest guest Posted February 19, 2006 Report Posted February 19, 2006 Hi everyone sorry no time to post school hols arrived and difficult now with Amelie still in, spread very very thin!! No news really she has influenza, her sputum came back, and so Ab's for two weeks lots of physio for consolidation, and nebulizers every two hours, which are helping. She seems happy and content, playful which is good to see and doesnt look as bad as she usually does, maybe this is a good sign, that she is handling these things a little better, although we are all fed up since September we have been home some 3 weeks, roll on summer!! or surgery which ever comes first. love Lesx Quote
Guest guest Posted February 19, 2006 Report Posted February 19, 2006 Lesley, good to hear she's in good spirits...you must be just counting those days until the surgery... Hugs to you all Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote
Guest guest Posted February 19, 2006 Report Posted February 19, 2006 Hugs Lesley, Give that little girl a hug from us, I am sure it is getting tireing. I know its been a long couple of months and that little girl and you have been threw alot. Hang in there hun, Crystal and Eva (10 month charger) > > Hi everyone > > sorry no time to post school hols arrived and difficult now with > Amelie still in, spread very very thin!! > > No news really she has influenza, her sputum came back, and so Ab's > for two weeks lots of physio for consolidation, and nebulizers every > two hours, which are helping. She seems happy and content, playful > which is good to see and doesnt look as bad as she usually does, maybe > this is a good sign, that she is handling these things a little > better, although we are all fed up since September we have been home > some 3 weeks, roll on summer!! or surgery which ever comes first. > > love Lesx > Quote
Guest guest Posted February 20, 2006 Report Posted February 20, 2006 good news with that cross infection stuff u were going through i was thinking for the next op or next stay or next move even ma;ybve yu could ask to go to the infectios deseases ward that should be more controled more isolation there just an idea hugs ellen > > Hugs Lesley, > > Give that little girl a hug from us, I am sure it is getting tireing. > I know its been a long couple of months and that little girl and you > have been threw alot. > > Hang in there hun, > Crystal and Eva (10 month charger) > > > > > > Hi everyone > > > > sorry no time to post school hols arrived and difficult now with > > Amelie still in, spread very very thin!! > > > > No news really she has influenza, her sputum came back, and so Ab's > > for two weeks lots of physio for consolidation, and nebulizers every > > two hours, which are helping. She seems happy and content, playful > > which is good to see and doesnt look as bad as she usually does, > maybe > > this is a good sign, that she is handling these things a little > > better, although we are all fed up since September we have been home > > some 3 weeks, roll on summer!! or surgery which ever comes first. > > > > love Lesx > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 Lesley- So many big worries and still sick without seeing your baby for 8 days. Argh. Thinking about you and hoping things begin to work out reasonably for you. Isn't it about time? Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 Lesley- So many big worries and still sick without seeing your baby for 8 days. Argh. Thinking about you and hoping things begin to work out reasonably for you. Isn't it about time? Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 yeah about time hope she keeps gettinb better shes not allowed home till ur better LOL love u > > Lesley- > So many big worries and still sick without seeing your baby for 8 days. > Argh. Thinking about you and hoping things begin to work out reasonably > for > you. Isn't it about time? > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 yeah about time hope she keeps gettinb better shes not allowed home till ur better LOL love u > > Lesley- > So many big worries and still sick without seeing your baby for 8 days. > Argh. Thinking about you and hoping things begin to work out reasonably > for > you. Isn't it about time? > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 Hi Ellen thanks for that, love you too hope your well hows the Oz sunshine, we have had snow here!! sunny England!! take care love Les x > > > > Lesley- > > So many big worries and still sick without seeing your baby for 8 days. > > Argh. Thinking about you and hoping things begin to work out reasonably > > for > > you. Isn't it about time? > > > > Michele W > > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support groups does not constitute membership in > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 Hi Ellen thanks for that, love you too hope your well hows the Oz sunshine, we have had snow here!! sunny England!! take care love Les x > > > > Lesley- > > So many big worries and still sick without seeing your baby for 8 days. > > Argh. Thinking about you and hoping things begin to work out reasonably > > for > > you. Isn't it about time? > > > > Michele W > > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support groups does not constitute membership in > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 Michele, its very frustrating, but i intend to go tomorrow, I over the worst, and I am worried she wont remember me. love Lesx > > Lesley- > So many big worries and still sick without seeing your baby for 8 days. > Argh. Thinking about you and hoping things begin to work out reasonably for > you. Isn't it about time? > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 Michele, its very frustrating, but i intend to go tomorrow, I over the worst, and I am worried she wont remember me. love Lesx > > Lesley- > So many big worries and still sick without seeing your baby for 8 days. > Argh. Thinking about you and hoping things begin to work out reasonably for > you. Isn't it about time? > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 HI Lesley, Could the hospital supply you with some surgical mask to contain your bugs. That is what we have to do when little miss is in hospital and any sign of a cough or a sniff .. I get here is a mask.:-) xoxo > Hi Ellen > > thanks for that, love you too hope your well hows the Oz sunshine, > we have had snow here!! sunny England!! > > take care love Les x > > > > > >> > >> > Lesley- >> > So many big worries and still sick without seeing your baby for > 8 days. >> > Argh. Thinking about you and hoping things begin to work out > reasonably >> > for >> > you. Isn't it about time? >> > >> > Michele W >> > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ >> > >> > >> > >> > >> > CHARGE SYNDROME LISTSERV PHOTO PAGE: >> > http://www.imagestation.com/album/?id=2117043995 >> > >> > Membership of this email support groups does not constitute > membership in >> > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. >> > For information about the CHARGE Syndrome >> > Foundation or to become a member (and get the newsletter), >> > please contact marion@... or visit >> > the web site at http://www.chargesyndrome.org >> > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) >> > >> > 8th International >> > CHARGE Syndrome Conference, July, 2007. Information will be > available at >> > www.chargesyndrome.org or by calling 1-. >> > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 And Lesley - I know Amelie has not forgotten you. Go see her today and love her up tons, even if that means just standing there with a mask on and eating her up with your eyes. Kim > Lesley- > So many big worries and still sick without seeing your baby for 8 days. > Argh. Thinking about you and hoping things begin to work out reasonably for > you. Isn't it about time? > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 I will contact my old boss at the practice I think it would be good to have a box or two of face masks at the house, then in future this is my answer to it all, good thinking , why do I never think of these things, Ive been wearing them for 222 years, it never occured!!!!!!! > > And Lesley - I know Amelie has not forgotten you. Go see her today and love > her up tons, even if that means just standing there with a mask on and > eating her up with your eyes. Kim > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support groups does not constitute membership in the > > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote
Guest guest Posted March 14, 2006 Report Posted March 14, 2006 I will contact my old boss at the practice I think it would be good to have a box or two of face masks at the house, then in future this is my answer to it all, good thinking , why do I never think of these things, Ive been wearing them for 222 years, it never occured!!!!!!! > > And Lesley - I know Amelie has not forgotten you. Go see her today and love > her up tons, even if that means just standing there with a mask on and > eating her up with your eyes. Kim > > > > > > > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > > http://www.imagestation.com/album/?id=2117043995 > > > > Membership of this email support groups does not constitute membership in the > > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org > > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > > > 8th International > > CHARGE Syndrome Conference, July, 2007. Information will be available at > > www.chargesyndrome.org or by calling 1-. > > Quote
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