Re: & TNF backward?

[Guest guest]

,

what scares me is all the unknowns about enbrel. And

the fact that I have been getting what I thought were

nosebleeds but now I " m thinking are my sinuses

bleeding after I give myself the shots. It's not

gushing blood or anything, more like the sniffles, but

they last between 5 minutes to an hour. AND, when you

think about the 2x/wk shot, and 2-3 days of bleeding

after, that's almost every day! It's been going on

since Dec/Jan, and at that time everyone (drs) were

telling me it was the dry weather. I knew then that

that wasn't right, but couldn't convince anyone else.

My rheumy doesn't seem concerned, my reg. dr. doesn't

seem concerned, so I guess I shouldn't be. But I've

never had them before, they always come with my shot

(if I stop my shots, the bleeding goes away), and it

concerns me.

And lymphoma. That worries me.

But see? My hands are really great now, so I have the

freedom to worry about things like that. And I have

energy to do things like go for a walk/run!

My rheumy also mentioned to me what you mention: that

if the meds are stopped, most patients have the

symptoms return within 5-8 years.

Thanks for the input:)

Rie

Message: 2

Date: Wed, 27 Apr 2005 01:18:07 -0000

From: " " <catdelouise@...>

Subject: Re: from TNF backward?

Hi Rie,

I just had to stop my Humira due to fever, I missed

only one dose and I started having symptoms again. I

have only been on TNF blockers for my RA though

so I didn't substitute. What in particular scares

you? I remember an article that Jacy had posted that

said 95% of RA patients need to continue their

medication in order to stay in remission.

__________________________________________________

[Guest guest]

Hi Rie,

Yes, the unknowns of the TNFs scare me as well, but for me personally, the

benefits outweigh the risks. I consider myself fortunate because when I got

my RA, these drugs were available. I credit them with saving my joints and

giving me very little permanent damage. I think Harold once said that it is the

quality of my present life that I am thinking about and these drugs have been

a miracle for me.

Maybe you should consider Humira as you only inject it once every 2 weeks?

> ,

> what scares me is all the unknowns about enbrel. And

> the fact that I have been getting what I thought were

> nosebleeds but now I " m thinking are my sinuses

> bleeding after I give myself the shots. It's not

> gushing blood or anything, more like the sniffles, but

> they last between 5 minutes to an hour. AND, when you

> think about the 2x/wk shot, and 2-3 days of bleeding

> after, that's almost every day! It's been going on

> since Dec/Jan, and at that time everyone (drs) were

> telling me it was the dry weather. I knew then that

> that wasn't right, but couldn't convince anyone else.

>

>

> My rheumy doesn't seem concerned, my reg. dr. doesn't

> seem concerned, so I guess I shouldn't be. But I've

> never had them before, they always come with my shot

> (if I stop my shots, the bleeding goes away), and it

> concerns me.

>

> And lymphoma. That worries me.

>

> But see? My hands are really great now, so I have the

> freedom to worry about things like that. And I have

> energy to do things like go for a walk/run!

>

> My rheumy also mentioned to me what you mention: that

> if the meds are stopped, most patients have the

> symptoms return within 5-8 years.

>

> Thanks for the input:)

> Rie

>

> Message: 2

> Date: Wed, 27 Apr 2005 01:18:07 -0000

> From: " " <catdelouise@c...>

> Subject: Re: from TNF backward?

>

> Hi Rie,

>

> I just had to stop my Humira due to fever, I missed

> only one dose and I started having symptoms again. I

> have only been on TNF blockers for my RA though

> so I didn't substitute. What in particular scares

> you? I remember an article that Jacy had posted that

> said 95% of RA patients need to continue their

> medication in order to stay in remission.

>

>

>

>

> __________________________________________________

>