Re: Running out of foods to eat...(Long frustrated rant)

[Guest guest]

Here's what Sam tolerates that's pretty low sal

banana

lemons and limes for lemon/limeade (need honey for these tho)

Mango

Papaya

pear

pineapple juice - a Godsend!!!

pomegranate - seasonal now, not easy to digest, good for jelly/jam tho

carrots

green beans

spinach

lettuce - for when he can do raw foods, obviously

cauliflower

broccoli - watch out for these, hard to digest!

pecan

cashews

hazelnuts

macadamias - you can make your own butters out of these for baked goods.

Have you considered trying saccharine? I'm not sure if that effects

the yeast overgrowth as much as the honey does, but it may help with

the limitations and morale issue if he can have something sweet.

Here is my favorite phenol website

http://users.bigpond.net.au/allergydietitian/fi/salicylates-list.html

It is helpful in choosing foods to try. Sam tolerated cantaloupe way

before he tolerated watermelon, but watermelon is supposedly lower

than cantaloupe!!!! argh....so it's definately not fool proof.

You can sub cooked pears for banana in any of the pancake recipes.

Then you wouldn't need the honey and he's still be getting something

cookie like...etc.

good luck!

Chrystee

Sam

SCD 9 months

[Guest guest]

Hi Sondra,

> issue: He's GFCF, he's highly allergic to eggs even in small

> amounts, he's phenol-sensitive, and breaks out in hives with

> salicylates (so that causes his colitis to flare up) like squash,

> peanut butter, apples, berries, almond flour, etc. and last, he

has

> yeast issues so he's on a very low sugar diet which means very

> little honey.

Is he able to take any of the enzymes that some find helpful with

phenol problems?

We have a file on SCD and yeast at

http://health.groups.yahoo.com/group/pecanbread/files/

There is also a file there on carrot juice and garlic remedy for

yeast.

> So far he's been able to tolerate meat, steamed broccoli in small

> amounts and fresh pear popsicles. That's it! Last year when we

ran

> into this Elaine said that we should just stick with those few

foods

> then for a few weeks and he'll start getting better enough to

> tolerate new foods. Last year we were able to do that for almost

2-

> 1/2 months but not this time. He's now 6-1/2 and he's sneaking

> food, trading at school, etc. He's old enough to get around it

but

> too young to understand how serious his Colitis is. He's also

> become so emotional about foods and his colitis and when we stick

to

> only a few foods, he gets depressed and feels he'll never get

better

> and won't ever be able to eat anything he likes. We've been

giving

> him the old " Hang in there! This diet will help... " for almost 4

> years and I think he's tired of it.

> I'm stumped. Is there something I can give him so he won't react

to

> the high-phenolic and salicylate foods? Also, I'm afraid if I

stick

> with just a few foods over and over, he'll become allergic to them

> like he has so many things over the years.

I believe some use NoFenol etc. Maybe some of the parents with

salicylate/phenol sensitive kids will write in.

Is he taking any probiotics? How about one of the yogurts goat or

nut (made from one of the nuts he isn't allergic to). The

probiotics or yogurt may help speed up gut recovery.

> Last, how do I know what herbs are allowed on SCD?

Onion & garlic powder are illegal. Spice mictures like apple pie,

spice, curry powder, chili powder are illegal. Homemade mixes of

these are okay. If you want to double check a herb just ask

Sheila 45 mos SCD, 20 yrs UC

mom of SCD 30 mos

[Guest guest]

My son has UC as well. I must say we have not dealt with the food reactions

that you have, but there were times when it seemed that pretty much anything

outside of the intro diet aggrivated his symptoms. And he's only 4, so we deal

with the depression and food frustrations that you do.

He had been diary free all his life and after 2 wks on a dairy free SCD, we

slowly introduced the hard cheeses and found no problems. Does your son get a

specific reaction to dairy or is it precautionary? I only ask because adding

cheese motivated to stay on the diet because it's something he loves and

never got before.

Also, the advice on no phenol is a good one - my younger son has issues with

phenols and it helps. We're still trying to get the dosage right, but it's

definitely helping.

Also, if you can work with your gi doctor to get him on something to help with

the inflammation, you will probably see a lot less food sensitivities - at least

that's the case with us. Sulfasalazine is what takes and it never seemed

to help him - but the last flare prompted the gi doctor to double the dosage and

it helped a lot - now foods aren't such an issue, as before then everything

seemed to make the colitis symptoms worse.

I really do know your frustration. You can email me direct as well if you want.

I hope you find some answers to help you.

Robbie

Running out of foods to eat...(Long frustrated rant)

Hi all. We're running into the same problem we had last year with

SCD and it seems to be worse this year. I'm not sure what to do at

this point, maybe someone has been through this.

My little guy has severe colitis as well as other things like food

allergies, diarrhea, reflux, underweight, etc. We've tried a number

of Colitis meds and none have helped him yet. So, we're back to SCD

for the second time in a year, hoping it might help. Here's our

issue: He's GFCF, he's highly allergic to eggs even in small

amounts, he's phenol-sensitive, and breaks out in hives with

salicylates (so that causes his colitis to flare up) like squash,

peanut butter, apples, berries, almond flour, etc. and last, he has

yeast issues so he's on a very low sugar diet which means very

little honey.

So far he's been able to tolerate meat, steamed broccoli in small

amounts and fresh pear popsicles. That's it! Last year when we ran

into this Elaine said that we should just stick with those few foods

then for a few weeks and he'll start getting better enough to

tolerate new foods. Last year we were able to do that for almost 2-

1/2 months but not this time. He's now 6-1/2 and he's sneaking

food, trading at school, etc. He's old enough to get around it but

too young to understand how serious his Colitis is. He's also

become so emotional about foods and his colitis and when we stick to

only a few foods, he gets depressed and feels he'll never get better

and won't ever be able to eat anything he likes. We've been giving

him the old " Hang in there! This diet will help... " for almost 4

years and I think he's tired of it.

I'm stumped. Is there something I can give him so he won't react to

the high-phenolic and salicylate foods? Also, I'm afraid if I stick

with just a few foods over and over, he'll become allergic to them

like he has so many things over the years.

Last, how do I know what herbs are allowed on SCD?

Sorry to ramble on. Any advice would be appreciated. I'm not going

to give up completely on SCD but I don't see how we can adhere

strictly to it with so few foods he can eat.

Thanks,

Sondra

Mom to Stevie - 6-1/2 yrs old w/ Colitis, diarrhea, reflux, etc. and

Sara - 4 w/ Autism and reflux

steviesarasmom@...

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

My son has UC as well. I must say we have not dealt with the food reactions

that you have, but there were times when it seemed that pretty much anything

outside of the intro diet aggrivated his symptoms. And he's only 4, so we deal

with the depression and food frustrations that you do.

He had been diary free all his life and after 2 wks on a dairy free SCD, we

slowly introduced the hard cheeses and found no problems. Does your son get a

specific reaction to dairy or is it precautionary? I only ask because adding

cheese motivated to stay on the diet because it's something he loves and

never got before.

Also, the advice on no phenol is a good one - my younger son has issues with

phenols and it helps. We're still trying to get the dosage right, but it's

definitely helping.

Also, if you can work with your gi doctor to get him on something to help with

the inflammation, you will probably see a lot less food sensitivities - at least

that's the case with us. Sulfasalazine is what takes and it never seemed

to help him - but the last flare prompted the gi doctor to double the dosage and

it helped a lot - now foods aren't such an issue, as before then everything

seemed to make the colitis symptoms worse.

I really do know your frustration. You can email me direct as well if you want.

I hope you find some answers to help you.

Robbie

Running out of foods to eat...(Long frustrated rant)

Hi all. We're running into the same problem we had last year with

SCD and it seems to be worse this year. I'm not sure what to do at

this point, maybe someone has been through this.

My little guy has severe colitis as well as other things like food

allergies, diarrhea, reflux, underweight, etc. We've tried a number

of Colitis meds and none have helped him yet. So, we're back to SCD

for the second time in a year, hoping it might help. Here's our

issue: He's GFCF, he's highly allergic to eggs even in small

amounts, he's phenol-sensitive, and breaks out in hives with

salicylates (so that causes his colitis to flare up) like squash,

peanut butter, apples, berries, almond flour, etc. and last, he has

yeast issues so he's on a very low sugar diet which means very

little honey.

So far he's been able to tolerate meat, steamed broccoli in small

amounts and fresh pear popsicles. That's it! Last year when we ran

into this Elaine said that we should just stick with those few foods

then for a few weeks and he'll start getting better enough to

tolerate new foods. Last year we were able to do that for almost 2-

1/2 months but not this time. He's now 6-1/2 and he's sneaking

food, trading at school, etc. He's old enough to get around it but

too young to understand how serious his Colitis is. He's also

become so emotional about foods and his colitis and when we stick to

only a few foods, he gets depressed and feels he'll never get better

and won't ever be able to eat anything he likes. We've been giving

him the old " Hang in there! This diet will help... " for almost 4

years and I think he's tired of it.

I'm stumped. Is there something I can give him so he won't react to

the high-phenolic and salicylate foods? Also, I'm afraid if I stick

with just a few foods over and over, he'll become allergic to them

like he has so many things over the years.

Last, how do I know what herbs are allowed on SCD?

Sorry to ramble on. Any advice would be appreciated. I'm not going

to give up completely on SCD but I don't see how we can adhere

strictly to it with so few foods he can eat.

Thanks,

Sondra

Mom to Stevie - 6-1/2 yrs old w/ Colitis, diarrhea, reflux, etc. and

Sara - 4 w/ Autism and reflux

steviesarasmom@...

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

My son has UC as well. I must say we have not dealt with the food reactions

that you have, but there were times when it seemed that pretty much anything

outside of the intro diet aggrivated his symptoms. And he's only 4, so we deal

with the depression and food frustrations that you do.

He had been diary free all his life and after 2 wks on a dairy free SCD, we

slowly introduced the hard cheeses and found no problems. Does your son get a

specific reaction to dairy or is it precautionary? I only ask because adding

cheese motivated to stay on the diet because it's something he loves and

never got before.

Also, the advice on no phenol is a good one - my younger son has issues with

phenols and it helps. We're still trying to get the dosage right, but it's

definitely helping.

Also, if you can work with your gi doctor to get him on something to help with

the inflammation, you will probably see a lot less food sensitivities - at least

that's the case with us. Sulfasalazine is what takes and it never seemed

to help him - but the last flare prompted the gi doctor to double the dosage and

it helped a lot - now foods aren't such an issue, as before then everything

seemed to make the colitis symptoms worse.

I really do know your frustration. You can email me direct as well if you want.

I hope you find some answers to help you.

Robbie

Running out of foods to eat...(Long frustrated rant)

Hi all. We're running into the same problem we had last year with

SCD and it seems to be worse this year. I'm not sure what to do at

this point, maybe someone has been through this.

My little guy has severe colitis as well as other things like food

allergies, diarrhea, reflux, underweight, etc. We've tried a number

of Colitis meds and none have helped him yet. So, we're back to SCD

for the second time in a year, hoping it might help. Here's our

issue: He's GFCF, he's highly allergic to eggs even in small

amounts, he's phenol-sensitive, and breaks out in hives with

salicylates (so that causes his colitis to flare up) like squash,

peanut butter, apples, berries, almond flour, etc. and last, he has

yeast issues so he's on a very low sugar diet which means very

little honey.

So far he's been able to tolerate meat, steamed broccoli in small

amounts and fresh pear popsicles. That's it! Last year when we ran

into this Elaine said that we should just stick with those few foods

then for a few weeks and he'll start getting better enough to

tolerate new foods. Last year we were able to do that for almost 2-

1/2 months but not this time. He's now 6-1/2 and he's sneaking

food, trading at school, etc. He's old enough to get around it but

too young to understand how serious his Colitis is. He's also

become so emotional about foods and his colitis and when we stick to

only a few foods, he gets depressed and feels he'll never get better

and won't ever be able to eat anything he likes. We've been giving

him the old " Hang in there! This diet will help... " for almost 4

years and I think he's tired of it.

I'm stumped. Is there something I can give him so he won't react to

the high-phenolic and salicylate foods? Also, I'm afraid if I stick

with just a few foods over and over, he'll become allergic to them

like he has so many things over the years.

Last, how do I know what herbs are allowed on SCD?

Sorry to ramble on. Any advice would be appreciated. I'm not going

to give up completely on SCD but I don't see how we can adhere

strictly to it with so few foods he can eat.

Thanks,

Sondra

Mom to Stevie - 6-1/2 yrs old w/ Colitis, diarrhea, reflux, etc. and

Sara - 4 w/ Autism and reflux

steviesarasmom@...

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com