Re: To .......... and other E-Family Members :o)

[Guest guest]

..... we'll be praying for " big results " from the

treatment ........... may those " darned tumors " turn and run!! )

You really never know what might work ........ and until you've

exhausted every effort ..... there is always hope!! Thank you for

the kind words ......... having you all behind us is a great

help ....as you probably know. It's amazing just how much strength

and support you can feel from a group of people you've never

ACTUALLY met ......... and very important they become in your life.

You've all become a special part of mine.

Hey, Joyce and I have an agreement ....... one of these days we're

going to meet in Vegas and paint the town!! (OK ...maybe that's a

little too big of a job for the two of us alone!!) I know ...... we

can make it an annual event and you guys can join us too!! We

can " paint it " a little at a time! What do ya' say?? I can see the

headlines now ......... " Colon Cancer Survivors Seige Sin City! " ;-

) LOL!!

Love and Hugs to all!

Donna Sisco

S/O Rick, 50, Arkansas

09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

60%+ Tumor Burden in Liver

09/24/02 - 10cm Tumor removed from Colon

10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

06/11/03 - Appt at MD - Suggested changing chemo – failing

current treatment

07/25/03 - Began Oxaliplatin/Xeloda Chemo

10/20/03 - Increased Xeloda – Still failing treatment

11/12/03 - Added Celebrex - continued failure

01/15/04 - Switched to FOLFOX4 chemo

02/23/04 - CEA drops 80 points

02/25/04 - First Symptoms of Brain Problem

03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Left Parietal Lobe

03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

03/15/04 - Last WBR Treatment

03/18/04 – Took last Decadron - extremely fast weaning process

03/22/04 - First Grand Mal Seizure (5 day hospital stay)

03/22/04 - Back on Decadron, added Dilantin & Insulin

04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

04/13/04 – Not metabolizing Dilantin – adding Keppra

04/20/04 - Switched to CPT-11 with Erbitux

05/04/04 – Beginning weaning from Dilantin, will stay on Keppra

> I took a short " mental cancer break " (can't avoid the reality of

the

> physical situation) and stayed away from the board for a couple of

> weeks so I've been reading and catching up this past few days.I

see a

> lot of new-comers and realized that I am not the only ''

anymore

> so will add my last initial in an attempt to keep us all straight.

> Donna, I am so sorry to hear that Rick is having such

difficulties.I

> know how hard it is to watch the man you love slowing fading away,

as

> that is where we are also.I admire your devotion and faith,may God

> bless you both.Narice,I'm glad to hear that Phil is holding his

own

> and doing well with the new chemo.

> Hubby had his 4th treatment with Avastin/CPT-11/5Fu/LV.He has

> tolerated this fairly well though it really kills the WBC but it

> comes back with 2 weeks and shots inbetween treatments.He will

have

> CT scans again next week to see if it is having any effect on

tumor

> burden.

> Hugs & Prayers to all

> H

> caregiver to 'Hubby'age 52/diagnosed 7/31/04 inoperable stage IV

> cc/multiple mets/currently on 3rd line chemo of Avastin/CPT-

11/5Fu/LV

[Guest guest]

..... we'll be praying for " big results " from the

treatment ........... may those " darned tumors " turn and run!! )

You really never know what might work ........ and until you've

exhausted every effort ..... there is always hope!! Thank you for

the kind words ......... having you all behind us is a great

help ....as you probably know. It's amazing just how much strength

and support you can feel from a group of people you've never

ACTUALLY met ......... and very important they become in your life.

You've all become a special part of mine.

Hey, Joyce and I have an agreement ....... one of these days we're

going to meet in Vegas and paint the town!! (OK ...maybe that's a

little too big of a job for the two of us alone!!) I know ...... we

can make it an annual event and you guys can join us too!! We

can " paint it " a little at a time! What do ya' say?? I can see the

headlines now ......... " Colon Cancer Survivors Seige Sin City! " ;-

) LOL!!

Love and Hugs to all!

Donna Sisco

S/O Rick, 50, Arkansas

09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

60%+ Tumor Burden in Liver

09/24/02 - 10cm Tumor removed from Colon

10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

06/11/03 - Appt at MD - Suggested changing chemo – failing

current treatment

07/25/03 - Began Oxaliplatin/Xeloda Chemo

10/20/03 - Increased Xeloda – Still failing treatment

11/12/03 - Added Celebrex - continued failure

01/15/04 - Switched to FOLFOX4 chemo

02/23/04 - CEA drops 80 points

02/25/04 - First Symptoms of Brain Problem

03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Left Parietal Lobe

03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

03/15/04 - Last WBR Treatment

03/18/04 – Took last Decadron - extremely fast weaning process

03/22/04 - First Grand Mal Seizure (5 day hospital stay)

03/22/04 - Back on Decadron, added Dilantin & Insulin

04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

04/13/04 – Not metabolizing Dilantin – adding Keppra

04/20/04 - Switched to CPT-11 with Erbitux

05/04/04 – Beginning weaning from Dilantin, will stay on Keppra

> I took a short " mental cancer break " (can't avoid the reality of

the

> physical situation) and stayed away from the board for a couple of

> weeks so I've been reading and catching up this past few days.I

see a

> lot of new-comers and realized that I am not the only ''

anymore

> so will add my last initial in an attempt to keep us all straight.

> Donna, I am so sorry to hear that Rick is having such

difficulties.I

> know how hard it is to watch the man you love slowing fading away,

as

> that is where we are also.I admire your devotion and faith,may God

> bless you both.Narice,I'm glad to hear that Phil is holding his

own

> and doing well with the new chemo.

> Hubby had his 4th treatment with Avastin/CPT-11/5Fu/LV.He has

> tolerated this fairly well though it really kills the WBC but it

> comes back with 2 weeks and shots inbetween treatments.He will

have

> CT scans again next week to see if it is having any effect on

tumor

> burden.

> Hugs & Prayers to all

> H

> caregiver to 'Hubby'age 52/diagnosed 7/31/04 inoperable stage IV

> cc/multiple mets/currently on 3rd line chemo of Avastin/CPT-

11/5Fu/LV

[Guest guest]

..... we'll be praying for " big results " from the

treatment ........... may those " darned tumors " turn and run!! )

You really never know what might work ........ and until you've

exhausted every effort ..... there is always hope!! Thank you for

the kind words ......... having you all behind us is a great

help ....as you probably know. It's amazing just how much strength

and support you can feel from a group of people you've never

ACTUALLY met ......... and very important they become in your life.

You've all become a special part of mine.

Hey, Joyce and I have an agreement ....... one of these days we're

going to meet in Vegas and paint the town!! (OK ...maybe that's a

little too big of a job for the two of us alone!!) I know ...... we

can make it an annual event and you guys can join us too!! We

can " paint it " a little at a time! What do ya' say?? I can see the

headlines now ......... " Colon Cancer Survivors Seige Sin City! " ;-

) LOL!!

Love and Hugs to all!

Donna Sisco

S/O Rick, 50, Arkansas

09/19/02 - Diag. Stage IV Colon Cancer with 6 of 6 Pos. Nodes and

60%+ Tumor Burden in Liver

09/24/02 - 10cm Tumor removed from Colon

10/22/02 - Began CPT-11/5FU/LV Chemo - Had some shrinkage in 7

months

06/11/03 - Appt at MD - Suggested changing chemo – failing

current treatment

07/25/03 - Began Oxaliplatin/Xeloda Chemo

10/20/03 - Increased Xeloda – Still failing treatment

11/12/03 - Added Celebrex - continued failure

01/15/04 - Switched to FOLFOX4 chemo

02/23/04 - CEA drops 80 points

02/25/04 - First Symptoms of Brain Problem

03/01/04 - Brain Scan (MRI/CT) 1 " Brain Tumor - Left Parietal Lobe

03/02/04 - Began 10 Whole Brain Radiation Treatments and Decadron

03/15/04 - Last WBR Treatment

03/18/04 – Took last Decadron - extremely fast weaning process

03/22/04 - First Grand Mal Seizure (5 day hospital stay)

03/22/04 - Back on Decadron, added Dilantin & Insulin

04/06/04 - Resumed Folfox4 Chemo with added drug Erbitux

04/13/04 – Not metabolizing Dilantin – adding Keppra

04/20/04 - Switched to CPT-11 with Erbitux

05/04/04 – Beginning weaning from Dilantin, will stay on Keppra

> I took a short " mental cancer break " (can't avoid the reality of

the

> physical situation) and stayed away from the board for a couple of

> weeks so I've been reading and catching up this past few days.I

see a

> lot of new-comers and realized that I am not the only ''

anymore

> so will add my last initial in an attempt to keep us all straight.

> Donna, I am so sorry to hear that Rick is having such

difficulties.I

> know how hard it is to watch the man you love slowing fading away,

as

> that is where we are also.I admire your devotion and faith,may God

> bless you both.Narice,I'm glad to hear that Phil is holding his

own

> and doing well with the new chemo.

> Hubby had his 4th treatment with Avastin/CPT-11/5Fu/LV.He has

> tolerated this fairly well though it really kills the WBC but it

> comes back with 2 weeks and shots inbetween treatments.He will

have

> CT scans again next week to see if it is having any effect on

tumor

> burden.

> Hugs & Prayers to all

> H

> caregiver to 'Hubby'age 52/diagnosed 7/31/04 inoperable stage IV

> cc/multiple mets/currently on 3rd line chemo of Avastin/CPT-

11/5Fu/LV

[Guest guest]

Donna,I absolutely love your idea of survivor/caregiver(I've come to

think of us as survivors too)reunion!Minnesota is a looooong way from

Vegas but the planes fly so if you get the urge to put this together

in the future(event planner that you are!)count me in. I'll grab my

paint brush & board the next plane!!(lol)'Sin-City' would never be

the same after a visit from all of us!

Take care!

Hugs & Prayers to all

> > H

> > caregiver to 'Hubby'age 52/diagnosed 7/31/03 inoperable stage IV

> > cc/multiple mets/currently on 3rd line chemo of Avastin/CPT-

> 11/5Fu/LV

In colon_cancer_support , " Donna Sisco "

<cncrsps2002@y...> wrote:

> ..... we'll be praying for " big results " from the

> treatment ........... may those " darned tumors " turn and run!! )

> You really never know what might work ........ and until you've

> exhausted every effort ..... there is always hope!! Thank you for

> the kind words ......... having you all behind us is a great

> help ....as you probably know. It's amazing just how much strength

> and support you can feel from a group of people you've never

> ACTUALLY met ......... and very important they become in your

life.

> You've all become a special part of mine.

>

> Hey, Joyce and I have an agreement ....... one of these days we're

> going to meet in Vegas and paint the town!! (OK ...maybe that's a

> little too big of a job for the two of us alone!!) I know ......

we

> can make it an annual event and you guys can join us too!! We

> can " paint it " a little at a time! What do ya' say?? I can see

the

> headlines now ......... " Colon Cancer Survivors Seige Sin City! " ;-

> ) LOL!!

>

> Love and Hugs to all!

> Donna Sisco